What is everyone’s most persistent symptom?

[[Ma...]]

Muscle tension and muscle pain. Joint pain (but some is due to arthritis). Some fatigue. Gas. Cog fog. But, thankfully, no depression, and no anxiety. My sxs are getting progressively better, a tiny bit each day.

[[Kr...]]

Well I'm only 10 days off but I feel remarkably pretty good with the exception of lingering anxiety and horrible headaches. Oh that and I usually sleep maybe 4 hours on a good night. So yeah the headaches are the worst.

[[St...]]

At 20 months I'm dizzy a lot and feel like I'm walking on a trampoline.

Quick to anger..

Also, I battle a weird buzzing sensation as I fall asleep that jolts me back awake.

Sometimes I feel as if I'm fainting while lying starring at the ceiling at bedtime.

[[ce...]]

Fatigue, fatigue, fatigue and body weakness.  Severe pounding heart just walking up stairs - 21 months off. 

[[Ku...]]

Uncontrollable muscle contractions. - Still all over.  Still very constant.

[[Bl...]]

I am only 6 months out but still . I was grossly mis prescribed this after my gall bladder ruptured . Was terribly sick and in immense pain . I was born with nerve related gut dysfunction to begin with and this much klonopin over that long has pretty much trashed what was left after I was through with taper . I am getting read to have a colostomy . yes. I cannot eliminate at all -10-15 dulcolax a night and still does not work - same with my urinary system. SO angry with that Dr . Plus the rest of my autonomous nervous system is just broken . I hope it gets better but I have POTS , low BP issues , cannot go , cannot FEEL if/when I have to go .

It has either caused or is mimicking Pure Autonomic Failure at this point ( per the GP) .

The last GP I saw in May was considering putting me back on low dose valium to ease some of this . That is the LAST thing I want to do , I do not trust that substance and don't think it will work anyway .  I cannot even believe this .

My mental state is fine ( besides me being pretty enraged at the Dr who told me this was safe  )  , my body is broken . I met someone else who is in my situation so I am not the only one but that does not make it any easier .

[[be...]]

My post persistent symptom started in day 1 a is still with me: insomnia. But the nighttime wake ups are getting fewer. I just a, so used to it I think it will be a life long problem. Ugh

[[De...]]

I’ve had do many symptoms, some I can’t even remember.

My remaining symptoms sixty four days after jumping are, constipation, weight loss, gum discomfort, apathy and exhaustion.

We are healing.

[[be...]]

Right. I forgot the constipation. Very annoying and I hate getting all bulked up.

[[Ho...]]

SEVERE TINNITUS !!!!!

[[De...]]

I also had tinnitus, it’s almost resolved I bought a white sound machine and kept it turned on next to my bed day and night, it helped. The volume must be lower than your tinnitus.

 

[[Ho...]]

I also had tinnitus, it’s almost resolved I bought a white sound machine and kept it turned on next to my bed day and night, it helped. The volume must be lower than your tinnitus.

 

I’m glad to hear (no pun intended) that your tinnitus has gotten better!  I have tried everything including some hearing aids provided by a hearing specialist that create white noise etc. at a lower volume than the tinnitus.  Nothing has worked for me.  Just chewing or moving my jaw will make it rage louder!  Has the T truly gotten better or have you just habituated to it? 

[[De...]]

It has gotten to the point I only hear it if you remind me about it, but it took a while for it to get to this point. How long have you had it?

The white noise machine from Amazon helped me a lot, I had earplugs made to order, to make sure noise wouldn’t make it worse and I wear them when I’m around loud noise.

 

[[Ne...]]

Yesterday I was officially NINE MONTHS C/T JUMPED from a relatively occasional, short, and light course of Xanax for RLS. For the record, even before all of this, I don’t drink, don’t smoke, don’t vape, don’t snort, don’t pop ANYTHING — I am SUCH a boring broad! — and, consequently, had ABSOLUTELY NO idea about ABSOLUTELY ANYTHING when it came to stopping a prescription medication safely and properly.  I took approximately #60 pills over the course of about six months. My resulting story has been like almost everybody else’s on these boards: SHEER HORROR.

 

So far, I think I have had about 40 or so symptoms...the current worst, most persistent being:

 

*AGONIZING Internal tremoring

*AGONIZING External tremoring

*Buzzing electricity running through my body a vast majority of the time — mostly my extremities...arms, legs, hands, and feet...though it also shows up between my shoulder blades and just throughout my entire CNS

*Visible muscle twitches a vast majority of the time — also mostly in my extremities...arms and legs, mostly lower legs, though occcasionally my ENTIRE RIGHT EYE SOCKET FROM EYEBROW TO CHEEKBONE (I’ve had more than one guy mistakenly think I am flirting with him standing in line at Target. THINK I HAVEN’T?)

*QUEASINESS

*JITTERINESS

*THE GURGLE, THE CHURN, THE SLOSH, and THE BURN in my GUT

*Chronic eye pressure

*And, for the past month or so, the most DELIGHTFUL spasms in my UNDERCARRIAGE, both front and back. HA!

 

Neely

xoxo

[[Ho...]]

It has gotten to the point I only hear it if you remind me about it, but it took a while for it to get to this point. How long have you had it?

The white noise machine from Amazon helped me a lot, I had earplugs made to order, to make sure noise wouldn’t make it worse and I wear them when I’m around loud noise.

 

It began last July when I went into acute. It didn’t seem that bad then (maybe because all the other sxs were so horrific).?.?  I jumped on December 16th 2018 and it has gotten steadily worse since then. Hoping it will get better as time wears on.  I’d have heard that it is often one of the last sxs to go...

[[Fr...]]

Head pressure and since Month 7 it gets really bad when I drive now. 🤷🏽‍♀️

[[Gw...]]

Anxiety and depression. I have always struggled with these, but recovering from cognitive damage brought on by long-term use certainly makes it more difficult and intense. I employ strategies now that will help me even after this current ordeal has passed.

 

Toxic mornings were a close second as they persisted during and after my taper...but those (finally) went away recently! 

[[Ca...]]

Anxiety

[[im...]]

A little more than 19 months out and my most persistent symptoms are:

 

gut issues: gas, food sensitivities, gurgly stomach

tinnitus: I had this before Benzos but it is worse; sometimes the humming is truly astounding, but it does diminish for long stretches now. I used to wake up almost every morning with the humming and a really tight jaw from grinding all night.

anxiety: had this before too (and the reason for starting Xanax in the first place); lately this has been really bad from external forces, and, no surprise, gut issues have worsened as well as tinnitus.

[[Be...]]

Incapability.

[[Ki...]]

Head pressure

[[De...]]

Constipation and weight loss.

[[bo...]]

Anxiety and rage are now my worst symptoms.

[[Fp...]]

Dizziness and lightheadedness.

[[th...]]

Anxiety and insomnia. I think the former is causing the latter. Now if I could just get rid of the former!