The Long Hold Support Group

[[ja...]]

again, anyone with parasthesia (burning) that went away when holding for a long time?

i am worried about permanent damage

[[Ma...]]

Hey OK....always good to hear from you.  You give us all hope for a real life.  Yes, this thread is busy and it can be a lot of reading to keep up!  Glad you are with your boo    LY!

🙋🏼🙋🏼🙋🏼.  💜😘🙏😷💜😘🙏😷💜

[[Tr...]]

Hello kids! I'm thinking of dry micro tapering for a few days just to eek down a tad bit more. Here's what I'm thinking. The current weight of my tapered pill is 112  so I'm thinking I'll go to 111 tonight and then tomorrow 110 etc.. dropping by 1 digit in weight everyday for a few days. Good idea or no?? Anybody? I hope the above mentioned is dry micro?? IDK but that's what ima gonna do!

Trisssssshhhhhyyyyyy ..  :laugh:

 

How are you feeling right now?  You feeling pretty stable?

 

;DAlways the best question to ask our Trishy 

Ok you're side splitting funny here Mary 

 

I couldn't help myself Trishy   

 

I wouldn't have you be any other way. 

Omg, I am a busy bee. I was cleaning today and then decided I would paint some trim in the house!  Usually, that's all Rich and not me. I am determined now to fix any flaws in the house :laugh: I think I'm going to buy new living room furniture and paint that room too! I can't take this virus news any more so I'm going to distract my brains out by painting, crafting, re decorating    :laugh: poor Rich's wallet is going to take quite a hit!  I think I'll paint the wainscoting in the bathroom too while I'm at it.. how's all that for distraction?!  :laugh:

 

How was your day? 

 

TT,  ❤️

[[Tr...]]

Hey shout out to my people! Hope you're all doing well today love to all 🙋‍♀️❤️

[[Ma...]]

Hello kids! I'm thinking of dry micro tapering for a few days just to eek down a tad bit more. Here's what I'm thinking. The current weight of my tapered pill is 112  so I'm thinking I'll go to 111 tonight and then tomorrow 110 etc.. dropping by 1 digit in weight everyday for a few days. Good idea or no?? Anybody? I hope the above mentioned is dry micro?? IDK but that's what ima gonna do!

Trisssssshhhhhyyyyyy ..  :laugh:

 

How are you feeling right now?  You feeling pretty stable?

 

;DAlways the best question to ask our Trishy 

Ok you're side splitting funny here Mary 

 

I couldn't help myself Trishy   

 

I wouldn't have you be any other way. 

Omg, I am a busy bee. I was cleaning today and then decided I would paint some trim in the house!  Usually, that's all Rich and not me. I am determined now to fix any flaws in the house :laugh: I think I'm going to buy new living room furniture and paint that room too! I can't take this virus news any more so I'm going to distract my brains out by painting, crafting, re decorating    :laugh: poor Rich's wallet is going to take quite a hit!  I think I'll paint the wainscoting in the bathroom too while I'm at it.. how's all that for distraction?!  :laugh:

 

How was your day? 

 

TT,  ❤️

 

Oh girlfriend, I wish I felt that good, that would be wonderful.  I am always jealous of how well you do when holding.  I am not watching as much news either.  I do watch my evening local news and then David Muir.  That keeps me caught up well enough.    ;).  Love ya, have a good time using up Rich's wallet 

[[Me...]]

Hey Trishy - feel free to come on over and paint my house and redecorate.  😂

Olive - I am so glad you are doing good.  I could sure use the Santa Cruz ocean right now.  I didn’t care too much living there, it was too slow for me but I sure loved the peaceful ocean.  I would love to taper by the water. 

Jasmine- hope your day is getting better.  Hang in there. 

 

I got to figure out what I’m gonna eat for dinner.  I have no energy to cook. 

 

 

[[Ol...]]

Thanks Mary! I hope the drilling ends soon for you, that sounds miserable.

