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How do I reinstate?


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people who are on benzos for life end up with a lot of health problems and doctors

are not aware that its due to Benzos. believe me because i know it.

 

How do you 'know it'? Can you provide links to medical scientific studies which show this?

 

of course i can't provide links to scientific studies Xana .... i wish i could. for some reasons

there have not been any. but i know a lot of gynocologists, dermatologists and even

lung specialist suspect , that the cause of their patients health problems are due to Benzos.

 

i also realized now that i had 2 cases in my family , but its too late for them now.

 

in my case case , the sleeping pills worked really well for years. i loved them.

but they slowly damaged my salivary glands and due to this , i lost 2 of my healthy

beautiful teeth. in the end my dentist suspected that the benzo must be the cause.

and he was right.

i am 11 months off now and my teeth are stronger than ever again. 2 years ago i could not

bite  an apple without having the feeling a 3rd thooth would brake come off.

oh god, there are so many things i could tell, its a shame that we can't talk.

ciao

 

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I don't want to hijack IG's thread either & she has clearly not asked whether she should stay on benzos for life.

 

However, as the question as to whether there is any research on long term benzo use & cognitive impairment, has been raised, there are quite a few published studies which have resolved this question in the affirmative.

 

Here's a link to a complete meta-analysis review published in 2004 which includes references for some 30 studies.

 

http://www.benzos.une.edu/documents/benzowithdrawalmetaanalysis.pdf

 

 

 

 

 

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http://www.benzos.une.edu/documents/benzowithdrawalmetaanalysis.pdf

 

Thanks for that ihope.

 

I haven't read it yet as it looks heavy going.

 

On scanning through I noticed it was published in 2003 and the papers used had to be within the range of publication between 1980-2000, so we are really looking at data collected from  well over 30 years ago. 19 of the submitted 34 articles  were not eligible to be used for various reasons.

 

I noticed that the median number of benzodiazepine users surveyed for the studies was 20.5 so they were pretty small samples.

 

I'll probably be struggling with deciphering the stats. Strangely enough I was rifling through some old uni results a while ago to find I'd gained a distinction for 'Statistics'. I was shocked as I thought I had always struggled with it. I may have to call upon the services of my significant other to help.

 

Anyway I will most certainly wade through it even though it is very old.

 

Xana

 

PS Here are two my hubs found, in case anyone is interested:

 

http://psycnet.apa.org/psycinfo/2005-02924-002

 

Busto, Usoa E., et al. "Long-term benzodiazepine therapy does not result in brain abnormalities." Journal of clinical psychopharmacology 20.1 (2000): 2-6.

 

These were the most recent he could find. Still old.

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The truth has to be acknowledged whether its 'negative' or not and that is simply that not everyone is capable of living happily benzo free after having their brain chemistry and nervous systems destroyed by these poisons.

You can call your unsubstantiated personal opinion "the truth", but it's still just your unsubstantiated personal opinion. I don't think that humans, on the whole, are necessarily capable of "living happily", but that's hardly evidence that benzos cause permanent structural damage to the nervous system.

 

Btw I've only been off benzo's for 4 months but I really feel that I won't recover from this. Its not my benzo brain deceiving me, its brain damage. I'll give it a year but I have no confidence at all in improving. There's been no improvement since I jumped, quite the the opposite, and I 'feel'' permanently damaged.

 

I'm going to go out on a limb and say it is your benzo brain deceiving you, because I felt the exact same way when I'd only been off benzos for a short period of time, and I also made comments (on here!) about how I'd eventually "need" to reinstate. I didn't, and you probably won't, either.

 

How do you 'know it'? Can you provide links to medical scientific studies which show this?

 

Sure!

 

Lader, M. H., M. Ron, and H. Petursson. "Computed Axial Brain Tomography in Long-Term Benzodiazepine Users." Psychological Medicine 14 (1984): 203-06.

 

https://www.madinamerica.com/wp-content/uploads/2011/12/Cognitive%20effects%20of%20long-term%20benzodiazepine%20use.pdf

 

http://www.ncbi.nlm.nih.gov/pubmed/15762814

 

http://www.aafp.org/afp/2000/0401/p2121.html

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Btw I've only been off benzo's for 4 months but I really feel that I won't recover from this. Its not my benzo brain deceiving me, its brain damage. I'll give it a year but I have no confidence at all in improving. There's been no improvement since I jumped, quite the the opposite, and I 'feel'' permanently damaged.

