[An...] Posted June 8, 2019 Author Share Posted June 8, 2019 5 is not too bad today Sarah. Hang in there! Link to comment Share on other sites More sharing options...
[Te...] Posted June 8, 2019 Share Posted June 8, 2019 Bouncing back today from the cut in dose. 6 today. I'm seeing 4's, 5's and 6's posted up, not too bad today Team. Stay strong my fellow medically abused warriors. Kindest Regards Terry Link to comment Share on other sites More sharing options...
[Pu...] Posted June 9, 2019 Share Posted June 9, 2019 4 today so far, better yesterday but hey it’s a roller coaster ride ! Link to comment Share on other sites More sharing options...
[An...] Posted June 9, 2019 Author Share Posted June 9, 2019 Glad you feel better than yesterday Pushing on. I think I am a 5, almost a 6...... today. I actually feel pretty good even tho I got virtually no sleep last night. Link to comment Share on other sites More sharing options...
[Sa...] Posted June 9, 2019 Share Posted June 9, 2019 4 ... up and down and up and down ... Link to comment Share on other sites More sharing options...
[Te...] Posted June 9, 2019 Share Posted June 9, 2019 5 today Link to comment Share on other sites More sharing options...
[An...] Posted June 10, 2019 Author Share Posted June 10, 2019 I am also a 5 Terryln. Link to comment Share on other sites More sharing options...
[Sa...] Posted June 10, 2019 Share Posted June 10, 2019 4 ... Link to comment Share on other sites More sharing options...
[Do...] Posted June 10, 2019 Share Posted June 10, 2019 7.5 Amazing day thus far? We will see how long I can hold onto this gift. Link to comment Share on other sites More sharing options...
[Te...] Posted June 10, 2019 Share Posted June 10, 2019 Oh I would pay for a 7.5 right now, after a visit to the ENT this morning I'm @ a: 2.5-3 too many symptoms. Link to comment Share on other sites More sharing options...
[mi...] Posted June 10, 2019 Share Posted June 10, 2019 Today, my sinuses are very bad along with the usual other major sxs. inner vibrations in toes, legs, fingers arms. Feels like I stuck my finger in a light socket. Head pressure. Head in a vice and my brains are pushing out the top of my head. My fingers burn down to the bone. Of course, others but the ones I mentioned are the worst. Oh I forgot ear pressure and tinnitus. But today the biggest is sinus pain. It is draining me and very fatigued. 4 Usually I don't post about my w/d sxs because it is what it is and I try not to dwell on it but today is bad. Miss Bella Link to comment Share on other sites More sharing options...
[Te...] Posted June 11, 2019 Share Posted June 11, 2019 Today, my sinuses are very bad along with the usual other major sxs. inner vibrations in toes, legs, fingers arms. Feels like I stuck my finger in a light socket. Head pressure. Head in a vice and my brains are pushing out the top of my head. My fingers burn down to the bone. Of course, others but the ones I mentioned are the worst. Oh I forgot ear pressure and tinnitus. But today the biggest is sinus pain. It is draining me and very fatigued. 4 Usually I don't post about my w/d sxs because it is what it is and I try not to dwell on it but today is bad. Miss Bella Hi Miss Bella, It appears that we have similar symptoms in regards to the severe pressure and tinnitus, it's just awful this is why I was at the ENT this morning he pierced my ear drum to see if any of the pressure would be relieved if it does then he will install a tube if the small hole does not help then he will start looking at other options, I have to work and when the pressure ramps up I can't concentrate I just don't know how I can continue working with this, I should know if it worked by mid week. Kind Regards Terry Link to comment Share on other sites More sharing options...
[Pu...] Posted June 11, 2019 Share Posted June 11, 2019 2 ! I just don’t understand this shit storm I reached a 7 for a few hours Sunday afternoon it was bliss yesterday and today I’ve come crashing down, don’t understand :'( Link to comment Share on other sites More sharing options...
[An...] Posted June 11, 2019 Author Share Posted June 11, 2019 Yeah I know Pushing On....often no rhyme or reason. You can feel great one day and like total hell, on your death bed, the next. This roller coaster effect can be very discouraging. I think I am about a 4. I do not feel as well this morning as I did yesterday. I also got virtually no sleep last night. :'( Link to comment Share on other sites More sharing options...
[Pu...] Posted June 11, 2019 Share Posted June 11, 2019 Hi antibenzo7 It’s like you get your hopes up only for them to be crushed , I keep trying to tell myself to just accept it and look at the positive of having a good day but it’s sooooooo hard sometimes :'( I didn’t sleep great last night or the night before I think this adds to it. We’ll get there Link to comment Share on other sites More sharing options...
[ps...] Posted June 11, 2019 Share Posted June 11, 2019 Yeah I know Pushing On....often no rhyme or reason. You can feel great one day and like total hell, on your death bed, the next. This roller coaster effect can be very discouraging. I think I am about a 4. I do not feel as well this morning as I did yesterday. I also got virtually no sleep last night. :'( Hi, yes it's very disconcerting. Always trying to find a good pattern to be able to repeat it more often, so far I couldn't. The only one I've found is that when I don't sleep at least 4 hours, I cant' function at all. Last week: 3 average Sunday: 6 Monday :7 Today 7: so far ... Hold on to the memories of the good days you have. Hope you can sleep tonight. P. Link to comment Share on other sites More sharing options...
[Te...] Posted June 11, 2019 Share Posted June 11, 2019 4 today, bad tinnitus no inner ear / head pressure so far today. Link to comment Share on other sites More sharing options...
[Pu...] Posted June 12, 2019 Share Posted June 12, 2019 1 Nausea, head spaced out, depression, tight shoulders- awful today Link to comment Share on other sites More sharing options...
[An...] Posted June 12, 2019 Author Share Posted June 12, 2019 4 - mostly anxiety and chest pressure this morning as usual. I did get some sleep last night and for that, I am grateful. Sorry about the 1 Pushing On. Link to comment Share on other sites More sharing options...
[Pu...] Posted June 12, 2019 Share Posted June 12, 2019 Hi Antibenzo I have picked up to a 5 now , I do not understand why my mornings are so bad ? I’m a total wreak 6 out of 7 mornings! I just don’t get it. Sorry your a 4 today I hope things pick up a bit for you. Link to comment Share on other sites More sharing options...
[Te...] Posted June 12, 2019 Share Posted June 12, 2019 I have to admit that it's taking me about 6 days to stabilize after a cut in dose today is day six and I'm starting to feel better, I might have to make smaller cuts moving forward. 6 Today. Link to comment Share on other sites More sharing options...
[An...] Posted June 12, 2019 Author Share Posted June 12, 2019 Terryln Link to comment Share on other sites More sharing options...
[Pu...] Posted June 14, 2019 Share Posted June 14, 2019 5 today - isn’t it all very odd, physical symptoms not to bad today but anxiety has replaced them ! Mind you they could swap by afternoon- what a ride! Link to comment Share on other sites More sharing options...
[An...] Posted June 14, 2019 Author Share Posted June 14, 2019 I would say I am a 5 this morning. Sleep was good in quality but I need more of it. Link to comment Share on other sites More sharing options...
[...] Posted June 14, 2019 Share Posted June 14, 2019 I’m a 5 today and grateful! Link to comment Share on other sites More sharing options...
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