Tenacious Tinnitus Club – Ear Pressure, Noise and Hyperacusis

[[so...]]

Cece,

 

I have had thumping pulsatile tinnitus since the day I CT'd the meds.  It was like an unbalanced washing machine load with a couple pairs of tennis shoes inside the drum for about a year.  Then one day it went down to a soft throb.  As of three weeks ago, it is a faint whisper.

 

Don't let posts like the previous one scare you.  I do not know why some people post such things, except to frighten and discourage others with thoughts of doom and gloom.  It certainly serves no other purpose.

 

Please listen to me.  This all goes away.  Not in 5 or 7 years.  If you eat right, steer clear of drugs, supplements, alcohol and weed, withdrawal symptoms will not last this long for the majority of us.  Fear mongering is a dangerous thing.  Block people who thrive on it and wallow in it. 

 

Read positive posts written by people who encourage you and give you hope.  You have nothing to fear.  My tinnitus has pretty much burnt itself out and it was very strong and disturbing.  Even if it ends up being the last symptom to go, it will dampen down gradually over time, or even suddenly, to a manageable level until it completely snuffs itself out.  Mine is almost gone.

 

Sofa

[[Ce...]]

Cece,

 

I have had thumping pulsatile tinnitus since the day I CT'd the meds.  It was like an unbalanced washing machine load with a couple pairs of tennis shoes inside the drum for about a year.  Then one day it went down to a soft throb.  As of three weeks ago, it is a faint whisper.

 

Don't let posts like the previous one scare you.  I do not know why some people post such things, except to frighten and discourage others with thoughts of doom and gloom.  It certainly serves no other purpose.

 

Please listen to me.  This all goes away.  Not in 5 or 7 years.  If you eat right, steer clear of drugs, supplements, alcohol and weed, withdrawal symptoms will not last this long for the majority of us.  Fear mongering is a dangerous thing.  Block people who thrive on it and wallow in it. 

 

Read positive posts written by people who encourage you and give you hope.  You have nothing to fear.  My tinnitus has pretty much burnt itself out and it was very strong and disturbing.  Even if it ends up being the last symptom to go, it will dampen down gradually over time, or even suddenly, to a manageable level until it completely snuffs itself out.  Mine is almost gone.

 

Sofa

 

 

Hi sofa

 

Oh, man!! Thanks. My gawd! I gotta stop believing everything I read! I'm scaring the wits out of myself. I'm so happy to hear your tinnitus success story!! There aren't many of those on here. You made my day, maybe I'll stop worrying so much about it now and allow myself to heal in my own time. Phew! 

[[Gr...]]

Here's a success story of someone who started benzos on order to treat tinnitus, stayed on them 16 years, ct'd a high dose of klonopin, then 16 months later his tinnitus had faded to a faint non-distressing sound. This guy is my hero.

 

http://www.benzobuddies.org/forum/index.php?topic=57868.0

[[Ce...]]

Here's a success story of someone who started benzos on order to treat tinnitus, stayed on them 16 years, ct'd a high dose of klonopin, then 16 months later his tinnitus had faded to a faint non-distressing sound. This guy is my hero.

 

http://www.benzobuddies.org/forum/index.php?topic=57868.0

 

Mine too. What a great story! There is hope afterall! Not that I ever doubted it...

[[Bi...]]

Here's a success story of someone who started benzos on order to treat tinnitus, stayed on them 16 years, ct'd a high dose of klonopin, then 16 months later his tinnitus had faded to a faint non-distressing sound. This guy is my hero.

 

http://www.benzobuddies.org/forum/index.php?topic=57868.0

 

I wish it was as simple as worshiping heros   I tried that for a while and worshiping people did not help my tinnitus :'(    It does get better but it's a really slow process of some of us. 

Best to find coping skills and get into some kind of masking device until healed.

 

 

[[Bi...]]

Cece,

 

I have had thumping pulsatile tinnitus since the day I CT'd the meds.  It was like an unbalanced washing machine load with a couple pairs of tennis shoes inside the drum for about a year.  Then one day it went down to a soft throb.  As of three weeks ago, it is a faint whisper.

 

Don't let posts like the previous one scare you.  I do not know why some people post such things, except to frighten and discourage others with thoughts of doom and gloom.  It certainly serves no other purpose.

 

Please listen to me.  This all goes away.  Not in 5 or 7 years.  If you eat right, steer clear of drugs, supplements, alcohol and weed, withdrawal symptoms will not last this long for the majority of us.  Fear mongering is a dangerous thing.  Block people who thrive on it and wallow in it. 

 

Read positive posts written by people who encourage you and give you hope.  You have nothing to fear.  My tinnitus has pretty much burnt itself out and it was very strong and disturbing.  Even if it ends up being the last symptom to go, it will dampen down gradually over time, or even suddenly, to a manageable level until it completely snuffs itself out.  Mine is almost gone.

 

Sofa

 

Selling hope can be just as dangerous and can lead to despair and resentment once hope fades and anger sets in.  Best to learn to deal with it and find ways to help yourself immediately!  Self empowerment and action can be just as powerful as faith. 

Faith never served me very well in life but I found I could always count on myself, friends, family and my teachers.