 

If I'm getting worse after a year off and still fighting against the tide, please tell me to reinstate for life to regain some quality of life.

I'd appreciate the honesty.

Thankyou.

 

Hi Gussy88,  Your taper looked really quick towards the end so I bet you do feel really bad. I think you would have been much more positive if you had gone slower. 

Either way your going to see big improvements especially in month 8 and 9 post jump. Do not judge the way you feel now for the way you will feel forever it's just not going to be that way forever and I know how real that feeling is, it feels absolute but its just the glutamate lying to you. This could have been avoided with an extra long taper below the 2mg point.

 

Hang in there, it does get better.

 

http://i1296.photobucket.com/albums/ag4/birdman22222/birdstaper_zps54793872.jpg

 

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The truth has to be acknowledged whether its 'negative' or not and that is simply that not everyone is capable of living happily benzo free after having their brain chemistry and nervous systems destroyed by these poisons.

You can call your unsubstantiated personal opinion "the truth", but it's still just your unsubstantiated personal opinion. I don't think that humans, on the whole, are necessarily capable of "living happily", but that's hardly evidence that benzos cause permanent structural damage to the nervous system.

 

 

Sad but so true.

 

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http://www.benzos.une.edu/documents/benzowithdrawalmetaanalysis.pdf

 

Thanks for that ihope.

 

I haven't read it yet as it looks heavy going.

 

On scanning through I noticed it was published in 2003 and the papers used had to be within the range of publication between 1980-2000, so we are really looking at data collected from  well over 30 years ago. 19 of the submitted 34 articles  were not eligible to be used for various reasons.

 

I noticed that the median number of benzodiazepine users surveyed for the studies was 20.5 so they were pretty small samples.

 

I'll probably be struggling with deciphering the stats. Strangely enough I was rifling through some old uni results a while ago to find I'd gained a distinction for 'Statistics'. I was shocked as I thought I had always struggled with it. I may have to call upon the services of my significant other to help.

 

Anyway I will most certainly wade through it even though it is very old.

 

Xana

 

PS Here are two my hubs found, in case anyone is interested:

 

http://psycnet.apa.org/psycinfo/2005-02924-002

 

Busto, Usoa E., et al. "Long-term benzodiazepine therapy does not result in brain abnormalities." Journal of clinical psychopharmacology 20.1 (2000): 2-6.

 

These were the most recent he could find. Still old.

 

IslandGirl I hope you're feeling better if you are moving slowly up to a dose you can stabilise on that makes life more bearable from which you can move slowly down from there.

 

I don't want to hijack IslandGirl's thread either

But...

 

I do have to say though there isn't a question about benzodiazepine use and cognitive deficits during use. I don't think you'd find a single neurologist or neuroscientist who could argue that you are free from cognitive deficit during benzodiazepine use. The only unanswered question is about whether the brain can bounce back post usage. Now if you feel the payoff is worth it for other reasons then that is one thing. But lets not argue that benzo use does not impair cognition - particularly acquisition of new knowledge - during use.

Xana: If you are happy on your low dose xanax that isn't a problem with me by any stretch - each to their own and that is your personal decision made with a huge amount of thinking on the subject now doubt. But arguing at length that benzos are harmless on a benzo withdrawal site is probably not appropriate. Particularly since this is a thread started by a women who is asking for help, not asking whether they are dangerous or whether she should stay on them forever.

 

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While I'm certainly not trying to advocate benzodiazepines, I just want to be as 'happy' and productive as possible given life is so short. I do agree with Spengler that happiness is a too fragile term to be meaningful or realistic however one thing is for sure. I was far more content, centered and involved in life while on a stable dose of valium. That is a fact that I can attest to. I was happy on valium and now my life is a continuous torture chamber off it. I was purely thinking along the lines of if people 'need' to be on a low dose benzo for life to maximise their happiness then so be it.

 

If all the buddies on here had only 6 months to live, how many would reinstate? Most, I would guess. We're all really making a risky investment on the future by stopping benzo's in which the returns are far from guaranteed. Worse we could lose all our 'money'.

