Total and complete 100% success after 22 months

[[Li...]]

Wauw lostdog! Do you still reply to posts because your post is from 2013? Do you als had the head-neck thing en can you describe your feeling with this symptom? You can describe things so good.. Are you still feeling good? Hope to hear from you...

[[ph...]]

I've read this success story many times and it always makes me feel hopeful and at peace. Thanks for sharing and hope you are still doing really well!

[[ar...]]

Looks like lostdog last signed in on September 17th,2015.  In my opinion this is the best story on here.  I read this a lot when I am down.

[[Je...]]

This post has been read 27,000 times. The number alone makes me tear up.  I can't believe how many other people are out there suffering for years with this.  Thank god for all of you helping each other.

[[Mo...]]

Bump

[[Ro...]]

I have read so many success stories where the person says, I still have a few symptoms but am basically doing fine now. So I wanted to write mine. I have no symptoms at all. I am 100% back to normal, maybe better.

Through all of it I was hoping for some kind of insight into the meaning of life. I thought of ending my suffering so many times but refused to give up because my adult kids still needed someone, even if it was only to talk on the phone once a month. I think I have, however, found greater happiness than before. I appreciate small things like the taste of food, rain, cooking, giving my very old dog a massage. He can’t walk anymore but he can stand so I carry him into the backyard, wait for him to go, then carry him back inside. I would have considered euthanasia before, but I have a new appreciation for life now and he still wags his tail and enjoys French fries so I want him to have as much time as possible.

My speed of thought has increased tenfold in the last two months. My memories are now back and don’t come fluttering out of nowhere like a deck of cards thrown in the wind. My word recall is just as fast, maybe faster, than it was before. I’m no longer sad, or worried, or think about all that’s wrong in the world.

I started Klonopin about 10 years ago at .5mg per night for restless legs syndrome. Gradually I worked my way up to between 3 and 5mg per day. I started having bladder pain and urination problems and asked all the doctors if the Klonopin could be the cause. They all said no and gave me bladder pain drugs and Flomax and said all men my age develop those problems (I was 50). Nothing helped and it continued to get worse. I read everything I could and decided it was a side effect of the drug. I didn’t believe I had overactive bladder and benign prostate metaplasia simultaneously. My options were surgery or quitting the drug so I quit. I tapered for about three months and lost patience, then quit altogether 22 months ago.

Basically everything got worse and worse for about the first three months then leveled off at six months and I didn’t really start making progress until about a year to 18 months. I can’t remember all the symptoms but a few include: Feeling like a time traveler, feeling like I was outside the flow of humanity, obsessive thoughts, constant suicidal ideation, I didn’t sleep at all or in 20 minute periods for about six months. I am not religious in any way, nor do I believe in spirits, or anything remotely supernatural, yet I often felt pursued by a machine-like intelligence that enjoyed making me suffer. I felt like the world had turned evil, most people were bad, I often felt like I was tethered to a string, floating in space high above my body.

I had partial seizures where I would suddenly lose consciousness, then wake up a few minutes later and not know who I was, or if five minutes or a thousand years had passed. I felt like I had to urinate 24 hours a day and had severe pain. I would go the bathroom every ten minutes but it always felt like I had to go. Sometimes I did, sometimes I didn’t but it always hurt. I had spontaneous bleeding through the skin on my shoulders and chest. I guess that’s where the term sweating blood comes from.

I had the typical stuff too: incredible stomach distention, constant itching, my face would bleed when I shaved, my scalp itched, severe joint and back pain, blinding headaches, pins and needles in every part of my body. If often felt like my face was going to explode. My eyes watered constantly and stung and itched. My sinuses would swell and I couldn’t breathe through my nose. I had constant heart palpitations and my blood pressure would go to 240/160. I couldn’t watch movies – everything looked like a really bad high school play. I rarely read books, although I previously read up to four or five books a week. I hated music. I would have watery diarrhea followed by what looked like aquarium gravel. My teeth hurt so much and so often they felt like they were all loose. It was hard to eat because of the pain.

I had crying spells that would last ten hours. I envied other people who weren’t going through what I was. I had always tried to be a good person and I wondered why I was being tortured so horribly. My emotions would cycle from profound sadness to anger to extreme anxiety to hopelessness to complete out-of-body experiences that felt like I was spread across the Universe like the surface of a soap bubble. I felt like I was living in an old black and white Twilight zone in a ghost town where tumbleweeds rolled across the dusty streets and you could hear the creaking of the barroom doors swinging in the wind.

I would suddenly get searing pain like a sword had been stuck through my back, or a thumbtack driven into my knee. Those are all gone.

I couldn’t read the credit card swipe machines and had trouble filling my car with gas. My memories were often so unreal I wondered if they really happened at all. Even around 18 months I was convinced I had permanent brain damage and would never be the same.

I could list another hundred symptoms but you all know them. My point is that it has all gone. I feel smarter, happier, and wiser than I have in ten years. I have no anxiety at all. I laugh to myself at silly things, I love people more than ever, I feel connected to every living thing. I think I have actually achieved the wisdom I searched for all my life.

