The Long Hold Support Group

[[Tr...]]

Good morning LHSG hoping everyone has a better day.

Morning Final l will answer you tomorrow my love yes l eyeball my cuts.l will explain why tomorrow l hope you have a better day honey.love to you.

Intend you are doing everything right however sadly all these changes are taking their toll.l know this is so hard however you are getting there.One day at a time.love to you and Dan.

Twiny l will be checking at the port however l think l will be wasting my time.You keep your chin up honey.love you my lST.

Suzy keep on keeping on sweetheart.We can only do our best.Remember to not react to the anxiety.love you.

Gilly hang in there my lovely.Sending you my healing hugs.

. Esperanza get your ass back here and let us know how you are.love you my hillbilly friend.

Will do twin! Be well!! Let us know how you are doing when you can.

Love you,

LST

[[Tr...]]

OMG ATTENTION MY USA FRIENDS! I'M WATCHING CNN AND LISA LING THE REPORTER WAS TALKING ABOUT HER UPCOMING PIECE ON PORN AND ALSO BENZODIAZAPENE ADDICTION AND HOW PHYSICIANS PRESCRIBE THESE DRUGS FOR ANXIETY BUT DON'T KNOW HOW TO WITHDRAWAL THEIR PATIENTS FROM THESE DRUGS!!! SHE ALSO EXPRESSED FRUSTRATION AND SEEMED DISTURBED BY WHAT SHE'S LEARNED FROM THE REPORTING!!! TYPED THIS IS BOLD LETTERS SO IT WON'T BE MISSED!

TRISH

[[Tr...]]

OMG ATTENTION MY USA FRIENDS! I'M WATCHING CNN AND LISA LING THE REPORTER WAS TALKING ABOUT HER UPCOMING PIECE ON PORN AND ALSO BENZODIAZAPENE ADDICTION AND HOW PHYSICIANS PRESCRIBE THESE DRUGS FOR ANXIETY BUT DON'T KNOW HOW TO WITHDRAWAL THEIR PATIENTS FROM THESE DRUGS!!! SHE ALSO EXPRESSED FRUSTRATION AND SEEMED DISTURBED BY WHAT SHE'S LEARNED FROM THE REPORTING!!! TYPED THIS IS BOLD LETTERS SO IT WON'T BE MISSED!

TRISH

THIS WILL AIR ON OCTOBER 6TH TITLED THE BENZO CRISIS!

[[Ma...]]

A message Baylissa Fredericks sent to Sofakingdone

"Here are some comforting words a friend sent me today from Baylissa Fredericks.  I hope they soothe you and give you strength:

 

As I begin this day, I take a deep breath… and then I gently remind myself that despite how I am feeling, I am going to get through today, and I am also going to make it through to the end of my withdrawal, no matter how it unfolds.

 

On my worse days, it is difficult to imagine myself ever healing and it can feel as if I am suspended in time and space – stuck and with no end in sight. But no matter what my current challenges are… no matter how intense and unrelenting my symptoms may be, I will keep in mind that the day has to come, when I wake up and withdrawal is over.

 

Even if I am just tapering, or I am in acute withdrawal, that fine day will come. If I am experiencing protracted withdrawal syndrome, I too will heal. No matter how long I have been waiting, I know that withdrawal takes as long as it needs, in order to ‘get it right’ and all I need to do is wait it out.

 

In the meantime, I will nurture myself as best as I can and I will do what I need to get through it. I will think of those before who struggled with their tapers, or who had the most intense and horrifying acute, post-acute and protracted experiences, and that they eventually healed. I will, too.

 

All I need to do is breathe… hold on... and wait, trusting that the outcome will be the end of this struggle and the joy of overcoming.

 

Sending healing thoughts and wishes,

Baylissa "

[[Ma...]]

Lil, I see you reading my friend.  Sending you love, Mary 💜💜💜💜💜

[[Tr...]]

Mary did you see my posts? I sent you a pm as well.

[[De...]]

Awww mm, that was very comforting ❤

[[va...]]