Hi Meems! Yes, the ocean is nice. I actually live in the mountains but it’s only about 5 miles from town so I go to the beach often to walk. Of course with Covid I stayed home for like 3 months but now I have been venturing out.

 

Oh and Trishy I think our LHSG song should be Bohemian Rhapsody (oh mama Mia mama Mia mama Mia let me go..) 😆😆

 

Stut, I’ve been thinking of you. Are you still hosting your sweet friend? Thinking of you all and hope you are feeling some peace.

[[Bl...]]

Hey hope everyone is doing ok. sorry i havent checked in in a while. work has been crazy busy and im exhausted in off time lol hope everyone is hanging in there! one moment at a time . 

[[St...]]

Hey hope everyone is doing ok. sorry i havent checked in in a while. work has been crazy busy and im exhausted in off time lol hope everyone is hanging in there! one moment at a time . 

Well done honey.You are definitely doing well working and you should be very proud of yourself.Hopefully the hold will help you feel better as time passes.love you.X

. Good morning LHSG hoping everyone has a better day.

Morning Trish when is the cut? Don't delay if you are going to cut just do it.l would seriously considering a microtaper with a short life benzo it makes sense to me.Come and paint here honey l need at least three rooms spruced up and you know you would do anything for your twiny 😍. You are doing everything right honey acceptance and distraction are the tools needed to get off this crap.Love you my lST X

Morning Olive thank you for asking my little friend is okish well as ok as anyone could be.l think l am able to see when she needs to let it out and when she needs space.It seems to be working so far.l am delighted you are enjoying yourself my lovely you have earned it.l think also you must do what you think is right for you there will always be problems however life is short so do it regardless.l have always regretted more what l didn't do rather than the things l did.So go and grab life by the throat.love you.X

Morning Lady Mary, Meems,Suzy,Val,JWL,Kits,Gp, Ginger NJ Free Nova Esperanza Intend Gilly Valley Troch and everyone here sending you my love.X

[[St...]]

again, anyone with parasthesia (burning) that went away when holding for a long time?

i am worried about permanent damage

Morning Jasmine yes all the symptoms will settle down given enough time.l know you are scared honey we have all been where you are and we all survived and so will you.There is nothing that we can say that will stop your brain from latching on to every scary thought however you will get through this.I would definitely suggest you stay on this site as little as possible and if you are at any risk to yourself talk to your husband and get the help you need.

I have been reading your signature and l can see you have actually been here before and it must have improved enough so you could microtaper? Perhaps l am wrong but l am a assuming so.Keep doing what you can and let everything settle down.love you.X

[[ja...]]

Hi Stut,

i haven't seen any success stories with the parastesia and burning. that is why i am very worried.

did any of you had it before the long hold?

 

sleep was better last night.

my sister from California will come live with us to help me.

[[Tr...]]

Hi all

 

Hope you're doing OK.

 

I was hit by a brutal wave last week. Feeling very sick at the moment. Hope to see some improvement soon, cause this is a tough one.

 

Best wishes. TS

[[...]]

Hi all

 

Hope you're doing OK.

 

I was hit by a brutal wave last week. Feeling very sick at the moment. Hope to see some improvement soon, cause this is a tough one.

 

Best wishes. TS

 

 

Hey Tro, Sorry to hear that. I have fibromyalgia too and it seems the nerve pain exasperates WDs. The only thing that worked for me was to hold. It's nice to see other dudes like you and Blk19 on this thread. I was beginning to think I was the only guy.

[[Gu...]]

Kit is right. The methylation cycle is one of many interconnecting cycles in which the body uses nutrients to produce energy. The important part of the methylation cycle is that it's involved in the production of neurotransmitters.

 

 

I have been reading about this topic and find it interesting.  Have you read doctordoni.com?