 

I wish it was true that everyone had a quick and speedy end to their benzo induced tinnitus.  Unfortunately I have a long PM list of tinnitus friends here at BB and am on other tinnitus forums too.  Sometimes dealing with the problem instead of just waiting for healing is the way to go.

Finding the right masking frequency will melt away your tinnitus and anxiety faster than wax on a hot stove!  I'll take my maskers over a success story any day! Why?  It works immediately!  I will admit while I do heal it's slow going and way slower than people told me it would take.

 

I still like the line Billy Bob Thornton quoted in the movie "BAD SANTA"

"Shit in one hand and hope in the other and see which one fills up faster"

 

If your having a hard time with tinnitus, try white noise, ear buds, mp3 players, blu-tooth hearing aids etc.  This can be your best move over suffering and waiting since the suffering stops very quickly once you find the right sounds, frequencies and volumes.

 

 

 

[[Ce...]]

Here's a success story of someone who started benzos on order to treat tinnitus, stayed on them 16 years, ct'd a high dose of klonopin, then 16 months later his tinnitus had faded to a faint non-distressing sound. This guy is my hero.

 

http://www.benzobuddies.org/forum/index.php?topic=57868.0

 

This is one intense and incredible story, Thanks for sharing the link GJ! 

[[Bi...]]

Here's a success story of someone who started benzos on order to treat tinnitus, stayed on them 16 years, ct'd a high dose of klonopin, then 16 months later his tinnitus had faded to a faint non-distressing sound. This guy is my hero.

 

http://www.benzobuddies.org/forum/index.php?topic=57868.0

 

This is one intense and incredible story, Thanks for sharing the link GJ! 

 

I hope we all get this lucky.

[[2t...]]

I got tinnitus after a failed rapid taper (pretty much the next best thing to C/T) from klonopin as supervised by my Doctor.

During my subsequent slow taper my tinnitus has differing levels of volume, After 4-6 days from a cut all my symptoms get really bad and tinnitus is one of the worst, at these times I use ear buds with the sound of crickets to mask the tinnitus.

The bad symptoms seem to last 3 or 4 days and nights then they moderate down including the tinnitus, it still stays around but I am pretty much able to ignore it if I keep busy and occupied.

I am hoping this schedule keeps up though my taper and at the end although I don't expect the tinnitus to go away I do hope it moderates to where I can mostly ignore it.

I did go to see a specialist in tinnitus and tinnitus retraining therapy some months ago, before starting this taper, his recommendation was to keep on klonopin and up the dose if needed, thanks a bunch Doc.

Reading the tinnitus forums it seems that most people do grow to a state where they can ignore tinnitus and just get on with life, stories that are horrific to start end up with people saying the same as us. "Time will make it better"

[[Bi...]]

I got tinnitus after a failed rapid taper (pretty much the next best thing to C/T) from klonopin as supervised by my Doctor.

During my subsequent slow taper my tinnitus has differing levels of volume, After 4-6 days from a cut all my symptoms get really bad and tinnitus is one of the worst, at these times I use ear buds with the sound of crickets to mask the tinnitus.

The bad symptoms seem to last 3 or 4 days and nights then they moderate down including the tinnitus, it still stays around but I am pretty much able to ignore it if I keep busy and occupied.

I am hoping this schedule keeps up though my taper and at the end although I don't expect the tinnitus to go away I do hope it moderates to where I can mostly ignore it.

I did go to see a specialist in tinnitus and tinnitus retraining therapy some months ago, before starting this taper, his recommendation was to keep on klonopin and up the dose if needed, thanks a bunch Doc.

Reading the tinnitus forums it seems that most people do grow to a state where they can ignore tinnitus and just get on with life, stories that are horrific to start end up with people saying the same as us. "Time will make it better"

 

It's my belief that people should taper no faster than their symptoms allow. 

Funny thing is few people consider tinnitus one of those symptoms especially from those "CUT AND SUFFER" groupies.  Maybe the reason why is if you made a cut and actually waited until the tinnitus healed a taper my take 4 to 6 years.  I say  "so what's wrong with that"?  A symptom is a symptom.

 

Also there is a special component of tinnitus that is unlike all other benzo symptoms.  Taper too fast and it's the one symptom you may not shake so easy since the brain can rewrite the DCN's sound map and your screwed after that point. Tinnitus can become a self fulfilling prophecy the more you experience it.  While some people will and some will not, it all depends on your brain.  Still if you are one of these special unlucky tinnitus prone people take it really slow.  Remember lots of people in this forum never get ANY tinnitus (NONE!) so if your one of the unlucky ones PRONE to tinnitus be extra careful and take your time.

 

Be symptom free before your next cut and that includes tinnitus.  Learn it, love it, live it. 

 

[[fl...]]

I FOUND IT!!!!

FINALLY AN ANSWER FOR ALL OF US  -

 

The cause of fluttering sounds!!!!

 

The cause of the ear pressure, pain, balance problems!!

 

The cause of the clicking sounds!!

 

The cause of the hyperacusis !!

The cause of the  Tinnitus!!

 

ONLY THE tensor tympani muscle can cause and explain ALL of the above SXS!!!!

 

It's a small muscle attached to the malleus bone in the ear call tensor tympani muscle!

 

It goes into many forms of spasm rates in benzo withdrawal from slow to high speed and is part of the bodies early warning system, it's out of control!

