Health Anxiety

[[1o...]]

There is a support group for health anxiety on facebook. I cant look at it all the time because it just makes it worse for me but it is a relief to know we are not alone in feeling anxious over our health. I struggle daily.

[[fi...]]

Here's a Dr. Seuss spoof I wrote in the middle of worst part of my taper. Hopefully it will make you chuckle. Funny thing is--I wasn't joking!!!

 

Oh, The Diseases You Have!

 

Apologies!

Today you’re okay.

You’re probably dying

But not right away

 

Pain in your pelvis?

Unable to pee?

It could be your prostrate

Or nothing, you see

 

You’re probably right. It’s just an infection!

But what’s going on with your loss of erection?

 

Your fingers are numb

Your feet are all crimson

It’s worse in the shower

A curious symptom

 

Your suffering seems to be worse when it’s hot

Ninety degrees and a nose full of snot

Your skin is so itchy, your vision’s been blurry

Feeling off-balance? Try not to worry

 

Try to stay calm, no need to obsess

A good MRI can rule out MS

But if it’s too early, it could stand to reason

That you DO have MS, but don’t yet have lesions

 

You could have Raynauds, man, it’s probably harmless

But along with your symptoms, you could end up armless

That tingling? It could mean your blood flow’s restricted

Or maybe it’s something much worse than predicted

 

Pain? In your leg? When you rest, is it sore?

It throbs? Oh, man, you didn’t say THAT before.

You’ve lost how much weight? It could be arthritis

But at your age, it’s time to consider phlebitis

 

Or Lupus, Sclerdoma, Celiac or Spondylitis

Hashimoto’s, Grave’s, or perhaps Cholangitis

There’s swelling? How bad? Like a hot air balloon?

If you’re a woman, it’s auto-immune.

 

Of course, see your doctor, get your blood work today

RNP, ESR, don’t forget ANA

And if it comes back with a positive score

Try to stay calm, get yourself off the floor.

These results can change daily, week to week, year to year

No reason to worry, but SO much to fear

 

You’ll be in a wheelchair!

Or supine in bed!

You’ll be in a Medvac

Or maybe just dead.

 

There’s that lump on your foot, a likely Neuroma

But what if, in fact, it’s a tissue sarcoma?

 

With fear in your heart

You’ll look for an answer

But don’t Google that!

No Band-aid for cancer

 

A click of the mouse, the whole room is spinning

Psychosomatic? It’s just the beginning

No doubt you feel stiffer, so long flexibility

Forgot your kid’s birthday? HELLO senility!

 

But YOU won’t do nothing, because YOU are invested

In being proactive, and being well-tested

Whatever your symptoms, whatever you get

You’ll find the answers, they’re all on the Net

 

Except when you don’t

Because, sometimes you won’t

I’m sorry to say so

But, sadly it’s true

 

Sometimes your hands will be green or just blue

Sometimes you’ll be dizzy, or sweaty or yellow

And sometimes your body will feel like it’s Jello

It could just be a cold, or a sinus infection

But nothing says YOU like early detection

 

And should you come out of that dark, doomy place

And realize your worries have all been misplaced

Rejoice in your fortune, enjoy your condition

And remember how little you like your physician

 

For what does he know of a panic attack?

Of the pain he inflicts when he won’t call you back?

He hooks you on drugs of every variety

And tells you your symptoms are all from anxiety.

 

Meditation might help, taking deep breaths

Nothing like quiet, to tick off the deaths

Of all those good friends, you used to adore

Who had some odd symptom, they chose to ignore

 

That little black mole, adorning Sue’s cheek

The day Tim went skiing, despite feeling weak

The case of the runs, the blood in Ron’s stool

But you’re here to stay, cause you’re nobody’s fool!

 

So congratulations!

You might be okay.

You’re definitely dying

But perhaps not today!

 

OMG THIS IS GENIUS!! HILARIOUS!!

[[Ca...]]

That was a real treat

[[Re...]]

Last week has been hard for me health anxiety wise. I have been convinced I am dying . You know how all the symptoms mimic serious illnesses and alll that. At this point though I am really wondering I maybe I have developed a serious illness.

 

I wish I could just go to the doctors and have a bunch of tests done to see if any things wrong. The only health care I can get is the community health er and you end up waiting 3-5 hours there Usaully since there are som,any people without insurance and the health care they offer is minimal .there not gonna want to run all the test .  Most likely end up giving you some kind of medication and pushing you out the door.

 

Been trying to get on state insurance ,but my wife makes 169$ too much.....

 

I keep thinking I am just gonna die from something. I also think maybe my symptoms are just changing again ... Who knows? Symptoms or real illness feel the same.

[[Bu...]]

Dear Remy,

 

So sorry to hear that you are plagued with the recurring thoughts and feelings of impending doom and serious illness. There have been so many things posted since you started this thread by many of us who know how you feel. We have been there, many have now overcome those feelings entirely and are completely healed. Please re-read the positive ones.

 

Please just try to understand a few things:

 

This is ALL related to the damage that was done by benzos, it WILL pass, you will heal.

