18 - 30 Month Plus Group

[[Mi...]]

Marj,

The best luck I found was with my breathing specialist. Asthma and Allergy...

And he was wonderful! He was also from India and extremely compassionate and holistic. Which is odd to find in a medical doctor. He said he thought it was all stress but in the same sentence said we are going to make sure.

He ordered everything in fact I had to go to the clinic two separate times for blood draw. That's how much he tested.

He tested everything and I mean everything... Even a histamine 2 day urine... Also,

Tested for asthma also every kind of allergy practically known to man, in his office.

CT scans of my lungs chest and sinus...

When all tests were normal or close to normal he wrote me out a script for a inhaler to just have with me for mental health anxieties. The man was a gem! One of a kind!

He literally wrote me out a prescription for meditation, diet, excersize... The foods to eat to advoid everything...

I truly couldn't believe it. My hubby was with me and he even taught him a breathing exercise to help me with during a air hunger episode... 

Anyways I'm rattling on but I have found being honest with a doctor and saying this health anxiety is literally ruining my life making me crazy. Please prove to me I'm ok, really worked out for me anyways!

I know all docs are different but when I'm extremely honest about it I seem to get much better results.

Just my experiences

Hugs ❤️️

 

 

[[...]]

Thanks so much Jen,

 

Did he believe WD? When I told my GP at less than a year, she went STILL?!?!?! I never bothered again as that attitude helps no one. Why would we make this up. i did put on my request for an appt that I have heart palps so he will probably want to see me. i just worry if i tell the honest truth about what's going on they will want to give me more meds or label me neurotic. I'm too fragile and suggestible to fight.

 

BTW did you get out of the jury service? I still have to sort mine. There's no way on earth I could do it. i'm having palps talking about it.

 

how you doing Hun?

[[Mi...]]

Marj,

I never talked to the specialist about WD...

I was just brutally honest about my health anxieties...

I figured trying to explain why I was like this really didn't matter.

What mattered was I was like this not the reason why. I didn't care one bit about any labeling I would receive. I just needed the reassurance.

Again Dear that was just my experience and what I needed and what worked for me.

I quit explaining why a long time ago. It just doesn't help.

I figured it is what it is right now, and they why didn't make a difference when it comes to medical testing...

 

The jury Duty I never got called in but was on call for the 2 weeks and yes it was extremely stressful for me. Being agoraphobic some days. Crazy, but it is what it is.

 

Idk exactly how I am doing. I guess dipping my toes in the water right now. It usually takes me a few days after a wave to get back to baseline or better. I feel like I'm coming out of it but idk.

 

 

[[...]]

Thanks again Jen,

 

I just want some bloods done B12, D and thyroid, but more in depth. I know my throat closing is muscular. it's hard to explain stuff like head pressure, but again I think it's muscular as is the neck and spine. I'm sure if this lifted I'd feel better, but it makes me so low. I know my nervous system is shot as slight noises make me jump and I mean jump, it's crazy, but i could never even begin to explain it. I just want to know my bloods and thyroid ok. sometimes I want a brain MRI because of my sister and I worry about MS. i guess these worries are pretty common and normal. Still it's totally exhausting, I was ready to pack work in today because of anxiety and cognitive awfulness and I'm sick of trying to act normal. I must need longer, however I'm terrified tbh.

 

What bothers me is they say that this affects all our bodies anyway ie everything and it's supposed to correct when we heal idk. 

[[Mi...]]

Marj,

I know you have talked before about your sister who passed. But, brain scan because of her? Did she have MS hun? I didn't understand that....?

 

I had my D and thyroid done idk about B? I will have to look.

You are going to be ok Marj. And if for some reason one of those tests are off it will be a piece of cake compared to this. All easy fixes hun.

 

Do you remember my throats scope and wat the Doc told me at all?

 

❤️️

[[...]]

Jen,

 

No, she died of a brain tumour, really sudden and quick. This is where it all began for me with all this, fell apart, then my dad died, again suddenly 3 months after my sister. I was a mess, ready to be admitted. I also lost my cousin last year to thyroid and brain cancer, so I get a bit, you know.......

 

No, I don't remember that about the Doc.......

 

Thanks so much Hun 

[[HO...]]

Get yourself booked in for a full check up Marj. Get all the tests done and kill that anxiety. Hang tough buddie so sorry you are still in the trenches.

 

Ive improved a bit and thankyou for all the support when needed it everyone. That psychotic episode nearly sent me off the deep end and nearly completely lost my shit. Today still feeling a bit low but nothing like previously. I have cottonbrains / DR and headaches today but the DP is gone and feeling like me again.

 

Amazing the fatigue is minimal and my muscles feel strong just dealing with the head symptoms at the moment. Hopefully keep clawing my way out of this hole

 

Love your YouTube videos. How are you feeling now. How long were you on Valium? Also you recently had a psychotic episode I'm so sorry. I feel on the verge of that everyday.

[[Lo...]]

Get yourself booked in for a full check up Marj. Get all the tests done and kill that anxiety. Hang tough buddie so sorry you are still in the trenches.