 

I'm just not sure that sacrificing oneself in the short term for far from certain long term gains isn't fanciful. I suffered no side effects while on a stable dose but have been hit with everything under the sun only since I jumped. Maybe I could've carried on my life in a productive and content manner for 20-30 years more on valium! Now I've destroyed my 30s which should be one's most productive years. I wish I'd stayed on...............

 

Xana has reinstated and she might live out the rest of her days as happily as her reality allows, assisted in no small part by low dose valium. Or she may attempt to taper off again and be miserable for years.

 

Is it really worth it?

Getting off benzo's that is. Especially if they were still working.

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Smiff:

 

I do have to say though there isn't a question about benzodiazepine use and cognitive deficits during use. I don't think you'd find a single neurologist or neuroscientist who could argue that you are free from cognitive deficit during benzodiazepine use. The only unanswered question is about whether the brain can bounce back post usage. Now if you feel the payoff is worth it for other reasons then that is one thing. But lets not argue that benzo use does not impair cognition - particularly acquisition of new knowledge - during use.

 

Really? And you know this for sure because....? 'Let's not argue...' Dangerous words. I haven't noticed any acrimony here. We are having a polite conversation.

 

Xana: If you are happy on your low dose xanax that isn't a problem with me by any stretch - each to their own and that is your personal decision made with a huge amount of thinking on the subject now doubt. But arguing at length that benzos are harmless on a benzo withdrawal site is probably not appropriate. Particularly since this is a thread started by a women who is asking for help, not asking whether they are dangerous or whether she should stay on them forever.

(my emphasis)

 

But arguing at length that benzos are harmless on a benzo withdrawal site is probably not appropriate.

 

Is that what I was doing? I thought that we were discussing Spengler's point about whether cognition is adversely affected or not by the use of benzodiazepines and that various people were searching through the literature available to see if there was really any hard evidence from studies to discover the truth.

 

I definitely have not 'argued at length' about anything here. I have not even argued. I am merely seeking evidence because I cannot stand people making random comments off the top of their heads and claiming them to be the truth in an effort to convince those that are perhaps naive or in no fit state to investigate for themselves.(I am not referring to anyone on this thread.) It creates unnecessary fear and distress.

 

There is nothing more powerful than anxiety to adversely affect my thinking processes or driving ability or decision making. Or just getting on with life. But that is just me, perhaps.

 

this is a thread started by a women who is asking for help, not asking whether they are dangerous or whether she should stay on them forever.

 

Perhaps you need to re read the whole thread over again to ascertain who started the 'dangerous' topic. Not me. And I have never ever suggested anyone should reinstate or stay on any drug forever. What other people do is not my business. Unless it is causing harm to other human beings or animals.

 

Xana

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While I'm certainly not trying to advocate benzodiazepines, I just want to be as 'happy' and productive as possible given life is so short. I do agree with Spengler that happiness is a too fragile term to be meaningful or realistic however one thing is for sure. I was far more content, centered and involved in life while on a stable dose of valium. That is a fact that I can attest to. I was happy on valium and now my life is a continuous torture chamber off it. I was purely thinking along the lines of if people 'need' to be on a low dose benzo for life to maximise their happiness then so be it.

 

If all the buddies on here had only 6 months to live, how many would reinstate? Most, I would guess. We're all really making a risky investment on the future by stopping benzo's in which the returns are far from guaranteed. Worse we could lose all our 'money'.

 

I'm just not sure that sacrificing oneself in the short term for far from certain long term gains isn't fanciful. I suffered no side effects while on a stable dose but have been hit with everything under the sun only since I jumped. Maybe I could've carried on my life in a productive and content manner for 20-30 years more on valium! Now I've destroyed my 30s which should be one's most productive years. I wish I'd stayed on...............

 

Xana has reinstated and she might live out the rest of her days as happily as her reality allows, assisted in no small part by low dose valium. Or she may attempt to taper off again and be miserable for years.

 

Is it really worth it?

Getting off benzo's that is. Especially if they were still working.