 

Thoughts are things and can manifest within the body... If you close your eyes and imagine that you are biting in to a nice big juicy sour lemon, within seconds you will begin to salivate. This is the mind causing a physical response in the body. Quite amazing! 

 

Allow only good thoughts to dwell within your mind. Keep saying "I know I am healing, this is part of it, I am otherwise in good physical health, this will pass."

 

Make peace with God, we all will meet him again in due time, no avoiding it. Could be today but most probably not, you have many many wonderful years ahead of you... Forgive everyone and mostly yourself. Count all of your blessings and develop a posture of deep gratitude for everything in your life, even the challenges, that is how we learn and grow.

 

A rapid pulse or even chest pain is part of this, it won't hurt you. When it occurs get up and do something lightly physical like walking or dancing. 

 

I am sure that you have had many tests done, hopefully they were all negative of real health concerns. Trust That! What you are experiencing is benzo wd issues, that's all, they will pass.

 

I am sending you my prayers and best wishes. Peace to you my friend,

 

 

Wilson 

 

PS: 200mg of Theanine 2 or 3 times day works wonders for anxiety from WD. Check with Doc... 

[[...]]

Here's a Dr. Seuss spoof I wrote in the middle of worst part of my taper. Hopefully it will make you chuckle. Funny thing is--I wasn't joking!!!

 

Oh, The Diseases You Have!

 

Apologies!

Today you’re okay.

You’re probably dying

But not right away

 

Pain in your pelvis?

Unable to pee?

It could be your prostrate

Or nothing, you see

 

You’re probably right. It’s just an infection!

But what’s going on with your loss of erection?

 

Your fingers are numb

Your feet are all crimson

It’s worse in the shower

A curious symptom

 

Your suffering seems to be worse when it’s hot

Ninety degrees and a nose full of snot

Your skin is so itchy, your vision’s been blurry

Feeling off-balance? Try not to worry

 

Try to stay calm, no need to obsess

A good MRI can rule out MS

But if it’s too early, it could stand to reason

That you DO have MS, but don’t yet have lesions

 

You could have Raynauds, man, it’s probably harmless

But along with your symptoms, you could end up armless

That tingling? It could mean your blood flow’s restricted

Or maybe it’s something much worse than predicted

 

Pain? In your leg? When you rest, is it sore?

It throbs? Oh, man, you didn’t say THAT before.

You’ve lost how much weight? It could be arthritis

But at your age, it’s time to consider phlebitis

 

Or Lupus, Sclerdoma, Celiac or Spondylitis

Hashimoto’s, Grave’s, or perhaps Cholangitis

There’s swelling? How bad? Like a hot air balloon?

If you’re a woman, it’s auto-immune.

 

Of course, see your doctor, get your blood work today

RNP, ESR, don’t forget ANA

And if it comes back with a positive score

Try to stay calm, get yourself off the floor.

These results can change daily, week to week, year to year

No reason to worry, but SO much to fear

 

You’ll be in a wheelchair!

Or supine in bed!

You’ll be in a Medvac

Or maybe just dead.

 

There’s that lump on your foot, a likely Neuroma

But what if, in fact, it’s a tissue sarcoma?

 

With fear in your heart

You’ll look for an answer

But don’t Google that!

No Band-aid for cancer

 

A click of the mouse, the whole room is spinning

Psychosomatic? It’s just the beginning

No doubt you feel stiffer, so long flexibility

Forgot your kid’s birthday? HELLO senility!

 

But YOU won’t do nothing, because YOU are invested

In being proactive, and being well-tested

Whatever your symptoms, whatever you get

You’ll find the answers, they’re all on the Net

 

Except when you don’t

Because, sometimes you won’t

I’m sorry to say so

But, sadly it’s true

 

Sometimes your hands will be green or just blue

Sometimes you’ll be dizzy, or sweaty or yellow

And sometimes your body will feel like it’s Jello

It could just be a cold, or a sinus infection

But nothing says YOU like early detection

 

And should you come out of that dark, doomy place

And realize your worries have all been misplaced

Rejoice in your fortune, enjoy your condition

And remember how little you like your physician

 

For what does he know of a panic attack?

Of the pain he inflicts when he won’t call you back?

He hooks you on drugs of every variety

And tells you your symptoms are all from anxiety.

 

Meditation might help, taking deep breaths

Nothing like quiet, to tick off the deaths

Of all those good friends, you used to adore

Who had some odd symptom, they chose to ignore

 

That little black mole, adorning Sue’s cheek

The day Tim went skiing, despite feeling weak

The case of the runs, the blood in Ron’s stool

But you’re here to stay, cause you’re nobody’s fool!

 

So congratulations!

You might be okay.

You’re definitely dying

But perhaps not today!

 

OMG THIS IS GENIUS!! HILARIOUS!!

 

Brilliant and hilarious! Thank you for that! You're quite the poet 

On a more serious note... I worry all the time about my kidneys because they burn, in fact my whole spine burns ,must be nerves firing or damaged or what. Anyway ,met neve goes away and I worry about it constantly . Anyone else have spine / kidney burning ! 

