Has anyone found improvement from severe tinnitus ?

[[ch...]]

Hello again

I am suffering a great deal from my Tinnitus which seems to be getting worse as time goes on ,

 

As I am deaf it seems even more pronounced and last night I got little to no sleep, in part because of it

 

I have a large turbo fan on continuously but I can barely hear it.

 

I know most can find a sound that helps but I cannot hear most anything now,

 

I have such a lot of head pressure too  pushing in on my ears,

 

I have read that tinnitus can be one of the last symptoms to go but was hoping that at leas it would fade

 

I took my last valium on 14 December so am 4.5 months free and this has not given me a break but is getting worse

 

I guess I just want to know that it does fade, 

 

I know I have asked before but  since then it has become worse still and not sure why

 

Hope would be greatly appreciated

 

Jen

 

 

[[Wi...]]

I have had severe tinnitus as well although it is much better. And it got worse as the months went on before it finally started to ebb. Ive known people on valium that totally healed from tinnitus. I was on klonopin which seems to create the worst of all tinnitus. I teally feel for you being deaf and not being able to drown out the tinnitus with a fan as I do at night when I sleep. I believe you are in the worst of it now but it will completely disappear. It took my tinnitus about 6 months to peak but again I was on ativan and klonopin at high dosages. From what I have researched valium tinnitus sufferers heal the quickest. Hang in there and be sure to not “focus” on the tinnitus. Good luck.

[[ch...]]

I have had severe tinnitus as well although it is much better. And it got worse as the months went on before it finally started to ebb. Ive known people on valium that totally healed from tinnitus. I was on klonopin which seems to create the worst of all tinnitus. I teally feel for you being deaf and not being able to drown out the tinnitus with a fan as I do at night when I sleep. I believe you are in the worst of it now but it will completely disappear. It took my tinnitus about 6 months to peak but again I was on ativan and klonopin at high dosages. From what I have researched valium tinnitus sufferers heal the quickest. Hang in there and be sure to not “focus” on the tinnitus. Good luck.

 

 

Thank you so much for your words of reassurance,  I am finding it beyond me at the moment, 

 

I am used to tinnitus which came when I lost my hearing in my 30's,

 

This increase started during my long taper, and has got progressively worse , However it is now so unbearable , especially with the ear pressure and face pressure as if some one is pushing my head from either side a the level of my cheek bones, 

 

I  wonder if there are things to avoid,  Food etc,  I don't know, 

 

I am finding this so strong now that it's like a form of torture ,

 

I will try to take heart from what you write, 

 

I do hope it stops this steady increase soon and I can get enough relief to grant me some sleep

 

Thank you once again

 

Jen

[[Ma...]]

Hello again

I am suffering a great deal from my Tinnitus which seems to be getting worse as time goes on ,

 

As I am deaf it seems even more pronounced and last night I got little to no sleep, in part because of it

 

I have a large turbo fan on continuously but I can barely hear it.

 

I know most can find a sound that helps but I cannot hear most anything now,

 

I have such a lot of head pressure too  pushing in on my ears,

 

I have read that tinnitus can be one of the last symptoms to go but was hoping that at leas it would fade

 

I took my last valium on 14 December so am 4.5 months free and this has not given me a break but is getting worse

 

I guess I just want to know that it does fade, 

 

I know I have asked before but  since then it has become worse still and not sure why

 

Hope would be greatly appreciated

 

Jen

 

 

Hi Jen,

 

I had tinnitus before my benzo problems. It’s much better. Tinnitus and sensitive hearing are a stress response. I would recommend reading all the info on this sight. http://tinnitus.org/?LMCL=ce87KL

You can greatly improve it by understanding how it works.

 

There’s a lot of false infor regarding tinnitus. You don’t need any fancy therapies, just to understand that your brain is in fight or flight.

 

Matt.

[[...]]

Sorry you are suffering so, Jen! Mine is very loud today as well. Having some head pressure and dizziness too. I sure hope you get some relief soon!

