My health is really suffering

[[Ja...]]

Hey jack x melatonin unfortunately doesn’t do much for me. Maybe I’m not taking enuf I don’t know. I take 3mg now and then, but I took it for ages snd I do t think it did much.

 

Truth, if someone was considering going on remeron, what would u tell them?

 

I’d say avoid it if you can. I do not regret taking it myself because I don’t think I would have survived without it. I had not eaten anything for about a month and lost 40 something lbs in only 4 weeks. If I did not find a way to eat and sleep I am sure I would have been dead in a few more weeks. The body might be able to survive without sleep but not food and no sleep. My gastroparesis had my stomach just dead. It refused to pump. When I took the first pill of Remeron my stomach just fired right up within 20 or so minutes. At first I could just eat for the hour after I took it and I would binge but at least I was getting calories. After a few days I could get down other meals. Within 2 weeks I was getting 3 meals a day and then some. I did not have any significant side effects from Remeron. But it was 2 hears or more suffering to taper off of. But the Remeron taper was not nearly as bad as coming off of benzos. I worked through the entire taper. Remeron was a magic bullet for me but that does not mean it will help you. You would have to try it at your own risk and see what happens. I have seen others claim that it made them worse. That was not the case for me.

[[Ta...]]

Lovely,

 

I’m

So so sorry you are going through this. It’s bl__dy unfair you are dealing with this. At all. Such a lovely, kind, fun, awesome, intelligent, vivacious, creative & dowm right extraordinary human like you should not even have to have your little toe on this horrendous path.

 

You have faught such a long, hard & arduous battle. Please don’t give up. Keep waving your long sharp sword at those sleepless nights. Don’t put down that sword - not now - not ever. One day - that sword will bring sleep back - I don’t know when exactly - but I just know, right down to my very bones, that that sword will bring back sleep. So keep sharpening that sword.  Keep on being kind to yourself.

 

I’m thinking sometimes I venture into the field of being toxicly positive. But with you lovely - I just know that you will sleep again, that you will lead a full life full of sleep when you close your eyes. So every night - sharpen that sword.  Please don’t fund up. It is harder than hard what you are going through & I wish I could send you some of my sleep. But for now all I have is words that hopefully bring you encouragement. So for now if you have to take stuff to get some relief & sleep that’s ok. Please don’t be hard on yourself. 

 

We will never know if a taper or CT would’ve better suited any of us.  I think that as we trudge through this barbaric field we look to the other side of the fence & it’s natural to wonder if we could’ve done something that would’ve made this s-it sandwich a bit easier to clamp down on. But we will never know & no Dr or specialist will ever be able to tell us. Please be kind to your lovely self.  You are worth it. 

 

You can slay me one with your fierce sword for saying this next bit - it any of it.  I acknowledge how down right disgustingly vile this insomnia is for you.  Please don’t take this next bit as downplaying what you are going through because I think you are one of the most strongest people I will ever have the privilege of knowing.  All of your other symptoms have gone - apart from the insomnia.  The insomnia will go to.  I promise..  it will. It will. Just hold on. Me & the mountain of other oeople who think - who actually know that you are just the bee’s knees - are here for you. Cheering you on.  Just don’t give up.  Don’t you dare give up.  Because you can do this.

 

Bess,

This message is so heartfelt and encouraging it brought tears to my insomnia-ridden eyes, too. I know it was written for Shayna, but I think I might get it tatted on my body. What a beautiful soul you are!

Tate

[Guest [Se...]]

Shayna, I’ve been taking unisom and Benadryl pretty much every night since I got off Klonopin last May and it works for me. Granted, I’m acute NOTHING helped the insomnia but in the year since I take 5 mg’s of melatonin and 25-50 ms’s of unisom at bed time and I really haven’t even thought about changing it up because sleep is so important and is one of the building blocks for the rest of our recovery. Everything is SO much harder when we aren’t sleeping well, let alone sleep deprived, but I don’t need to tell you that.