 

When people get a lidocain injection in the ear it puts the tensor tympani muscle to sleep and NO MORE TINNITUS,  NO MORE HYPERACUSIS, NO MORE CLICKING OR FLUTTERING!

 

https://www.google.com/search?q=liydocain&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a&channel=nts#channel=nts&q=lidocaine+injection+in+ear+tinnitus&rls=org.mozilla:en-US:official

 

 

tensor tympani syndrome benzodiazepines

https://www.google.com/?gws_rd=ssl#q=tensor+tympani+syndrome+benzodiazepines

 

 

TINNITUS IN BENZO WITHDRAWAL (quick)

 

http://i.imgur.com/Qxm6ayd.gif

 

 

FLUTTERING AND CLICKING IN BENZO WITHDRAWAL (slow)

 

http://i.imgur.com/0fWzBIC.gif

 

 

HYPERACUSIS AND EAR PRESSURE AND PAIN IN BENZO WITHDRAWAL

FROM TIGHT MUSCLE IN FULL CONSTRICTION MAKING EARDRUM VERY TIGHT (continuous contraction)

 

http://i.imgur.com/c3rrbEw.gif

 

 

NOW the question is how to turn off this tiny muscle during withdrawal?

 

I'm thinking local electro simulation.

 

 

This is a very long thread, so I'm going to ask you or anyone else who's read it if any of you went ahead with botox injections or tenotomies of middle ear muscles to cure your sound sensitivity.

 

Hyperacusis is a poorly researched condition and one of the theories is the sensitivity comes from the middle ear instead of elsewhere, like from the brain or from neurpathic pain from the cochlear nerve. There have been reports of both positive and negative experiences with tenotomy, with some saying it saved their lives and others that it caused them patulous eustachian tube issues or fistula or maybe did nothing at all. I've been told there's two thirds chances a tenotomy might work because either one or both the tendons are involved or it's the veli palatini that's in dystonia.

 

I deeply suspect tenotomy would help my sound sensitivity because of how sounds bother me relative to how they're profiled over the background. So a keyboard or a mouse cause a vibration in my ears but if there's a white noise covering them they don't. And these two tendons are involved in that kind of world of unmuffling between the noise and the signal that goes on in the auditory system.

 

Also I have another key dx characteristic that differentiates me from the neuropathic pain type of hyperacusis crowd, which is that I am always feeling and hearing these mini thumps. If you talk to lots of other people with H, they will tell you they feel and hear no thumps or movement at all, just pain.

[[Bi...]]

I FOUND IT!!!!

FINALLY AN ANSWER FOR ALL OF US  -

 

The cause of fluttering sounds!!!!

 

The cause of the ear pressure, pain, balance problems!!

 

The cause of the clicking sounds!!

 

The cause of the hyperacusis !!

The cause of the  Tinnitus!!

 

ONLY THE tensor tympani muscle can cause and explain ALL of the above SXS!!!!

 

It's a small muscle attached to the malleus bone in the ear call tensor tympani muscle!

 

It goes into many forms of spasm rates in benzo withdrawal from slow to high speed and is part of the bodies early warning system, it's out of control!

 

When people get a lidocain injection in the ear it puts the tensor tympani muscle to sleep and NO MORE TINNITUS,  NO MORE HYPERACUSIS, NO MORE CLICKING OR FLUTTERING!

 

https://www.google.com/search?q=liydocain&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a&channel=nts#channel=nts&q=lidocaine+injection+in+ear+tinnitus&rls=org.mozilla:en-US:official

 

 

tensor tympani syndrome benzodiazepines

https://www.google.com/?gws_rd=ssl#q=tensor+tympani+syndrome+benzodiazepines

 

 

TINNITUS IN BENZO WITHDRAWAL (quick)

 

http://i.imgur.com/Qxm6ayd.gif

 

 

FLUTTERING AND CLICKING IN BENZO WITHDRAWAL (slow)

 

http://i.imgur.com/0fWzBIC.gif

 

 

HYPERACUSIS AND EAR PRESSURE AND PAIN IN BENZO WITHDRAWAL

FROM TIGHT MUSCLE IN FULL CONSTRICTION MAKING EARDRUM VERY TIGHT (continuous contraction)

 

http://i.imgur.com/c3rrbEw.gif

 

 

NOW the question is how to turn off this tiny muscle during withdrawal?

 

I'm thinking local electro simulation.

 

 

This is a very long thread, so I'm going to ask you or anyone else who's read it if any of you went ahead with botox injections or tenotomies of middle ear muscles to cure your sound sensitivity.

 

Hyperacusis is a poorly researched condition and one of the theories is the sensitivity comes from the middle ear instead of elsewhere, like from the brain or from neurpathic pain from the cochlear nerve. There have been reports of both positive and negative experiences with tenotomy, with some saying it saved their lives and others that it caused them patulous eustachian tube issues or fistula or maybe did nothing at all. I've been told there's two thirds chances a tenotomy might work because either one or both the tendons are involved or it's the veli palatini that's in dystonia.

 

I deeply suspect tenotomy would help my sound sensitivity because of how sounds bother me relative to how they're profiled over the background. So a keyboard or a mouse cause a vibration in my ears but if there's a white noise covering them they don't. And these two tendons are involved in that kind of world of unmuffling between the noise and the signal that goes on in the auditory system.

