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head stuff 20 months off klonopin any one else!!!!


[je...]

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well i suffer with this head stuff every day ..and i was wondering if  anyone else suffer this crazy head stuff ,like goosebumps running thought your head ,pain in back of head into the neck ,hot points in head...where all of the sudden one spot in my head is on fire ,i just wanted some feedback on head stuff to get a feel of what everybody dealing with ,.....i don't see much on the subject!!!! this is not all i suffer with ...but its the most scaryest thing ever ...and what can you do about it but just stand there and take it ..and hope all is well/.....klonopin suffering is so powerful ....please if you read this explain  what you deal with in you head ,....maybe its all feeling and nerves..or damage and malfunction brain????? :'(thanks to you all  :smitten::thumbsup: :thumbsup: Jeff's
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hi Jeff,

While I am not as far as you are I am dealing with lots of the bad head stuff. I am 12 months out from a c/t off  of ativan. While I have other symptoms also my main worry is my head too. It hurts all day every day. Sometimes it feels like it is squeezing so bad from all sides. Yes, the back of the head and neck too. my sinus and around my eyes hurt and feel tired and sore. My vision is usually messed up too. My ears hurt and feel clogged. When I get the waves things get real bad and my head feels weirded out and funny. Hard to explain. I get dizzy and unbalanced. It is hard to cope everyday with all the head stuff but I had a head scan and everything was normal and I did not have this before benzos so I have to believe that it is from them and will heal in time. I don't see too many posts with the head stuff either but I am sure they are out there. Hang in there jeff. I read a lot of posts where people say that healing sometimes takes longer but it does happen.

 

Rain

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I havent experienced those symptoms, but have experienced some head symptoms before... like a brain shiver, felt like my brain had a vibrater up to it for like 5 seconds, followed by dizziness. That was scary. At the time I didnt know it was w/d.

 

Also, now that I'm w/ding slowly, I have noticed some strange w/d symptoms in my head. My head today felt like it weighed 20lbs more... and if i tilted my head from side to side, it felt like there was stuff moving all around left to right. STRANGE.

 

BUT! I have seen people on here who have EXACTLY the same w/d head symptoms as you do! And it's seems to be very common. Hang in there! =) It will pass.

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Hey jeff: YEP... I am 25 months off and still have some head stuff.. I used to have it all- burning brain, numb brain, tingling, zaps, etc.. Now I still have some what I called "brain electricity" in part of my head- a patch on the right side mostly.... I would say in the beginning 80% of my brain was torched.. now about 10% or so.... They all say Prayer and Time, right? Just going about my life as best as I can.. IT WILL GO!! GOD Bless, Bob
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:'( :'( ....my head has gotten so bad ..cant take it anymore ,,feel like there is no hope ...i know theres no hope ..20 months off and thing have gotten worse and now ......over the top ....constance  :smitten:pain with warn spells and stinging .....in head ,face gets flushed .....can not take it anymore ...this is the end .....i have nothing left ...cant  handle this crazy head stuff ,plus abdominal pain ,feeling so sick .thanks  :sick: :sick: :'( :'( Jeff
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Jeff I cry when I read your post. Not sure what support system you have. I want to tell you to turn to God and prayer but when you feel so bad hearing that can make a person frustrated. I really don't know what to say except know that there is someone out there praying for your healing and for your healing to come soon.

 

I have the head burning and body burning and I'm not tapering yet. I'm so sorry that you are going through this. I'm praying that you will just wake up and it will all be over :)

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Hi Jeff:

 

I feel for you bud. The head symptoms to me are the scariest. Electrical zaps and zings, especially in the first few months. I get terrible head pain, almost every day. Sometimes, when I don't have pain in the head I get one knot of pain in the back of my neck. My ears feel full all the time and if it's a really bad day, if I bend to my left side I get vertigo that would knock your socks off. I have to hang onto something for dear life, the room just spins around me!! This is some pretty weird crap going on and we have to be patient. From what I read on here the wait is worth it. Someday we will feel a bit better, and then a bit more, and more. You just have to be patient, I am, you can too!! Hang in there Jeff.

Sandy

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:'( :'( ....my head has gotten so bad ..cant take it anymore ,,feel like there is no hope ...i know theres no hope ..20 months off and thing have gotten worse and now ......over the top ....constance  :smitten:pain with warn spells and stinging .....in head ,face gets flushed .....can not take it anymore ...this is the end .....i have nothing left ...cant  handle this crazy head stuff ,plus abdominal pain ,feeling so sick .thanks  :sick: :sick: :'( :'( Jeff

 

Hi Jeff, sorry to hear you are still suffering so bad and are in so bad of shape right now. You are very strong to have made it this far and I have a good feeling you are going to make it past this and live to tell your story....from the other side.  :yippee:

 

Hang in there, like they say, time heals. In some cases, lots of it unfortunately.