A message Baylissa Fredericks sent to Sofakingdone

"Here are some comforting words a friend sent me today from Baylissa Fredericks.  I hope they soothe you and give you strength:

 

As I begin this day, I take a deep breath… and then I gently remind myself that despite how I am feeling, I am going to get through today, and I am also going to make it through to the end of my withdrawal, no matter how it unfolds.

 

On my worse days, it is difficult to imagine myself ever healing and it can feel as if I am suspended in time and space – stuck and with no end in sight. But no matter what my current challenges are… no matter how intense and unrelenting my symptoms may be, I will keep in mind that the day has to come, when I wake up and withdrawal is over.

 

Even if I am just tapering, or I am in acute withdrawal, that fine day will come. If I am experiencing protracted withdrawal syndrome, I too will heal. No matter how long I have been waiting, I know that withdrawal takes as long as it needs, in order to ‘get it right’ and all I need to do is wait it out.

 

In the meantime, I will nurture myself as best as I can and I will do what I need to get through it. I will think of those before who struggled with their tapers, or who had the most intense and horrifying acute, post-acute and protracted experiences, and that they eventually healed. I will, too.

 

All I need to do is breathe… hold on... and wait, trusting that the outcome will be the end of this struggle and the joy of overcoming.

 

Sending healing thoughts and wishes,

Baylissa "

 

This is a life saver. I'll save it in my progress log to revisit it.

[[Fi...]]

Good morning LHSG hoping everyone has a better day.

Morning Final l will answer you tomorrow my love yes l eyeball my cuts.l will explain why tomorrow l hope you have a better day honey.love to you.

Intend you are doing everything right however sadly all these changes are taking their toll.l know this is so hard however you are getting there.One day at a time.love to you and Dan.

Twiny l will be checking at the port however l think l will be wasting my time.You keep your chin up honey.love you my lST.

Suzy keep on keeping on sweetheart.We can only do our best.Remember to not react to the anxiety.love you.

Gilly hang in there my lovely.Sending you my healing hugs.

. Esperanza get your ass back here and let us know how you are.love you my hillbilly friend.

 

Thanks Stut.  When I'm in a wavez which I have been the last few days, I always feel like my method of tapeing is wrong and I have to make a change.  I'm trying to fight the impulse. 

[[Ma...]]

Good morning LHSG hoping everyone has a better day.

Morning Final l will answer you tomorrow my love yes l eyeball my cuts.l will explain why tomorrow l hope you have a better day honey.love to you.

Intend you are doing everything right however sadly all these changes are taking their toll.l know this is so hard however you are getting there.One day at a time.love to you and Dan.

Twiny l will be checking at the port however l think l will be wasting my time.You keep your chin up honey.love you my lST.

Suzy keep on keeping on sweetheart.We can only do our best.Remember to not react to the anxiety.love you.

Gilly hang in there my lovely.Sending you my healing hugs.

. Esperanza get your ass back here and let us know how you are.love you my hillbilly friend.

 

Thanks Stut.  When I'm in a wavez which I have been the last few days, I always feel like my method of tapeing is wrong and I have to make a change.  I'm trying to fight the impulse.

 

FH, I just read your signature a couple of times in a row to hopefully really understand it.  I don't see where you held, I see you wrote holding a couple of times, but when I look at your dates , I don't see an actual hold.  Am I wrong?  And if this is something you just don't want to do, it's ok, just say so and I won't bring it up again .    I'm just asking because it may not be your method, it maybe, you need to actually take a break.  I believe you have a good day here and there, so a break might actually push you over the fence in the right direction.  If you are , a month may be enough to straighten out your taper some.  Not a real hold, more of a time out.  It's just a suggestion, I know you want to get off the benzo's, believe me, but a break, imo, would be better than another taper.  You have changed tapers several times, and changing again, may cause a problem.  Then when you start back, and want to change tapers, like a dlmt, if the break made you more stable, would be a good time for that......it's just an observation.  :smitten:

[[In...]]

Good morning LHSG hoping everyone has a better day.

Morning Final l will answer you tomorrow my love yes l eyeball my cuts.l will explain why tomorrow l hope you have a better day honey.love to you.

Intend you are doing everything right however sadly all these changes are taking their toll.l know this is so hard however you are getting there.One day at a time.love to you and Dan.