[[bo...]]

Last week has been hard for me health anxiety wise. I have been convinced I am dying . You know how all the symptoms mimic serious illnesses and alll that. At this point though I am really wondering I maybe I have developed a serious illness.

 

I wish I could just go to the doctors and have a bunch of tests done to see if any things wrong. The only health care I can get is the community health er and you end up waiting 3-5 hours there Usaully since there are som,any people without insurance and the health care they offer is minimal .there not gonna want to run all the test .  Most likely end up giving you some kind of medication and pushing you out the door.

 

Hey Remy

 

Hang on on in there .. it's a difficult time ..

Different things work for different people .. two of the tactics I use are

 

... did I have this sympton before withdrawal ?

 

And

 

... is it worse better or the same after five days ... that's one seems to work well for me..

but like anything somedays nothing works at all ..

 

Just do the best you can my friend

 

 

 

 

[[fi...]]

Here's a Dr. Seuss spoof I wrote in the middle of worst part of my taper. Hopefully it will make you chuckle. Funny thing is--I wasn't joking!!!

 

Oh, The Diseases You Have!

 

Apologies!

Today you’re okay.

You’re probably dying

But not right away

 

Pain in your pelvis?

Unable to pee?

It could be your prostrate

Or nothing, you see

 

You’re probably right. It’s just an infection!

But what’s going on with your loss of erection?

 

Your fingers are numb

Your feet are all crimson

It’s worse in the shower

A curious symptom

 

Your suffering seems to be worse when it’s hot

Ninety degrees and a nose full of snot

Your skin is so itchy, your vision’s been blurry

Feeling off-balance? Try not to worry

 

Try to stay calm, no need to obsess

A good MRI can rule out MS

But if it’s too early, it could stand to reason

That you DO have MS, but don’t yet have lesions

 

You could have Raynauds, man, it’s probably harmless

But along with your symptoms, you could end up armless

That tingling? It could mean your blood flow’s restricted

Or maybe it’s something much worse than predicted

 

Pain? In your leg? When you rest, is it sore?

It throbs? Oh, man, you didn’t say THAT before.

You’ve lost how much weight? It could be arthritis

But at your age, it’s time to consider phlebitis

 

Or Lupus, Sclerdoma, Celiac or Spondylitis

Hashimoto’s, Grave’s, or perhaps Cholangitis

There’s swelling? How bad? Like a hot air balloon?

If you’re a woman, it’s auto-immune.

 

Of course, see your doctor, get your blood work today

RNP, ESR, don’t forget ANA

And if it comes back with a positive score

Try to stay calm, get yourself off the floor.

These results can change daily, week to week, year to year

No reason to worry, but SO much to fear

 

You’ll be in a wheelchair!

Or supine in bed!

You’ll be in a Medvac

Or maybe just dead.

 

There’s that lump on your foot, a likely Neuroma

But what if, in fact, it’s a tissue sarcoma?

 

With fear in your heart

You’ll look for an answer

But don’t Google that!

No Band-aid for cancer

 

A click of the mouse, the whole room is spinning

Psychosomatic? It’s just the beginning

No doubt you feel stiffer, so long flexibility

Forgot your kid’s birthday? HELLO senility!

 

But YOU won’t do nothing, because YOU are invested

In being proactive, and being well-tested

Whatever your symptoms, whatever you get

You’ll find the answers, they’re all on the Net

 

Except when you don’t

Because, sometimes you won’t

I’m sorry to say so

But, sadly it’s true

 

Sometimes your hands will be green or just blue

Sometimes you’ll be dizzy, or sweaty or yellow

And sometimes your body will feel like it’s Jello

It could just be a cold, or a sinus infection

But nothing says YOU like early detection

 

And should you come out of that dark, doomy place

And realize your worries have all been misplaced

Rejoice in your fortune, enjoy your condition

And remember how little you like your physician

 

For what does he know of a panic attack?

Of the pain he inflicts when he won’t call you back?

He hooks you on drugs of every variety

And tells you your symptoms are all from anxiety.

 

Meditation might help, taking deep breaths

Nothing like quiet, to tick off the deaths

Of all those good friends, you used to adore

Who had some odd symptom, they chose to ignore

 

That little black mole, adorning Sue’s cheek

The day Tim went skiing, despite feeling weak

The case of the runs, the blood in Ron’s stool

But you’re here to stay, cause you’re nobody’s fool!

 

So congratulations!

You might be okay.

You’re definitely dying

But perhaps not today!

 

 

 

I'm sorry, its me again - I just can't stop reading this and laughing till I cry; my best friend is a published author and she too called it GENIUS - I've read it to countless friends who know what I'm going through - thank you for this gift!!!!!

[[bo...]]

Hey Remy

 

How are you ? Hope your day/ evening haven't been too bad ..

Thinking of you

BB x

[[Re...]]

Hey Remy

 

How are you ? Hope your day/ evening haven't been too bad ..