 

It’s my opinion that these microtapers are complete bullsh*t. It took me a total of four years to taper off 2.5 mg’s of Klonopin thinking I’d be able to “jump off” and avoid all the nasty symptoms I had gotten so scared of developing from reading the horror stories of others. Yea…aside from avoiding seizures that didn’t happen at all. Still went through an absolutely barbaric acute phase and then was left with full blown ocd. I think once we reach a certain blood level in our taper it doesn’t matter how long it’s taken us to get there. Not promoting CT’s but there’s something to be said for a realistic time frame for taper rates and a long, drawn out micro taper isn’t it. Ignoring the fact that taking so much time to taper while agoraphobic and inable to function saw my whole life completely fall apart. These factors matter. I feel that the people I was listening to on the forums put so much stock in the pills and in our GABA receptors and CNS and ignore the individualized factors in each our our unique situations. Just what I believe.

[[Sh...]]

I’m so lucky to have wonderful friends here x Thanku all so much for ur kind words x I slept a long time last night. I think at least 7 hrs. I stacked 2 unisom with cbd and 6mg of melatonin but it was at that life or death point. My husband was crying yesterday so yeah. It was bad. I’m just going to do that when I need sleep. I know some people tell us not to take anything but when u feel Those bad thoughts take over (u know what I mean) then it’s time to get some help.

 

I’m feeling very groggy atm so I’ll reply individually a little later x just wanted to say Thanku and let u know I’m ok x

[[Pa...]]

I'm glad you got some sleep Shayna and I don't see anything wrong with how you achieved it, I'm just glad you did! 

[Guest [Se...]]

I’m so lucky to have wonderful friends here x Thanku all so much for ur kind words x I slept a long time last night. I think at least 7 hrs. I stacked 2 unisom with cbd and 6mg of melatonin but it was at that life or death point. My husband was crying yesterday so yeah. It was bad. I’m just going to do that when I need sleep. I know some people tell us not to take anything but when u feel Those bad thoughts take over (u know what I mean) then it’s time to get some help.

 

I’m feeling very groggy atm so I’ll reply individually a little later x just wanted to say Thanku and let u know I’m ok x

 

Unisom and melatonin and CBD are perfectly fine to take. The toll of not sleeping is much worse for you than any negative side effects from taking over the counter sleep aides IMO. Glad you got some good sleep.

[[Be...]]

Shayna, some docs will treat hypothryoidism even if their TSH is in the so-called "normal" range.  If your TSH is above a 2 and your doc refuses to allow you to try thryoid replacement therapy to see if it will help, then find a new doc to consult with.  Seeing an endocrinologist sounds like a very good idea.  Maybe they could also rerun your iron test?  My one brilliant doc I had one time said that thyroid tests should be run when you're fasting.  Most docs now know that a person can be hypothyroid even if their labs are in the normal range.  Does anyone else in your family have high iron?  I read that it's probably hereditary.  It's very unusual for a woman to have high iron because of her menstrual period every month.  I'm so very glad you did get some sleep last night.  I pray that eventually you'll be able to get good sleep without needing to use sleep aids.  How long did you take zopiclone?  I don't see it in your signature. 

[[be...]]

Shayna, I agree with Pam, you take what is needed to get some sleep. I read your posts every time you post, do what you feel is best for you, this is your journey and no one else can make the decisions that you should make. That is something I had to decide when I joined BB and I do not regret deciding that I had to do it my way. I think you are such a special person and your humor and care for others is wonderful. You are so strong even when suffering so much. I am Praying that your sleep returns soon. 💖 Peace and Healing.💦

[Guest [An...]]

Shayna, when you are able to get a decent chunk of sleep like this, I personally think it's the PERFECT opportunity to try THC with CBD.

 

I usually don't really offer you anything, because you are afraid of supplements, afraid of AD's, and afraid of Cannabis. There's nothing left to offer.

 

I understand that if you get side effects from things, then you will be afraid to try anything. The doctor that gave you Zyprexa is an idiot. That's an anti-psychotic similar to Seroquel. That should be the last thing anyone is given to try for sleep. I don't find it surprising at all that it made you sick.

 

I don't think you will get the same reaction from Remeron. So here goes my opinion:

 

1. If 2 Unisoms and a Melatonin are giving you some sleep, that means your sleep drive is partly functioning. It means your GABA receptors are healing.

 

2. The side effects you get from trying different things, like THC, are most likely to the fact that your body is in shock. When you're in shock, anything makes you sick.

 

3. So, that means that if you manage to pull a decent sleep one night (let's say with Unisom), the next night should be a ripe night to try something that does NOT use the histamine path to get to sleep. It would be an ideal time to try THC and CBD for example. Or try Valerian, Melissa, and Theanine together, for example.

