12-24 months and up support group

[[La...]]

Yep Garden I’m with you! I don’t want mine to boogie out I want them to get the hell out!  Fast fast fast go away for good. I think when I’m healed I might throw a healed party. 70’s themed maybe. Good excuse to break out the disco music.  Wow 19 months  I’m not far behind you. My month 15 was awful. I’m still slowly recovering from that out of the blue setback that started earlier this month. I’m pushing myself a bit in the evenings when I’m having my window to walk around my apartment. I’ve also started picking one very small task to complete while upright. So far so good.

Hey does anyone have a bittersweet relationship with their windows or is it just me? Here’s what I mean… I’m grateful ly happy to have them ( sweet) but when I feel them closing ( bitter) I am left being a little annoyed knowing it is bringing a wave. Don’t get me wrong, the relief is great but my thoughts are why not just stay open? Seeing that you DO know how to! Anyone get my drift?

[[Ga...]]

Hi LadyDen.  I love the idea of a 70’s party, as I used to disco dance in my younger years!  As far as windows, I agree that there is a bit of anxiety while trying to relax and enjoy feeling good in a window, because a wave is usually lurking somewhere behind the window.  And, as many buddies have said, when you are in a window you tend to forget how awful the wave was, and when in a wave, it is so very hard to remember how good you felt in a window.  Nineteen months is a long time to be playing this Russian roulette at 74 years of age, but I will stay positive until the final window opens, and I can disco dance off into a new day!

 

Healing thoughts for all my fellow buddies :smitten:

 

GG

 

 

[[De...]]

Garden and Lady I think we are all in a similar sensitivity pattern and similar progress in healing.  I sure hope this phase doesn't last too long.  I'm so ready for the mostly healed phase 

[[La...]]

Me too Deanna. As Garden is 74, I’m in my mid 40’s and rest assured Garden that it’s still not fun. This monster don’t care how old we are!

Deanna I agree with you. I think we’re in the same phases. But I’m beating on the door of phase 3 to let me in. If there’s an in between phase between 2 and 3 then that’s me.

Hey ladies, where is a magic Jeanie or a fairy healing stone or something when we need it? 

I’ll pay them at this point to get rid of this! I’m sick and tired of being sick and tired of this. 

But in due time ladies…..in due time. 

Love y’all

[[La...]]

Ohhhhh forgot to mention that I’m polling BB to see if I can get some players to start up my guess why game thread again. If anyone is interested in playing please go to my guess why game thread in the just for fun forum and reply in there to count you in. I already have one player.

Ohhhh and tell your other BB friends too.

Deanna you remember the fun we had in there? I’m so excited to start it again.

[[De...]]

Closing in on my 61st birthday and it sure ain't fun at any age!!!!  Love y'all too 

[[Up...]]

How can any of you tell what is a window or wave?  My mood is okay but my pain is 24-7?  It does not ease up and unfortunately for me there is no resting or waiting for this to end.  I have to do my life!  Nobody to help me.

[[Be...]]

What kind of pain are you having?

[[De...]]

Hi Upper, I never had true windows either as my pain was also nearly constant as well, but there started to be days where I didn't feel as awful as other days.  So I started to notice waxing and waning in symptoms. 

 

Have you ever heard of CurableHealth.com?  It's an app to help manage chronic pain.

[[La...]]

How can any of you tell what is a window or wave?  My mood is okay but my pain is 24-7?  It does not ease up and unfortunately for me there is no resting or waiting for this to end.  I have to do my life!  Nobody to help me.

Upper my heart goes out to you.

A wave is when your symptoms are tense for a certain period. A window is when they’re mild or none existing for a certain period. I’m glad you asked this question because isn’t it possible for mental symptoms to be in a window but at the same time physical symptoms are in a wave?

I’m with Becks and want to know what kind of pain you’re having?

Anyway I hope you get a good window soon to get some relief. Am sorry we’re all still suffering. Hang in there!

[[Up...]]

The pain is nerve pain stinging burning that starts in my center chest and goes through my back into my left leg mostly but is also in my right.  It goes from moderate to mild.  From from a 4 to a 7.  But it’s constant.  I ache in my arms still.  Thank you for caring any advice is appreciated.