Thinking of you

BB x

 

I am doing a lot better than I was earlier in the day. That is the life of recovery . One minute your convinced your dying the next you playing with your daughter at a park. ( I had one of the best Windows yet today)

 

I also got state health insurance . It took up half my day sorting out the mess of state health cAre. They had me jumping through all kinds of hoops. Basically I found a lady who would work with me even though our income was slightly over. Apparently all it took was putting my wife's school books into our expenses to get me insurance.

 

So that's a big relief for me. Knowing if I do end up needing to go to the er I won't owe a arm and a leg. I made a appointment Monday to begin the process of ruling out serious health issues. I am weary to deal with doctors again, but I know ,once I know what I am experiencing is just withdrawel . My health anxiety will decrease tremendously. It will be increased though while I am waiting on test results and all of that, but that's what I have you guys for ! 

 

 

Thanks for being there bb ! You rock!

[[fi...]]

Last week has been hard for me health anxiety wise. I have been convinced I am dying . You know how all the symptoms mimic serious illnesses and alll that. At this point though I am really wondering I maybe I have developed a serious illness.

 

I wish I could just go to the doctors and have a bunch of tests done to see if any things wrong. The only health care I can get is the community health er and you end up waiting 3-5 hours there Usaully since there are som,any people without insurance and the health care they offer is minimal .there not gonna want to run all the test .  Most likely end up giving you some kind of medication and pushing you out the door.

 

Been trying to get on state insurance ,but my wife makes 169$ too much.....

 

I keep thinking I am just gonna die from something. I also think maybe my symptoms are just changing again ... Who knows? Symptoms or real illness feel the same.

 

Remy - While it's true I am NO Dr. - I did do a very rapid taper and was in severe post acute for 3 months - I experienced, to the worst degree and 24/7 (because there was ZERO sleep) the following: Panic attacks, chemical terror, hypochondria, crazy high blood pressures, rapid pulse, squeezing of my brain sensation, prickling all over my body especially my back, hypothermia - read: my toes were BLUE, arthritis so bad I couldn't text, Depersonalization, Derealization, (out of body sensation, unable to connect with myself or my brain) cognitive fog to the point that  I couldn't put a sentence together. I couldn't make a simple to do list.....I got lost in the same Whole Foods I've shopped in for 10 years - I lost my car in parking lots 4 or 5 times...... horrific burning sensations that would come out of nowhere and felt like someone was putting a cigar out on the inside of my skin, restless legs, i had to stop my car over and over to stand up and jump up and down, Horrific vertigo; i should NEVER have driven like that....... back pain, jaw pain, leg cramps, word retrieval issues (as in I couldn't come up with a word like "wagon" (communicating became something out of a sick rendition of a game of charades - sounds like, looks like, its food, brown), difficulty pronouncing words (I still can't pronounce "particularly") dizziness and awful balance issues, severe and rapid weight loss.......the list goes on.  I had no idea that I was in withdrawal, the cognitive deficits I had came on so quickly I could never connect it to the taper - I thought I had a brain tumor, my husband thought I had lost my mind.....My body turned into a torture chamber that I couldn't escape bc there was no sleep......My Dr never warned me of the symptoms, I knew nothing about these drugs, had never researched them and had done a 4 month dr. devised taper - my symptoms came on 3 weeks post my last dose - 3 months later I landed in the ER with sky high blood pressures - when I left the Dr gave me Ativan "because you seem anxious and maybe it will bring down your blood pressure" - I took 2 doses and EVERY SINGLE SYMPTOM VANISHED.......I post this not to scare anyone but bc I hope it gives you some sort of frame of reference - or comfort - I'm not saying you shouldn't have your symptoms checked out - but I hope this at least eases your mind

 

I'm so sorry that you are feeling so awful - its an awful road......if you can get some tests run to make you feel better, please do - but I just wanted to put that in plain black and white for you to read right here - I hope it helps.....

 

FFML

[[Re...]]

Last week has been hard for me health anxiety wise. I have been convinced I am dying . You know how all the symptoms mimic serious illnesses and alll that. At this point though I am really wondering I maybe I have developed a serious illness.

 

I wish I could just go to the doctors and have a bunch of tests done to see if any things wrong. The only health care I can get is the community health er and you end up waiting 3-5 hours there Usaully since there are som,any people without insurance and the health care they offer is minimal .there not gonna want to run all the test .  Most likely end up giving you some kind of medication and pushing you out the door.

 

Been trying to get on state insurance ,but my wife makes 169$ too much.....

 

I keep thinking I am just gonna die from something. I also think maybe my symptoms are just changing again ... Who knows? Symptoms or real illness feel the same.