 

Ive improved a bit and thankyou for all the support when needed it everyone. That psychotic episode nearly sent me off the deep end and nearly completely lost my shit. Today still feeling a bit low but nothing like previously. I have cottonbrains / DR and headaches today but the DP is gone and feeling like me again.

 

Amazing the fatigue is minimal and my muscles feel strong just dealing with the head symptoms at the moment. Hopefully keep clawing my way out of this hole

 

Love your YouTube videos. How are you feeling now. How long were you on Valium? Also you recently had a psychotic episode I'm so sorry. I feel on the verge of that everyday.

 

Hi Hope , thanks for the feedback! You need to take into consideration i am an extreme case of the extreme cases. I was on valium for 3 months 2mg. As for the psycosis. I fazed in and out of it for the first year but less and less as time went on. This is the first time it has happened in a long time. It was intense for a day with extreme depression the day before and after. Im ok now thou

 

 

[[Lo...]]

Hey guys do you get headaches/migraines? Had a throbbing headache on and off now for 3 weeks sore throat too. Maybe its just a virus or something

[[dr...]]

migraines were and still one of my main and worst symptoms.  I actually had one start on Friday and have been wavy every since.  My healing window is now closed.

[[Mi...]]

Lockie,

Great videos! Hope your doing better, I totally understand the psychosis. And, it's definitely the worst feeling ever.

 

Drew,

So sorry!

 

Has anyone in this group tried Hemp, CBD oil in a lotion?

 

Thanks ❤️️

[[so...]]

Jen,

 

Are you kidding me?

 

Sofa

 

Ps. Sorry about that.  No I have not.  There is a cannabis thread on this support group board.

[[Lo...]]

Woah calm down Sofa ! Hahaha

 

I tried the cannabis oil . Not the online snake oil crap but proper oil and worked a treat for anxiety and muscle pain / tension unfortunatly it put me in a bad place mentally. My brain chemistry isnt what it used to be.

 

I used to smoke a bit of weed to relax and wind down after i would get back from the mines every few weeks. Worked great but they started drug testing which is another reason why i got the prescription for valuim.

 

Now look at me after 3 months on their legal shit. Makes me wonder who the real criminals are. My mate i used to get weed off for anxiety for 10 years and never had a problem on or off it or big pharma that ruined my life?

[[so...]]

Lockie,

 

I used to smoke all the time in college. My husband and I used to smoke on the weekends and laugh our asses off at radio host psychiatry call ins.  Fun times.

 

Jen,

 

Very sorry I snapped.  Boy, I am just not myself today.  But then, I haven't been myself for 4 years!  Ugh.  I just don't want anything more to go south on you.  I love you to death.  You've been having such a rough time lately.  You don't know what, if anything except withdrawal, is causing your recent wave.  I know time is the only healer, but you have definitely put in the time.  I honestly think, if you let this wave pass on its own, it may be the last one before recovery.  I would hate to see you "try" something and have it backfire on you.  I also know how sick of all this you are, and how tough it is to hold onto the belief that it just takes MORE time.  I've got my arm around you, hon.  You are tired, you're scared.  Just a couple more weeks, Jen.  You can do anything for a couple more weeks.  This could turn around and, like a switch, just flip.

 

Love you all,

 

Sofa

[[so...]]

Drew, my friend,

 

You just got a little withdrawal kick in the pants.  You are healing BIG TIME, my buddy.  Just ride this out like you always do.  You know, even my upticks are changing.  Instead of having a really lousy week in a flare up, I have a couple moderate days sprinkled in.  At this point, I think we need to look at the subtle changes taking place, not necessarily wait for huge improvements.  Our bodies have healed a lot by now.  There's not much more in there to tackle.

 

Love you, Sofa

[[HO...]]

Woah calm down Sofa ! Hahaha

 

I tried the cannabis oil . Not the online snake oil crap but proper oil and worked a treat for anxiety and muscle pain / tension unfortunatly it put me in a bad place mentally. My brain chemistry isnt what it used to be.

 

I used to smoke a bit of weed to relax and wind down after i would get back from the mines every few weeks. Worked great but they started drug testing which is another reason why i got the prescription for valuim.

 

 

Bravo!!!!

Now look at me after 3 months on their legal shit. Makes me wonder who the real criminals are. My mate i used to get weed off for anxiety for 10 years and never had a problem on or off it or big pharma that ruined my life?

[[Mi...]]

Sofa dear,

 

I'm not considering using it right now hun...

And, I know there is a group for it. I just wanted to ask you all. I didn't mean to upset anyone.

Being on this thread for years now I guess I wanted opinions here!

 

I saw my naturopath doc yesterday for my monthly apt...

He has helped many many many get off prescription drugs. Antidepressants, Benzos, and pain meds ect...  Plus since he has been a close family friend for my entire life I value his opinions...

Anyways, he just asked me if I knew anything about hemp CBD oil. And, said he definitely didn't recommend now. But, when my waves start settling down and aren't so extreme he wanted to discuss CBD hemp oil... 

As, it has helped many...

So idk, I was just wondering if anyone had used it or knew about it here...

I don't really know anything about it at all.  He said it had to be hemp CBD though not cannabis CBD, idk the difference lol!

