The Long Hold Support Group

[[va...]]

Hi mmmmm's and DD,

Yes last mmmmm's I went to breakfast with my daughter and granddaughter, we had a girl's day. It was nice but we were tired from the night before at the hospital. My daughter is fine so far no idea what caused that 🤷 she doesn't have anxiety issues either so who knows. Her BP is back to normal and she feels good. If it happens again she'll have to be checked out more thoroughly especially for possible MS.

As for my son well it's quiet right now. I had a family dinner Sunday and we didn't speak of it. I didn't go back to Alanon but I did order their books which I've been thumbing through. My dil doesn't seem like she wants to go but I think I can break her if he continues on this way, which I think he will unfortunately. For now my attitude is one day at a time and I keep reminding myself that I have no control over this. So trying to just deal with each day as it comes. It's been very dreary weather wise, rainy and gray days so that doesn't help but that's New England weather. Looking forward to spring and hopefully sunnier days. So that's what's up my end. How are you and your muscles and peepers👀?

Love u,

TT.. Always too much and too many😌❤️

 

The weather is nasty here too.  My muscles aren't horrible, my eyes are about the same, annoying to some degree most days but a lot of people have been posting about their eyes, so I don't guess I am the only one.  I am learning toward starting my taper March 1st.  Haven't completely decided how to taper yet.  May do cut and hold a month, I swear, I just don't know.  :tickedoff:  I want something to be easy, damn it, just something!!  There's my rant  . Love ya Too Many.  MM 💜💜💜

 

Hi everyone, I didn't have time to catch up.

 

Mary if it's any use, when I finally start tapering again, I'll cut and hold three months. I'm not letting the cuts pile up on each other and send me to hell this time. I know DLMT is very popular but I've read many people having problems with that too. I think if I cut and give my brain three months to show me everything the cut has to give me before I cut again, I might be ok. Just my thoughts on this. My mother (my only support system), is traveling overseas for a month and a half, so my ruminating thoughts are up the roof. I've got Claire weekes's book on amazon and I'll start reading it to see if it helps.

[[Ma...]]

Hi mmmmm's and DD,

Yes last mmmmm's I went to breakfast with my daughter and granddaughter, we had a girl's day. It was nice but we were tired from the night before at the hospital. My daughter is fine so far no idea what caused that 🤷 she doesn't have anxiety issues either so who knows. Her BP is back to normal and she feels good. If it happens again she'll have to be checked out more thoroughly especially for possible MS.

As for my son well it's quiet right now. I had a family dinner Sunday and we didn't speak of it. I didn't go back to Alanon but I did order their books which I've been thumbing through. My dil doesn't seem like she wants to go but I think I can break her if he continues on this way, which I think he will unfortunately. For now my attitude is one day at a time and I keep reminding myself that I have no control over this. So trying to just deal with each day as it comes. It's been very dreary weather wise, rainy and gray days so that doesn't help but that's New England weather. Looking forward to spring and hopefully sunnier days. So that's what's up my end. How are you and your muscles and peepers👀?

Love u,

TT.. Always too much and too many😌❤️

 

The weather is nasty here too.  My muscles aren't horrible, my eyes are about the same, annoying to some degree most days but a lot of people have been posting about their eyes, so I don't guess I am the only one.  I am learning toward starting my taper March 1st.  Haven't completely decided how to taper yet.  May do cut and hold a month, I swear, I just don't know.  :tickedoff:  I want something to be easy, damn it, just something!!  There's my rant  . Love ya Too Many.  MM 💜💜💜

 

Hi everyone, I didn't have time to catch up.

 

Mary if it's any use, when I finally start tapering again, I'll cut and hold three months. I'm not letting the cuts pile up on each other and send me to hell this time. I know DLMT is very popular but I've read many people having problems with that too. I think if I cut and give my brain three months to show me everything the cut has to give me before I cut again, I might be ok. Just my thoughts on this. My mother (my only support system), is traveling overseas for a month and a half, so my ruminating thoughts are up the roof. I've got Claire weekes's book on amazon and I'll start reading it to see if it helps.

 

Oh wow, I am sorry she is going to be gone so long, I know that increases your anxiety.  Vali, I just don't know yet what to do.  Damn benzo's, I did well on dlmt, until I didn't and I was only cutting 4% a month.  I don't know what to do, Tim and I will have a long discussion before then.  I hate Valium and it hates me.  Sometimes I want to head toward the finish line like Espy, just so tired of the whole thing.  No, no Stut, I won't    She'd kick my a$$. Love ya Vali.  We will be here while your mother is gone, I know it it's like having a physical presence but it's something  .  💜💜💜💜

[[Tr...]]