 

Benzos were working for me. I wasn't in tolerance withdrawal. I wasn't having any sort of bad symptoms being on them. I just wanted to be in charge of my own mental health and not expect a pill to do that for me. I got off clonazepam and I am feeling wonderful about it. I am feeling stronger knowing that I can help myself with any anxiety I might feel. It's incredibly empowering and the best decision I've ever made. Yes, it felt terrible coming off this stuff...and occasionally I still have symptoms but I'm looking at the big picture and my picture includes me off benzos.

 

I'm not trying to be argumentative. Nor am I trying to suggest that anyone who decides to reinstate is wrong. I am just expressing to all on this thread that it has enhanced my life coming off this medication. I know many members who have gone through a very hard time coming off them but they have persevered and came out the other end...even though they suffered for many months...and in some cases longer. Reinstatement can seem like a good choice when you're feeling terrible but in my opinion, holding on and waiting it out might be the best decision of your life.

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Hi IG

 

I would love to be able give you a great big bear hug, but I can't so a cyber-hug will have to do.  (((((HUGS)))))

 

I can feel your pain, so I really don't want to get involved in any debates about whether people should, shouldn't, can, can't be on benzos for life, because that's not the question you posted. This thread should be about you, and suggestions/ideas about what you could try.

 

My POV (and I'll emphasis it is strictly my POV - no one else's) is that I will always be anti-benzos because I've seen how they affected my life over just a period of 3 years (to date), and I've also seen how long-term use has affected my mother. I would never wish that on anyone, but she's 84 and it's too late to do anything about her benzo use, but it's not too late for you. At the end of the day, I hope you are able to find a way to be benzo-free so you can enjoy the rest of your life happy and healthy.

 

I honestly can't give any advice on how or whether you should reinstate, but IMHO I think the best advice you have been given on this entire thread is the post made by Allen right at the very beginning.

 

Hi Island girl:

 

I've been in the boat your in. I cold turkeyed off 8 mg of K after 20 years use. After 7 months I just couldn't take the ungodly 24/7 w/d. I was suicidal. I had to reinstate. I was in such bad shape.

 

I can only tell you what I did. I reinstated to a smaller dose ( in my case 1 mg) . I kept going up slowly 0.25mg at a time till I stabilized on 2 mg. even at 2 mg it took me a while to stabilize because I was so bad .  Once stable , I have SLOWLY  tapered my dose down . I cut and hold for 6 weeks. I am down to 0.75mg and am functioning. Some days are rougher than others but NOTHING like it was those 7 months after I cold turkeyed.

 

I have also added excersise and very healthy eating into my recovery. I can only excersise now though because I stabilized . I also have added supplements such as fish oil , vitami d , magnesium and some other supplements that I find helped me. Also , I had to go on an A/D due to the severity of my depression once I c/t'd off such a high dose of K. It has helped.

 

I believe , and others may disagree, that if someone is not getting any relief whatsoever months after an abrupt w/d to the point where they simply cannot take it anymore , that they have exhausted all their coping mechanisms as I did then they should reinstate and very very slowly taper off the drug.

 

Good luck to you Island girl

 

If anyone is considering reinstating, this sounds like the most sensible way to do it. It's kind of like a reverse taper. It would be a shame to reinstate right back to the dose you were on originally, because you may not need to go right back to that dose, and if you do it will only make your future taper that much longer.

 

Try following Allen's advice and see how you feel over a period of time. You are obviously suffering a lot, and I always think that when something isn't working for you, you need to change what you are doing. Hopefully doing a reverse taper will get you to a point where you feel stable, and then when you feel you are ready, you can try doing a much slower taper from there.  If you want any help doing that, that is something I can help you with. :)

 

Just remember that it will take a while for the valium to build up in your system, so don't be in too much of a rush to keep increasing your dose. Let your body tell you what dose it needs.

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I dont understand why anyone that chooses to stay on benzos for life is even on this site..

I dont have a problem with someone doing that, but I dont understand why theyre here..

Theres plenty of people here qualified and willing to say that some people can be in a position to do so, so we dont need someone whos going to stay on benzos for life hanging around just to represent those few people...

If I was going to stay on benzos, I wouldnt be here....

I can understand someone being here, until they decide which road theyre going to choose, but after that, if you're going to stay on benzos, why come here?

If its to offer help to those that might decide to stay on benzos, like I said, theres plenty of people here to help them make that decision.....

I dont get it...