Twiny l will be checking at the port however l think l will be wasting my time.You keep your chin up honey.love you my lST.

Suzy keep on keeping on sweetheart.We can only do our best.Remember to not react to the anxiety.love you.

Gilly hang in there my lovely.Sending you my healing hugs.

. Esperanza get your ass back here and let us know how you are.love you my hillbilly friend.

 

Stut,

 

If anyone knows all those generic changes are taking their toll, it’s me. I’m pretty sure I’m still me, the person I’ve always been cognitively and emotionally, but still have these awful physical sx of withdrawl.

 

And you’re right, it’s one day at a time. Although, it’s really scary to move on even though I know I must. But I do worry that if these sx are like they are now, what are they going to be like as I move on. It’s just move on and see.

 

 

[[va...]]

Good morning LHSG hoping everyone has a better day.

Morning Final l will answer you tomorrow my love yes l eyeball my cuts.l will explain why tomorrow l hope you have a better day honey.love to you.

Intend you are doing everything right however sadly all these changes are taking their toll.l know this is so hard however you are getting there.One day at a time.love to you and Dan.

Twiny l will be checking at the port however l think l will be wasting my time.You keep your chin up honey.love you my lST.

Suzy keep on keeping on sweetheart.We can only do our best.Remember to not react to the anxiety.love you.

Gilly hang in there my lovely.Sending you my healing hugs.

. Esperanza get your ass back here and let us know how you are.love you my hillbilly friend.

 

Stut,

 

If anyone knows all those generic changes are taking their toll, it’s me. I’m pretty sure I’m still me, the person I’ve always been cognitively and emotionally, but still have these awful physical sx of withdrawl.

 

And you’re right, it’s one day at a time. Although, it’s really scary to move on even though I know I must. But I do worry that if these sx are like they are now, what are they going to be like as I move on. It’s just move on and see.

 

Intend, what are your symptoms. Do you get the fear and depression, impending doom and "intrusive thoughts"?

[[Ma...]]

Good morning LHSG hoping everyone has a better day.

Morning Final l will answer you tomorrow my love yes l eyeball my cuts.l will explain why tomorrow l hope you have a better day honey.love to you.

Intend you are doing everything right however sadly all these changes are taking their toll.l know this is so hard however you are getting there.One day at a time.love to you and Dan.

Twiny l will be checking at the port however l think l will be wasting my time.You keep your chin up honey.love you my lST.

Suzy keep on keeping on sweetheart.We can only do our best.Remember to not react to the anxiety.love you.

Gilly hang in there my lovely.Sending you my healing hugs.

. Esperanza get your ass back here and let us know how you are.love you my hillbilly friend.

 

Stut,

 

If anyone knows all those generic changes are taking their toll, it’s me. I’m pretty sure I’m still me, the person I’ve always been cognitively and emotionally, but still have these awful physical sx of withdrawl.

 

And you’re right, it’s one day at a time. Although, it’s really scary to move on even though I know I must. But I do worry that if these sx are like they are now, what are they going to be like as I move on. It’s just move on and see.

 

Me too Intend.....that's one reason I want these next 3 months to hold, hoping I will feel better and can then start on my 8.80 mgs (from 40 mgs) knowing what I know now, instead of being clueless....

I can't help but worry it may get worse, but maybe just maybe, if I take sometime now, I can avoid it being horrible.  Who knows, as you said, we have to move on and see.  And like you, it's mostly bad physical pain, blurry eyes...physical, my depression I think is situational, comes and goes, a lot depending on pain.  I won't say I always feel like the brightest bulb, but I can usually get enough light    love you II, MM

[[Fi...]]

Good morning LHSG hoping everyone has a better day.

Morning Final l will answer you tomorrow my love yes l eyeball my cuts.l will explain why tomorrow l hope you have a better day honey.love to you.

Intend you are doing everything right however sadly all these changes are taking their toll.l know this is so hard however you are getting there.One day at a time.love to you and Dan.

Twiny l will be checking at the port however l think l will be wasting my time.You keep your chin up honey.love you my lST.

Suzy keep on keeping on sweetheart.We can only do our best.Remember to not react to the anxiety.love you.

Gilly hang in there my lovely.Sending you my healing hugs.