Hi mmmmm's and DD,

Yes last mmmmm's I went to breakfast with my daughter and granddaughter, we had a girl's day. It was nice but we were tired from the night before at the hospital. My daughter is fine so far no idea what caused that 🤷 she doesn't have anxiety issues either so who knows. Her BP is back to normal and she feels good. If it happens again she'll have to be checked out more thoroughly especially for possible MS.

As for my son well it's quiet right now. I had a family dinner Sunday and we didn't speak of it. I didn't go back to Alanon but I did order their books which I've been thumbing through. My dil doesn't seem like she wants to go but I think I can break her if he continues on this way, which I think he will unfortunately. For now my attitude is one day at a time and I keep reminding myself that I have no control over this. So trying to just deal with each day as it comes. It's been very dreary weather wise, rainy and gray days so that doesn't help but that's New England weather. Looking forward to spring and hopefully sunnier days. So that's what's up my end. How are you and your muscles and peepers👀?

Love u,

TT.. Always too much and too many😌❤️

 

The weather is nasty here too.  My muscles aren't horrible, my eyes are about the same, annoying to some degree most days but a lot of people have been posting about their eyes, so I don't guess I am the only one.  I am learning toward starting my taper March 1st.  Haven't completely decided how to taper yet.  May do cut and hold a month, I swear, I just don't know.  :tickedoff:  I want something to be easy, damn it, just something!!  There's my rant  . Love ya Too Many.  MM 💜💜💜

I just lost a whole damn post to you :tickedoff:

So let's try again 😤

So I'm sorry to hear your peepers are still pesky but seems your muscles are letting up some. I guess we take what we can get in the way of relief 😔

I think cut and hold is your best bet right now. Cut a tiny amount and then wait it out to see how you do but hold a good amount of time. As we know benzos have that lag time 😣

I'm going to cut an 1/8 th of a full pill wait two weeks cut another 1/8 th to eliminate a quarter of a pill then I will hold until mid April and if the moon and stars line up just right all will go well.. Wishful thinking?? Probably! 😬 But that's my plan of action currently.

Love u mmmmm's hang in there ❤️

[[es...]]

It’s Espy, from the other side. The view is not all that different,yet, but I’m here. Mary, baby, you sound rough today. And, Intend, too, both of your eye problems sound awful. Hope both of you get relief soon. OK, glad to hear that you are doing so well! Trishy, glad your daughter is better. I hate teaching hospitals and being used as a teaching tool. V, D, Troch, C?new member, Meems, have the best day possible, Love, Espy  P.S. I forgot Stut! 🙀

[[Tr...]]

It’s Espy, from the other side. The view is not all that different,yet, but I’m here. Mary, baby, you sound rough today. And, Intend, too, both of your eye problems sound awful. Hope both of you get relief soon. OK, glad to hear that you are doing so well! Trishy, glad your daughter is better. I hate teaching hospitals and being used as a teaching tool. V, D, Troch, C?new member, Meems, have the best day possible, Love, Espy  P.S. I forgot Stut! 🙀

Hey E! How's it goin in the hills! You sound better everytime you post! You're so lucky to be free of this, it's all healing time for you now 😁 way to go woman 🙌👍❤️

[[va...]]

It’s Espy, from the other side. The view is not all that different,yet, but I’m here. Mary, baby, you sound rough today. And, Intend, too, both of your eye problems sound awful. Hope both of you get relief soon. OK, glad to hear that you are doing so well! Trishy, glad your daughter is better. I hate teaching hospitals and being used as a teaching tool. V, D, Troch, C?new member, Meems, have the best day possible, Love, Espy  P.S. I forgot Stut! 🙀

 

🧡🏞️🐶

[[Ma...]]

It’s Espy, from the other side. The view is not all that different,yet, but I’m here. Mary, baby, you sound rough today. And, Intend, too, both of your eye problems sound awful. Hope both of you get relief soon. OK, glad to hear that you are doing so well! Trishy, glad your daughter is better. I hate teaching hospitals and being used as a teaching tool. V, D, Troch, C?new member, Meems, have the best day possible, Love, Espy  P.S. I forgot Stut! 🙀

 

I'd have wide eyes too if I forgot Stut.  :D. I'm more down than anything.  I am mad at myself, that new liquid makes me hungry, the weather is ugly, I'm lonely.    Whine, whine, whine 

Where's the damn shine Espy?  Ewww, not sure that's what I need.  . I am just in the dumps.  I wish Sly spoke English, lol.  Love ya cousin, Mary 💜💜💜

[[es...]]

Shit day in Kentucky, too. Break out that shine! E

[[Ma...]]

