The Klonopin Klub#2

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Those who went from teva to brand. Uni, I’ve got your info. Please share, only what you’re comfortable with, but, experiences, cost info, how to get discount?

 

Also, any thoughts on, switching how I’m taking my doses until I stabilize & figure out how I’m going to taper again.

There’s a possible interaction & a warning not to take pharm Meds within 2 hours of the CBD oil my nuero wants me to try & take 2 times per day, every 12 hours, so ide have to take the k pin & oil 2 hours apart, that’s not really feasible with my evening & bed dose, so thought maybe I could spread out 2 day doses & move evening dose to bed time.

 

How I take approximately: 6am .5,12pm .5, 6pm .5, 9:45pm 2mg (all but bed really pushed out 30 minutes,12 sometimes to 1pm,  eve sometimes to 7pm)

 

Thoughts on how to & if could reasonably switch to something like the following, given I’m feeling unstable already & still have to crossover to either new generic or brand.

 

6am .5, 2pm .5, 9:45pm 2.5mg

 

Really appreciate your thoughts & if you’ve done something similar & how it affected you.

Much thanks be well, SC

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Does anyone know anything about prescription discount cards like Rx assist, Good rx et? Are they scams? Thanks, SC

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Does anyone know anything about prescription discount cards like Rx assist, Good rx et? Are they scams? Thanks, SC

 

I've used most of the ones that have come my way and none have been anything but what they said they'd be. I know I had goodrx; I think I had rxassist too. I also had something local from my state.

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Looking here to see what I have.

 

  Something called TheHealthcareAlliance, GoodRx, Community Assistance Program. That’s it.

 

Never used one of these. There are phone numbers to call. I’ll need to call them or use their websites.

 

Guess we can only get what our pharmacies have. I really need to call my pharmacy also. I’m not me anymore so making calls bugs me.

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Just went through different websites here. Seems to apply to generics.

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Thanks araurora & intend.

Good rx can’t combine with insurance, not sure if the others can.

 

I called Genentech about brand coupons & they offer none.

 

I’ve given up on brand. Done obsessing. Going to call pharmacies & see if can try actavis.

Will be a relief to stop worrying about this.

 

Thanks ladies be well SC

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Hi all, I put this in another post, with no replies so I’m separating it out. Even if your against CBD oil(go ahead & tell me your opinion, I have no clue) If you have experience switching your dosing around, like I’m explaining here, please give me your feedback. I’ve been thinking about it for awhile, so as to dose less often.

 

I’ll go ahead & say this is for clonazapam in case I post it elsewhere.

 

Any thoughts on, switching how I’m taking my doses until I stabilize & figure out how I’m going to taper again.

There’s a possible interaction & a warning not to take pharm Meds within 2 hours of the CBD oil my nuero wants me to try & take 2 times per day, every 12 hours, so id have to take the k pin & oil 2 hours apart, that’s not really feasible with my evening & bed dose, so thought maybe I could spread out 2 day doses & move evening dose to bed time. Still not sure if will try CBD or provigil for long, but will try. Also, may be starting provigil. Those two are for ms & mental health sxs, as advised by ms specialist.

 

How I take approximately: 6am .5,12pm .5, 6pm .5, 9:45pm 2mg (all but bed really pushed out 30 minutes,12 sometimes to 1pm,  eve sometimes to 7pm)

 

Thoughts on how to & if could reasonably switch to something like the following, given I’m feeling unstable already & still have to crossover to either new generic or brand.

 

6am .5, 2pm .5, 9:45pm 2.5mg

 

Really appreciate your thoughts & if you’ve done something similar with moving clonazapam doses to different times & how it affected you.

Much thanks be well, SC

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Ok I called all pharmacies & it’s solco, accord, & North Star. No one can promise anything will stay in stock & no one can order actavis for me. I lied I’m not done obsessing about what generic I can get ugh...anyone tried North Star?

Thanks dear

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So glad to hear a few of you have gotten some windows. I was encouraged to hear that Bob(? Hope I am right) did well after a long hold.  I have been holding two weeks and feeling worse, so maybe it will come soon. As for anxiety that has no cause, that is what I have experienced for most of the time I was on k, getting worse every year.  Now it is terrible. That is what it does. I tried to tell my doctor for years. Just said I was worse than before. Didn’t want to hear that it was not at all th same as before when I just worried too much. Benzo cause anxiety and depression. Period. Wish I had known. Love to all, Esperanza

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https://www.accessdata.fda.gov/scripts/drugshortages/dsp_ActiveIngredientDetails.cfm?AI=Clonazepam%20Tablets&st=d

 

Sc, this is a link from the FDA website that indicates that Northstar in strength  .5 mg is being discontinued. It is distributed by Sandoz. Im not sure about the 1 mg strength because this link only refers to .5 mg Northstar.