The last symptoms to go were extreme exhaustion and apathy. My depression lifted at around 18 to 20 months but I didn’t care anymore about anything and all I wanted to do was sleep. I still had pretty bizarre nightmares right up to about a month ago but those are now gone too.

My interest in work has returned. My sense of humor and wit has returned. My bladder works perfectly. No headaches, my teeth don’t hurt, my skin doesn’t itch; even my shoulder, knee and back no longer bother me at all. I feel competent once again. I can see better. I can multitask. I can make instant decisions. Even the texture of my hair and skin has changed dramatically.

I was taking seven different pills a day for blood pressure and now I’m down to one. My blood pressure is normal. I had gained 50 pounds and I’ve lost 30 of them in the last two months. My stomach no longer looks like I swallowed a basketball and I no longer have nausea or the spins.

I can drink coffee again. I have an occasional glass of wine and I can eat anything without being worried it’s going to result in an anxiety attack or crying spell.

Right up to two months ago I would wake up and wonder if I could make it through another day. Now I wake up happy and eager to get to my list of things to do.

Concentrate on the symptoms that are better or you no longer have. Don’t think about what is still wrong. Compare yourself with six months ago and you can see the difference. If you concentrate on the symptoms you still have it doesn’t feel like you’re making progress. Between 18 and 20 months I was on autopilot. I just kept going, feeling like it would never completely go away and I would never be the same again. I had come to terms with that, and then a month later realized that I was beginning to want to do things again. I noticed my speed of thought was increasing weekly and my cognitive precision was back. My memories are now back in order and I am able to recall them in vivid detail, but now they have time tags on them and no longer just pop up randomly.

Physically and mentally I feel as good or better than I have in ten years. I have recovered completely and have no lingering effects. My success story has no qualifiers. It has been 22 months and I’m like new.

For some reason, 12 to 18 months was the most difficult. I think it’s because you’re so exhausted and feeling hopeless. After 18 months it begins to get better but you feel like you’ll never be the way you were before, that there will always be some lingering symptoms. For me it began to really accelerate at around 20 months. I could tell I was beginning to get better but I had given up on being the person I once was.

I have been waiting to write this until I was positive I was completely healed.

I am.

Thank you everyone for all your help and support during the last two years. It made all the difference to know I wasn’t alone. Neither are you. You will get better. I promise.

 

I have not read success stories in years as they didn't really help me much. This story is an exception. It has my interest again for other stories. I appreciate that. 2.5 years off today. I have been in wd now for closing in on 6 years since the CT and since 2008 with tolerance. It's been one hell of a ride. I appreciate you posting the sxs. The anger from the pain is my biggest emotional enemy. Idk why pain makes me angry. I just don't know how to show fear without being angry.  I just wish this BS would  This story helps a bit with the hope where many others did not.

 

Thanks

[[Ho...]]

Im with you Robb. I hang onto this one like a lifeline. Off 2.5 years like you with years of tolerance hell. We'll get there. Keep the faith. 

[[Ma...]]

Yes - Robb and Hopeful-One - This is a success story to be cherished. Hoping we get there soon! I'll be 31 months out on the 18th. So tired of this stuff! Marc

[[Mo...]]

Bump.

[[Mo...]]

Bump again...

[[Ge...]]

Thanks, Morrweg for the bump/putting it back in the news feed. It's helpful to be reminded of those whom have recovered completely.

[[Mo...]]

Thanks, Morrweg for the bump/putting it back in the news feed. It's helpful to be reminded of those whom have recovered completely.

 

Stay strong love....we will get there eventually .

[[br...]]

This story gives so much hope. Thank you lostdog.

[[an...]]

Thanks for posting your story.  So happy for you. 

[[we...]]

Thank you

[[St...]]

I started Clonazepam 20 years ago at .5mg per night for restless legs syndrome. Gradually I worked my way up to 3 mg per day. I started having frequent urination problems just a few years into taking it and was prescribed Flomax for many years. I finally saw a urologist who said I was fine, my prostate was tiny and quit taking Flomax.

 

It never occurred to me that it was the Clonazepam. I has gotten much better and I still did not associate them. I'm just sorry it took me so long to see this thread.

 

Thanks!

[[Mo...]]

I think time for a bump again.

[[be...]]

Bump again

[[Jo...]]

Wow, just came across this and needed to hear that some people really do recover 100% - I am only just starting this horrific journey (1 month in). If you ever read this post again -- did you do anything in particular to help your recovery? (Diet/ exercise/ get professional help?)  Thanks again for the hope.

[[Mo...]]

Bump

[[Bl...]]

This is exactly what I needed to read right now! Thank you so much for giving me hope when I'm starting to doubt I'll ever be healed.

[[ar...]]

Hi lostdog.  I see you're checking back periodically.  How is it going?  You're quite famous around here. 

[[Ia...]]

Thank you for sharing

[[...]]

thanks for the share.  great story.

 

[[Ar...]]

Great story... Gives hope