The Klonopin Klub

[[Be...]]

Hey all,

 

Not getting around much. Hard to walk. The pain issue is complex. Right scapula issue that had seized my neck has eased 75% since self trigger point therapy. Sciatic type pain, groin pain, and pubic pain is ongoing and I'm reading about self trigger point therapy for those areas too. I think I've got the muscle groups pinpointed that are problematic. Tried rolling on the spiky ball and felt the pubic pain remit a bit. BTW, the TENS unit has a broken wire. I'm beyond exasperated.

 

But doing this on my own is daunting. So I found a certified neuromuscular therapist and shot him an email, hoping for an appointment this week. K-free state is giving me muscle spasms and nerve pain. But it's understandable how it may have masked a more intense pain last Feb when I fell off my bike. I have so much work to do for a physically fit body. If this NMT guy is available, he can help in this area as it's a specialty. But man oh man, the emotional energy it takes to keep pushing forward is exhausting. And the pain response increases anxiety and heart rate. I just know that if I didn't have this muscoleskelotal issue, I'd be doing pretty damn good off K, at six months.

 

Nomo,

Did you read that last part? The anxiety I have now is residual K, and some is pain related, and some is probably an original issue having to do with stomach and who knows what, mYbe even the anemia. Yet it is nowhere even close to the bad days during tapering. It's understandable that you wonder and fret about the future. How could you not? I wish I had a temporary lobotomy from .50 - .125 mg K. It just felt sloggy and fraught with doubts even though I had windows. You are going to be OK. I know things are hard right now.

 

TRY,

I am encouraged by your renewed energy and even rapid cycling symptoms, which seem classic for the low dose you are on. I had head pressure too. I have none of that head stuff now. My occasional  headaches are more from muscle tension or a supplement. You are doing great.

 

CD, Kgirl, WR, Bets, Bstrong, Burnedout, Maya, Klonopin addict, new girl, Liberty, mymana and the rest of the gang—keep on keeping on.

 

Best, Bennie

 

 

 

[[...]]

Bennie,  As I read about your self-trigger pointing and figuring out the muscle groups, I just wished there was someone helping you with all that.  I was glad to read you may have found somebody.  I continue to pray for your complete physical restoration and an end to all the pain.  It sounds so awful.

 

Thank you for pointing out to me that your anxiety is better.  This is really rough.  I am pretty sure I have a hefty dose of DP DR right now.  Your and the buddies kind words mean the world to me.

 

My sister sent an email.  Apparently my dad is going to live for 2 years?!?!  How do they know this?  I can't tell which end is up in this situation.  He is still in ICU and had last rites done by a priest a couple times (?!)  He is still waiting, apparently for an apology from me (??) and my sisters are angry with me.  This is nothing new but hard to take in my depersonalized anxious state.  I can not tell them or other family/friends anything real.  That gets twisted and turned around.  That is tough to handle when I am at my best.  Right now it is just like a black hole.  Is there any wonder I am struggling in the old taper right now?   

 

At least we have a couple days free of the houseguest.  Is this a soap opera?  Cuz I want out.

[[be...]]

Hi Bets,

 

Maybe it's my PMS talking, but the last three paragraphs suggesting SSRIs &/or benzodiazepines for PMS fills me with hormonal RAGE  .

 

(Good to see you though  ).

 

Hugs,

WR

 

WR:

 

Geez. I did not read that part. Sorry. If I did, I would not have posted it. It is not your PMS, but mine. Benzos for PMS? What's next I ask? Good to see you too. I am doing very well, and I'll check your sig to see how you are doing as well. I hope you are down to the wire. Betsy

 

[edit] I did read your sig and boy you are really getting low. I jumped from .006 mg. When do you plan to jump?

[[NY...]]

Hi Bets,

 

Maybe it's my PMS talking, but the last three paragraphs suggesting SSRIs &/or benzodiazepines for PMS fills me with hormonal RAGE  .

 

(Good to see you though  ).