 

Also I have another key dx characteristic that differentiates me from the neuropathic pain type of hyperacusis crowd, which is that I am always feeling and hearing these mini thumps. If you talk to lots of other people with H, they will tell you they feel and hear no thumps or movement at all, just pain.

 

I had a shot of Botox in my Eustachian tubes.  The first two days I had a VERY stuffy nose and dry mouth but the ear pain, ear pressure, head pressure, clicking, hyperacusis, fluttering Etc. was gone in 48 hours flat!!  It's all from the tensor tympani going haywire! The hyperacusis is from the ear drum being pulled so radically tight which makes sounds 1000X louder and its really painful.  If you have hyperacusis with no ear pain then it could be your middle brain flaring up and botox with not help. 

I never needed a second shot so it kind of cured me.  Now the tinnitus is a different story, no help there.

 

If your afraid of Botox an E.N.T. will be more than happy to give you a shot of Lidocaine in your Eustachian tube and it works the same and the effect is gone in 30 minutes.  This may be a good first step before Botox and will give you the answer your looking for.

Get ready for 30 minutes of absolute heaven!!!  My Lidocaine shot was the most wonderful window I ever had during acute :thumbsup:

 

I told the doc to keep me hooked up to a bag of Lidocaine drip for the next 5 years PLEASE!

He cleverly replied  "Ever heard of Michael Jackson"?  I guess the answer was "NO" 

 

http://i.imgur.com/B8eE93o.jpg

 

http://i.imgur.com/s4f3xUz.jpg

 

http://i.imgur.com/NOwXZDZ.jpg

[[Bi...]]

Just for kicks

 

http://www.newswise.com/articles/lidocaine-relieves-tinnitus-sufferers

[[Ce...]]

I FOUND IT!!!!

FINALLY AN ANSWER FOR ALL OF US  -

 

The cause of fluttering sounds!!!!

 

The cause of the ear pressure, pain, balance problems!!

 

The cause of the clicking sounds!!

 

The cause of the hyperacusis !!

The cause of the  Tinnitus!!

 

ONLY THE tensor tympani muscle can cause and explain ALL of the above SXS!!!!

 

It's a small muscle attached to the malleus bone in the ear call tensor tympani muscle!

 

It goes into many forms of spasm rates in benzo withdrawal from slow to high speed and is part of the bodies early warning system, it's out of control!

 

When people get a lidocain injection in the ear it puts the tensor tympani muscle to sleep and NO MORE TINNITUS,  NO MORE HYPERACUSIS, NO MORE CLICKING OR FLUTTERING!

 

https://www.google.com/search?q=liydocain&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a&channel=nts#channel=nts&q=lidocaine+injection+in+ear+tinnitus&rls=org.mozilla:en-US:official

 

 

tensor tympani syndrome benzodiazepines

https://www.google.com/?gws_rd=ssl#q=tensor+tympani+syndrome+benzodiazepines

 

 

TINNITUS IN BENZO WITHDRAWAL (quick)

 

http://i.imgur.com/Qxm6ayd.gif

 

 

FLUTTERING AND CLICKING IN BENZO WITHDRAWAL (slow)

 

http://i.imgur.com/0fWzBIC.gif

 

 

HYPERACUSIS AND EAR PRESSURE AND PAIN IN BENZO WITHDRAWAL

FROM TIGHT MUSCLE IN FULL CONSTRICTION MAKING EARDRUM VERY TIGHT (continuous contraction)

 

http://i.imgur.com/c3rrbEw.gif

 

 

NOW the question is how to turn off this tiny muscle during withdrawal?

 

I'm thinking local electro simulation.

 

 

This is a very long thread, so I'm going to ask you or anyone else who's read it if any of you went ahead with botox injections or tenotomies of middle ear muscles to cure your sound sensitivity.

 

Hyperacusis is a poorly researched condition and one of the theories is the sensitivity comes from the middle ear instead of elsewhere, like from the brain or from neurpathic pain from the cochlear nerve. There have been reports of both positive and negative experiences with tenotomy, with some saying it saved their lives and others that it caused them patulous eustachian tube issues or fistula or maybe did nothing at all. I've been told there's two thirds chances a tenotomy might work because either one or both the tendons are involved or it's the veli palatini that's in dystonia.

 

I deeply suspect tenotomy would help my sound sensitivity because of how sounds bother me relative to how they're profiled over the background. So a keyboard or a mouse cause a vibration in my ears but if there's a white noise covering them they don't. And these two tendons are involved in that kind of world of unmuffling between the noise and the signal that goes on in the auditory system.

 

Also I have another key dx characteristic that differentiates me from the neuropathic pain type of hyperacusis crowd, which is that I am always feeling and hearing these mini thumps. If you talk to lots of other people with H, they will tell you they feel and hear no thumps or movement at all, just pain.

 

Holy buckets!! 

[[no...]]

Holy buckets!! 

:laugh:

[[Gy...]]

Hi everyone

 

Just wondering if anyone has had head vibration along with their tinnitus? Such a hard one to explain almost like the feeling of high voltage wires but your not hearing it you actually feel the vibration in your head.

 

Gypsygal

[[fl...]]

I FOUND IT!!!!

FINALLY AN ANSWER FOR ALL OF US  -

 

The cause of fluttering sounds!!!!