. Esperanza get your ass back here and let us know how you are.love you my hillbilly friend.

 

Thanks Stut.  When I'm in a wavez which I have been the last few days, I always feel like my method of tapeing is wrong and I have to make a change.  I'm trying to fight the impulse.

 

FH, I just read your signature a couple of times in a row to hopefully really understand it.  I don't see where you held, I see you wrote holding a couple of times, but when I look at your dates , I don't see an actual hold.  Am I wrong?  And if this is something you just don't want to do, it's ok, just say so and I won't bring it up again .    I'm just asking because it may not be your method, it maybe, you need to actually take a break.  I believe you have a good day here and there, so a break might actually push you over the fence in the right direction.  If you are , a month may be enough to straighten out your taper some.  Not a real hold, more of a time out.  It's just a suggestion, I know you want to get off the benzo's, believe me, but a break, imo, would be better than another taper.  You have changed tapers several times, and changing again, may cause a problem.  Then when you start back, and want to change tapers, like a dlmt, if the break made you more stable, would be a good time for that......it's just an observation.  :smitten:

 

Thanks Mary, you can bring it up anytime you want.

I took about a month long hold in June after tapering in April and May.  Then yes, I tried a few different things after that, which didn't help.

 

Even though I love being part of this thread, I have very mixed feelings about holding.  I'm so scared that the longer I am on this med, the harder it will be to get off.  I've communicate with different people who have tapered.  Some never have windows during their taper, some like me have intermittently windows and the blah days and then others no issue. 

 

I dont know what the norm is for me. I have never had any real benefit from this med during the 4 months I was on at my highest amount.  It didn't help me sleep, it has made me super depressed and exhausted.

 

So I honestly dont know if that will improve if I hold.  I dont know. 

[[In...]]

OMG ATTENTION MY USA FRIENDS! I'M WATCHING CNN AND LISA LING THE REPORTER WAS TALKING ABOUT HER UPCOMING PIECE ON PORN AND ALSO BENZODIAZAPENE ADDICTION AND HOW PHYSICIANS PRESCRIBE THESE DRUGS FOR ANXIETY BUT DON'T KNOW HOW TO WITHDRAWAL THEIR PATIENTS FROM THESE DRUGS!!! SHE ALSO EXPRESSED FRUSTRATION AND SEEMED DISTURBED BY WHAT SHE'S LEARNED FROM THE REPORTING!!! TYPED THIS IS BOLD LETTERS SO IT WON'T BE MISSED!

TRISH

THIS WILL AIR ON OCTOBER 6TH TITLED THE BENZO CRISIS!

 

Trish,

 

I missed Lisa Ling talking about this, but got on the CNN website. It will air on October 6, 2019 at 10 pm ET. For me that’s 8 pm, so I will have Dan hopefully record this on the television downstairs.

 

Right now, I just watched MSNBC with all the interesting stuff on there. Nicole Wallace is/was the host, and is now turning this over to Ali Velshi.

 

And I had just checked my banking account, and right across the website is a notice that fraudulent “teller checks” that are supposedly theirs are circulating on the East Coast. So now I have to call them.

 

Have to find out what this is all about as it may affect people here on the LHSG and BB in general and myself and Dan.

[[4G...]]

Oh, guys, I went to my Mum's earlier in the week, even though I knew that I didn't have the strength. Now I am utterly exhausted. I know I should look forward but I can't help remembering that this has been going on for six years. I know I should accept but I'm on so many drugs and I'm running out of strength. Any help? Thanks. Gilly  💙

[[Ma...]]

Good morning LHSG hoping everyone has a better day.

Morning Final l will answer you tomorrow my love yes l eyeball my cuts.l will explain why tomorrow l hope you have a better day honey.love to you.

Intend you are doing everything right however sadly all these changes are taking their toll.l know this is so hard however you are getting there.One day at a time.love to you and Dan.

Twiny l will be checking at the port however l think l will be wasting my time.You keep your chin up honey.love you my lST.

Suzy keep on keeping on sweetheart.We can only do our best.Remember to not react to the anxiety.love you.

Gilly hang in there my lovely.Sending you my healing hugs.