 

Hugs,

WR

 

WR:

 

Geez. I did not read that part. Sorry. If I did, I would not have posted it. It is not your PMS, but mine. Benzos for PMS? What's next I ask? Good to see you too. I am doing very well, and I'll check your sig to see how you are doing as well. I hope you are down to the wire. Betsy

 

[edit] I did read your sig and boy you are really getting low. I jumped from .006 mg. When do you plan to jump?

 

Thanks Bets  Four more days until .002 grams and I'm DONE  ;D

[[de...]]

To my buddies here

 

I ended up at the hospital last wed. morning about 5 i felt really strange about 1 in the morning and finally had terri wake up Joe at 3:30..and halfway to the hospital it was like someone flipped a switch in my chest..when i got to the er my heart rate was 258 and they had to give me a shot to stop my heart and reset it..i was terrified i was actually begging them not to let me die..

 

i need some advice i was diagnosed with SVT.. Supraventricular tachycardia..its where the electric in a couple of the wiring gets whacky and starts to loop..i did a nuclear stress test yesterday there are no blockages an no damage done to the heart..i am still in the cardiac wing of the hospital..Terri has never left my side.

 

now the big question they tell me that once this happens it can happen again at any time and any place or maybe not for many yrs if at all but will due to the loop effect..and no the specialist are not BENZO wise..so my options are something called an ablation where they go in and kill off some of the circuitry in the loop...dangerous invasive and can end up with a pace maker if a mistake is made also..

 

second option is a medication..i cant do beta blocker due to my already low blood pressure and the meds they are offering are horrible with lots of bad side effects..

 

third option..wait it out and see if it happens again..its not life threatening if you have no other heart issues as i dont..

 

I have lost the weight i had gained and i am really malnourished now as they cant get me enough calories to hold it..and they dont seem worried about my weight.

 

now my big question is..could this be another crazy side effect of the k??? and also they are telling me that they dont believe there is anything in my throat so cant get to a speech therapist for swallowing techniques til the 27th of this month..

 

terri and joe both said think about it first the swallowing and now this and you were low on the k..now i am at 2.75mg i was at 1.75 but that was a gradual increase to see if i could get some relief..

 

my primary wrote me a script for 5mgs of valium twice a day but couldnt tell me when or how to take it so when would i add in the first 5mgs since i dose my k  .75 4:30 a.m .75 10:30 a.m .50 4:30 p.m. and .75 10:30 p.m..

 

i am going home tomorrow morning after i tell the cardio doc my decision on what i would like to do about this..but if i choose the surgery i wouldnt be going home..my cns is a mess and i can hardly think straight..dont even know if this makes any sense.

 

My heart rate now is staying in the 80's and goes to about 120 if i stand up...i need it to go lower and also could the heart palps i am having now and the raise in my heart rate be due to my weakness of not getting enough calories while in here cause i know that can throw your heart out of whack in that way..

 

would love any suggestions and help i am desperate at this point cause noone here gets it cause they dont get the benzo part of it..

 

i am terrified now to go home as if it happens again it could be any time any place..and well you all get the ruminating benzo brain..i have had a headache today i think the stress of thinking about this is getting the best of me.

 

will be checking back often to see what peoples opinions are..

 

thanks and hope to read and get some help from my family here..

 

big hugs

 

deep

 

 

[[Kg...]]

Deep: I am so sorry to hear you are doing so poorly.  :'(

 

IMHO what you should do regarding your heart is something you need to discuss with your cardiologist and the person who would be doing the ablation if you are considering this and not get advice from an internet forum from lay people. The only thing I can tell you is that my mother, who is 87 years old, had an ablation.  It is not considered major surgery and she did fine.  This is what her cardiologist recommended for her based on her medical condition.  She was home and out and about within a day.