 

Remy - While it's true I am NO Dr. - I did do a very rapid taper and was in severe post acute for 3 months - I experienced, to the worst degree and 24/7 (because there was ZERO sleep) the following: Panic attacks, chemical terror, hypochondria, crazy high blood pressures, rapid pulse, squeezing of my brain sensation, prickling all over my body especially my back, hypothermia - read: my toes were BLUE, arthritis so bad I couldn't text, Depersonalization, Derealization, (out of body sensation, unable to connect with myself or my brain) cognitive fog to the point that  I couldn't put a sentence together. I couldn't make a simple to do list.....I got lost in the same Whole Foods I've shopped in for 10 years - I lost my car in parking lots 4 or 5 times...... horrific burning sensations that would come out of nowhere and felt like someone was putting a cigar out on the inside of my skin, restless legs, i had to stop my car over and over to stand up and jump up and down, Horrific vertigo; i should NEVER have driven like that....... back pain, jaw pain, leg cramps, word retrieval issues (as in I couldn't come up with a word like "wagon" (communicating became something out of a sick rendition of a game of charades - sounds like, looks like, its food, brown), difficulty pronouncing words (I still can't pronounce "particularly") dizziness and awful balance issues, severe and rapid weight loss.......the list goes on.  I had no idea that I was in withdrawal, the cognitive deficits I had came on so quickly I could never connect it to the taper - I thought I had a brain tumor, my husband thought I had lost my mind.....My body turned into a torture chamber that I couldn't escape bc there was no sleep......My Dr never warned me of the symptoms, I knew nothing about these drugs, had never researched them and had done a 4 month dr. devised taper - my symptoms came on 3 weeks post my last dose - 3 months later I landed in the ER with sky high blood pressures - when I left the Dr gave me Ativan "because you seem anxious and maybe it will bring down your blood pressure" - I took 2 doses and EVERY SINGLE SYMPTOM VANISHED.......I post this not to scare anyone but bc I hope it gives you some sort of frame of reference - or comfort - I'm not saying you shouldn't have your symptoms checked out - but I hope this at least eases your mind

 

I'm so sorry that you are feeling so awful - its an awful road......if you can get some tests run to make you feel better, please do - but I just wanted to put that in plain black and white for you to read right here - I hope it helps.....

 

FFML

 

Wow ! Wow!! Wow!!!

 

Thank you so much for sharing this. It really helps me put my mind at ease.

 

 

[[bo...]]

Good to hear you had some windows today . You're so right .. you just don't know from one minute to the next.. next week Iam seeing my heart check in and will feel a lot better after that I''m sure. Well either that or I really will have something to worry about!! Better than the imagination though !!

Hope the next few days you have more windows..

 

BB.

[[fi...]]

Oh and Remy I forgot - Heart palps and feeling that my heart was turning over......I know there is more - and at 3 months post jump I was getting WORSE - not better.....

 

I do hope that helps

 

Good night everyone!

 

 

[[Ca...]]

How do you feel about having reinstated?  I ask because I have thought about it.  I have also thought about taking a whopping dose of something to see if my symptoms go away.  Now I don't have to do that.

[[fi...]]

How do you feel about having reinstated?  I ask because I have thought about it.  I have also thought about taking a whopping dose of something to see if my symptoms go away.  Now I don't have to do that.

 

Carol Jean, is this question for me (I'm assuming)?

[[Ca...]]

yes for fightformylife

 

thanks!

[[fi...]]

yes for fightformylife

 

thanks!

 

Sorry - Just wanted to be sure before I jumped out there as if the world revolved around my posts!

 

I can't really answer that - I guess I won't know until I see how this taper goes - I think I regret reinstating because that was almost exactly a year ago (early December) and I have to wonder if I would be well now........I was reinstated quite by accident.....(I'm about to create a Blog so that others can read my story, its complicated) - I didn't know that I was in withdrawal - and I was terrified when I realized - This taper has been much worse - am I "kindled"? (and that each subsequent taper will be worse and worse) Who knows - there seems to be a lot of controversy on the subject but I tend to believe that I am.......I can't give you advice obviously -

 

I need to add to my symptoms above - intense sensitivity to light, noise and touch, showers were painful, dry eyes, blurry vision,black spots in the corners of my vision, tracers in my vision and shortness of breath - there are more.......I looked up Ashtons entire list of all possible symptoms and I think I had every one other than "homicidal rage" or something like that......

 

What are your symptoms now? How many times have you gotten completely off and reinstated or have you?

[[Pl...]]

Last week has been hard for me health anxiety wise. I have been convinced I am dying . You know how all the symptoms mimic serious illnesses and alll that. At this point though I am really wondering I maybe I have developed a serious illness.

 

I wish I could just go to the doctors and have a bunch of tests done to see if any things wrong. The only health care I can get is the community health er and you end up waiting 3-5 hours there Usaully since there are som,any people without insurance and the health care they offer is minimal .there not gonna want to run all the test .  Most likely end up giving you some kind of medication and pushing you out the door.

 

Been trying to get on state insurance ,but my wife makes 169$ too much.....

 

I keep thinking I am just gonna die from something. I also think maybe my symptoms are just changing again ... Who knows? Symptoms or real illness feel the same.