. Esperanza get your ass back here and let us know how you are.love you my hillbilly friend.

 

Thanks Stut.  When I'm in a wavez which I have been the last few days, I always feel like my method of tapeing is wrong and I have to make a change.  I'm trying to fight the impulse.

 

FH, I just read your signature a couple of times in a row to hopefully really understand it.  I don't see where you held, I see you wrote holding a couple of times, but when I look at your dates , I don't see an actual hold.  Am I wrong?  And if this is something you just don't want to do, it's ok, just say so and I won't bring it up again .    I'm just asking because it may not be your method, it maybe, you need to actually take a break.  I believe you have a good day here and there, so a break might actually push you over the fence in the right direction.  If you are , a month may be enough to straighten out your taper some.  Not a real hold, more of a time out.  It's just a suggestion, I know you want to get off the benzo's, believe me, but a break, imo, would be better than another taper.  You have changed tapers several times, and changing again, may cause a problem.  Then when you start back, and want to change tapers, like a dlmt, if the break made you more stable, would be a good time for that......it's just an observation.  :smitten:

 

Thanks Mary, you can bring it up anytime you want.

I took about a month long hold in June after tapering in April and May.  Then yes, I tried a few different things after that, which didn't help.

 

Even though I love being part of this thread, I have very mixed feelings about holding.  I'm so scared that the longer I am on this med, the harder it will be to get off.  I've communicate with different people who have tapered.  Some never have windows during their taper, some like me have intermittently windows and the blah days and then others no issue. 

 

I dont know what the norm is for me. I have never had any real benefit from this med during the 4 months I was on at my highest amount.  It didn't help me sleep, it has made me super depressed and exhausted.

 

So I honestly dont know if that will improve if I hold.  I dont know.

And I am not sure you need to hold, more of a break, a month really isn't a hold......and that is really all I am suggesting, a month..just enough to get you over that hump...but you definitely do what you are comfortable with.....I understand totally.  I will root you on to that sweet spot that is just so damn elusive  . 

[[In...]]

Good morning LHSG hoping everyone has a better day.

Morning Final l will answer you tomorrow my love yes l eyeball my cuts.l will explain why tomorrow l hope you have a better day honey.love to you.

Intend you are doing everything right however sadly all these changes are taking their toll.l know this is so hard however you are getting there.One day at a time.love to you and Dan.

Twiny l will be checking at the port however l think l will be wasting my time.You keep your chin up honey.love you my lST.

Suzy keep on keeping on sweetheart.We can only do our best.Remember to not react to the anxiety.love you.

Gilly hang in there my lovely.Sending you my healing hugs.

. Esperanza get your ass back here and let us know how you are.love you my hillbilly friend.

 

Stut,

 

If anyone knows all those generic changes are taking their toll, it’s me. I’m pretty sure I’m still me, the person I’ve always been cognitively and emotionally, but still have these awful physical sx of withdrawl.

 

And you’re right, it’s one day at a time. Although, it’s really scary to move on even though I know I must. But I do worry that if these sx are like they are now, what are they going to be like as I move on. It’s just move on and see.

 

Intend, what are your symptoms. Do you get the fear and depression, impending doom and "intrusive thoughts"?

 

V,

 

I mostly have physical sx, but I do now (have never before) get concern, worry, which is fear I guess about the future for myself and Dan and our cat Pepper.

 

As far as depression, I’m not depressed now (never was before), but with my last 3 cuts, after they finally hit, I have been getting depressed, and then it lifts after about a week.

 

Impending doom and intrusive thoughts? Basically the same thing according to Dr. Google, but I think yes, I do get these because I do have the concern, worry, fear for the future of the 3 of us here in this house.

 

So I do get some mental sx also. I know logically these are common sx of withdrawl, but they do bother me nevertheless. Some are definitely based in reality as I’m not one to act on the spur of the moment (like move to a different state or different country, but have thought about it). I usually just try to move through these feelings and tell myself that I’ll turn a corner at some point as I taper down and upregulation slowly happens.

[[4G...]]

Stut, Thank you so much for your encouragement. Big hug back.  Gilly xxx 💙

[[Ma...]]