 

Re the Valium: If  you are adding it to your klonopin then I would start slowly.  I would add in 2.5mg in the AM (the dose you are not waking up to take) and take it with food to prevent nausea.  I would take 2.5 mg at night with a meal as well.  You just split the 5 mg pill in 1/2 and take each 1/2 on the same day. If you do fine and it helps you then for sure add in the rest - 5 mg in the morning and 5 mg in the PM. 

 

If you want to substitute 10 mg of Valium for part of your Klonopin dose I would do this slowly. I would add in 2.5 mg of the Valium and drop .125 mg of K. (The ratio of K to V is 20:1)  I would do this on whatever dose you feel you need the least.  Stay here a few days and keep dropping .125 mg of the K and adding in the 2. 5 of Valium.  I would do this over 2 of my K doses and leave the other two doses of K alone for now.  It will take some time but given how you feel IMHO it is best to be very cautious adding in a new medicine. 

 

Again: I truly wish you were feeling better. I also know this a very rough time of the year for you so perhaps that is adding to your stress as well?  Peace be with you - Deep and prayers and healing thoughts are being sent to you.

[[be...]]

Hi Bets,

 

Maybe it's my PMS talking, but the last three paragraphs suggesting SSRIs &/or benzodiazepines for PMS fills me with hormonal RAGE  .

 

(Good to see you though  ).

 

Hugs,

WR

 

WR:

 

Geez. I did not read that part. Sorry. If I did, I would not have posted it. It is not your PMS, but mine. Benzos for PMS? What's next I ask? Good to see you too. I am doing very well, and I'll check your sig to see how you are doing as well. I hope you are down to the wire. Betsy

 

[edit] I did read your sig and boy you are really getting low. I jumped from .006 mg. When do you plan to jump?

 

Thanks Bets  Four more days until .002 grams and I'm DONE  ;D

 

That is sooo soo  sooo great!! I'll send you a cake on celebrations! :thumbsup: :thumbsup:

Betsy

[[fi...]]

WR, Kgirl, I vote we make a thread for the July Jumpers 

 

Deep, I'm so sorry to hear things are so bad. I wish I knew what to say. You're in my thoughts and I wish you nothing but healing.

 

Bennie, I'm sorry the pain is persisting. Fingers crossed every day that you get answers soon.

 

 

I'm doing okay today and yesterday, which is a nice feeling. Still exhausted, kind of dizzy lately, and I'm still getting adrenaline/stomach waves every evening, but they're not totally knocking me on my a$$, so hey, I'll take it.

 

CD, Maya, liberty, Bets, Nomo, Try, HTC, and everyone else - wishing you all peaceful nights and wide-open windows soon.

- Daisies

[[Kg...]]

Daisies: Great idea - How about 1st one off starts the new thread?!! I think that means NYC Wave Runner unless someone else is going to beat her too the punch.  :smitten: :smitten: :smitten: :smitten:

[[de...]]

Deep: I am so sorry to hear you are doing so poorly.  :'(

 

IMHO what you should do regarding your heart is something you need to discuss with your cardiologist and the person who would be doing the ablation if you are considering this and not get advice from an internet forum from lay people. The only thing I can tell you is that my mother, who is 87 years old, had an ablation.  It is not considered major surgery and she did fine.  This is what her cardiologist recommended for her based on her medical condition.  She was home and out and about within a day.

 

Re the Valium: If  you are adding it to your klonopin then I would start slowly.  I would add in 2.5mg in the AM (the dose you are not waking up to take) and take it with food to prevent nausea.  I would take 2.5 mg at night with a meal as well.  You just split the 5 mg pill in 1/2 and take each 1/2 on the same day. If you do fine and it helps you then for sure add in the rest - 5 mg in the morning and 5 mg in the PM. 

 

If you want to substitute 10 mg of Valium for part of your Klonopin dose I would do this slowly. I would add in 2.5 mg of the Valium and drop .125 mg of K. (The ratio of K to V is 20:1)  I would do this on whatever dose you feel you need the least.  Stay here a few days and keep dropping .125 mg of the K and adding in the 2. 5 of Valium.  I would do this over 2 of my K doses and leave the other two doses of K alone for now.  It will take some time but given how you feel IMHO it is best to be very cautious adding in a new medicine. 