 

I am in the "Klonopin Club" too, and it is no fun at all. Very scary and VERY painful.

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:'( :'( ....my head has gotten so bad ..cant take it anymore ,,feel like there is no hope ...i know theres no hope ..20 months off and thing have gotten worse and now ......over the top ....constance  :smitten:pain with warn spells and stinging .....in head ,face gets flushed .....can not take it anymore ...this is the end .....i have nothing left ...cant  handle this crazy head stuff ,plus abdominal pain ,feeling so sick .thanks  :sick: :sick: :'( :'( Jeff

 

I'm 22 months off and I have the same symptoms you describe including the abdominal pain. I also have terrible weakness in my spine and neck and I have to lie down a lot. I'm going through a wave right now. Been in bed/on the sofa for 10 straight days now. I don't work and I don't socialise especially during waves.

 

I try to take it one day at a time and repeat to myself that all this pain is because I'm healing and I try to imagine how great it will be when I'll be healed and I have my life back. I do have my dark, despairing  moments but I try and not let them take over...benzos have taken so much from me...I don't want to give them the ultimate victory

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thanks for the support .....well said NUNTIA and hats for those words... and to give klonopin the ultimate victory !!!!!.... :'(....i don't know how this will all play out in the end but i have taken klonopins best shots and yet i still stand ....the crazyest,most painfullest...oddest..i sometimes wonder why god don't take me ....but only GOD knows why ..... :angel: :angel: :angel: i have not heard of anybody posting of success's that they beating klonopin !!!!!!and suffered as us .....where are they ...far and few this drug is a body and mind wrecker .....!!!!!and the people who pushed this drug on me should pay ...please send me a ANGEL PLEASE !!!!!PLEASE :'( :'( :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: ......I WAS ONCE SO STRONG ...AND NOW 
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  :smitten: Jeff

 

Hello sweet friend!!!  Just want to say ..U are a 10 footall man in my eyes beating this Beast.. Your a very strong man.Amazing!!!!!

Keep beating this beast .Ur going to be standing rt on Top of it soon...

 

:hug:  ! Ur friend whos fighting for u~ Jenny

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  • 1 month later...
I have about the same amount of time and i still get head pains...the zings and zaps and electricity pings...all over my head..I get so depressed about it..i keep going to the doctor or the emergency room..for all these symptoms..I am just so over it...Im like why isnt there more knowledge in the medical community about this..?
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Only seven months out but I have all of these symptoms and had them during my taper as well. I haven't had a break from the head stuff for the past 13 months. All we can do is live day to day, keep hoping for a break. Hang in there, you're alot closer to healing than you think.

 

Jeff M.

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  • 1 month later...
thanks ,today Jan 4 ,2011 ,closing in on 2 years off ....as of Feb 13 ..i still am fighting the beast ,.....this monster is so strong and tests your will and resolve .....for me it has gotton so bad in stomach and neck and head ,stuff ,i have not gone to doctor or hospital ,but when i get so overwhelmed in pain and head stuff .i allway so i going in ...to hospital .... :P..but i find a way to make it through and talk myself out of it ..like so many people have said they have gone to hospital for all the head,zaps,tingles,piercing pain,and unbearable pain ,only to be told that they found nothing!!!!!!!!!!!!!!!!!!!!! this is how these big pharm, pill pushing ,money make slime ...get away with it for so long ,cant prove that we suffer as we do ...leave me in a room with these people and i will prove to them ,give them klonopin one a day for a couple month ...then ween of slowly and them watch them suffer as we do ...this drug has done so much damage to the body and mind ..more that we want to believe ....and as we fight our way out of this mess and try to outlast this madness....some of us heal faster than others ,i hope and pray i can withstand this,because i was tired of this 6 months ago...i have heard of this healing and regaining health,to feeling normal,not to feel off....for all this pain to stop ,well i hope it happens soon .... :'( :'( :'( for me and all yous that have gone through this ..... :-\>:( :'( i have been fighting for soo long ,and its yous who have given me HOPE!!!! i need prayer for healing .....ill keep posting if it breaks love Jeff 
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Jeff you are not alone my friend. Off Klonopin 9 months now and head problems are the worst.  They are extremely hardcore and painful.  I actually feel as though my entire head is on fire and inflamed 24/7.  The pain starts in my back and shoulders and goes up my spine, up my neck, and connects straight up my brain stem into the center of my head.  The whole thing is vibrating and shaking and at the same time my head actually feels completely dead and numb.  The pain keeps me up all night long. Get migraines almost daily with it.  You can't make this stuff up!!! Its unbelievable.  I don;t know how on earth this stuff is given out to people when it has the potential to cause this kind of long term suffering and pain.  What is the stuff?!?  They don't even the decency to warn you of the potential long term problems.  Its about as sick and twisted as you can get.  We'll get through this though.  Time is the key.  Just hang on strong.  You're not alone.
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