 

 

[[ja...]]

again, anyone with parasthesia (burning) that went away when holding for a long time?

i am worried about permanent damage

Morning Jasmine yes all the symptoms will settle down given enough time.l know you are scared honey we have all been where you are and we all survived and so will you.There is nothing that we can say that will stop your brain from latching on to every scary thought however you will get through this.I would definitely suggest you stay on this site as little as possible and if you are at any risk to yourself talk to your husband and get the help you need.

I have been reading your signature and l can see you have actually been here before and it must have improved enough so you could microtaper? Perhaps l am wrong but l am a assuming so.Keep doing what you can and let everything settle down.love you.X

 

Hi Stut,

yes, i tapered successfully from 4mg of valium and 10mg of lexapro. it took me 3 years though. until this recent setback worst than acute where i reinstate for 2 days and CT hoping to ride the wave but the symptoms got way way worse. unbelieveable.

i hadto re-instate for good at 9mg now since 10 days ago

for now, i just want to stay alive. the dark thought are scary during the nigh time adrenaline surge.

 

my doc put me back on lexapro at 5mg a week ago.

 

 

[[ja...]]

i dose often and hope to be able to dose only once a day.

 

i would love to sleep normally again and take nap.

good news is that i was able to lay in bed the whole morning without the need to pace and not feeling of anxiety.

 

i just feel very very weak. like lifting an arm is super hard and i feel out of breath when i go up and down the stairs. (before the setback i was running 3 miles daily)

is that normal when you stabilize? like your CNS is recovering from all the adrenaline?

i feel like i have CFS.

 

thank you all!

i hope that one day I will feel as stable as some of you guys

[[ja...]]

i also have to work on acceptance of the fact that that i am back on valium at a higher dose than i had wished to stay alive.

i cried for days on end, it will take time. i think as i will get better and more stable it will get easier.

[[ja...]]

jeezzz, what do you think of this. is this true?

are we doomed?

 

 

"Long-term effects of benzodiazepines

 

One mechanism which might be involved in long-term (and possibly permanent) effects of benzodiazepines is an alteration in the activity of benzodiazepine receptors in brain GABA neurones. These receptors down-regulate (become fewer) as tolerance to benzodiazepines develop with chronic use. Such down-regulation is a homeostatic response of the body to the constant presence of the drugs. Since benzodiazepines themselves enhance the actions of GABA, extra benzodiazepine receptors are no longer needed, so many are, in effect, discarded. These down-regulated receptors are absorbed into neurones where, over time, they undergo various changes including alterations in gene expression. When these receptors are slowly reinstated after drug withdrawal, they may return in a slightly altered form. They may not be quite so efficient as before in increasing the actions of GABA, the natural 'calming' neurotransmitter. As a result, the brain may be generally less sensitive to GABA and the individual is left with heightened central nervous system excitability and increased sensitivity to stress. Molecular biologists point out that changes in gene expression can be very slow, or even unable, to reverse."

 

https://www.benzo.org.uk/ashsupp11.htm

 

 

[[...]]

Kit is right. The methylation cycle is one of many interconnecting cycles in which the body uses nutrients to produce energy. The important part of the methylation cycle is that it's involved in the production of neurotransmitters.

 

 

I have been reading about this topic and find it interesting.  Have you read doctordoni.com?

 

No I haven't GP. I'll have to give it a look. The body is incredibly complicated. All these cycles are interconnected like gears in a fine tuned machine If one part fails it affects the other. For instance my citrus cycle was stuffed so it affected others down the line. With the help of my Integrative doc I think I was able to correct it through supplements and diet. I think most of us got on benzos because of problems with our methylation cycle (not enough gaba ).

 

Jasmine, try not to get yourself so anxious about what could happen. The brain is pretty resilient. When neurons get destroyed ( like what probably happened to me from my concussions) other take up the slack. You're young I don't think you need to worry about it

[[Me...]]

Hi all - happy hump day.  Mood swings today.  😾.  Feeling defeated.  Ah well.  So it goes.  It’s hot as hell here in So Cal.  And it’s supposed to get hotter.  I did some cleaning today while my mom was at dialysis.  It is always a nice break when she’s not here. 