 

Remy - While it's true I am NO Dr. - I did do a very rapid taper and was in severe post acute for 3 months - I experienced, to the worst degree and 24/7 (because there was ZERO sleep) the following: Panic attacks, chemical terror, hypochondria, crazy high blood pressures, rapid pulse, squeezing of my brain sensation, prickling all over my body especially my back, hypothermia - read: my toes were BLUE, arthritis so bad I couldn't text, Depersonalization, Derealization, (out of body sensation, unable to connect with myself or my brain) cognitive fog to the point that  I couldn't put a sentence together. I couldn't make a simple to do list.....I got lost in the same Whole Foods I've shopped in for 10 years - I lost my car in parking lots 4 or 5 times...... horrific burning sensations that would come out of nowhere and felt like someone was putting a cigar out on the inside of my skin, restless legs, i had to stop my car over and over to stand up and jump up and down, Horrific vertigo; i should NEVER have driven like that....... back pain, jaw pain, leg cramps, word retrieval issues (as in I couldn't come up with a word like "wagon" (communicating became something out of a sick rendition of a game of charades - sounds like, looks like, its food, brown), difficulty pronouncing words (I still can't pronounce "particularly") dizziness and awful balance issues, severe and rapid weight loss.......the list goes on.  I had no idea that I was in withdrawal, the cognitive deficits I had came on so quickly I could never connect it to the taper - I thought I had a brain tumor, my husband thought I had lost my mind.....My body turned into a torture chamber that I couldn't escape bc there was no sleep......My Dr never warned me of the symptoms, I knew nothing about these drugs, had never researched them and had done a 4 month dr. devised taper - my symptoms came on 3 weeks post my last dose - 3 months later I landed in the ER with sky high blood pressures - when I left the Dr gave me Ativan "because you seem anxious and maybe it will bring down your blood pressure" - I took 2 doses and EVERY SINGLE SYMPTOM VANISHED.......I post this not to scare anyone but bc I hope it gives you some sort of frame of reference - or comfort - I'm not saying you shouldn't have your symptoms checked out - but I hope this at least eases your mind

 

I'm so sorry that you are feeling so awful - its an awful road......if you can get some tests run to make you feel better, please do - but I just wanted to put that in plain black and white for you to read right here - I hope it helps.....

 

FFML

 

Ffml.... Oh my gosh..... I have all of this and so much more!!!!!!! It was getting progressively worse at 10 months which is why I started again but on the k....to stop the glutamate storm....

 

You are the closest I have come upon that has had alot of my sxs..... I had head to toe body jerking , contractions, tremors... Parkinson's like movements in my head.... Td on my face.... Mini convulsions during my period..(seizure type limb movements from my head to jaw) unable to use legs..... Severe eye closure spasms.....  mouth movements.....rls..... Teeth chattering..... shortness of breath...  Nerve and muscles pain.... Head pressure...Nightmares EVERY NIGHT...akasthesia chemical anxiety.... Distotred vision.... uncontrollable eye movements. Heart being squeezed with my whole head.....dizziness.... Visible head swaying...... i could go on....I still have all of these and I have  to do this again.... How?  I waited too long and the injury is here....

 

I am lacking strength to endure this again.... I feel I can't do it....... But at least I know someone else.... I am so glad you were able to curtail some of it... You didn't wait too long like me....

 

Thank you for sharing your story...

 

Remy..... I know how you're feeling...and I too am sorry for the pain and suffering.... :'(

 

I wish I could be uplifting more than anything so that I could help others here.....as you can see, the fear of my own suffering keeps me locked in chains....

 

I also want to say that I don't want to scare anyone with my sxs either......I did this all wrong.... Uninformed, bad genetics metabolizing meds... Hypersensitive.......this is not typical so please anyone reading this will not be you!!!!!!!

 

 

 

[[fi...]]

Last week has been hard for me health anxiety wise. I have been convinced I am dying . You know how all the symptoms mimic serious illnesses and alll that. At this point though I am really wondering I maybe I have developed a serious illness.

 

I wish I could just go to the doctors and have a bunch of tests done to see if any things wrong. The only health care I can get is the community health er and you end up waiting 3-5 hours there Usaully since there are som,any people without insurance and the health care they offer is minimal .there not gonna want to run all the test .  Most likely end up giving you some kind of medication and pushing you out the door.

 

Been trying to get on state insurance ,but my wife makes 169$ too much.....

 

I keep thinking I am just gonna die from something. I also think maybe my symptoms are just changing again ... Who knows? Symptoms or real illness feel the same.

 