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guss, I would think very few, if any of us here know whether we have 6 months to live or 60 years...

should we stay on benzos just in case its only 6 weeks??

 

theres a old saying in AA, goes something like this:

 

The "coulda should woulda's and the if's and's and but's can kill you, dont dwell on those things...

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I completely agree with your praise for Allen's comment, Diaz. It makes alot of sense and I think I said earlier that I was surprised at the very positive and helpful advice that was given at the start of this thread.

 

I think threads will always evolve to encompass other topics which branch off from the original question or hypothesis. If they don't they are usually very short lived. I guess you could compare a thread to a personal conversation. As minds tick over, related but new ideas pop up. The more people to join in, the more thoughts will be expressed.

 

I think that is all good, as long as a person in distress has not been left stranded.

 

I hope IslandGirl is feeling a little better and that others are thinking about the other issues presented here.

 

Xana

 

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While I'm certainly not trying to advocate benzodiazepines, I just want to be as 'happy' and productive as possible given life is so short. I do agree with Spengler that happiness is a too fragile term to be meaningful or realistic however one thing is for sure. I was far more content, centered and involved in life while on a stable dose of valium. That is a fact that I can attest to. I was happy on valium and now my life is a continuous torture chamber off it. I was purely thinking along the lines of if people 'need' to be on a low dose benzo for life to maximise their happiness then so be it.

 

If all the buddies on here had only 6 months to live, how many would reinstate? Most, I would guess. We're all really making a risky investment on the future by stopping benzo's in which the returns are far from guaranteed. Worse we could lose all our 'money'.

 

I'm just not sure that sacrificing oneself in the short term for far from certain long term gains isn't fanciful. I suffered no side effects while on a stable dose but have been hit with everything under the sun only since I jumped. Maybe I could've carried on my life in a productive and content manner for 20-30 years more on valium! Now I've destroyed my 30s which should be one's most productive years. I wish I'd stayed on...............

 

Xana has reinstated and she might live out the rest of her days as happily as her reality allows, assisted in no small part by low dose valium. Or she may attempt to taper off again and be miserable for years.

 

Is it really worth it?

Getting off benzo's that is. Especially if they were still working.

 

What if you live to be 88 years old?  Do you really think you can be on benzo's for another 40/50 years? How high would your dose get by then?  200mg per day? 300mg?  At some point you will pass the legal limit and you will be trapped at virtually 60,000 feet high and no way down and be in tolerance feeling about like you do now.

The longer you stay on the benzo's the higher the level's of glutamate rise in the brain.  This alone puts the brain in a defensive position with the excess glutamate chipping away at it day by day.  You say you have brain damage why would you think reinstating would reverse brain damage?  My guess is you tapered way too fast like I did.  This time I'm tapering at a snails pace and it's not so bad. If I get revved up I hold and hold for as long as it takes and then down again when I'm feeling good (that always sucks) and keep pushing slowly downward.

 

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Benzy:

 

I dont understand why anyone that chooses to stay on benzos for life is even on this site..

I dont have a problem with someone doing that, but I dont understand why theyre here..

Theres plenty of people here qualified and willing to say that some people can be in a position to do so, so we dont need someone whos going to stay on benzos for life hanging around just to represent those few people...

If I was going to stay on benzos, I wouldnt be here....

I can understand someone being here, until they decide which road theyre going to choose, but after that, if you're going to stay on benzos, why come here?

If its to offer help to those that might decide to stay on benzos, like I said, theres plenty of people here to help them make that decision.....

I dont get it...

 

Not sure to whom you are referring. Might be me but I have NEVER said I plan to stay on benzos for life - has anyone?

 

You are probably right about leaving. I almost did a few weeks ago, because I am a little weary of odd people who don't know me suggesting I shouldn't be here as I am not tapering right now. I guess BB has become a part of my life after almost 2 years. It's an addiction. But often a depressing one. It used to be funny and uplifting and a sort of 'safe place' to come to but the people who made me laugh have gone.

 

After some kind people strongly suggested I stay and said that I was well regarded and level headed, I did.

 

Your comment has prompted my thinking that maybe the time has come. I would love to quit my computer addiction. I would also love to hear from those who have ended their membership to see how they are going. Perhaps 'former member' guest passes could be issued. One day passes. So that no kindling could occur.