 

U

[[La...]]

You know a heating pad is one of my best friends. 

[[De...]]

Upper, I have mostly left sided pain as well.  It is a nearly constant companion, but has been fading a bit over time.

Stay strong!!!

[[Up...]]

Yes my heating pad is my best friend for now.  I want to know if anyone has had this go away.  Also I just don’t want to cook.  I seem to have lost my will yo do it.  Are you all able to cook?  What are you making?  I have to feed my daughter who is disabled and not having any desire to do it.  Any one have this come back?

 

U

[[La...]]

I’m not able to cook since the first of this month. But before that I was cooking at least 3-4 times a week. Might I suggest you visit the recipes thread. There’s delicious benzo friendly ones. You could chop vegetables ahead of time to have for easy meal making. Put them in ziploc bags. There’s many meals you can make that doesn’t take long like casseroles, soups, stews, stir fry etc.

here’s an easy one if you and your daughter can eat potatoes:

A bag of unseasoned tater tots

Ground beef, chicken or turkey

Onion powder

Season all seasoning salt

Chopped bell peppers

1 can tomato sauce ( organic)

Shredded velveeta cheese

 

In a bowl combine tomato sauce and onion powder. Set to the side

In a rectangle pan place tater tots and sprinkle with season all seasoning salt ( contains no msg 

Put in the oven for 15 minutes according to the instructions on the bag.

While tots are baking, cook meat of choice in a skillet, drain if necessary then add chopped bell peppers and cook until bell peppers are tender.

Take tots from the oven, sprinkle the meat and tomato sauce on top. Layer with cheese. Return to oven another 15 minutes. Enjoy!    This meal depending on how much you make can be eaten at dinner for 2 days. It’s great with a side salad or steamed veggies. 

 

Chicken fried rice stir fry

 

Scrambled eggs

Cooked rice

Season all seasoning

Minced onions

Chopped carrots ( pre-cooked)

Chopped zucchini ( pre-chopped)

Pre-cooked chicken chopped in pieces

 

Using butter melted in a skillet, add all the above ingredients and stir fry.  I like eating these with fried cabbage on the side or chicken potsticks but I don’t use the soy sauce that comes with it. My favorite are the Tai-Pai chicken potstickers!

 

Hope this helps. I don’t mind giving you more recipes that are quick and easy to make.

[[le...]]

Hope you are all OK, I'm so so just wondered if anyone found seeing your GP of any help? Trying decide whether to go. You can only book 10 minute phone appt here, so I wrote letter to my current GP , as never met her with my tale  of woe. Had text saying I could book on the day face to face appt when she's in next week. No guarantee as have to ring at 8 am constantly hope you get through. Therapy hasn't help, I can't take AD's which seem their answer to everything , sure they get handouts fir prescribing them,  had wondered if was anything could take as one off, when I get meltdown day, just wondered if anyone got any help from their GP. I have levelled out main,t, did get a window for about hour , first one in 32 months but slow progress! It's really stressful even trying get through so undecided whether it's worth the hassle!

[[La...]]

Leann I’m sorry you’re miserable. But glad you had a window. Although small and short, it’s still progress and a good sign that healing is still taking place.

As far as your GP, it’s up to you. But, you already know they’re going to try to give you more pills. Those will probably just add to your suffering plus you’ll have to taper them if you take them more than a week or two. With your body already going through this, if I were you I wouldn’t put anything else in my body unless there’s no choice. At the end of the day it’s your decision to make. But your brain needs its space to heal without taxing it to handle a pill at the same time. If going to the doctor will ease your mind, by all means do that. But as you said yourself it probably will be a waste of your time. Unfortunately nothing they can give will help or heal this. Only time. But certainly they have plenty to give that will cause further hurt.

I think with you starting to get windows you will finally begin to feel better. I know you’ve been doing this for a long time but if you could muster up some strength and willpower to hang in there awhile longer I feel you’ll get more windows.

Have you been making a schedule for daily activities? To help you pass your days easier?

[[le...]]

