years out, no hope nor help in sight?!

[[Me...]]

Well anxious, here’s some hope for you.

 

 

All of my symptoms let up today. And I mean all of them.

So your husband could literally wake up healed tomorrow

This last week was the worst week of my withdrawal (besides for that first year in acute) - I was ready to quit my job, sell my house and move home. It all let up. I’m 100% today. I can’t even explain it

 

It could happen to your hubby too.....show him this message. It could all just stop at once

[[mo...]]

WD can cause something like ME/CFS.

If exercise makes him feel worse it is a bad idea if you have an CFS type illness. It can cause further damage.

Exercise can also cause mast cells to activate that can cause all kinds of problems.

 

It is better to pace. Don't do anything that makes symptoms worse. Find the limit of the activity you can do without symptoms increasing and stick to it.

 

If can get stable at that level increase its TINY bit and see how that goes.

 

 

I wish more people would understand this and not preach all this rehab stuff that doesn’t apply to ALL conditions, including WD !

 

I agree, I think what we have going on here is more complicated.

[[Ma...]]

My husband is more than 3.5 years off, and can't do more than shuffle around the house and lie in bed all day watching tv. He's still suffering terribly. He can't keep going like this. Completely losing hope of recovery.

 

Is there really no hope? People still on these boards several years past where we are now don't make it sound like it. Did it get any better for you? Did you reach a point where the symptoms noticeably lessened? Are we anywhere near that?!

 

Does anyone have experience with Dr. Peter Smith? I searched the boards and found shockingly few references considering what he claims to be able to do.

 

My journey has been a long one as well and all I can offer you is what I would do if I had the knowledge of today and could do my journey from the beginning on again.

Withdrawal and the meds themselves are tough on the body and I had to fix a lot of different things to feel better (still doing that).

So if I could start all over again, I would do it this way (these were my key factors for healing)

1.Blood check out of full blood (cells, not serum) to find lacks of minerals and vitamins in order to take the right supplements

2.regular huge bloodwork, including check of kidneys, liver and overall health

3.blood work and check of adrenal glands, thyroid and all hormones

4. adjusting the diet to the personal needs

5.working with a physical therapist to learn how to release tension and emotional stuff with the body, also to help the detox process

6. working with a specialist for traditional Chinese medicine

7. reading about biochemistry in the body to understand how to body works

8. learning strategies to focus on the mind like meditation, yoga or something like tht

9. learning strategies to prevent thinking in general. Walking, taking pictures with a camera

10. Establish a celebrating day or moment in the week. No matter what.

11. Depends .. I am a former project leader and have always worked with huge plans and lists and monitoring myself did not lead to hysteria. And you should not become your partners therapist. But if it is possible, he could write down all the things that helped him just for a moment. Not the things which did not help.

 

and last but not least. it seems it is even harder for men to accept that coming out of an exhausting time, the dosage of things is key. I started with walking minute-wise! Minutes!! But if it helps to only walk around the kitchen table twice a week for 4 minutes and leads to me now doing cardio exercise fr 90 minutes straight - my body was right.

 

When his body tells him to stop, this is not failure. He needs to learn to find the right moment to stop, and this is, when he still feels good. No matter if it is walking, running, eating, talking... to be able to stop when everything is okey, is a very healing thing and then you can add more and more. Cognitive behavioral therapy or simply dog training works the same way, you never stop when something does not work out anymore, you always stop after a good moment. No matter if a session has taken place for 1 minute or 1 hour.

 

Best wishes to you and your hubby

 

Marigold

 

 

[Guest [Ha...]]

How much and how long did it take to taper off remeron and how long is he fully off everything?

 

Does he get outside in the sun?

 

Is he on his phone and computer all day?

[[an...]]

Well anxious, here’s some hope for you.

 

 

All of my symptoms let up today. And I mean all of them.

So your husband could literally wake up healed tomorrow

This last week was the worst week of my withdrawal (besides for that first year in acute) - I was ready to quit my job, sell my house and move home. It all let up. I’m 100% today. I can’t even explain it

 

It could happen to your hubby too.....show him this message. It could all just stop at once

 

Thank you Meganz, I really needed this today. And thank you for trying to pull the discussion on track.

[[Me...]]

Anytime. Message me if you ever need support. I felt no hope and then started having windows really quickly out of nowhere

[Guest [An...]]

Marijuana (cannabis) does not work on GABA(A) receptors. Myself and others use it and definitely still heal.

 

 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3207709/

 

https://www.sciencedirect.com/science/article/abs/pii/S1043661816311392

 

GABA A receptor has many subunits, and Benzos hit specific Benzo receptor sites. Also, there is no other way that I can think of that the body uses to slow down neural activity other than GABA, so at some point in the road, we probably have to consider GABA agonists.

 

Or just suffer intensely for months or years, because we are afraid to touch anything GABA.

 

The other pathways (Histamine/Orexin) still require GABA to work, your own internal GABA and bring their own issues when we take drugs to manipulate these.

 

AND a trend I've noticed in these type of studies is assume that every anxiolytic substance is primarily a GABA agonist, and with some, that hasn't been the case:

 

Examples: Theanine was believed to be a GABA agonist, but later found to actually be a Glutamate antagonist. The same for Lavender.

 

AND to boot, other studies find no interaction with GABA from THC:

 

https://pubmed.ncbi.nlm.nih.gov/2576303/

 

At the end of the day, I'm sure that any substance that will slow down neuronal activity will have to do it thru GABA, either directly like a benzo, or indirectly, (Something that stimulates something directly in the brain that's not GABA, but in turn, getting a secondary process in the brain to stimulate GABA receptors, etc etc)

 

So I would say that the person in the OP should probably at least try a calming strain of mj, like Indica for example.

 

EDIT:

 

I read the entire article, and it seems to imply, just as I suspected, that THC acts indirectly on the GABA A b2 subunit. While Benzos act on the a1/y2 subunit

 

https://www.nature.com/articles/s41598-017-15628-7

 

"The binding sites for the agonist GABA are located at the β2+/α1− subunit interfaces and the modulatory site for benzodiazepines at α1+/γ2−."

 

Even then, I am still not convinced that just because something is GABA activating, that it necessarily hinder the benzo recovery process.

 

AND I am not convinced that THC acts on GABA, I think those are theories right now because of the assumption that something that is anxiolytic HAS to be a GABA agonist.