 

Someone once told me “acceptance doesn’t mean you have to like it, you just have to accept it.”  Another gem I got was “right now, it’s just like this.”  I also went to the grocery store to buy some food and wait for it..... I bought myself a cherry coke.  I know I know sugar is not good for the CNS but “F it” I said.  Damn it’s good and nice and cold.  It hasn’t jacked me up.  It’s sooooo good.  I got a sweet sympathy card from Maggie’s vet.  😿.  So all in all that’s my day in a nutshell..so far.  Oh and NO politics.  I’ll try my best on that one.  😆

 

Love u all,

Meems

[[He...]]

Hello long hold support group,

My name on this forum is Heathcliff.

I have not been active since sometime last November.

I read the forum posts from time to time but do not respond  much. Busy life just gets in the way.

And I can tell by the responses that I read here, that you are all getting the best advice I see out there and that I couldn’t really improve upon it. I know how frightened you are and how awfully sick and hopeless you feel. But honestly, if you listen to the advice here, no matter how sick you feel, and if you belíeve that there is hope, YOU CAN AND WELL GET THROUGH THIS. Everything I know,, every bit of advice that saved me came from THE LONG HOLD SUPPORT GROUP  and , at the very end, from the valium micro tapering support groups.

 

Anyway, today something just got to my heart. I don’t know why. Maybe it’s this awful pandemic that has gotten everybody crazed. And in many cases I am so bored that I just don’t know what to do with myself anymore. But I feel the need to respond.

 

I have been free from Valium since October 27, 2019. That’s 9 months. I am completely healed. No side effects or withdrawals remain. I have NO lasting  paratheias ( and I had on going terrible long lasting ones), I have no more shakes, no more waking up with frightening, overwhelming anxiety, no more depression, no heart palpitations, NO gOd help me fatigue,  no worrying about my future or if this suffering will ever end.

It’s as if the past almost four years of withdrawal never happened!

 

And ,oh yes, I was in such dispair that I even thought of taking the gun that is in the closet and ending it all. Thank god I didn’t do that.  (DONT DO THAT!) But I want you who are reading this to know just how miserable, lost and without hope I was.

 

I want you all to really know that you too can get through this!

I am. now 75 years old. I started my withdrawal at 69. I’m not an old bitty. I am a strong and healthy “young “ 74 year old. I don’t look or act my age. People can’t believe how old I am! My doctors said I did not need to get off this drug. They didn’t believe I was dependent. They didn’t believe or understand what I was going through.. I think they just didn’t know what to do with me or how to help me.

But this forum saved my life.

 

My message to you is....Please believe the advice you are getting from all you peers here on this sight. They are not gods, of course, But They are either going through the same things you are going through or they have been there and survived. I believe they are the closest thing to experts that you will ever find!

 

Here are just Avery few things I think I should add that were helpful to know, and helped me through my taper.

Yes, Long holds work

After a hoLd, you STILL HAVE TO CUT YOUR DOSES BY TINY AMOUNTS.

Using a LIQUID valium makes it easier to cut doses my decimal percentages

I FOUND THAT I HAD TO USE MICRO CUTS.  I used ROXANE LIQUID DIAZEPAM

Once I got under 1 mg, I started DAILY liquid micro taper..

That last 1 mg took a whole year! It took the longest  and it seemed like I was going nowhere, but it saved my from side effects.  I got no wdsx that last year.... but.  Don’t let it fool you! YOU ARE NOT HEALED JUST BECAUSE YIU HAVE no side EFFECTS. IT ONLY MEANS YOU HAVE GIVEN YOUR BRAIN, YOUR CNS, time TO responsible CATCH UP AND BECOME STABLE. YOU STILL MUST TAPER THAT LAST MG SLOWLY.

I tapered with a solution of 10:1 but I only reduced  .005 every day. Sometimes by only .002 Sometimes I held the dose for two days before I reduced again.

