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Is consult with Baylissa helpful?


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To me I find more pertinent information on my own by searching myself and coming across NEW more up to date scientific studies.

 

Please let us know what these new scientific studies are.  I would love to read them, and I'm sure many other people here would like to as well.  Can you provide some references?  Thanks.

-Jeff

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Bump.

 

I read something about Prof. Ashton recently who said “the good news is that everyone heals.”

I think she’d know more than anyone.

 

I hypothesize that those who don’t heal are on other meds (I didn’t start healing until I got off all meds) or there’s maybe something else going on. Or maybe they’re unlucky and will take 10-12 years but they too will get better if it’s just wd.

Keep in mind too of people 8-10 years out with pure mental symptoms that it could be something else mentally going on.

 

I agree with you.

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Miss, you know what makes me sad? I have been friends with our pharmacist for 10yrs or more...like we go to their house for the 4th of July friends. He has seen this happen to me and never has acknowledged meds could be the culprit. I asked him to read the Ashton manual and he flat out said nope.
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I find WD fades, but damage not so much, in acceptable time frames.. So for those that are starting to get, or are a long way out (or even having particularly difficult discontinuations), WD info, other meds, other issues, etc.. -becomes a mute point along with actual WD studies..

 

From my experience its individual, and we are best served by working out our personal “secondary and tertiary” manifestations, or prior contributing factors.. This is where some prudent searching can reveal “scientific studies” that *may* be of some assistance to an individual (ones own, not anothers)..

But seriously, being at a level to competently utilise all this in a safe manner, one would probably have to be at a point where one could sit a Neurologist degree with ones eyes closed... Its obviously well beyond BB scope as a Peer Support Forum, and the people I know that have had success have combined their preliminary speculations with those of a true professional medical expert, be it a trusted wholistic/functional or mainstream medicine persons..

:)

 

 

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I’m going to be a devil’s advocate here.......  my opinion as I can tell from these responses is going to be very unpopular. I think it’s a waste of money. She’s going to reassure you that everyone heals and validate your withdrawal. Which you can get from reading success stories here and just speaking to people on this site going through the same things. She has been through it herself yes, but she’s still basing her beliefs on seriously outdated data. To me I find more pertinent information on my own by searching myself and coming across NEW more up to date scientific studies. Having said that. If you are someone who needs to physically hear it from someone than paying that ridiculous amount of money may be for you. It’s all on what you feel you need to help you through this time because it is for sure a definite struggle.

 

Thank you, Paxia for your unpopular view. I can't afford Baylissa, the cost would take a huge chunk out of my fixed income. I agree with you that you can find lots of info here on BB and by searching the internet. I have read doctors blogs who were unwitting victims of benzos, sharing their own healing journey (One led me here). You are as entitled to your opinion as the Baylissa fans.

 

If you have the $$$'s to spend, and you can afford it, and you think Baylisssa has something you can't get elsewhere, then by all means use her. But I have none of those. I hope no one is throwing darts at you for standing up up and saying what I and perhaps others, have been feeling.  :-*

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Paxia is NOT wrong. Also....you can buy her book on amazong for $10 and it has her testimony us tons of others from mild to scary...I think it helps to have someone you can HEAR tell you...so...have a friend read it to you and become your reassurance advocate🦋🪅
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I agree with paxia too. I have spoken to her at a time I really needed it, but no matter what was said, she doesn’t take the wd and the pain away, she can only sympathize and offer support the same as people offer here. I’m certainly not throwing darts. X unfortunately no amount of money and nothing anyone can say truly changes anything for us. What we need is time, and there’s no fast track to that unfortunately x
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[c9...]

Agree with Paxia and Shanya

 

I've listened to every single podcast Benzo Brains, Geraldine, DE Foster, Baylissa, Jennifer, YT from several others, corresponded with several as well.

 

It's all the same thing!

They won't tell you anything different than what they say on these episodes.

 

My symptoms are unfortunately very terrible and bad, compared to what they say to do to distract etc.

I can't cook, I can't garden, I can barely walk etc.

The one I enjoyed the best is DE Foster, his voice is very soothing and he has some good Drs on to explain everything, same with Jocelyn.

 

My 2 cents, not sure they are worth anything

Winnie

 

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I find WD fades, but damage not so much, in acceptable time frames.. So for those that are starting to get, or are a long way out (or even having particularly difficult discontinuations), WD info, other meds, other issues, etc.. -becomes a mute point along with actual WD studies..