 

The cause of the ear pressure, pain, balance problems!!

 

The cause of the clicking sounds!!

 

The cause of the hyperacusis !!

The cause of the  Tinnitus!!

 

ONLY THE tensor tympani muscle can cause and explain ALL of the above SXS!!!!

 

It's a small muscle attached to the malleus bone in the ear call tensor tympani muscle!

 

It goes into many forms of spasm rates in benzo withdrawal from slow to high speed and is part of the bodies early warning system, it's out of control!

 

When people get a lidocain injection in the ear it puts the tensor tympani muscle to sleep and NO MORE TINNITUS,  NO MORE HYPERACUSIS, NO MORE CLICKING OR FLUTTERING!

 

https://www.google.com/search?q=liydocain&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a&channel=nts#channel=nts&q=lidocaine+injection+in+ear+tinnitus&rls=org.mozilla:en-US:official

 

 

tensor tympani syndrome benzodiazepines

https://www.google.com/?gws_rd=ssl#q=tensor+tympani+syndrome+benzodiazepines

 

 

TINNITUS IN BENZO WITHDRAWAL (quick)

 

http://i.imgur.com/Qxm6ayd.gif

 

 

FLUTTERING AND CLICKING IN BENZO WITHDRAWAL (slow)

 

http://i.imgur.com/0fWzBIC.gif

 

 

HYPERACUSIS AND EAR PRESSURE AND PAIN IN BENZO WITHDRAWAL

FROM TIGHT MUSCLE IN FULL CONSTRICTION MAKING EARDRUM VERY TIGHT (continuous contraction)

 

http://i.imgur.com/c3rrbEw.gif

 

 

NOW the question is how to turn off this tiny muscle during withdrawal?

 

I'm thinking local electro simulation.

 

 

This is a very long thread, so I'm going to ask you or anyone else who's read it if any of you went ahead with botox injections or tenotomies of middle ear muscles to cure your sound sensitivity.

 

Hyperacusis is a poorly researched condition and one of the theories is the sensitivity comes from the middle ear instead of elsewhere, like from the brain or from neurpathic pain from the cochlear nerve. There have been reports of both positive and negative experiences with tenotomy, with some saying it saved their lives and others that it caused them patulous eustachian tube issues or fistula or maybe did nothing at all. I've been told there's two thirds chances a tenotomy might work because either one or both the tendons are involved or it's the veli palatini that's in dystonia.

 

I deeply suspect tenotomy would help my sound sensitivity because of how sounds bother me relative to how they're profiled over the background. So a keyboard or a mouse cause a vibration in my ears but if there's a white noise covering them they don't. And these two tendons are involved in that kind of world of unmuffling between the noise and the signal that goes on in the auditory system.

 

Also I have another key dx characteristic that differentiates me from the neuropathic pain type of hyperacusis crowd, which is that I am always feeling and hearing these mini thumps. If you talk to lots of other people with H, they will tell you they feel and hear no thumps or movement at all, just pain.

 

I had a shot of Botox in my Eustachian tubes.  The first two days I had a VERY stuffy nose and dry mouth but the ear pain, ear pressure, head pressure, clicking, hyperacusis, fluttering Etc. was gone in 48 hours flat!!  It's all from the tensor tympani going haywire! The hyperacusis is from the ear drum being pulled so radically tight which makes sounds 1000X louder and its really painful.  If you have hyperacusis with no ear pain then it could be your middle brain flaring up and botox with not help. 

I never needed a second shot so it kind of cured me.  Now the tinnitus is a different story, no help there.

 

If your afraid of Botox an E.N.T. will be more than happy to give you a shot of Lidocaine in your Eustachian tube and it works the same and the effect is gone in 30 minutes.  This may be a good first step before Botox and will give you the answer your looking for.

Get ready for 30 minutes of absolute heaven!!!  My Lidocaine shot was the most wonderful window I ever had during acute :thumbsup:

 

I told the doc to keep me hooked up to a bag of Lidocaine drip for the next 5 years PLEASE!

He cleverly replied  "Ever heard of Michael Jackson"?  I guess the answer was "NO" 

 

http://i.imgur.com/B8eE93o.jpg

 

http://i.imgur.com/s4f3xUz.jpg

 

http://i.imgur.com/NOwXZDZ.jpg

 

Nice! Very interesting. Can I get a more detailed timeline of what happened with you and the botox, because it's supposed to wear out in 3 months time, at which time you're supposed to return to same injured state as before. There is also no reported case of hyperacusis being cured with botox in the official literature and I haven't spoken to anyone like that before finding you. There are a few reported cases of tinnitus solved with botox though.

 

How did they reach the tensor tympani through the eustachian tubes with lidocaine, just a blind intratympanic injection into the middle ear or through the nose? I mean don't get me wrong, those of us with my type of symptoms have a type of hyperacusis that has a lot in common with other people with more characteristic eustachian issues like autophony. So yeah, the tubes are involved in a way or other, but a greater suspicion lies in the tympani and the TTTS syndrome, either because of myoclonus thumps or because one of the muscles or walls set up a tense situation that sets off a chain reaction that reaches the inner ear where sound is processed or vertigo is controlled.

