Tardive distonia

[[Aj...]]

Did they give you a contrast injection?

It is unlikely the MRI caused problems.

 

I took diazepam and Gabapentin fine in the past. Then after got off diazepam everything even paracetemol, aspirin, vitamin D etc cause horrific symptoms so it could be the pregabalin.

 

 

Dyskinesia  really is quite common in withdrawal.

 

I speak to several ppl with it.

 

[[Ar...]]

Did they give you a contrast injection?

It is unlikely the MRI caused problems.

 

I took diazepam and Gabapentin fine in the past. Then after got off diazepam everything even paracetemol, aspirin, vitamin D etc cause horrific symptoms so it could be the pregabalin.

 

 

Dyskinesia  really is quite common in withdrawal.

 

I speak to several ppl with it.

No, it was without contrast. I know that MRI is considered harmless. But I don’t know how it could act on badly damaged neurons. However, what is the difference now and what is the use if I know. All the same, this will not change anything.

[[Ar...]]

My brain, as is the case with broken bones, did not heal correctly. Hence these dire symptoms.

[[...]]

Did they give you a contrast injection?

It is unlikely the MRI caused problems.

 

I took diazepam and Gabapentin fine in the past. Then after got off diazepam everything even paracetemol, aspirin, vitamin D etc cause horrific symptoms so it could be the pregabalin.

 

 

Dyskinesia  really is quite common in withdrawal.

 

I speak to several ppl with it.

No, it was without contrast. I know that MRI is considered harmless. But I don’t know how it could act on badly damaged neurons. However, what is the difference now and what is the use if I know. All the same, this will not change anything.

 

Mri can be very harmful fir ppl who have sensitized system. Mine was no contrast too, I was not even on any drug.

 

Never make conclusion before knowing it all.

 

[[Ar...]]

 

This is terrible. My back muscles are so spasmodic and twisted that when I lie down my body pulls somewhere up to the ceiling. I want to tie myself to the bed. Except as on my back, in another position I cannot lie because of muscle spasm and twisting.

[[Aj...]]

Yes, I have that. And glutes and sacrum rigid and contracted causing pelvis to tilt forward.

Back of neck tight as well pulling head back forcing C2/3 forward and out of place pressing on throat.

Upper back forced up and forward forcing shoulders up and forward.

 

Is yours cibstsnt fixed contracture like stick in this position or does it come and go?

 

Person I speak too stuck in this position for 2 years on her side in agony who had no previous spinal or muscle probs speaks to Baylissa Frederick still and Baylissa (who has seem 10,000 ppl go through WD) says it is WD and will resolve.

[[Ar...]]

I have constant spasticity. Doesn't Bayissa know what tardive dystonia is and it doesn't go away? Why then does it not work for you or others who have dystonia& I read all the stories on the forum with such problems and no one got away with it.

[[Aj...]]

Baylissa was on Benzos for dystonia she has had since childhood.

She is very well aware of what It all is.

Hers got very very severe during withdrawal.

 

You have no idea if you have tardive dystonia or of you have dystonia from withdrawal.

 

I speak to many ppl with these symptoms.

 

Baylissa tells everyone (apart from me because I have pre-existing spinal & neuro probs) that their Dystonia will go away.

She has seem ppl have very severe dystonia in this which has eventually gone away.

[[Ar...]]

To be honest, I have not seen in the medical literature such a diagnosis as withdrawal dystonia. You are a very courageous woman.

[[Aj...]]

I am not courageous. Just trying to not have to die.

And possibly in a ridiculous amount of denial because of terror that there is literally no way out for me.

 

Ashton mentions rigidity etc.

 

I am aware of other ppl with it.

[[Aj...]]

I have trawled the internet trying to find evidence for it and can’t.

It is very unlikely.

 

Maybe having to lie in that position for a long time when have spinal stuff going on can cause probs.

[[Aj...]]

Both.

All the harm seems to be related to contrast dye.

I even had that in WD without a problem and even a badly aspirin or paracetemol or laxative etc causes me horrofic symptoms.

[[Ar...]]

Did they give you a contrast injection?

It is unlikely the MRI caused problems.

 

I took diazepam and Gabapentin fine in the past. Then after got off diazepam everything even paracetemol, aspirin, vitamin D etc cause horrific symptoms so it could be the pregabalin.

 

 

Dyskinesia  really is quite common in withdrawal.

 

I speak to several ppl with it.

No, it was without contrast. I know that MRI is considered harmless. But I don’t know how it could act on badly damaged neurons. However, what is the difference now and what is the use if I know. All the same, this will not change anything.