Remy - While it's true I am NO Dr. - I did do a very rapid taper and was in severe post acute for 3 months - I experienced, to the worst degree and 24/7 (because there was ZERO sleep) the following: Panic attacks, chemical terror, hypochondria, crazy high blood pressures, rapid pulse, squeezing of my brain sensation, prickling all over my body especially my back, hypothermia - read: my toes were BLUE, arthritis so bad I couldn't text, Depersonalization, Derealization, (out of body sensation, unable to connect with myself or my brain) cognitive fog to the point that  I couldn't put a sentence together. I couldn't make a simple to do list.....I got lost in the same Whole Foods I've shopped in for 10 years - I lost my car in parking lots 4 or 5 times...... horrific burning sensations that would come out of nowhere and felt like someone was putting a cigar out on the inside of my skin, restless legs, i had to stop my car over and over to stand up and jump up and down, Horrific vertigo; i should NEVER have driven like that....... back pain, jaw pain, leg cramps, word retrieval issues (as in I couldn't come up with a word like "wagon" (communicating became something out of a sick rendition of a game of charades - sounds like, looks like, its food, brown), difficulty pronouncing words (I still can't pronounce "particularly") dizziness and awful balance issues, severe and rapid weight loss.......the list goes on.  I had no idea that I was in withdrawal, the cognitive deficits I had came on so quickly I could never connect it to the taper - I thought I had a brain tumor, my husband thought I had lost my mind.....My body turned into a torture chamber that I couldn't escape bc there was no sleep......My Dr never warned me of the symptoms, I knew nothing about these drugs, had never researched them and had done a 4 month dr. devised taper - my symptoms came on 3 weeks post my last dose - 3 months later I landed in the ER with sky high blood pressures - when I left the Dr gave me Ativan "because you seem anxious and maybe it will bring down your blood pressure" - I took 2 doses and EVERY SINGLE SYMPTOM VANISHED.......I post this not to scare anyone but bc I hope it gives you some sort of frame of reference - or comfort - I'm not saying you shouldn't have your symptoms checked out - but I hope this at least eases your mind

 

I'm so sorry that you are feeling so awful - its an awful road......if you can get some tests run to make you feel better, please do - but I just wanted to put that in plain black and white for you to read right here - I hope it helps.....

 

FFML

 

Ffml.... Oh my gosh..... I have all of this and so much more!!!!!!! It was getting progressively worse at 10 months which is why I started again but on the k....to stop the glutamate storm....

 

You are the closest I have come upon that has had alot of my sxs..... I had head to toe body jerking , contractions, tremors... Parkinson's like movements in my head.... Td on my face.... Mini convulsions during my period..(seizure type limb movements from my head to jaw) unable to use legs..... Severe eye closure spasms.....  mouth movements.....rls..... Teeth chattering..... shortness of breath...  Nerve and muscles pain.... Head pressure...Nightmares EVERY NIGHT...akasthesia chemical anxiety.... Distotred vision.... uncontrollable eye movements. Heart being squeezed with my whole head.....dizziness.... Visible head swaying...... i could go on....I still have all of these and I have  to do this again.... How?  I waited too long and the injury is here....

 

I am lacking strength to endure this again.... I feel I can't do it....... But at least I know someone else.... I am so glad you were able to curtail some of it... You didn't wait too long like me....

 

Thank you for sharing your story...

 

Remy..... I know how you're feeling...and I too am sorry for the pain and suffering.... :'(

 

I wish I could be uplifting more than anything so that I could help others here.....as you can see, the fear of my own suffering keeps me locked in chains....

 

I am trying to remain positive - I have found others who were "kindled" or whatever and have gotten off fine - I'm moving to a liquid daily mt but will hold periodically even if I'm not getting worse - I feel like we can do this - and EVERYONE is SO different.......How long did you wait to reinstate - I waited 3 months - I think thats a long time.......

 

[[Pl...]]

Last week has been hard for me health anxiety wise. I have been convinced I am dying . You know how all the symptoms mimic serious illnesses and alll that. At this point though I am really wondering I maybe I have developed a serious illness.

 

I wish I could just go to the doctors and have a bunch of tests done to see if any things wrong. The only health care I can get is the community health er and you end up waiting 3-5 hours there Usaully since there are som,any people without insurance and the health care they offer is minimal .there not gonna want to run all the test .  Most likely end up giving you some kind of medication and pushing you out the door.

 

Been trying to get on state insurance ,but my wife makes 169$ too much.....

 

I keep thinking I am just gonna die from something. I also think maybe my symptoms are just changing again ... Who knows? Symptoms or real illness feel the same.

 

Remy - While it's true I am NO Dr. - I did do a very rapid taper and was in severe post acute for 3 months - I experienced, to the worst degree and 24/7 (because there was ZERO sleep) the following: Panic attacks, chemical terror, hypochondria, crazy high blood pressures, rapid pulse, squeezing of my brain sensation, prickling all over my body especially my back, hypothermia - read: my toes were BLUE, arthritis so bad I couldn't text, Depersonalization, Derealization, (out of body sensation, unable to connect with myself or my brain) cognitive fog to the point that  I couldn't put a sentence together. I couldn't make a simple to do list.....I got lost in the same Whole Foods I've shopped in for 10 years - I lost my car in parking lots 4 or 5 times...... horrific burning sensations that would come out of nowhere and felt like someone was putting a cigar out on the inside of my skin, restless legs, i had to stop my car over and over to stand up and jump up and down, Horrific vertigo; i should NEVER have driven like that....... back pain, jaw pain, leg cramps, word retrieval issues (as in I couldn't come up with a word like "wagon" (communicating became something out of a sick rendition of a game of charades - sounds like, looks like, its food, brown), difficulty pronouncing words (I still can't pronounce "particularly") dizziness and awful balance issues, severe and rapid weight loss.......the list goes on.  I had no idea that I was in withdrawal, the cognitive deficits I had came on so quickly I could never connect it to the taper - I thought I had a brain tumor, my husband thought I had lost my mind.....My body turned into a torture chamber that I couldn't escape bc there was no sleep......My Dr never warned me of the symptoms, I knew nothing about these drugs, had never researched them and had done a 4 month dr. devised taper - my symptoms came on 3 weeks post my last dose - 3 months later I landed in the ER with sky high blood pressures - when I left the Dr gave me Ativan "because you seem anxious and maybe it will bring down your blood pressure" - I took 2 doses and EVERY SINGLE SYMPTOM VANISHED.......I post this not to scare anyone but bc I hope it gives you some sort of frame of reference - or comfort - I'm not saying you shouldn't have your symptoms checked out - but I hope this at least eases your mind