 

Absolutely I agree that if there's no ear pain it's something else, something like misophonia where there usually, if not always, isn't ear pain. But I was thinking more along the lines of the differentiating aspect being between pure pain without ear vibration that might be set off by nerves that aren't in the middle ear and those of us that do have vibrations in the ear. So let's see if I understand this, are you saying you only had pain in your ear, no thumps, no feeling your ear vibrate or something move around all the time even with soft sounds or soft startle sounds, like those of us with suspected TTTS or those people with patulous eustachian tube that also have hyperacusis to external sounds?

 

Btw, the issue with these muscles is in the wider ENT community they have a big rep for protecting us from sounds, so most docs don't dare touch it or talk about it as it goes against what they're taught in 101 ear school class, and it meant that for many years I wasn't informed of this possible solution and talked to like a child about the wonder of cognitive therapy. Another couple possible issues with tenotomy is if it's done wrongly it could cause perilymph fistula, and another possible issue with both botox and tenotomy is it might induce patulous eustachian tube can be terrible but according to a few people I talked to not nearly as bad this type of hyperacusis. Did you get patulous tube from the botox? (funnily enough I also read a case of botox curing patulous eustachian tube, which blew my mind)

[[Bi...]]

Hi everyone

 

Just wondering if anyone has had head vibration along with their tinnitus? Such a hard one to explain almost like the feeling of high voltage wires but your not hearing it you actually feel the vibration in your head.

 

Gypsygal

 

That's normal. I does get better but can take a while.

[[Bi...]]

I FOUND IT!!!!

FINALLY AN ANSWER FOR ALL OF US  -

 

The cause of fluttering sounds!!!!

 

The cause of the ear pressure, pain, balance problems!!

 

The cause of the clicking sounds!!

 

The cause of the hyperacusis !!

The cause of the  Tinnitus!!

 

ONLY THE tensor tympani muscle can cause and explain ALL of the above SXS!!!!

 

It's a small muscle attached to the malleus bone in the ear call tensor tympani muscle!

 

It goes into many forms of spasm rates in benzo withdrawal from slow to high speed and is part of the bodies early warning system, it's out of control!

 

When people get a lidocain injection in the ear it puts the tensor tympani muscle to sleep and NO MORE TINNITUS,  NO MORE HYPERACUSIS, NO MORE CLICKING OR FLUTTERING!

 

https://www.google.com/search?q=liydocain&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a&channel=nts#channel=nts&q=lidocaine+injection+in+ear+tinnitus&rls=org.mozilla:en-US:official

 

 

tensor tympani syndrome benzodiazepines

https://www.google.com/?gws_rd=ssl#q=tensor+tympani+syndrome+benzodiazepines

 

 

TINNITUS IN BENZO WITHDRAWAL (quick)

 

http://i.imgur.com/Qxm6ayd.gif

 

 

FLUTTERING AND CLICKING IN BENZO WITHDRAWAL (slow)

 

http://i.imgur.com/0fWzBIC.gif

 

 

HYPERACUSIS AND EAR PRESSURE AND PAIN IN BENZO WITHDRAWAL

FROM TIGHT MUSCLE IN FULL CONSTRICTION MAKING EARDRUM VERY TIGHT (continuous contraction)

 

http://i.imgur.com/c3rrbEw.gif

 

 

NOW the question is how to turn off this tiny muscle during withdrawal?

 

I'm thinking local electro simulation.

 

 

This is a very long thread, so I'm going to ask you or anyone else who's read it if any of you went ahead with botox injections or tenotomies of middle ear muscles to cure your sound sensitivity.

 

Hyperacusis is a poorly researched condition and one of the theories is the sensitivity comes from the middle ear instead of elsewhere, like from the brain or from neurpathic pain from the cochlear nerve. There have been reports of both positive and negative experiences with tenotomy, with some saying it saved their lives and others that it caused them patulous eustachian tube issues or fistula or maybe did nothing at all. I've been told there's two thirds chances a tenotomy might work because either one or both the tendons are involved or it's the veli palatini that's in dystonia.

 

I deeply suspect tenotomy would help my sound sensitivity because of how sounds bother me relative to how they're profiled over the background. So a keyboard or a mouse cause a vibration in my ears but if there's a white noise covering them they don't. And these two tendons are involved in that kind of world of unmuffling between the noise and the signal that goes on in the auditory system.

 

Also I have another key dx characteristic that differentiates me from the neuropathic pain type of hyperacusis crowd, which is that I am always feeling and hearing these mini thumps. If you talk to lots of other people with H, they will tell you they feel and hear no thumps or movement at all, just pain.

 

I had a shot of Botox in my Eustachian tubes.  The first two days I had a VERY stuffy nose and dry mouth but the ear pain, ear pressure, head pressure, clicking, hyperacusis, fluttering Etc. was gone in 48 hours flat!!  It's all from the tensor tympani going haywire! The hyperacusis is from the ear drum being pulled so radically tight which makes sounds 1000X louder and its really painful.  If you have hyperacusis with no ear pain then it could be your middle brain flaring up and botox with not help. 

I never needed a second shot so it kind of cured me.  Now the tinnitus is a different story, no help there.

 

If your afraid of Botox an E.N.T. will be more than happy to give you a shot of Lidocaine in your Eustachian tube and it works the same and the effect is gone in 30 minutes.  This may be a good first step before Botox and will give you the answer your looking for.