Shit day in Kentucky, too. Break out that shine! E

 

Oh, if only it would help  . You know the guy nicknamed my Liquid Diazapam (because of the taste)

Chernobyl Toilet Seat  :laugh:  tastes a lot like shine. 

[[Ol...]]

Mary, when I started tapering again I did .25 every month or so. It worked well for me.

VNM, sorry about your mom! I read Claire Weeks's book back when I first started tapering. It's very good, though she does recommend tranquilizers at one point, just disregard that part!

Espy, glad you are reporting in from the other side! I'm here too...

 

[[Ma...]]

OK I was actually thinking 3 % and holding a month or so,but really letting my symptoms lead to next cut, so that sounds close to you  .  I just feel sorry for myself today . I know part of it is the weather, it's so dark and dreary  .  I'm unusually whiny today. 

[[Ol...]]

Aw Mary, you are allowed to whine! It is so hard..

[[Me...]]

hey all - gosh I wish I could send some Southern California sunshine to ya.  I had Benzo flu this weekend and since then, gosh darn it, the nausea is back.  That beast is besides DR, eyes and anxiety is my least favorite.  I don’t know how women who went through pregnancies with morning sickness every day survived. I don’t have kids.  My kitties are my babies.  Speaking of kitties, Olive Kitty I am so damn happy for you and can’t wait to be there too. 

 

So I just got home from my physical exam.  I’m sure you can relate to the health anxiety we feel going through wd.  And this was a new nurse practitioner.  So I told her my health history and I had to give her my Benzo history and she is not wise to tapering - said she understood it was hard and glad I was slow tapering.  Said basically leave it up to my psychiatrist for that issue.  Not in those words exactly.  I did tell her about my self directed cold turkey last year and I had two convulsions and she said (nicely I suppose) “oh noooo.” I didn’t think that was a judgment but it didn’t make me feel great.  Anyways, subject turned to “menopause.”  I AM turning 50 this year and yes I am going through hormonal changes but I KNOW 90%of what I’m going through is Benzo wd.  Ugh.  Then after check up she says I’m healthy (ha). Haven’t had the blood labs yet. Ok, so blah blah blah.  But I was so nervous for this appt.  Truthfully the only reason I did an exam and will get blood labs done is cause psych wants me to and I’m afraid if I don’t she will fire me.  And I’ll have to find a new dr or do a cold turkey.  Which there is no way in hell I will ever do that again. 

I keep saying I’m going to take notes on everyone’s posts so I can keep track.  Hugs to all. 

Love 💕 u all,

Meems

[[Ol...]]

Thanks Meems! My kitties are my babies too.. seriously nausea is the worst. I had it for so long when I was tapering. It did go away though, for the most part. I take promethazine for nausea and it works pretty well.  Sorry about your doctor, at least she is leaving it up to your psych.. which blood tests do they want? I recently had a regular work up, I was low in Vit D so I have been taking 10,000iu a day. I suspect a lot of us are low in many nutrients, especially if it is hard to eat like it was for me for a good long time.

[[Me...]]

Olive Kitty, it’s the full blood panel.  I guess they call it complete blood count. 

[[Ma...]]

hey all - gosh I wish I could send some Southern California sunshine to ya.  I had Benzo flu this weekend and since then, gosh darn it, the nausea is back.  That beast is besides DR, eyes and anxiety is my least favorite.  I don’t know how women who went through pregnancies with morning sickness every day survived. I don’t have kids.  My kitties are my babies.  Speaking of kitties, Olive Kitty I am so damn happy for you and can’t wait to be there too. 

 

So I just got home from my physical exam.  I’m sure you can relate to the health anxiety we feel going through wd.  And this was a new nurse practitioner.  So I told her my health history and I had to give her my Benzo history and she is not wise to tapering - said she understood it was hard and glad I was slow tapering.  Said basically leave it up to my psychiatrist for that issue.  Not in those words exactly.  I did tell her about my self directed cold turkey last year and I had two convulsions and she said (nicely I suppose) “oh noooo.” I didn’t think that was a judgment but it didn’t make me feel great.  Anyways, subject turned to “menopause.”  I AM turning 50 this year and yes I am going through hormonal changes but I KNOW 90%of what I’m going through is Benzo wd.  Ugh.  Then after check up she says I’m healthy (ha). Haven’t had the blood labs yet. Ok, so blah blah blah.  But I was so nervous for this appt.  Truthfully the only reason I did an exam and will get blood labs done is cause psych wants me to and I’m afraid if I don’t she will fire me.  And I’ll have to find a new dr or do a cold turkey.  Which there is no way in hell I will ever do that again. 

I keep saying I’m going to take notes on everyone’s posts so I can keep track.  Hugs to all. 