Oh, guys, I went to my Mum's earlier in the week, even though I knew that I didn't have the strength. Now I am utterly exhausted. I know I should look forward but I can't help remembering that this has been going on for six years. I know I should accept but I'm on so many drugs and I'm running out of strength. Any help? Thanks. Gilly  💙

Oh, my English, I know you are tired girlfriend, you have had such a hard road.  I was hoping maybe the last couple months you guys might be getting closer . I wish I had some advice, I just wish I knew something that might lift you alittle.  I will always be here for you, I think about you a lot.

Pet and love on Tilly, have you ever thought of an inside herb garden?  Something that needs just alittle tending.  I love you, Mary 💜💜

[[In...]]

Good morning LHSG hoping everyone has a better day.

Morning Final l will answer you tomorrow my love yes l eyeball my cuts.l will explain why tomorrow l hope you have a better day honey.love to you.

Intend you are doing everything right however sadly all these changes are taking their toll.l know this is so hard however you are getting there.One day at a time.love to you and Dan.

Twiny l will be checking at the port however l think l will be wasting my time.You keep your chin up honey.love you my lST.

Suzy keep on keeping on sweetheart.We can only do our best.Remember to not react to the anxiety.love you.

Gilly hang in there my lovely.Sending you my healing hugs.

. Esperanza get your ass back here and let us know how you are.love you my hillbilly friend.

 

Stut,

 

If anyone knows all those generic changes are taking their toll, it’s me. I’m pretty sure I’m still me, the person I’ve always been cognitively and emotionally, but still have these awful physical sx of withdrawl.

 

And you’re right, it’s one day at a time. Although, it’s really scary to move on even though I know I must. But I do worry that if these sx are like they are now, what are they going to be like as I move on. It’s just move on and see.

 

Me too Intend.....that's one reason I want these next 3 months to hold, hoping I will feel better and can then start on my 8.80 mgs (from 40 mgs) knowing what I know now, instead of being clueless....

I can't help but worry it may get worse, but maybe just maybe, if I take sometime now, I can avoid it being horrible.  Who knows, as you said, we have to move on and see.  And like you, it's mostly bad physical pain, blurry eyes...physical, my depression I think is situational, comes and goes, a lot depending on pain.  I won't say I always feel like the brightest bulb, but I can usually get enough light    love you II, MM

 

Mary,

 

I’m still contemplating taking the 3 months which is now less than a month because I’m on my 67th day into a hold, but I do believe my doc when he says we do recover as we hold even though we feel horrible.

 

It is mostly physical like you, but as I just told V, there emotional/mental stuff also. But just like you I do realize it’s situational depending on that real stuff going on. And that does include eye pain for me also. Never had sore eyes in my life until I got to this 6th generic change, and then it just continued on until my cornea tore and had to rush to the eye doctor. And now depending on the day, even though that tear has healed, I have discomfort from those damn drops of all things. Guess I’ve got it down finally to using those Systane drops for night in both eyes and those Bausch and Lomb drops for day time.

 

So for me this is a real physical “ailment” now colliding with a benzo withdrawl sx. Same thing for you it seems.

 

I’ll probably take the 3 months just to see if it helps me settle things down. It’s kind of a big “if” at this point with all these generic changes, but worth a try.

 

You know what MM? You are a really great, helpful, funny, fantastic, good egg 🥚 🍳! And that’s why I 💜 you. 💜💜💜  :smitten:

 

 

[[Fi...]]

Good morning LHSG hoping everyone has a better day.

Morning Final l will answer you tomorrow my love yes l eyeball my cuts.l will explain why tomorrow l hope you have a better day honey.love to you.

Intend you are doing everything right however sadly all these changes are taking their toll.l know this is so hard however you are getting there.One day at a time.love to you and Dan.

Twiny l will be checking at the port however l think l will be wasting my time.You keep your chin up honey.love you my lST.

Suzy keep on keeping on sweetheart.We can only do our best.Remember to not react to the anxiety.love you.

Gilly hang in there my lovely.Sending you my healing hugs.

. Esperanza get your ass back here and let us know how you are.love you my hillbilly friend.

 

Thanks Stut.  When I'm in a wavez which I have been the last few days, I always feel like my method of tapeing is wrong and I have to make a change.  I'm trying to fight the impulse.