 

From my experience its individual, and we are best served by working out our personal “secondary and tertiary” manifestations, or prior contributing factors.. This is where some prudent searching can reveal “scientific studies” that *may* be of some assistance to an individual (ones own, not anothers)..

But seriously, being at a level to competently utilise all this in a safe manner, one would probably have to be at a point where one could sit a Neurologist degree with ones eyes closed... Its obviously well beyond BB scope as a Peer Support Forum, and the people I know that have had success have combined their preliminary speculations with those of a true professional medical expert, be it a trusted wholistic/functional or mainstream medicine persons..

:)

 

You would think there would be drs. somewhere, who study brain injuries and damage to the brain from chemicals.  Toxicity?  Anyone ever found a brain specialist?

 

If we were able to do more for ourselves, to advocate more, maybe something would happen.  But if you're impaired to begin with and no energy, or don't drive or something, or don't have family, how on earth do you do this?

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Whoa, I regret bumping this. It turned very doom and gloom quickly and that was not the purpose of it. No, you don’t need to speak to baylissa, but it can be helpful when WD is lying because I have felt I’d never heal too. I’ve been there. And now I’m having so many wonderful windows there’s no way I won’t.

Don’t let wd lie to you.....

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No. Biggest waste of money. She’s super nice. But all she does is say everything is ok and you’ll heal. Nothing you can’t get anywhere else.
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Yes I think the take away is she is lovely and so supportive and caring, and if u really need to hear her voice in a dark place and u have the money, it’s just like seeing any other therapist, except she has been there, which sometimes we need. Someone who knows what we’re going thru. X
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To me I find more pertinent information on my own by searching myself and coming across NEW more up to date scientific studies.

 

Please let us know what these new scientific studies are.  I would love to read them, and I'm sure many other people here would like to as well.  Can you provide some references?  Thanks.

-Jeff

 

Yes me too. I can’t seem to find much at all & what I can find is quite old-ish. I would love to get some validation for feeling like I’ve gone insane is actually just w/d. I’ve been told by doctors & therapist it’s psych somatic, one GP believes me. So if I could have scientific proof, specifically if there is any for a relatively short term user like me.  That would be great,  thanks so much in advance.  I would love for the GP’s & therapist to believe me.

 

It’s not like one article that talks about benzo withdrawal. But there are individual studies about specific effects of the withdrawals. So when I get a new symptom or something changes I research it. And I generally find the research I need to justify that new symptom to me and it’s more recent. Ncbi has a vast amount of research about almost anything you can think of.

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No. Biggest waste of money. She’s super nice. But all she does is say everything is ok and you’ll heal. Nothing you can’t get anywhere else.

 

It may have been a “waste of money” depending on your expectations. Did you expect to hang the phone up and be healed? Well then I’d suggest adjusting your expectations. Because for many, there is great value in speaking about our experiences to someone who’s been through it herself, as well as counseled thousands of others for over 15 years.

 

The amount of ridiculous symptoms people have throughout WD are countless and confusing, and there’s literally nobody who has counseled more people than Baylissa. So, for many, especially those who are completely isolated and have nobody else to talk to, Baylissa is nothing less than a life saver.

 

 

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I find WD fades, but damage not so much, in acceptable time frames.. So for those that are starting to get, or are a long way out (or even having particularly difficult discontinuations), WD info, other meds, other issues, etc.. -becomes a mute point along with actual WD studies..

 

From my experience its individual, and we are best served by working out our personal “secondary and tertiary” manifestations, or prior contributing factors.. This is where some prudent searching can reveal “scientific studies” that *may* be of some assistance to an individual (ones own, not anothers)..

But seriously, being at a level to competently utilise all this in a safe manner, one would probably have to be at a point where one could sit a Neurologist degree with ones eyes closed... Its obviously well beyond BB scope as a Peer Support Forum, and the people I know that have had success have combined their preliminary speculations with those of a true professional medical expert, be it a trusted wholistic/functional or mainstream medicine persons..

:)

 

You would think there would be drs. somewhere, who study brain injuries and damage to the brain from chemicals.  Toxicity?  Anyone ever found a brain specialist?

 

If we were able to do more for ourselves, to advocate more, maybe something would happen.  But if you're impaired to begin with and no energy, or don't drive or something, or don't have family, how on earth do you do this?

Oh you dont know just how much I hear you on that last paragraph..!! Talk about falling through the cracks, -no, getting stomped through the cracks..