 

It just interested me.  As, something that may help in the future.

 

❤️️

[[Si...]]

Great videos lockie. Always interesting to match faces to people here. Hope you're pulling out of your wave. I have some head issues, but usually not too bad. I use to have all kinds of head issues, but now they only pop up when I'm really worn out or push myself super hard.

 

Drew, hopefully yours won't last long either. I hate that these migraines hit you so bad.

 

I've only smoked dope a few times since this all began nearly three years ago now. It didn't seem to cause a problem when I did. I use to smoke A LOT though. I lived with a guy for a while that would sell several ounces a day. So there was WAY too much weed around all the time. I had to stop because I was wheezing all the time. I ageee with Lockie, I would totally go back to using weed vs this poison.

[[Lo...]]

Hemp oil only has cannabinoids in it and no THC so not psychoactive ingredients its just like fish oil really and didnt do anything for the pain. Cannabis oil does have THC but also has that calming effect. My mate made it for me and took a few tries to get the dose right. Accidentally got high a few times! Once the dose was right was really relaxing and great for pain but after a few weeks noticed my mental state declining so i stopped. I could have been heading that way anyway with the waves im not sure.

 

Be careful with it thou. I can cause anxiety with too much

[[Lo...]]

And thanks Siggy and everyone. I have pulled ot of this wave and feeling ok. Really tired thou, psychosis is exhausting hahaha!

[[dr...]]

Jen- I have a medical card for it but I have found it ramped my anxiety when I tried it much earlier in the process.  i am just so petrified of not being in control when I put something in my body now so I can't answer from a normal person point of view.  I used to smoke a ton and now I am cleaner than clean in all aspects of life.

[[Mi...]]

Me to Drew, cleaner than clean! 

 

I smoked abit in college days but I don't know anything about oils and strains lol!

And certainly wouldn't do it now.... 

I'm sure he was bringing it up for future reference as he said drinking alcohol was going to be a big Mo No for a long long time! I believe he had said decade!

 

Hope you are feeling better...

I'm still battling through this wave although some sx have let up...

 

How's that beautiful little girl of yours?

 

[[dr...]]

The little gal has become a source of pleasure in my life.  I'm the guy who never cared either way about being a dad but now that I am one it is awesome.  She was smiling at me this am when I was getting ready to leave and I never knew how much I could love a little kid. 

 

I am slightly better.  I had terrible nightmares and insomnia which has passed.  I had a horrific night terror which I have to tell about cause it's so ridiculous....I was being chased by Corgi vampire dogs   One caught me and bit me and slowly sucked my blood out.  In my dream it drank all my blood and my heart stopped.  i woke up thrashing and gasping for air scaring my wife     how can my brain come up with that?  Corgis??  We need to all write a book.

[[HO...]]

I'm sorry I spoke of reinstating I just have never considered it until today!

And I deeply apologize to you all!

I just can't believe this is happening again and at my time frame...

I am close to agoraphobic again and have almost every single sx back! It's just unreal...

And this clearing the throat breathing crap has been my number 1 worse physical sx for a year now and it's just making me utterly insane in itself! And I have had every test I can imagine! So that's why I broke down and started the antihistamine.... 

And yes I have had some decent times this past year but I haven't ever felt like me yet. 3 plus years is wearing on me...

And this anxiety is just consuming in itself...

I'm still not able to go more than a few miles from my house solo... I'm a prisoner to this town, and lately the town seems to much for me...

Everything is returning, brain zaps, cog fog, DR, complete and utter fear of everything. Scared to be alone...  Taking a shower is a huge chore! Inner vibrations, fear of literally losing my ever loving mind has returned... It's just so much... The heart palps, panics and not normal panics that chemical stuff that eats you alive...

And it's extremely hard to know what's happening...

I seem to have lost my intuition during this journey and there are so many mixed responses...

Take these vitamins, no don't!

Try CBD it saved my life, then Omg Cbd almost sent me psychosis!

Try a antihistamine, don't try one!

It's just so hard to know wat is what...

Even freaking tea???

Sorry again but I'm losing it. Correction have lost it completely....

 

Ditto you summed it up perfectly. It's an utter nightmare. So scared. Anxiety horrible. I'm sorry these symptoms have returned for you.

[[Lo...]]

The little gal has become a source of pleasure in my life.  I'm the guy who never cared either way about being a dad but now that I am one it is awesome.  She was smiling at me this am when I was getting ready to leave and I never knew how much I could love a little kid. 

 

I am slightly better.  I had terrible nightmares and insomnia which has passed.  I had a horrific night terror which I have to tell about cause it's so ridiculous....I was being chased by Corgi vampire dogs   One caught me and bit me and slowly sucked my blood out.  In my dream it drank all my blood and my heart stopped.  i woke up thrashing and gasping for air scaring my wife     how can my brain come up with that?  Corgis??  We need to all write a book.

 

Bahahaha Drew! Vampire corgies??? We are so messed up lol. Glad your feeling a bit better. I recently found out we are having a girl too. When im at baseline feeling confidence about the situation but still freaking out in a wave. Still 4 months to go so hopefully would have done some more healing by then