Not really miserable, more not moving forward much if you get my meaning. I do do quite a lot, but with mental symptoms they never really go away. I go fir walk everyday, use treadmill, go pilates every week, also do flower arranging, and go to couple other groups something every week. Been doing tapestry, gardening, knitting. See friends for coffee.. Nothing really distracts from the thoughts.. My general mood has improved. Maybe asking impossible, don't want take something every day just occasionally if get a blubby day!. I'll see how I feel. Not got lot faith in medical profession so far!

[[Up...]]

Leann

 

There is nothing a doc can do when you go to them searching for answers but offer meds.  What do you want?  You want relief like most of us do.  But you won’t take anything because you say you react so you can learn to cope with it or ask your doc to reinstate.  There is nothing else they can offer you and neither can we. We are all suffering I too suffer with mental and physical sx.  Pretty severe but I know what the choices are.  You either ride it out or reinstate.  Do your best to distract, take a break from all groups and focus on yourself and what you can do to help you.  I don’t have my acute sx I am and have healed some and I think you have to.  I know the day in the calendar I have marked and if I m not functioning better then I will have a talk with my doc.  If you can’t go on maybe you need to do what you have to do irregardless of the opinions of others on a anonymous forum.  Help yourself as nobody here is able to do anything but share opinions and encourage you.

 

Good luck

 

U

[[La...]]

I totally agree with Upper. It’s your choice. Maybe some of your activities are too much stimulation. I know groups of people is a no no for me. Could you try not attending one of those and see how you feel after a week? But as Upper said. There’s nothing anybody can do to help you or ourselves. Time is all we’ve got to heal us.

Wishing you a better day.

[[le...]]

The only thing that helps me  is going to groups , I felt lot worse in lockdown when we couldn't mix,I know some people can't cope, but socialising is only thing that helps me personally as proves a distraction, but realise it's  not for everyone. Not case I won't take anything else, can't take AD's as had severe adverse reaction to them. Reinstating isn't the only option,  I  have friends who occasionally take things when anxiety is bad, without ill effects , so I would consider that. Thanks for the advise anyway.

[[Ga...]]

Hello all my benzo buddy friends.  Just stopping by to catch up.  It is nice to hear how everyone is doing, and where they are in their journey.  Sounds like a little of this and a little of that, but definitely hearing some positive posts.  Wahoooooo, we are paying our dues and getting to the biggest window of all. 

 

As for me, I can see that I am improving week to week, and if weren’t for this daggone sinus pressure in my ears, I would be feeling much better.  With the ups and downs of the barometric pressure here in the mid-Atlantic, I see many non-benzo people having all sorts of allergy and sinus issues.  Actually when I saw my doctor yesterday, his nose was all red and I teased him about his allergies acting up.  He is such a kind and supportive doctor that I feel blessed to have him helping me through this benzo nightmare!!!!  I am going the naturopathic route, with saline rinses and saline nasal spray.....NO antibiotics! 

 

So here’s to more and more TIME under our belts and more and more HEALING each and every day!

 

Hugs,

 

GG

[[De...]]

Good to hear from you GG and glad you are getting there little by little!

 

Month 15 has been iffy for me, not as good as Month 14.  And I am now pondering which booster to get bc I got the J & J vaccine and not sure if I should stick with it (and know I tolerated it before) -OR- get the Pfizer bc it would confer greater efficacy.  Yikes.

 

[[La...]]

Hugs Garden. Nice to hear from you sweetie. Glad you’re making positive gains. Yes this is the time of year for the sinus crap to plague everyone. That was funny about your doctor having red nose 😂

It’s good to hear of someone’s doctor being a support instead of causing more harm. You truly are blessed Garden to have a doctor like that.

 

Deanna my month 15 was my worst too. lol Now girl, you’re not supposed to copy off me when it’s bad. 😂

As far as the booster, wow that’s tough. I don’t know what to say. But if it was me I guess I’d stick with what I know I can handle. If I had Pfizer then I’d go with that booster. If it was J&J then I’d go with that. These vaccines we don’t know much about anyway so it’s hard to make an informed decision. Either way, I wish you the best on your booster.

If I was well enough to go to the doctor then I’d get vaccinated. But I can’t even walk around my apartment yet. Oh well.

[[La...]]

Good morning everyone