[dl...] Posted August 17, 2019 Share Posted August 17, 2019 I was diagnosed with POTS a few years ago. It's been mild compared to other cases of POTS. Recently at the six month mark I was hit by either a wave or setback. Comparing now, a month ago, and three months ago there's a big difference in symptoms overall but especially activity tolerance. I had very few withdrawal symptoms the first couple months. I was exercising daily and only experiencing POTS symptoms I've had for years. Now, it takes hours to recover from a shower and I feel accomplished if I can unload the dishwasher. I refuse to sit on the couch all day but lying down resolves most of the uncomfortable symptoms. I plan on trying a few suggestions I've received over the years from my electrophysiologist but I'm wondering what's actually worked for others. Has anyone with pre-existing POTS noticed their symptoms worsen during withdrawal? If you have pre-existing POTS or onset in withdrawal, what helped you the most? Any trouble supplementing Potassium? When I went to the ER for this a few weeks ago it was my only abnormal test result. Link to comment Share on other sites More sharing options...
[pr...] Posted August 17, 2019 Share Posted August 17, 2019 Type in POTS in withdrawal and you will see a 3 page section on here with cases and advice. I would copy and paste it here but don't know how with my chromebook. PG Link to comment Share on other sites More sharing options...
[...] Posted August 18, 2019 Share Posted August 18, 2019 I suggest speaking to your cardio/electrphysiologist about a medicine called ivabradine or corlanor. Hope this helps. Link to comment Share on other sites More sharing options...
[Mo...] Posted August 19, 2019 Share Posted August 19, 2019 Yes, I had POTS before, and this process did make the POTS harder for sure. When I could, exercise made a huge difference. But let me be very clear. When I started with the exercise, I was so weak from this process and the POTS, I could only row for 30 seconds and then I would nap for hours...no joke! After 12 weeks, I made it to 30 minutes a day. I never thought it could be done, but those 30 seconds added up and really made a difference. After that I moved to a stationary bike and now I am walking 40 minutes a day. Other things that helped - water (a ton), salt (this is for the POTS), liquid IV, exercise, atenolol, napping, and keeping a somewhat tight schedule. And letting myself rest when I feel the POTS is coming on strong. Have you seen a POTS specialist during this process? Wishing you the best... Link to comment Share on other sites More sharing options...
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