 

I am going to call Northstar tomorrow morning. Their phone number is 1-800-206-7821.

 

I just got the last of Sandoz at my pharmacy. They were aware of the Sandoz discontinuation. This is all becoming rather tiresome. We did some running around so I forgot to ask the pharmacy if theyve seen anything about Teva or Actavis.

 

I just dont get how Teva is unavailable anywhere it seems, and yet is supposed to be replaced by Actavis. What a crock of BS!

 

 

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So glad to hear a few of you have gotten some windows. I was encouraged to hear that Bob(? Hope I am right) did well after a long hold.  I have been holding two weeks and feeling worse, so maybe it will come soon. As for anxiety that has no cause, that is what I have experienced for most of the time I was on k, getting worse every year.  Now it is terrible. That is what it does. I tried to tell my doctor for years. Just said I was worse than before. Didn’t want to hear that it was not at all th same as before when I just worried too much. Benzo cause anxiety and depression. Period. Wish I had known. Love to all, Esperanza

Hope your feeling better soon. I sorta feel like you with depression & anxiety. Usually no panic unless trying to taper but yes depression & anxiety.

Be well best wishes, SC

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Scardie, I tried hemp cbd oil. It did nothing. My brother has done research and apparently, the cbd from the plant bud with THC below 1% is really all that works well. Is not legal where I live. That doesn’t mean you should try the hemp oil. It may work for you. I just ignored the 12 hour oil instruction after a while. The K was what I had to control. It didn’t matter in my case. Interesting that we worry so much about a plant and give out Benzo freely. Hugs, Esperanza

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I do understand where people are trying to address everyone’s sx here. But if we cannot get the clonazepam to taper from, then WE CANNOT TAPER!

 

My post at the top of this page is from the FDA website. Did anyone look at that?

 

I’m not only baffled by all these discontinuations, but I’m now baffled by the lack of response from clonazepam taperers.

 

Yes, all the BENZO taking people on Benzo Buddies are having problems, and they want to get off their particular benzo or this forum would not exist.

 

Isn’t anyone reading any of this? For heavens sake people, it does appear that drug companies are not making clonazepam anymore.

 

Does anyone get that?

 

That is the very first part of tapering!!!

 

ACCESS TO THE DRUG!!!

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Scardie, I tried hemp cbd oil. It did nothing. My brother has done research and apparently, the cbd from the plant bud with THC below 1% is really all that works well. Is not legal where I live. That doesn’t mean you should try the hemp oil. It may work for you. I just ignored the 12 hour oil instruction after a while. The K was what I had to control. It didn’t matter in my case. Interesting that we worry so much about a plant and give out Benzo freely. Hugs, Esperanza

Thanks Esperanza.

How long did you try the hemp CBD oil for? I’m told it must build up in ones system.

 

Are you saying it only works if it comes from the marijuana plant rather than the hemp plant or that it only works if it has thc below 1%? Both plants have thc in them.

 

So you don’t have a signature, but am I right that you take clonazapam?

 

What dose are you on, for how long?

 

What generic do you take? They discontinued the teva I took daily for years so I’m going to have to crossover to something else generic soon. It’s looking like it’s going to be solc/qualitest, that’s what’s in stock around here. It’s very stressful as they can’t promise to keep any one generic in stock at these pharmacies. I feel like as soon as I get through a csrossover, they’ll switch to something else. I have week long script I wanted to use to try actavis with, but nobody has it in stock & wont order it, even the small mom & pops won’t order it. Vent over.

 

Hope you feel better. Best wishes, SC

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I feel very disturbed by all this today.

 

I will be seeing my doctor tomorrow, and I will ask him for suggestions about ACCESS to clonazepam.

 

This is appearing to be an urgent problem. Mylan no longer makes it. Sandoz no longer makes it.

 

Northstar is not making the .5mg strength according to that FDA link. Will they stop making the 1. Mg also soon or what? I don’t know.

 

If no one here cares about this, then I’m definitely on my own here. I’ll have to figure something out.

 

This has been a HUGE topic here for awhile, and now ITS NOT?