 

But I don't know.

[[Sh...]]

Well last night I tried thc, cbd and melatonin. I was awake after a couple of hours and felt incredibly stoned. Then struggled to get back to sleep. I only took 0.5ml

[[Sh...]]

Lovely,

 

I’m

So so sorry you are going through this. It’s bl__dy unfair you are dealing with this. At all. Such a lovely, kind, fun, awesome, intelligent, vivacious, creative & dowm right extraordinary human like you should not even have to have your little toe on this horrendous path.

 

You have faught such a long, hard & arduous battle. Please don’t give up. Keep waving your long sharp sword at those sleepless nights. Don’t put down that sword - not now - not ever. One day - that sword will bring sleep back - I don’t know when exactly - but I just know, right down to my very bones, that that sword will bring back sleep. So keep sharpening that sword.  Keep on being kind to yourself.

 

I’m thinking sometimes I venture into the field of being toxicly positive. But with you lovely - I just know that you will sleep again, that you will lead a full life full of sleep when you close your eyes. So every night - sharpen that sword.  Please don’t fund up. It is harder than hard what you are going through & I wish I could send you some of my sleep. But for now all I have is words that hopefully bring you encouragement. So for now if you have to take stuff to get some relief & sleep that’s ok. Please don’t be hard on yourself. 

 

We will never know if a taper or CT would’ve better suited any of us.  I think that as we trudge through this barbaric field we look to the other side of the fence & it’s natural to wonder if we could’ve done something that would’ve made this s-it sandwich a bit easier to clamp down on. But we will never know & no Dr or specialist will ever be able to tell us. Please be kind to your lovely self.  You are worth it. 

 

You can slay me one with your fierce sword for saying this next bit - it any of it.  I acknowledge how down right disgustingly vile this insomnia is for you.  Please don’t take this next bit as downplaying what you are going through because I think you are one of the most strongest people I will ever have the privilege of knowing.  All of your other symptoms have gone - apart from the insomnia.  The insomnia will go to.  I promise..  it will. It will. Just hold on. Me & the mountain of other oeople who think - who actually know that you are just the bee’s knees - are here for you. Cheering you on.  Just don’t give up.  Don’t you dare give up.  Because you can do this.

 

Bess,

This message is so heartfelt and encouraging it brought tears to my insomnia-ridden eyes, too. I know it was written for Shayna, but I think I might get it tatted on my body. What a beautiful soul you are!

Tate

 

Bessie is a gem x Thanku Bess for this beautiful post xx

[[Be...]]

Lovely,

 

I’m

So so sorry you are going through this. It’s bl__dy unfair you are dealing with this. At all. Such a lovely, kind, fun, awesome, intelligent, vivacious, creative & dowm right extraordinary human like you should not even have to have your little toe on this horrendous path.

 

You have faught such a long, hard & arduous battle. Please don’t give up. Keep waving your long sharp sword at those sleepless nights. Don’t put down that sword - not now - not ever. One day - that sword will bring sleep back - I don’t know when exactly - but I just know, right down to my very bones, that that sword will bring back sleep. So keep sharpening that sword.  Keep on being kind to yourself.

 

I’m thinking sometimes I venture into the field of being toxicly positive. But with you lovely - I just know that you will sleep again, that you will lead a full life full of sleep when you close your eyes. So every night - sharpen that sword.  Please don’t fund up. It is harder than hard what you are going through & I wish I could send you some of my sleep. But for now all I have is words that hopefully bring you encouragement. So for now if you have to take stuff to get some relief & sleep that’s ok. Please don’t be hard on yourself. 

 

We will never know if a taper or CT would’ve better suited any of us.  I think that as we trudge through this barbaric field we look to the other side of the fence & it’s natural to wonder if we could’ve done something that would’ve made this s-it sandwich a bit easier to clamp down on. But we will never know & no Dr or specialist will ever be able to tell us. Please be kind to your lovely self.  You are worth it. 