 

FH, I just read your signature a couple of times in a row to hopefully really understand it.  I don't see where you held, I see you wrote holding a couple of times, but when I look at your dates , I don't see an actual hold.  Am I wrong?  And if this is something you just don't want to do, it's ok, just say so and I won't bring it up again .    I'm just asking because it may not be your method, it maybe, you need to actually take a break.  I believe you have a good day here and there, so a break might actually push you over the fence in the right direction.  If you are , a month may be enough to straighten out your taper some.  Not a real hold, more of a time out.  It's just a suggestion, I know you want to get off the benzo's, believe me, but a break, imo, would be better than another taper.  You have changed tapers several times, and changing again, may cause a problem.  Then when you start back, and want to change tapers, like a dlmt, if the break made you more stable, would be a good time for that......it's just an observation.  :smitten:

 

Thanks Mary, you can bring it up anytime you want.

I took about a month long hold in June after tapering in April and May.  Then yes, I tried a few different things after that, which didn't help.

 

Even though I love being part of this thread, I have very mixed feelings about holding.  I'm so scared that the longer I am on this med, the harder it will be to get off.  I've communicate with different people who have tapered.  Some never have windows during their taper, some like me have intermittently windows and the blah days and then others no issue. 

 

I dont know what the norm is for me. I have never had any real benefit from this med during the 4 months I was on at my highest amount.  It didn't help me sleep, it has made me super depressed and exhausted.

 

So I honestly dont know if that will improve if I hold.  I dont know.

And I am not sure you need to hold, more of a break, a month really isn't a hold......and that is really all I am suggesting, a month..just enough to get you over that hump...but you definitely do what you are comfortable with.....I understand totally.  I will root you on to that sweet spot that is just so damn elusive  .

 

Thank you Mary.  I will have ti consider it after the wave I'm having this week. 

[[Ma...]]

Good morning LHSG hoping everyone has a better day.

Morning Final l will answer you tomorrow my love yes l eyeball my cuts.l will explain why tomorrow l hope you have a better day honey.love to you.

Intend you are doing everything right however sadly all these changes are taking their toll.l know this is so hard however you are getting there.One day at a time.love to you and Dan.

Twiny l will be checking at the port however l think l will be wasting my time.You keep your chin up honey.love you my lST.

Suzy keep on keeping on sweetheart.We can only do our best.Remember to not react to the anxiety.love you.

Gilly hang in there my lovely.Sending you my healing hugs.

. Esperanza get your ass back here and let us know how you are.love you my hillbilly friend.

 

Stut,

 

If anyone knows all those generic changes are taking their toll, it’s me. I’m pretty sure I’m still me, the person I’ve always been cognitively and emotionally, but still have these awful physical sx of withdrawl.

 

And you’re right, it’s one day at a time. Although, it’s really scary to move on even though I know I must. But I do worry that if these sx are like they are now, what are they going to be like as I move on. It’s just move on and see.

 

Me too Intend.....that's one reason I want these next 3 months to hold, hoping I will feel better and can then start on my 8.80 mgs (from 40 mgs) knowing what I know now, instead of being clueless....

I can't help but worry it may get worse, but maybe just maybe, if I take sometime now, I can avoid it being horrible.  Who knows, as you said, we have to move on and see.  And like you, it's mostly bad physical pain, blurry eyes...physical, my depression I think is situational, comes and goes, a lot depending on pain.  I won't say I always feel like the brightest bulb, but I can usually get enough light    love you II, MM

 

Mary,

 

I’m still contemplating taking the 3 months which is now less than a month because I’m on my 67th day into a hold, but I do believe my doc when he says we do recover as we hold even though we feel horrible.

 

It is mostly physical like you, but as I just told V, there emotional/mental stuff also. But just like you I do realize it’s situational depending on that real stuff going on. And that does include eye pain for me also. Never had sore eyes in my life until I got to this 6th generic change, and then it just continued on until my cornea tore and had to rush to the eye doctor. And now depending on the day, even though that tear has healed, I have discomfort from those damn drops of all things. Guess I’ve got it down finally to using those Systane drops for night in both eyes and those Bausch and Lomb drops for day time.