POINT IS. REDUCING BY SUCH A TINY DOSE SEEMS LIKE YIU ARE GOING NOWHERE.....  BUT YOU ARE! and you WILL GET THERE...AND YOU WILL BE FINE, WITH NO WDS WHILE YOU ARE GETTING THERE!

Go slow, go slow go slow. Reduce your dose tiny, tiny, tiny!

 

ONE MORE THING...THIS IS A PERSONAL DECISION. 

I GOT ENCOURAGEMENT FROM A WONDERFUL PSYCH DOCTOR. ONLY ENCOURAGEMENT AND TIME TO RELECT.  BUT ...I DECLINED EVERY SNGLE ONE OF THE DRUGS HE OFFERED TO HELP GET ME THROUGH MY WITHDRAWAL WHEN I REALIZED THAT THEY TOO WERE ADDICTIVE.

(I ACTUALLY  DID TRY ONE FOR SLEEP, BUT I GOT OFF OF IT IMMEDIATELY WHEN I READ IT WAS ADDICTING)

I DID NOT TAKE ANY SUPPLEMENTS OTHER THAN MELATONIN AND I DRANK GREEN TEA.

 

I WISH YOU ALL LOTS OF STRENGTH AND DETERMINATION AND PERSEVERANCE TO GET THROUGH THIS. IT WONT BE EASY, BUT YOU CAN DO IT.

DON’T  LISTEn TO NEGATIVE STORIES, THEY HAVE NO VALUE AND THEY WILL ONLY SCARE YOU.BESIDES They  ARE FEW AND FAR BETWEEN SO WHY LET THEM SCARE YOU.

 

BE BRAVE. IF I CAN DO IT, SO CAN YOU!!

HEATHCLIFF

 

 

 

[[Me...]]

Thank you Heathcliff for sharing your story and encouraging support with us!  This LHSG has been a god send for me.  💗  Congratulations on your freedom! 

[[Ma...]]

Hi all

 

Hope you're doing OK.

 

I was hit by a brutal wave last week. Feeling very sick at the moment. Hope to see some improvement soon, cause this is a tough one.

 

Best wishes. TS

 

Oh Trouch, so so sorry, hope your symptoms ease soon!  Thinking of you!  🙋🏼🙋🏼🙋🏼💜🙏😘

[[Ma...]]

Hello long hold support group,

My name on this forum is Heathcliff.

I have not been active since sometime last November.

I read the forum posts from time to time but do not respond  much. Busy life just gets in the way.

And I can tell by the responses that I read here, that you are all getting the best advice I see out there and that I couldn’t really improve upon it. I know how frightened you are and how awfully sick and hopeless you feel. But honestly, if you listen to the advice here, no matter how sick you feel, and if you belíeve that there is hope, YOU CAN AND WELL GET THROUGH THIS. Everything I know,, every bit of advice that saved me came from THE LONG HOLD SUPPORT GROUP  and , at the very end, from the valium micro tapering support groups.

 

Anyway, today something just got to my heart. I don’t know why. Maybe it’s this awful pandemic that has gotten everybody crazed. And in many cases I am so bored that I just don’t know what to do with myself anymore. But I feel the need to respond.

 

I have been free from Valium since October 27, 2019. That’s 9 months. I am completely healed. No side effects or withdrawals remain. I have NO lasting  paratheias ( and I had on going terrible long lasting ones), I have no more shakes, no more waking up with frightening, overwhelming anxiety, no more depression, no heart palpitations, NO gOd help me fatigue,  no worrying about my future or if this suffering will ever end.

It’s as if the past almost four years of withdrawal never happened!

 

And ,oh yes, I was in such dispair that I even thought of taking the gun that is in the closet and ending it all. Thank god I didn’t do that.  (DONT DO THAT!) But I want you who are reading this to know just how miserable, lost and without hope I was.

 

I want you all to really know that you too can get through this!