 

Again: I truly wish you were feeling better. I also know this a very rough time of the year for you so perhaps that is adding to your stress as well?  Peace be with you - Deep and prayers and healing thoughts are being sent to you.

 

thanks for getting back to me but the cardio docs here tell me not much..and dont want to take the time to discuss they know you have the internet and can do your own research which is sad..so was given the options and told to think about it and choose one and i have to tell him today and if i dont do the ablation then i go home today..

 

as for the valium it was prescribed to try and get my anxiety down so i am not trying to replace or do anything with the k right now..i am doing everything just to try and get the heart palps i can feel all the time to slow down some..

and thank you for the well wishes and yes this month is really a bad time for me and ((hugs)) for remembering..

 

for the valium is it bad to add it in now since when they gave it to me in the er when i was here in my iv i had no problems with it at all..

 

thanks for all your help

 

hugs

 

deep

[[NY...]]

Daisies: Great idea - How about 1st one off starts the new thread?!! I think that means NYC Wave Runner unless someone else is going to beat her too the punch.  :smitten: :smitten: :smitten: :smitten:

 

We can have a summer KK Jumper's party.  That way Burned and New Girl (and anyone else) can get in on the fun too. 

 

Daisies, so glad you're still feeling okay.  Last night my organs started having hot flashes again too.  It's kind of comforting knowing I'm not alone with this weird symptom, although of course wish you were spared.  Big hugs.

 

Deep, Sorry I'm not familiar with the procedure you mentioned.  I hope you're able to make a decision today that you feel at peace with.  I'm holding you in my thoughts today and everyday.  So much love to you, WR

 

 

[[Bu...]]

Thinking of you Deep-sending hugs

 

Glad you are doing so well WR!

 

Hang in there Bennie

 

I was in ER yesterday for bad GI pain, at least they didn't find any pancreatitis.  On way home, started getting red splotches/hives all over-some kind of allergic reaction to something...  Even after a Benadryl still getting some today. .  Scared, angry-I'm a mess-some hives this morning and burning skin all over and swollen, itchy eyelids.  Husband flew out today to see his family.  We didn't part on good terms...I am totally down.  Thinking acute???  This is really kicking my butt right now...any support would be helpful right now...thanks

[[ca...]]

Thinking of you Deep-sending hugs

 

Glad you are doing so well WR!

 

Hang in there Bennie

 

I was in ER yesterday for bad GI pain, at least they didn't find any pancreatitis.  Had some kind of reaction to something and had bad hives all over.  Even after a Benadryl still getting some today.  Swollen right eyelid too.  Scared, angry-I'm a mess.  Husband flew out today to see his family.  We didn't part on good terms...I am totally down.  Thinking acute???  This is really kicking my butt right now...any support would be helpful right now...thanks

Burned, not sure what to say except just keep believing things will get better I am not feeling the best either and I am sure you just must have eaten something or causing a reaction being you have hives and a swollen eye Histamine reaction WR, know about them all to well . Feel better ok? Everyone else Happy 4th and hope your day is a good one ~CD

[[Bu...]]

Thank-you CD and hope you get to feeling better soon, too

[[NY...]]

Thinking of you Deep-sending hugs

 

Glad you are doing so well WR!

 

Hang in there Bennie

 

I was in ER yesterday for bad GI pain, at least they didn't find any pancreatitis.  Had some kind of reaction to something and had bad hives all over.  Even after a Benadryl still getting some today.  Swollen right eyelid too.  Scared, angry-I'm a mess.  Husband flew out today to see his family.  We didn't part on good terms...I am totally down.  Thinking acute???  This is really kicking my butt right now...any support would be helpful right now...thanks

 

Ugh, so sorry to hear you were in the ER with such pain.  I would assume that things may be ramping up b/c you are so close to the end, and it will ease up as you down and off.  I really think histamine stuff hits some of us hard, especially at the end.  Today the gland under my chin swelled (and ears plugged) after I ate parsley, something I'm not allergic to typically.  I'm going to take DAO with my meals, just to give myself a small advantage. Maybe give that a shot if you still have it around.  If it doesn't effect you, you could try taking a little extra Vit C also, to lower your histamine levels a bit.  Deep breaths ~ 

 

 

 

 

 

 

 

[[Bu...]]