 

Great. Try tapering off a moderate dose of clonazepam when you can’t get clonazepam. Good luck with that.

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I’m basically replying to myself here, and I realize that.

 

There are others in the intro section joining everyday who are asking these questions. Just took a look around the forum this morning.

 

Others coming on and wanting to get off clonazepam. And one person suddenly sees 2 days ago that all these drug companies are not making it anymore. She had been getting advice from JIm Hawk.

 

Then she was left high and dry because he noted that he’d be traveling for the next 3 weeks w/o access to a computer. So everything comes to a screeching halt.

 

Is it time to do something and what would that be? I’m shocked, upset, baffled, and you name it.

 

It’s important to also realize that no matter who is giving advice to others about tapering off clonazepam, if they’re not on it themselves or were on it and are off now, they don’t necessarily have the right advice, and they definitely don’t have to worry about getting clonazepam!

 

Jim Hawk is from Switzerland. I don’t know what happens over there. Others countries use the actual branded drug from what I know. England does not allow clonazepam at all.

 

I’m lost for words here. It may not seem like it, but I am.

 

We don’t need to discuss generic brands or brand name K, cause we’re not concerned about this are we?

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Oh honey,

Ive been disturbed & im already in a dark, pretty dysfunctional place as it is. I feel your frustration & fear. This is totally not cool.

 

All I can recommend is to try for actavis or solco if one can’t afford brand & hope for the best.

 

I think I would suffer mightily trying to crossover to Valium @ my dose of 3.5mg per day, if anyone would even do it. I read someone’s story of trying that on 2mg & they staid they went into withdrawal every time k was cut & v was added very slowly until the v caught up & that doesn’t even count as taper time. Granted their doctor could have done it wrong & it could have been less painful. Just makes no sense for me at this dose...no way. Then the risks, it may not agree, etc. it sounds good in theory for lower doses.

 

Xx, SC

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https://www.accessdata.fda.gov/scripts/drugshortages/dsp_ActiveIngredientDetails.cfm?AI=Clonazepam%20Tablets&st=d

 

Sc, this is a link from the FDA website that indicates that Northstar in strength  .5 mg is being discontinued. It is distributed by Sandoz. Im not sure about the 1 mg strength because this link only refers to .5 mg Northstar.

 

I am going to call Northstar tomorrow morning. Their phone number is 1-800-206-7821.

 

I just got the last of Sandoz at my pharmacy. They were aware of the Sandoz discontinuation. This is all becoming rather tiresome. We did some running around so I forgot to ask the pharmacy if theyve seen anything about Teva or Actavis.

 

I just dont get how Teva is unavailable anywhere it seems, and yet is supposed to be replaced by Actavis. What a crock of BS!

Thanks, I didn’t see anything about North Star, but did see the other 2 & it’s weird that teva isn’t on there.

 

I’m simultaneously trying to research generic provigil, which I’m Leary of taking at all, but especially in generic form, all head Meds in generic freak me, but especially things like Wellbutrin & how that all went down wrong & im noe presuming provigil too. They cost a million dollars for brand. I am sure many disagree with me taking it, but my nuero thinks I could benefit for ms fatigue & I’ll approach with caution.

 

But research double stress!! I can’t spend my life researching these pills. Then when all the dust settles I still have no clue how to taper myself. Too much to worry about, just too much.

 

Intend you aren’t implying we have to worry about solco & actavis too are you

 

Thanks intend

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Sc,

 

Thanks for reply. I haven’t yet called Northstar, but I am going to do that. They close at 5 pm ET.

 

As I said last night in my post, my pharmacy was totally aware of the Sandoz discontinuation. I did ask about getting the branded drug, but the pharmacist wasn’t initially sure they could get it. He looked again and said they could.

 

Then he said it was expensive. I asked “how expensive?” He said “maybe 200$ or thereabouts.”

 

He seemed unaware that he would have to call Genentech himself to get price.

 

At this point, I’m very unsure of what to do. I can call around to different pharmacies close to me to see what price is. All the pharmacists have to call Genentech themselves. Genentech does not give out price to consumer from what I can tell.

 

I wasn’t so upset last night, but I am now. I’ve thought of all kinds of possibilities here. I’m not familiar with all these different benzos. Only been on xanax and clonazepam. Never taken Valium or Ativan. What ever I do, I either stay on clonazepam or cross to Valium.

 

Very angry with Teva. Do not think I’ll get a response from them now. I’ll eith have to call them at customer service again or email them there.