 

You can slay me one with your fierce sword for saying this next bit - it any of it.  I acknowledge how down right disgustingly vile this insomnia is for you.  Please don’t take this next bit as downplaying what you are going through because I think you are one of the most strongest people I will ever have the privilege of knowing.  All of your other symptoms have gone - apart from the insomnia.  The insomnia will go to.  I promise..  it will. It will. Just hold on. Me & the mountain of other oeople who think - who actually know that you are just the bee’s knees - are here for you. Cheering you on.  Just don’t give up.  Don’t you dare give up.  Because you can do this.

 

Bess,

This message is so heartfelt and encouraging it brought tears to my insomnia-ridden eyes, too. I know it was written for Shayna, but I think I might get it tatted on my body. What a beautiful soul you are!

Tate

 

Ohhh thanks Tate, you’ve made my say.  Thank you for your kind words.  I hope your day is going ok & you caught some sleep xx

[[Be...]]

Lovely,

 

I’m

So so sorry you are going through this. It’s bl__dy unfair you are dealing with this. At all. Such a lovely, kind, fun, awesome, intelligent, vivacious, creative & dowm right extraordinary human like you should not even have to have your little toe on this horrendous path.

 

You have faught such a long, hard & arduous battle. Please don’t give up. Keep waving your long sharp sword at those sleepless nights. Don’t put down that sword - not now - not ever. One day - that sword will bring sleep back - I don’t know when exactly - but I just know, right down to my very bones, that that sword will bring back sleep. So keep sharpening that sword.  Keep on being kind to yourself.

 

I’m thinking sometimes I venture into the field of being toxicly positive. But with you lovely - I just know that you will sleep again, that you will lead a full life full of sleep when you close your eyes. So every night - sharpen that sword.  Please don’t fund up. It is harder than hard what you are going through & I wish I could send you some of my sleep. But for now all I have is words that hopefully bring you encouragement. So for now if you have to take stuff to get some relief & sleep that’s ok. Please don’t be hard on yourself. 

 

We will never know if a taper or CT would’ve better suited any of us.  I think that as we trudge through this barbaric field we look to the other side of the fence & it’s natural to wonder if we could’ve done something that would’ve made this s-it sandwich a bit easier to clamp down on. But we will never know & no Dr or specialist will ever be able to tell us. Please be kind to your lovely self.  You are worth it. 

 

You can slay me one with your fierce sword for saying this next bit - it any of it.  I acknowledge how down right disgustingly vile this insomnia is for you.  Please don’t take this next bit as downplaying what you are going through because I think you are one of the most strongest people I will ever have the privilege of knowing.  All of your other symptoms have gone - apart from the insomnia.  The insomnia will go to.  I promise..  it will. It will. Just hold on. Me & the mountain of other oeople who think - who actually know that you are just the bee’s knees - are here for you. Cheering you on.  Just don’t give up.  Don’t you dare give up.  Because you can do this.

 

Bess,

This message is so heartfelt and encouraging it brought tears to my insomnia-ridden eyes, too. I know it was written for Shayna, but I think I might get it tatted on my body. What a beautiful soul you are!

Tate

 

Bessie is a gem x Thanku Bess for this beautiful post xx

 

Thanks Shayna& pleasure treasure.  Hope you are doing ok & being kind to your lovely self.  Xx

[Guest [An...]]

Well last night I tried thc, cbd and melatonin. I was awake after a couple of hours and felt incredibly stoned. Then struggled to get back to sleep. I only took 0.5ml

 

When I was taking Trazadone, I got 2hr sleep the first few times, and then I was pretty much knocked out the rest of the day. I still did it though. I figured that 2hr was worth taking, and it eventually became 3hr and then 4hr, etc.

[[Sh...]]

I don’t like being stoned tho. When I woke up I was like wth is wrong with me, I felt so strange. I pinched myself to see if I was awake. And then I realized I was stoned. Then my heart rate just went thru the roof. I don’t think I went back to sleep and if I did it was really light. My Fitbit says no deep sleep and very little rem so I was pretty much in light to no sleep.

[Guest [An...]]

I don’t like being stoned tho. When I woke up I was like wth is wrong with me, I felt so strange. I pinched myself to see if I was awake. And then I realized I was stoned. Then my heart rate just went thru the roof. I don’t think I went back to sleep and if I did it was really light. My Fitbit says no deep sleep and very little rem so I was pretty much in light to no sleep.

 

Well there's supps, AD's, anti-histamines, and cannabis. What else can anyone offer?