From my accident 12yrs ago I got the red carpet treatment.. This last week with the sudden loss of face muscles, hospitals, Drs etc, showed me just how pointless seeking emergency medical help is in OUR system now for the things we face with meds.. Thankfully my ongoing private Dr got the ball rolling as best she could on Monday.. So MRI day after tomorrow.. But thats only for obvious things, which brings me to your first paragraph...

(-Just one battle of many running concurrently in my fight for survival, not to sound dramatic, but it is what it is..)

 

Where to from there, we both know something isnt right, we even have some thoughts as to what MIGHT be a possibility, in theory at least, but we have done the specialist thing yrs ago for what we here all know of as “the basics” and they didnt even get out the gate.. Actually it was scarily dangerous..!!

I mean, it depends how deep and individual the problems we are talking about here, but I feel we need to get pretty lucky and find someone with an inquisitive passion and an “out of box” mentality.. Someone that communicates, listens and discusses, -And isnt afraid to say “ I dont know” and perhaps look into it..

 

***

Anyways, a bit off the main topic, so to get back to what I didnt get to earlier (cos my eyes broke)...

My own view is people like Baylissa are probs great for the right people, at the right time, and perhaps more so with certain symptom sets..

Personally for ME, as others reflect, the realist in me (often to my detriment) would be ummm “resistant”.. Only because I would be looking for answers that she cant and doesnt supply as opposed to the support she does..

The upside of being a “realist” -perhaps for want of a better word, is I seem to be able to flirt pretty leniently with a type of detachment thats perhaps along the lines of a disassociative personality “disorder”... I feel for ME, regular support sessions would conflict with that.. Again, time and place, horses for courses..

 

...or something like that..

:)

 

**

Lol, I think T1D is saying something similar I see..

:)

 

 

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Only because I would be looking for answers that she cant and doesnt supply as opposed to the support she does..

 

 

I think this goes along with the point Paxia is trying to make. Paxia is doing her own search for answers becaise she doesn't get them from Baylissa. Like Paxia, I research, trying to understand everything going on with me.

 

For some people, Baylissa may be what they need, and if they can afford the exorbitant fee, they are free to utilize her services. There low income peole like myself, who can't afford Baylissa's services, and I feel as though she doesn't care about those on a fixed inome and helping them. I went to her website and was just totally turned off by the fees for services. It's like we are invisible. And that bothers me. The web offers me lots of free content, youtube videos from former benzo users who share their information for free. This board, Benzo Info Coalition, bloggers.  If Baylissa were affordable. I might be interested enough in checking her out. But at this point, I don't feel the cost justifies the means.

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Only because I would be looking for answers that she cant and doesnt supply as opposed to the support she does..

 

 

I think this goes along with the point Paxia is trying to make. Paxia is doing her own search for answers becaise she doesn't get them from Baylissa. Like Paxia, I research, trying to understand everything going on with me.

 

For some people, Baylissa may be what they need, and if they can afford the exorbitant fee, they are free to utilize her services. There low income peole like myself, who can't afford Baylissa's services, and I feel as though she doesn't care about those on a fixed inome and helping them. I went to her website and was just totally turned off by the fees for services. It's like we are invisible. And that bothers me. The web offers me lots of free content, youtube videos from former benzo users who share their information for free. This board, Benzo Info Coalition, bloggers.  If Baylissa were affordable. I might be interested enough in checking her out. But at this point, I don't feel the cost justifies the means.

Yes, just like you guys (hi Paxia :) ), and marigold and many others past and present..

 

I was wanting to initiate a conversation with both of you thats a bit off topic for this thread (im trying to be good, honest), -as to just how far you get with complex issues such as modulation in the finer detail, before the available info falls short or is too unknown and becomes too -well risky, I guess..??

Ie. supplementing the precursors that make up a particular neurotransmitter or thingamajig.. -if that makes sense..?? I dont want to encourage anyone to take risks..

-But im too brain fried atm and would confuse myself, let alone everyone else..

Perhaps ill catch you both on a more relevant and specific thread when things settle a bit for me.. Well I hope to, I sure could use any help and insight.. :)

 

Its a tricky one as to Baylissa charging.. I sure understand your feelings though.. Possibly its more a way of the world we live in thing..?? -I best leave that one alone lest I trigger myself after the week iv had/having.. :(

I read your having a particularly rough time too atm, Sorry to hear, and hope its not for too long..