 

I'm so sorry that you are feeling so awful - its an awful road......if you can get some tests run to make you feel better, please do - but I just wanted to put that in plain black and white for you to read right here - I hope it helps.....

 

FFML

 

Ffml.... Oh my gosh..... I have all of this and so much more!!!!!!! It was getting progressively worse at 10 months which is why I started again but on the k....to stop the glutamate storm....

 

You are the closest I have come upon that has had alot of my sxs..... I had head to toe body jerking , contractions, tremors... Parkinson's like movements in my head.... Td on my face.... Mini convulsions during my period..(seizure type limb movements from my head to jaw) unable to use legs..... Severe eye closure spasms.....  mouth movements.....rls..... Teeth chattering..... shortness of breath...  Nerve and muscles pain.... Head pressure...Nightmares EVERY NIGHT...akasthesia chemical anxiety.... Distotred vision.... uncontrollable eye movements. Heart being squeezed with my whole head.....dizziness.... Visible head swaying...... i could go on....I still have all of these and I have  to do this again.... How?  I waited too long and the injury is here....

 

I am lacking strength to endure this again.... I feel I can't do it....... But at least I know someone else.... I am so glad you were able to curtail some of it... You didn't wait too long like me....

 

Thank you for sharing your story...

 

Remy..... I know how you're feeling...and I too am sorry for the pain and suffering.... :'(

 

I wish I could be uplifting more than anything so that I could help others here.....as you can see, the fear of my own suffering keeps me locked in chains....

 

I am trying to remain positive - I have found others who were "kindled" or whatever and have gotten off fine - I'm moving to a liquid daily mt but will hold periodically even if I'm not getting worse - I feel like we can do this - and EVERYONE is SO different.......How long did you wait to reinstate - I waited 3 months - I think thats a long time.......

 

No I consider that a safe zone yet... I've seen a few people do well up to 5 months out...and going back and doing okay....one person after 2 years!!!!

 

I waited 10 months!!!! it was just getting worse and intolerable.... It still is intolerable..... :'(

[[Re...]]

Had my lymph nodes checked out and everything is okay. Also had a bunch of blood work done so I will have to wait and see how that turns out.

[[Ki...]]

Hi Everyone,

 

My health anxiety is getting on my nerves.   

 

I'm very fearful of all meds/pharmaceuticals/supplements since this benzo debacle. Makes sense, right? So now I'm TERRIFIED to get the flu shot....and equally TERRIFIED of not getting it and getting the flu.  Every time someone in my house sneezes I panic and ask them if they feel sick. Is it possible to get on your own nerves? I think it is.

 

Ugh.

[[Ce...]]

Hi Everyone,

 

My health anxiety is getting on my nerves.   

 

I'm very fearful of all meds/pharmaceuticals/supplements since this benzo debacle. Makes sense, right? So now I'm TERRIFIED to get the flu shot....and equally TERRIFIED of not getting it and getting the flu.  Every time someone in my house sneezes I panic and ask them if they feel sick. Is it possible to get on your own nerves? I think it is.

 

Ugh.

 

Yess! I think I'm my own worst enemy at times. I'm getting a flu shot just to be on the safe side, but if you decide not to..be sure to wash your hands a lot, Kiddo. It will help to keep germs out of your system and avoid rubbing your eyes unless your hands are clean.

[[bo...]]

Hi Everyone,

 

My health anxiety is getting on my nerves.   

 

I'm very fearful of all meds/pharmaceuticals/supplements since this benzo debacle. Makes sense, right? So now I'm TERRIFIED to get the flu shot....and equally TERRIFIED of not getting it and getting the flu.  Every time someone in my house sneezes I panic and ask them if they feel sick. Is it possible to get on your own nerves? I think it is.

 

Ugh.

 

Yes I think we'll do get frustrated with ourselves. I had my heart check today .. she was very pleased with things. My BP spiked like it always does at 156/88 when ever near a doctor or specialist.. never mind that I had taken it last week for the whole week three times a day to get an average for her. Never mind that she said she thought my figures were way more accurate..never mind she thought I was way more healthier than last year......all I can fixate on tonight is the 156/88 ..... one reading .... crazy crazy crazy !