Thanks WR-trying some Dao and C now.  The reaction was just so sudden-wondering if it was reaction to ultrasound gel or maybe new acid reducing supplement (just saw it has glutamine in it)...ugh.  Skin burning all over now-this is crazy.  Take care

[[Kg...]]

Burned it never ends.  I would stop whatever new thing that you added in and just eat bland for today.  But what do I know.  It will get better I know Clona and Bennie warned me and they were right. The last couple of weeks on the K was awful and the first week off then I felt better.  I think you are following the same path as we all did so just breathe in and out and soon you will be off of the poison.  And BTW my favorite song is "cry if you want to"  I did that a lot at the end.   

 

Can Do , NYC happy 4th of July.

 

Everyone I hope the loud fireworks don't drive us all crazy today and tonight. 

[[Bu...]]

Thanks Kgirl.  I hope this burning goes away-even my nose is burning now-it's just so ridiculous.  Hope you have a good day

[[NY...]]

Thanks WR-trying some Dao and C now.  The reaction was just so sudden-wondering if it was reaction to ultrasound gel or maybe new acid reducing supplement (just saw it has glutamine in it)...ugh.  Skin burning all over now-this is crazy.  Take care

 

It could be anything, but agree with Kgirl, best not to introduce anything new now, not even an antacid.  Burning skin can go along with a histamine reaction, so it should pass as your system settles down form whatever set it off. 

[[Be...]]

Morning folks--

 

It's a day.... 

 

Burnedout,

:'( Crazy what the drugs can do. Been to ER under same GI circumstances. No hives though. Vitamin C may indeed help, unless your gut says NO. Maybe try an antihistamine cream? Or make a vitamin c paste and test on hive. That once helped my hands. Just thinking out loud.

 

Deep,

I'd say to make a decision that will allow you to worry the least about your health once you leave the hospital. No one here can advise you about heart matters except cardiologists. They may not know about withdrawal, but they know hearts. Sometimes doctors can fix things. There are risks in both doing and not doing something. Which is bigger? And you did not have bad reaction to Valium, so that is positive. I truly hope your unsettled health and state of mind finds some balance soon.

Hugs, Bennie

[[Bu...]]

Thanks again WR-putting the antacid supplement away.

 

Bennie:  may try an antihistamine cream and popping vit c now.  Appreciate it.  Hope you're doing better

 

 

[[Kg...]]

Burned I would also try a long acting antihistamine like Zrytec the worst that will happen is it will make you sleepy.

[[Bu...]]

Thanks Kgirl-may give it a try.  My stomach is burning now, too...ugh.  I tend to get nauseous/burning after taking AM dose lately...go figure.

[[Be...]]

Thanks Kgirl-may give it a try.  My stomach is burning now, too...ugh.  I tend to get nauseous/burning after taking AM dose lately...go figure.

 

Burned, as a way to throw off the nerves, try ice pack on top of head, back spine, belly (not icy cold there), and bottom of feet.

[[Kg...]]

Thanks Kgirl-may give it a try.  My stomach is burning now, too...ugh.  I tend to get nauseous/burning after taking AM dose lately...go figure.

 

I also didn't feel well every time I took my AM dose - it made me feel worse.  I think you need to eat something bland and hopefully that will help you to feel better. I don't think I would take any medicine given how our bodies react to everything. You will get through today -  lifting you up!!  :stretcher:

 

Just saw Bennie's post- a great idea - also a cool shower sometimes helps.