 

:)

 

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[17...]
My take on this is if it helps you cope and get through the day then it’s a positive thing.  To each his own.  IMO I have spoken to her and exchanged emails with her...I will continue to contact her as needed for my recovery. :thumbsup:
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I talked to her many times and she has been a great help to me,especially in the first year and a half of my journey.

Believe it or not there are a lot of people that she helps that she does not receive a penny from. She would never broadcast that information though. I got to know her and consider her both an inspiration and a friend. It is hard to know a person without establishing a relationship with them. I feel blessed that she even takes the time to try to help us. If you think she can help you call her and if not Godspeed.

 

PG

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I cannot remain silent about this any longer.

 

Baylissa Frederick is quite arguably the world's foremost expert on psych med withdrawal, particularly benzodiazepine withdrawal.  As T1D stated, during the past 15 years, she has counseled over 8,000 people in all stages of withdrawal and withdrawal-related illness.  There is no one on earth who has anywhere near her level of experience in this area.  This vast experience allows her to hear your individual case and relate it to many others she has dealt with in the past. 

 

It is absurd and ridiculous for Paxia, or anyone else, to claim that Baylissa's knowledge is out-of-date. Baylissa's knowledge is completely current and as up-to-date as anyone's out there, especially since much of what is known on this topic is a result of the work she herself is doing!  Again, please provide references for your so-called "NEW, more up to date scientific studies" on benzo withdrawal.  And you'll need to do better than just give me some general reference to the ncbi website.

 

During the past several years, Baylissa has done so much pro bono work that she has almost gone out of business.  She has had to take out personal loans and rework her fee schedule just to stay afloat.  She has more people clamoring for free or near-free services than anyone can humanly handle.  She barely makes enough money to keep her operation going.  In fact, her fees actually fall below the industry standard for professional counseling.  She has made a great deal of self-sacrifice in order to continue serving the enormous demands of the withdrawal community.

 

Whether or not you feel you benefit from speaking with Baylissa is your own opinion, and that cannot be argued.  But I will oppose anyone who questions Baylissa's expertise, her prices, and her selfless commitment to our community.

 

-Jeff     

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[17...]

Jeff

 

If there were individual scientific studies they would be posted on this site.  We have been around long enough to know what is and what is not true!  People claiming this sort of thing are usually quieted by Admins.  I am sure they are aware of people claiming they are “in the med field” and saying they have imaginary studies.  There is none and we know this.  So let’s move on.

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I cannot remain silent about this any longer.

 

Baylissa Frederick is quite arguably the world's foremost expert on psych med withdrawal, particularly benzodiazepine withdrawal.  As T1D stated, during the past 15 years, she has counseled over 8,000 people in all stages of withdrawal and withdrawal-related illness.  There is no one on earth who has anywhere near her level of experience in this area.  This vast experience allows her to hear your individual case and relate it to many others she has dealt with in the past. 

 

It is absurd and ridiculous for Paxia, or anyone else, to claim that Baylissa's knowledge is out-of-date. Baylissa's knowledge is completely current and as up-to-date as anyone's out there, especially since much of what is known on this topic is a result of the work she herself is doing!  Again, please provide references for your so-called "NEW, more up to date scientific studies" on benzo withdrawal.  And you'll need to do better than just give me some general reference to the ncbi website.

 

During the past several years, Baylissa has done so much pro bono work that she has almost gone out of business.  She has had to take out personal loans and rework her fee schedule just to stay afloat.  She has more people clamoring for free or near-free services than anyone can humanly handle.  She barely makes enough money to keep her operation going.  In fact, her fees actually fall below the industry standard for professional counseling.  She has made a great deal of self-sacrifice in order to continue serving the enormous demands of the withdrawal community.

 

Whether or not you feel you benefit from speaking with Baylissa is your own opinion, and that cannot be argued.  But I will oppose anyone who questions Baylissa's expertise, her prices, and her selfless commitment to our community.

 

-Jeff   

 

To each their own.....  My personal opinion is that she is over rated. I’ve never spoken to her, nor do I ever intend to but that is just me. As I said previously my response was going to be the devils advocate.  And I gave my opinion about what I thought.  I Never put anyone down for thinking any different than what my opinion is and I also stated that if that is what the original poster needed or felt they should do,  Then by all means they should. People post on this board to specifically get different views, experiences and opinions. That’s the whole point of discussion on a forum.

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[c9...]
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