Alright, so here's some basic notes on my daily/weekly routine that have helped me through this process. 

Daily:

• Morning: I do a quick 1-minute lymph massage (you can look this up on YouTube if interested). This gets the lymph flowing and helps with swelling. My left leg used to always be a bit bigger than my right and I had constant puffiness in my face, so this helped with that.
• I make sure I get natural light in the eyes every morning to set my circadian rhythm, (not through a window!!) So I either go outside for 10-20 minutes or I use a S.A.D. lamp every morning. (This is important for sleep!)
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• Pacing: In the beginning I would try to get as much done as possible in the morning before I 'burned out'. Then I realized that was causing me to burn out and that I needed to space out my activities with long periods of rest. (This is what they suggest for Chronic Fatigue Syndrome and I've found it helps). So I try to never be active for too long NOR sit for too long, but to evenly pace activity with rest.
• I don't do more than one big outing per day and if I do an outing one day, I have a quieter day the next.
• I move slowly and don't race around trying to accomplish something quickly because that increases tension.
• I've organized a daily activity schedule that is a bit easy on a good day and bit challenging on a bad day and try to stick to it as much as I can, though there is also some variety. That way I know what I can practically accomplish each day and helps to prevent overdoing it.
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• I have a daily nap if at all possible.
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• I make dinner early (we eat at 5) for 2 reasons: sometimes I'm out of energy completely by 6 pm and secondly, I do intermittent fasting, which basically means I don't eat between dinner and breakfast. It's good for the digestive system to have a long break.
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• I go to bed early (upstairs at 8 pm, one hour of tv by myself, then bed at 9). I put on orange glasses beginning at 8 pm to block blue light (important for sleep).
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Weekly:

• I aim for 2-3 outings per week. (This would be different for others depending on where you're at). I think it's actually very important to get out and I'm at the stage where I have to really make a point of it or it's easy for me to stick around the house too much.
• I do meditation from Monday to Friday and take the weekends off. (I'll talk about meditation more in a different post).
• I have a light exercise routine that I add to very, very gradually. It is mostly yoga and walking. I found early on that I can't do anything aerobic, nor can I do weights. (More about this in another post).
• I try to make sure I'm doing something with purpose and something fun weekly. Purpose can be posting on here, or planting a bee-friendly flower, or picking up a piece of litter, some type of prayer or anything that makes you feel like you're contributing some small thing to the world. Fun is also super important and not on most people's radar when they're suffering, but it can really boost "happy" neurochemicals. I do adult colouring books, crafts, play guitar and every Saturday night I have a 'Musical Bath'. I get in the bath and blast happy music and sing at the top of my lungs. (My family expect this! )

In my future posts, I'll be breaking some of these categories down even further and going into more detail. Cheers everyone, hope you're all hanging in there!