 

Mri can be very harmful fir ppl who have sensitized system. Mine was no contrast too, I was not even on any drug.

 

Never make conclusion before knowing it all.

 

I’m supposed to be having an MRI. I’m really worried about this as I am so sick right now. How does it damage the nervous system?

 

I described only my case. I am very badly damaged. How this can affect others, I simply cannot know. Millions of people tolerate it without side effects.

[[Ar...]]

 

Withdrawal dyskinesia differs from tardive dyskinesia in that it occurs in the first days or weeks after the withdrawal of the psychotropic drug and completely disappears within 3 months.

[[Ar...]]

I feel trapped. In addition to tardive dystonia, I also have myoclonus because the muscles twitch painfully without stopping for a second.

 

I'm stuck in this agony for the rest of my life

[[So...]]

What kind of myoclonus? There are a few different ones?

[[Ar...]]

What kind of myoclonus? There are a few different ones?

 

I don't know what to call it. Continuously, without stopping for a second, the muscles on the face, lower back and abdomen twitch very painfully, they are squeezed, squeezed.

[[Ar...]]

 

I am tired of this. I can’t take it anymore. endless.

[[So...]]

I know. I'm so sorry. The massive contractions and painful twitches in my legs bad other parts lasted for 9 weeks solid...straight, continuous, never even a break. It was unreal, inhumane.

It was soooooo much torture.

My heart breaks for you.

I know yours has started later in WD and you are worried and scared it will be permanent. But I want to encourage you to not give up hope

[[Ar...]]

My whole body is twisting hard. All this is accompanied by pain and twitching in the spasmodic muscles. Stronger without interruption.

 

I had a terrible tremor tonight. And convulsions. Nightmare.

 

Jerks of large muscle groups. Right leg inside from the knee.

 

The face, neck and back are stiff, twisted and twitching.

 

I have not read here such horrors that I experience and such pain.

 

.This is 4 months non-stop and 9 months from cold turkey. Worse every day. It is difficult to sit up straight.

 

[[So...]]

I have felt such pain.

And I'm going to honest, I would see more specialists.

It doesn't mean I would  have to take any more meds that they may suggest. But, I would want doctors to see me and I would want diagnosis. BUT,  I would choose what treatments I would be willing to try. But that's me.

Big hug

[[Ar...]]

I have felt such pain.

And I'm going to honest, I would see more specialists.

It doesn't mean I would  have to take any more meds that they may suggest. But, I would want doctors to see me and I would want diagnosis. BUT,  I would choose what treatments I would be willing to try. But that's me.

Big hug

 

If the name of the diagnosis made it easier ... Hugs!

[[Ar...]]

If neuromyography could be done in my city, I would. Myoclonic jerks are visible under the skin. I had an electroencephalogram. Conclusion: "A pronounced focus of irritation in the frontal lobe on the right", that is, it is a focus of pathological impulses that nightmares me: tearing nerve pains, myoclonic jerks and terrible spasticity. I have not seen improvement even by 1% in 4 months. I do not see logic in hoping that this will come next.

 

The worst thing is that no one can help. I myself cannot help myself, because no massage, vitamins, a healthy lifestyle and proper nutrition can change the damaged brain.

[[So...]]

So did the doc that did the EEG suspect seizures since it was frontal lobe focused? And then why wouldn't they order an MRI and EMG, EMNG, and nerve conduction study?

My EEG was clear and I still had the other stuff ordered.

And I won't lie...the EMG and nerve conduction was painful and VERY difficult to even lay through, but somehow they got it done.

 

Though we may have had things slightly different, I was like you in that it had been agony for 5 months, had to have 24 hour care because I couldn't walk or feed myself. I know what it's like to feel like there is nothing to be done. It is the most helpless feeling in the world. Docs told me they didn't know if I would walk like normal and have a normal life again. Told me they didn't know how to fix me.

And its absolutely the worst when you can't even have any pressure on your body at all, literally nothing helps.

I don't know how to fix you, I wish I could. I guess I'm just saying that I most closely relate with what you are living and I'm so sorry.

My husband carried me during this time both figuratively and literally! He was relentless in finding me help, and just would not stop.

Do you have family to help you?

[[Ar...]]

You are lucky that there were no changes in the electroencephalogram. I have a constant focus of irritation and this is very bad. This is precisely the cause of seizures and other things. It started strangely the day after I had an MRI and took pregabalin. In our city, EMG and ENMG and nerve conduction studies are not done. I have to go far and I am very bad now. I have two children of school age who require my care and attention, and I myself am disabled from these damned pills.

I don't want to depend on anyone.