Love 💕 u all,

Meems

 

We do understand the health anxiety, all of us.  It's good to hear you are fine, now we are noisy and have to know blood work when it comes in.  . LY, Mary 💜💜

[[Me...]]

Well....next hurdle is “going” to the lab.  Haven’t had the blood taken yet.  Ugh!  I have to actually “show up” to the place.  Lol.  Anyone wanna go with me?  Lol. 

[[Ol...]]

I’ll go with you! Blood doesn’t bother me. I do close my eyes when I get it taken that seems to make it go by faster.  Isn’t going to do things such a bother???

[[Gu...]]

I just turn my head.  Don’t want to see the needle going in my vein.  At least you don’t have to do a fasting blood test.  I have a hard time moving early in the mornings.  You can do it Meems, you’ve already jumped a lot of hurdles already!

[[St...]]

Good morning LHSG hoping everyone has a better day.

Morning Lady Mary l hope you are feeling a little better today.l think we all have days when we feel beaten down with this.l know l have had quite a few.lt is a lonely journey which no one can understand.l know you will get through this honey you are one of the strongest warriors we have and one of the best friends l have on this forum.You know l think the sun shines out of your ass 😕. Now head up shoulders down back straight and big girl pants up you can do this.love you my lady Mary HenX

. Morning Suzy glad to read you are feeling better honey.Now blips will come and go so try not to panic.As uncomfortable as this all is it won't harm you.Stay strong.love you.X

. Morning Trish always good to see you here twiny.How on earth would l forget you 😍.l am glad your daughter is doing well as for your son that is entirely up to him.Keep your distance honey.l hope your cut goes smoothly my lovely.love you my lST X

Morning Espy how could you 😠? Your soulmate 😳😱. Listen honey you still have a long journey ahead however every day is a day closer.l am so proud of you.You are my hero.love you my lovely hillbilly friend.X

Morning Meems glad you got the all clear.l have no doubt your blood results will be grand.love to you.X

Morning Janice sounds like a good plan.Diazepam is a sneaky wee bugger so listen to your body and you will be grand.love you.X

Morning Olive you are out living life and that is amazing.l really believe you are free and clear this time.Well done honey.love you.X

Morning Troch how are you today my love?Did you sleep ok?l hope you are feeling a little better.love to you.X

Morning GP long time no see.How are you honey?l hope you are feeling better.love you.X

Morning Intend final Gilly Valley Bill NJ Nova Miyu Free and everyone here sending you my love.X

[[Tr...]]

Morning Stut,

 

Feeling a bit lost. It's been two weeks since my latest hold began,  but have lots of anxiety. And lots of fatigue. Psychologist this afternoon,  cardiologist tomorrow, ENT specialist on Friday. Am losing weight again. Stomach aches. Hope I get good results from the tests.

Waiting for some stability to kick in.

 

Hope you're OK.

[[St...]]

Morning Stut,

 

Feeling a bit lost. It's been two weeks since my latest hold began,  but have lots of anxiety. And lots of fatigue. Psychologist this afternoon,  cardiologist tomorrow, ENT specialist on Friday. Am losing weight again. Stomach aches. Hope I get good results from the tests.

Waiting for some stability to kick in.

 

Hope you're OK.

Awe Troch l wish l could say you will feel better soon however this will take time my love.l know it is so hard to deal with however you will find your way.l know you are worried however weight lose is so common when in withdrawal.l had the opposite myself however it settles down.Talk to your psychologist and tell her everything l sometimes think it helps to get it all out.l know anxiety is horrible but it will lessen with time.X

[[Ma...]]

I’ll go with you! Blood doesn’t bother me. I do close my eyes when I get it taken that seems to make it go by faster.  Isn’t going to do things such a bother???

 

I'm with OK, I just look away and it doesn't bother me.  One thing my doctors office does right is blood. I am never there more than 15 minutes, usually less, and gone.  Yay!!  Wish they all had their visits timed so well. 

 

 

Let us know results Meems  :smitten:

 

[[Ma...]]

Stut......you know I laughed my a$$ off when I rhead "sun shines out of my a$$".  And then I thought , how true  :2funny:

 

You have some of the funniest sayings and all most all your posts contain at least one 

 

Love you my funny Irish Queen, your Lady Mary x Hen.....curl up, cover up and relax with the babies.  They need some Mommy time.  💜💜💜💜.  🐱🐾🐾🐶🐕

[[Tr...]]

Thanks, Stut.

 

I did tell her my worries.  And told her I had lost weight again. She told me, pain and stress ( anxiety)  drain a lot of energy from a person.

She and I talked about a therapy,  we're going to try in a couple of weeks. Seems to work well for many people. Hope it does for me too.

Today was a "better" day. Not much pain. Fatigue at times. But not like the last few days.