Get ready for 30 minutes of absolute heaven!!!  My Lidocaine shot was the most wonderful window I ever had during acute :thumbsup:

 

I told the doc to keep me hooked up to a bag of Lidocaine drip for the next 5 years PLEASE!

He cleverly replied  "Ever heard of Michael Jackson"?  I guess the answer was "NO" 

 

http://i.imgur.com/B8eE93o.jpg

 

http://i.imgur.com/s4f3xUz.jpg

 

http://i.imgur.com/NOwXZDZ.jpg

 

Nice! Very interesting. Can I get a more detailed timeline of what happened with you and the botox, because it's supposed to wear out in 3 months time, at which time you're supposed to return to same injured state as before. There is also no reported case of hyperacusis being cured with botox in the official literature and I haven't spoken to anyone like that before finding you. There are a few reported cases of tinnitus solved with botox though.

 

How did they reach the tensor tympani through the eustachian tubes with lidocaine, just a blind intratympanic injection into the middle ear or through the nose? I mean don't get me wrong, those of us with my type of symptoms have a type of hyperacusis that has a lot in common with other people with more characteristic eustachian issues like autophony. So yeah, the tubes are involved in a way or other, but a greater suspicion lies in the tympani and the TTTS syndrome, either because of myoclonus thumps or because one of the muscles or walls set up a tense situation that sets off a chain reaction that reaches the inner ear where sound is processed or vertigo is controlled.

 

Absolutely I agree that if there's no ear pain it's something else, something like misophonia where there usually, if not always, isn't ear pain. But I was thinking more along the lines of the differentiating aspect being between pure pain without ear vibration that might be set off by nerves that aren't in the middle ear and those of us that do have vibrations in the ear. So let's see if I understand this, are you saying you only had pain in your ear, no thumps, no feeling your ear vibrate or something move around all the time even with soft sounds or soft startle sounds, like those of us with suspected TTTS or those people with patulous eustachian tube that also have hyperacusis to external sounds?

 

Btw, the issue with these muscles is in the wider ENT community they have a big rep for protecting us from sounds, so most docs don't dare touch it or talk about it as it goes against what they're taught in 101 ear school class, and it meant that for many years I wasn't informed of this possible solution and talked to like a child about the wonder of cognitive therapy. Another couple possible issues with tenotomy is if it's done wrongly it could cause perilymph fistula, and another possible issue with both botox and tenotomy is it might induce patulous eustachian tube can be terrible but according to a few people I talked to not nearly as bad this type of hyperacusis. Did you get patulous tube from the botox? (funnily enough I also read a case of botox curing patulous eustachian tube, which blew my mind)

 

Read my Signature line.  I had it all.  Full symphony in my ears.  I thought Beethoven had opened up for business in my ears! 

They went in through my nose with a micro camera scope with needle and put a needle in my Eustachian tube on the wall facing the TT.   

It sounded like they had filled my ears with wool for 4 or 5 days.  All sounds where very low quality by the H was also gone.  I could hear bass but no high tones at all.

 

 

They told me to come back in 90 days but for some reason the pain and H and fluttering and all the other sounds never came back. 

 

Now as far as the tinnitus goes it never went away at any point.  It just gets better slowly,  VERY slowly, too slowly and I figure it will heal long after I get to the point where IDGAF any longer so any celebration will be a mute point.

Maybe they can stick a flag on my wheel chair when I am 90 and tinnitus free.  "It's finally gone and so am I"  lol.  That's why they call it irony folks.

 

[[Bi...]]

Almost forgot - Use the right Google phrase and get the right answers.

 

https://www.google.com/webhp?ie=utf-8&oe=utf-8#q=tinnitus+tensor+tympani+botox

 

https://www.google.com/webhp?ie=utf-8&oe=utf-8#q=Hyperacusis+tensor+tympani+botox

 

 

[[fl...]]

Almost forgot - Use the right Google phrase and get the right answers.

 

https://www.google.com/webhp?ie=utf-8&oe=utf-8#q=tinnitus+tensor+tympani+botox

 

https://www.google.com/webhp?ie=utf-8&oe=utf-8#q=Hyperacusis+tensor+tympani+botox

 

I've already read those. They have people saying tenotomy cured them of sound sensitivity or gave them autophony but still cured their hyperacusis and saved their life. But no one went through with botox and spoke about it on forums. Very few people exist with this issue and even less that went through the op. So I have these questions for u

 

Did you have autophony before or after the botox?

 

They dxed you through patient description? You didn't have to prove you had eustachian tube dysfunction or a weird tympanogram or external ear canal inspection of the eardrum?

 

Who did this on you? And when? 2014? You had it for years since 2011 and then bam suddenly gone 48 hours after botox?

 

Tell me what kind of sounds bothered you, specific sounds of any sort or just loud sounds?

 

Did you also have electrical type of pain non specific to the ear or was your pain always physically felt and positioned in the ear?

[[fl...]]

Hi everyone

 

Just wondering if anyone has had head vibration along with their tinnitus? Such a hard one to explain almost like the feeling of high voltage wires but your not hearing it you actually feel the vibration in your head.