I am. now 75 years old. I started my withdrawal at 69. I’m not an old bitty. I am a strong and healthy “young “ 74 year old. I don’t look or act my age. People can’t believe how old I am! My doctors said I did not need to get off this drug. They didn’t believe I was dependent. They didn’t believe or understand what I was going through.. I think they just didn’t know what to do with me or how to help me.

But this forum saved my life.

 

My message to you is....Please believe the advice you are getting from all you peers here on this sight. They are not gods, of course, But They are either going through the same things you are going through or they have been there and survived. I believe they are the closest thing to experts that you will ever find!

 

Here are just Avery few things I think I should add that were helpful to know, and helped me through my taper.

Yes, Long holds work

After a hoLd, you STILL HAVE TO CUT YOUR DOSES BY TINY AMOUNTS.

Using a LIQUID valium makes it easier to cut doses my decimal percentages

I FOUND THAT I HAD TO USE MICRO CUTS.  I used ROXANE LIQUID DIAZEPAM

Once I got under 1 mg, I started DAILY liquid micro taper..

That last 1 mg took a whole year! It took the longest  and it seemed like I was going nowhere, but it saved my from side effects.  I got no wdsx that last year.... but.  Don’t let it fool you! YOU ARE NOT HEALED JUST BECAUSE YIU HAVE no side EFFECTS. IT ONLY MEANS YOU HAVE GIVEN YOUR BRAIN, YOUR CNS, time TO responsible CATCH UP AND BECOME STABLE. YOU STILL MUST TAPER THAT LAST MG SLOWLY.

I tapered with a solution of 10:1 but I only reduced  .005 every day. Sometimes by only .002 Sometimes I held the dose for two days before I reduced again.

POINT IS. REDUCING BY SUCH A TINY DOSE SEEMS LIKE YIU ARE GOING NOWHERE.....  BUT YOU ARE! and you WILL GET THERE...AND YOU WILL BE FINE, WITH NO WDS WHILE YOU ARE GETTING THERE!

Go slow, go slow go slow. Reduce your dose tiny, tiny, tiny!

 

ONE MORE THING...THIS IS A PERSONAL DECISION. 

I GOT ENCOURAGEMENT FROM A WONDERFUL PSYCH DOCTOR. ONLY ENCOURAGEMENT AND TIME TO RELECT.  BUT ...I DECLINED EVERY SNGLE ONE OF THE DRUGS HE OFFERED TO HELP GET ME THROUGH MY WITHDRAWAL WHEN I REALIZED THAT THEY TOO WERE ADDICTIVE.

(I ACTUALLY  DID TRY ONE FOR SLEEP, BUT I GOT OFF OF IT IMMEDIATELY WHEN I READ IT WAS ADDICTING)

I DID NOT TAKE ANY SUPPLEMENTS OTHER THAN MELATONIN AND I DRANK GREEN TEA.

 

I WISH YOU ALL LOTS OF STRENGTH AND DETERMINATION AND PERSEVERANCE TO GET THROUGH THIS. IT WONT BE EASY, BUT YOU CAN DO IT.

DON’T  LISTEn TO NEGATIVE STORIES, THEY HAVE NO VALUE AND THEY WILL ONLY SCARE YOU.BESIDES They  ARE FEW AND FAR BETWEEN SO WHY LET THEM SCARE YOU.

 

BE BRAVE. IF I CAN DO IT, SO CAN YOU!!

HEATHCLIFF

 

Oh so good to see you here and such a good post for all of us.  Yes, I think the virus is making us all a little crazy, I know my anxiety is higher, I am in San Antonio, TX , ugh!  Thank you so much for your visit.  It's wonderful to hear how great you feel.  Mary 🙋🏼🙋🏼🙋🏼.  💜🙏😘😷💜😘😷

[[Ma...]]

Jasmine, it's so nice your sister is coming to help you.  That is really nice of her.

Just a suggestion, there is a thread , Withdrawal Support Group, if this thread can't answer your question, that's always a good place to try.  It's usually pretty busy too.