 

AD's are basically Anti-Histamines on Steroids, so really there's supps, anti-histamines, and cannabis.

 

I didn't use THC in my acute phase. I didn't consider it at the time. But I did do quite a bit of Trazadone and Remeron. For 3 weeks straight I was a zombie, but I was sleeping 2hrs a night. I figured 2hr was better than 0hr, so I endured being useless and basically zombified. After a week, it became 3hr, and the next week it was 4hr, and I was able to reduce dosages after 3 weeks, enough I could do some mild work around the house (it took me 2 months to go back to work, once I was getting 4hr at very low doses)

 

My point is you may have no choice but to put up with some of the sides, so you can get constant 2hr sleep, with the hope it becomes more and more as you go along.

 

Just my opinion, I understand your fears. I had to give up on my life for that time so I could get better.

[[Sh...]]

I’ve already been thru the ads, tried all the sedating ones. Anyway I’ll just have to survive this somehow

[[Qu...]]

Some sleeping aids like trazodone, mirtazapine or Seroquel should be tried at least for a while, let's say one week and maybe need dose adjustment. It is also possible that what didn't work during withdrawal start to have effect later.

[Guest [An...]]

Some sleeping aids like trazodone, mirtazapine or Seroquel should be tried at least for a while, let's say one week and maybe need dose adjustment. It is also possible that what didn't work during withdrawal start to have effect later.

 

That's what happened to me. Trazadone did nothing the first few days. I still took it. I had no other choice.

[[Bl...]]

Hey Shayna . I m glad you could sleep . I think more people here are finally understanding that its ok to do what you meed to do to rest .

 

I could not do any THC in acute but finally in may I began to microdose THC WITH CBN (Cannabinol) NOT CBD .. More of the night time gummies now are starting to include CBN with the indica and it keeps any side effects away  , relaxes you and keeps you asleep .  My dose is 5 mgs of TCH with 2 mgs of cbn ( 1/2 a gummy usually always under my tongue )and I dont feel stoned , get no racing heart , no paranoia or fear an I can finally rest .  will sometimes have to include 2 mgs of melatonin under my tongue after it melts but I will sleep 6-8 hours now . I may wake but I can go back to sleep. I feel so much better . The sleep being so messed up in a major roadblock in getting better . I think alot of us are actually sick from lack of sleep . 

[[Qu...]]

CBN? Does it work even if taken alone?

[[Sh...]]

Hey Shayna . I m glad you could sleep . I think more people here are finally understanding that its ok to do what you meed to do to rest .

 

I could not do any THC in acute but finally in may I began to microdose THC WITH CBN (Cannabinol) NOT CBD .. More of the night time gummies now are starting to include CBN with the indica and it keeps any side effects away  , relaxes you and keeps you asleep .  My dose is 5 mgs of TCH with 2 mgs of cbn ( 1/2 a gummy usually always under my tongue )and I dont feel stoned , get no racing heart , no paranoia or fear an I can finally rest .  will sometimes have to include 2 mgs of melatonin under my tongue after it melts but I will sleep 6-8 hours now . I may wake but I can go back to sleep. I feel so much better . The sleep being so messed up in a major roadblock in getting better . I think alot of us are actually sick from lack of sleep .

 

Blue I’m so happy for u x gosh that is great news xx

 

I’m a total light weight when it comes to weed, always have been. Unfortunately we don’t have access to different kinds like u guys do. I have no idea where to get cbn.

 

I had sleep paralysis last night. It was so wierd. I only took melatonin cbd and tryptophan so not sure what happened there. Feel exhausted today but I know I slept some just not great. Yesterday I slept like 6 hrs after taking unisom cbd and melatonin. I felt completely normal all day.

 

Yep I’ve decided to get more sleep now and stop waiting for it to come back naturally. It’s hurting my health way too much. But I’m not taking pysch meds to get it. Been there, got the tshirt

[[le...]]

Just be careful if you take CBD during the day and are driving, it made me feel really dopey and tired if I took it during the day. Glad it's helping, I had to stop it after couple weeks was making me feel depressed, thinkI'm  just  super sensitive to everything. Glad you've finally found something.

[[Sh...]]

Hi Leann, I only take it at night, I don’t need it during the day. X

[[le...]]

That's OK then, was weird made me really tired during day, but didn't do anything at night. Glad you've found something that finally helps anyway x