 

Gypsygal

 

Well I feel the vibration in the ears or close by. Maybe you can ask in the facebook hyperacusis sufferers group if this is common. I did see someone say they felt it in the head but he was deaf in the ear with hyperacusis if that makes any sense. He had tullio's and got better from something called oval and round window reinforcement surgery. As my vibrations are closer to my ear, I think my symptoms are closer to the eustachian tube or tensor tympani and so the logic of that operation doesn't make sense to me but it does for other people.

[[Bi...]]

Almost forgot - Use the right Google phrase and get the right answers.

 

https://www.google.com/webhp?ie=utf-8&oe=utf-8#q=tinnitus+tensor+tympani+botox

 

https://www.google.com/webhp?ie=utf-8&oe=utf-8#q=Hyperacusis+tensor+tympani+botox

 

I've already read those. They have people saying tenotomy cured them of sound sensitivity or gave them autophony but still cured their hyperacusis and saved their life. But no one went through with botox and spoke about it on forums. Very few people exist with this issue and even less that went through the op. So I have these questions for u

 

Did you have autophony before or after the botox?

 

They dxed you through patient description? You didn't have to prove you had eustachian tube dysfunction or a weird tympanogram or external ear canal inspection of the eardrum?

 

Who did this on you? And when? 2014? You had it for years since 2011 and then bam suddenly gone 48 hours after botox?

 

Tell me what kind of sounds bothered you, specific sounds of any sort or just loud sounds?

 

Did you also have electrical type of pain non specific to the ear or was your pain always physically felt and positioned in the ear?

 

I just had the botox done but you forget I still have tinnitus and can't shake it.

 

I think it' ototoxic damage from Glutamate during benzo my hardcore c/t - w/d.  I should never have pushed myself so hard and so fast and I could have been OK today.

 

I went to the house clinic  https://www.houseclinic.com  They do this procedure daily all over the USA,  they have offices all over.

The house clinic is the most advanced ear clinic in the world.  Even the German's come here to have ear operations which is as switch  

Usually people who want a top of the line operation go to Germany lol.   

4 of my friends with incurable cancer went to Germany and they are all still alive decades later .  They say there is no fix for cancer but I know better and so do most people in Hollywood

 

The house ear clinic is the BEST place in the world if you need help.

 

Make the call and talk to a doc.

 

Hugs Birdy

[[sn...]]

Yep, the Germans know their shit A couple of my best friends are from Germany...smart sons a bitches. 

 

Snowy

[[fl...]]

Almost forgot - Use the right Google phrase and get the right answers.

 

https://www.google.com/webhp?ie=utf-8&oe=utf-8#q=tinnitus+tensor+tympani+botox

 

https://www.google.com/webhp?ie=utf-8&oe=utf-8#q=Hyperacusis+tensor+tympani+botox

 

I've already read those. They have people saying tenotomy cured them of sound sensitivity or gave them autophony but still cured their hyperacusis and saved their life. But no one went through with botox and spoke about it on forums. Very few people exist with this issue and even less that went through the op. So I have these questions for u

 

Did you have autophony before or after the botox?

 

They dxed you through patient description? You didn't have to prove you had eustachian tube dysfunction or a weird tympanogram or external ear canal inspection of the eardrum?

 

Who did this on you? And when? 2014? You had it for years since 2011 and then bam suddenly gone 48 hours after botox?

 

Tell me what kind of sounds bothered you, specific sounds of any sort or just loud sounds?

 

Did you also have electrical type of pain non specific to the ear or was your pain always physically felt and positioned in the ear?

 

I just had the botox done but you forget I still have tinnitus and can't shake it.

 

I think it' ototoxic damage from Glutamate during benzo my hardcore c/t - w/d.  I should never have pushed myself so hard and so fast and I could have been OK today.

 

I went to the house clinic  https://www.houseclinic.com  They do this procedure daily all over the USA,  they have offices all over.

The house clinic is the most advanced ear clinic in the world.  Even the German's come here to have ear operations which is as switch  

Usually people who want a top of the line operation go to Germany lol.   

4 of my friends with incurable cancer went to Germany and they are all still alive decades later .  They say there is no fix for cancer but I know better and so do most people in Hollywood

 

The house ear clinic is the BEST place in the world if you need help.

 

Make the call and talk to a doc.

 

Hugs Birdy

 

Thanks buddy, I'll put houseclinic on my list. I'm from Spain though so it'd be expensive trip and I'd have to know the procedure better and combine the trip with visits to other docs with possible knowledge of tenotomy. Usually doctors don't do skype which is a big issue too. Better still would be to have the knowledge to have a better rhetoric in trying to convince a local doctor in Spain, which is hard because these muscles and this area of the ear has a repuation for common ENTs of being either nothing or something that's there to protect us from hyperacusis, which is obviously untrue given the isolated reports of positive experiences from tenotomy and botox.

 

Sorry to insist but seeing as there's so little patient description of tenotomy and botox available anywhere and there are hyperacusis facebook groups full of clueless people getting dxed erroneously as mental patients, would you mind looking into the questions I put above?

 

Also my main issue is hyperacusis. I also have tinnitus (and rumbling tinnitus) but if I could get rid of the hyperacusis I'd be able to do a ton of things normal people take for granted. Not all hyperacusis types are equal, there are some that might be TTTS and others that might not. I think it's very important to find out that someone just goes and applies botox to the ''wall of the eustachian next to the TT'' and cures H.