 

Xana

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I certainly have not had any conversations with a neurologist or neuroscientist lately, but i am also totally unaware of any saying in studies that have been published for all to read that cognitive deficits occur with benzodiazepine use. This is a totally inclusive statement, and I do not think that doctors have expressed this opinion for all people using benzos. I'd love to see the study "backup" for a statement such as this.

 

In fact, what I keep reading and experiencing myself is that many doctors prescribe benzos without consideration of any of the ramifications. If it were widely known and felt for certain that cognitive deficits were to be the result of prescribing benzos, I would think that every doctor including neurologists and neuroscientists would really weigh the cost/benefit ratio of using them.

 

I had the same experience as Hope1962. Xanax worked fine for me. I did not have tolerance w/d either; I simply wanted to be in control of my own mental health also and not be dependent on a pill.

 

And I still feel that way. But i thought this was not an anti benzo forum. While it is true that most members here are wanting off benzos, I just seem  to be running across posts here and there now where anyone who is unsure of wanting to get off of them or has decided tom stay on them for now is not so politely being invited to leave the forum.

 

That seems rather unkind and unfair to me. I would think that type of "invitation" would be extended by someone other than another benzo Buddie.

 

Well, I took this thread off track again, but this is my opinion of some of these statements.

 

Intend

 

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do you really NEED a conversation with a neurologist or neuroscientist to know that benzos can cause cognitive deficits?? come on...

 

my thoughts on the current topic is that if someone searches out this site, they are looking for support with benzo tapering/withdrawals... like the sites opening introduction says...

 

so I wonder, when new members come here, unsure of what they're options are, and they see members that aren't tapering, aren't planning on tapering, and suggest that they and others need to stay on benzos, will this be enough to influence them, in their compromised cognitive deficit state, to continue using, and just leave...... "oh, theres some normal people on there like me that are continuing to take benzos, so will I"......

 

I know theres a place for everyone on here that is in a place of tapering benzos and going through benzo withdrawals, even family members that dont take them....and we do appreciate those who have jumped before us to stick around and encourage us, and theres even a place for those who haven't started yet and are gathering information..

 

but, I dont know why someone that isn't going to get off benzos would hang around? boredom? lonliness?? There are other sites for that...

 

Im not trying to be an a##, I didnt start the conversation, just made me wonder about these things....

 

 

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I really don't want to drag this out so I will cut to the chase...

 

Are you referring to me, Benzy? I just want to be clear on this.

 

Thank you.

 

Xana

 

PS You have been here for 2 months and 12 days. Do you really think you know the complexities of anyone's story of withdrawal here yet? You seem very sure about how wise and intuitive you are with little to back it up.

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And  just to be clear, studies have been conducted and links provided here, but I am saying that there are many variables to consider with them.

 

The age of the study, whether it is on human beings or animals, the number of people studied, the percentage of those studied who did show cognitive deficits, the definition of long term use, and probably other variables I'm not thinking of.

 

It is most likely a possible risk, but evidently not enough of one to stop doctors from actively Rxing these drugs. It is to me at least a cost/benefit consideration that people must make for themselves.

 

And I am not at all endorsing their use by any means. But I am also not condemning those who choose to use them; particularly those members who have been actively participating, supportive members. Let's let people live and let live. My struggle off benzos does not impact anyone else here, and someone else's choice to take them at this point does not affect anyone else here if they are not proselytizing in favor of their use.

 

Intend

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Spengler:

 

Would you be suggesting that people just debate for the sake of stirring? That is rather a cynical and I believe very wrong assumption. I guess I am just speaking for myself here.

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to whom it may concern lol, no, I dont condemn or judge anyone for choosing to continue taking benzos, thats their life and their business, and a few people might feel they have too for whatever reasons....

 

I would, however, tell them what I know about benzos, withdrawals, and such, if they are here on this site, and state why it would be a bad thing to continue to use them, and why.....if they start a thread with the question about it, or ask me my opinion..

 

I gotta take other meds for life, a few which have long term bad side effects, so....

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I've been on here on and off for about 4 years. A lot of people I used to see are gone too. Doesn't stop me from posting. Doesn't matter if you are still taking benzos either, that's what we are here for.
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