 

Very disturbed about all this. Just went thru that intro section again. Plenty of people joining B.B. want to get off clonazepam. None of the greeters (all admin) seem to be aware of the scarcity of clonazepam.

 

I may use the help desk and inquire about this. Do not understand what has happened. Clonazepam is the most commonly prescribed benzo here in US for insomnia, stress, anxiety. How is anyone going to get it is what I want to know.

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Wish I could offer help on the generics. I am on a liquid and have no idea what generic it is but I could find out. Is one not very good? I agree that generic changes are unacceptable Esperanza

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Sc,

 

I’m not implying at all. I am saying that yes, I’m highly skeptical of all clonazepam generics brands now.

 

I am angry with Teva for touting this info about Actavis  taking over for Teva clonazepam if no one can get either one. It sure seems likes it’s pretty clear that the Teva clonazepam is not around anymore. So where is Actavis?

 

I’ve had never heard of Solco myself until you mentioned it here. I did hear the brand Solco at Walgreens, but I don’t know if that was a benzo or not.

 

As far as Northstar, you have to look several rows down on that FDA website to see the discontinuation of the .5 mg tablet. But it’s there. Just do not what’s going on. I’m impatient and I acknowledge that, but I need to look ahead here. Who will be supplying clonazepam to the US if all these companies are stopping production?

 

I’m going to have to contact Teva again it seems.

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esperanza,

 

I have not read any of your history. You are using a Hispanic name here on B.B. May I assume you are not in the US?

 

If you are not in the US, it is very common for clonazepam users to get Rivotril which is the branded Klonopin. And it does come in a liquid form outside of the US. I don’t know if it also comes in tablet form or not.

 

But no matter whether you get the liquid or tablets, you can still have problems with this drug. In the US, it is more commonly to get a generic form of clonazepam than the branded drug. I’m just not sure how other countries outside of the US handle this. It seems from what I read that many of them dispense the branded drug whether it’s the liquid form or maybe tablets.

 

I wouldn’t expect you to know about generics if you never used one.

 

Well, hope what I’m posting here does not offend you. My husband is Hispanic. He just happens to have been born in the US, so what I’ve said is not relevant to anyone’s nationality or country of origin.

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I have not yet learned to make a signature. Need to do that. I am tapering from 1mg K by liquid titration. Actually, I may have been tapering from 1.5 since I had been increasing it some days, especially over the last year of tolerance withdrawal. Since I never exceeded my prescribed dose, I never was concerned or kept accurate records. Because I was told it was safe and not why I was having so many problems. I asked for an Ashton taper. It was given reluctantly.  The first cut, however, was a mistake. It could have been anywhere from 20-30% of what my brain had become used to. I held one month. Became as stable as I had been previously and continued to reduce by less than 10% of remaining dose each week. I was unable to drive after 4th cut, but made two more anyway. The forum told me what I needed to do. I have been holding. Last cut was 3 weeks ago. Asked for slower taper and got it. Cannot start now as I am not stable enough. I live in the US, but am not Hispanic. Esperanza is a name I chose to stay positive. My country is doing horrible things to the Hispanic people who so desperately need our help. I wish to apologize for this behavior, which I abhor and am doing what I can to stop. I feel such Shame. For non Americans, please know most of us, the overwhelming majority do not support what is happening. I was using sandoz when I took tablets. I don’t know what the liquid is. Intend to find out. I had no idea there was a problem, but it doesn’t shock me at all. Pharma! I always try to respond to any message I see. I will be glad to pm if you give me permission. Scardie asked about cbd oil, if my response didn’t get posted, I will answer again that I tried help cbd one month with no result. I was told that the plant cbd is better, but will never know.  Anyone who wants to pm me for any reason is welcome to do so. Hugs to all, Esperanza

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Esperanza,

 

Thank you for your response. I do like your name. It does mean hope in Spanish.

 

I don’t know your country, but I do know what is happening here in the US with the people who are fleeing their countries to live here for a better life.

 

I’m glad you are here. You can PM me also. I would like to chat with you. I’m very glad you joined B.B.

 

I erased my signature awhile back. It just caused too much confusion as my situation is a bit complicated itself. I think we all have complicated stories. Life is complicated.

 

I did not get a chance to say welcome to you. So I’m saying it now. Welcome Esperanza!

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I am a deeply concerned American. Glad you are as well.  There is a song,”maybe what’s good gets a little bit better and maybe what’s Bad gets Gone” May it be so, Esperanza