 

So for me this is a real physical “ailment” now colliding with a benzo withdrawl sx. Same thing for you it seems.

 

I’ll probably take the 3 months just to see if it helps me settle things down. It’s kind of a big “if” at this point with all these generic changes, but worth a try.

 

You know what MM? You are a really great, helpful, funny, fantastic, good egg 🥚 🍳! And that’s why I 💜 you. 💜💜💜  :smitten:

 

Now you raise the question, what was first, the hen (me) or the egg (me).  . I love you too II.

I Hope everyday there is a break for all of us.  MM 💜💜💜.    🌹🌹🚂🚂🌶🌶

[[4G...]]

Yes, Mary. As Intend says, you are a truly good egg. Thank you for being there. I've come back to bed and I'm chilling with Tilly. Tried ringing my daughter but she texted back "Mum, I'm just having a cry". So maybe it's just today for everyone. I tend to forget that life isn't easy anyway, even for people with no w/d or connected issues.

 

I think a three-month hold would really help you.

 

 

Lots of Love, girlfriend. xxx 💙

[[In...]]

Good morning LHSG hoping everyone has a better day.

Morning Final l will answer you tomorrow my love yes l eyeball my cuts.l will explain why tomorrow l hope you have a better day honey.love to you.

Intend you are doing everything right however sadly all these changes are taking their toll.l know this is so hard however you are getting there.One day at a time.love to you and Dan.

Twiny l will be checking at the port howeverg l think l will be wasting my time.You keep your chin up honey.love you my lST.

Suzy keep on keeping on sweetheart.We can only do our best.Remember to not react to the anxiety.love you.

Gilly hang in there my lovely.Sending you my healing hugs.

. Esperanza get your ass back here and let us know how you are.love you my hillbilly friend.

 

Thanks Stut.  When I'm in a wavez which I have been the last few days, I always feel like my method of tapeing is wrong and I have to make a change.  I'm trying to fight the impulse.

 

FH, I just read your signature a couple of times in a row to hopefully really understand it.  I don't see where you held, I see you wrote holding a couple of times, but when I look at your dates , I don't see an actual hold.  Am I wrong?  And if this is something you just don't want to do, it's ok, just say so and I won't bring it up again .    I'm just asking because it may not be your method, it maybe, you need to actually take a break.  I believe you have a good day here and there, so a break might actually push you over the fence in the right direction.  If you are , a month may be enough to straighten out your taper some.  Not a real hold, more of a time out.  It's just a suggestion, I know you want to get off the benzo's, believe me, but a break, imo, would be better than another taper.  You have changed tapers several times, and changing again, may cause a problem.  Then when you start back, and want to change tapers, like a dlmt, if the break made you more stable, would be a good time for that......it's just an observation.  :smitten:

 

Thanks Mary, you can bring it up anytime you want.

I took about a month long hold in June after tapering in April and May.  Then yes, I tried a few different things after that, which didn't help.

 

Even though I love being part of this thread, I have very mixed feelings about holding.  I'm so scared that the longer I am on this med, the harder it will be to get off.  I've communicate with different people who have tapered.  Some never have windows during their taper, some like me have intermittently windows and the blah days and then others no issue. 

 

I dont know what the norm is for me. I have never had any real benefit from this med during the 4 months I was on at my highest amount.  It didn't help me sleep, it has made me super depressed and exhausted.

 

So I honestly dont know if that will improve if I hold.  I dont know.

And I am not sure you need to hold, more of a break, a month really isn't a hold......and that is really all I am suggesting, a month..just enough to get you over that hump...but you definitely do what you are comfortable with.....I understand totally.  I will root you on to that sweet spot that is just so damn elusive  .

 

Mary and FH,

 

I’m not so sure there is a real “sweet spot” for everybody where one can match withdrawl to sx and avoid sx completely. I just think we take it day to day and go by the way we feel physically and emotionally.

 

I do question for myself how long to hold, but I’m seriously sure that I cannot rush off this drug so I will hold no matter what. I trust my doctors advice and he trusts me and my judgement also.

 

Let’s face it: everything about benzos is mysterious and elusive in my opinion.