 

Sandy

[[ch...]]

Hello again

I am suffering a great deal from my Tinnitus which seems to be getting worse as time goes on ,

 

As I am deaf it seems even more pronounced and last night I got little to no sleep, in part because of it

 

I have a large turbo fan on continuously but I can barely hear it.

 

I know most can find a sound that helps but I cannot hear most anything now,

 

I have such a lot of head pressure too  pushing in on my ears,

 

I have read that tinnitus can be one of the last symptoms to go but was hoping that at leas it would fade

 

I took my last valium on 14 December so am 4.5 months free and this has not given me a break but is getting worse

 

I guess I just want to know that it does fade, 

 

I know I have asked before but  since then it has become worse still and not sure why

 

Hope would be greatly appreciated

 

Jen

 

 

Hi Jen,

 

I had tinnitus before my benzo problems. It’s much better. Tinnitus and sensitive hearing are a stress response. I would recommend reading all the info on this sight. http://tinnitus.org/?LMCL=ce87KL

You can greatly improve it by understanding how it works.

 

There’s a lot of false infor regarding tinnitus. You don’t need any fancy therapies, just to understand that your brain is in fight or flight.

 

Matt.

 

 

 

 

Thank you Matt,  So this is really all fight or flight and will ease down when I can get out of this phase?

I do feel stuck  in that mode all the time , so not surprising

 

I find it so hard to live with the power of it,  It is so very loud and multi toned,  and such a lot of pressure in my ears and head, 

 

I need my gaba receptors to start working properly again,  and that will happen when it happens,  Meantime I cannot see what I can to  stop the state I am in , I really do hate all the damage that has been done ,

 

Does that mean that it will eventually improve instead of getting worse and worse?

 

If I had ever known that this drug and it's removal could do this when I have such  poor hearing already I would not have  put it in my mouth ever,  Why we are not told the risks I do not know 

 

Thank you for your thought ,

 

Jen

[[Ki...]]

Mine was in left ear , it gotten much better now .

[[ch...]]

Sorry you are suffering so, Jen! Mine is very loud today as well. Having some head pressure and dizziness too. I sure hope you get some relief soon!

 

Sandy

 

 

Thank you  Sandy

I am so sorry you  have increased tinnitus and head pressure as well, 

 

I think it's getting to me because I am so deaf and this drug removal has taken more of what little hearing I had, even with my aids.  I hear nothing but this noise and it prevents me thinking or sleeping , 

 

I really do hope that it does fade with time instead of increasing, as it is at the moment ,

 

I am so used to tinnitus but not this where I cannot even use white noise to be able to sleep ,

 

Odd thing is , I suspect it will lessen if I could  sleep , so a catch 22 for me ,

 

Thank you for thinking of me

 

 

Jen

 

What a  hard  journey this is for us ,  , 

 

I will be glad when I start to feel some recovery instead of feeling worse as time goes on.

 

 

[[Tr...]]

Hi Jen,

 

It will definitely go down to your old base level. It just takes a long time and no one can say how long it will take. I also have tinnitus and it has dropped in intensity. Before mine dropped it went higher first. Yours will also reduce as your central nervous system heals itself. Please don’t lose heart. Do things to calm yourself down like taking warm baths, drinking non-caffeine tea and practice breathing to reduce the anxiety, breath in for 5 seconds, hold for 7 seconds and breathe out for 8 seconds. That helps calm your CNS. Stay off sugar, caffeine and alcohol for a long time. Hang in there. I’m sorry you are having a hard time.

[[ch...]]

Mine was in left ear , it gotten much better now .

 

 

Thank you Kiwi

 

I am glad to read it has got much better, 

 

It's a horrible symptom, especially when this loud and booming at me , as well as hissing,

 

How long was it before it improved for you?

 

It does give me hope that people are saying it has improved for them , 

 

I had read that Tinnitus can be the last symptom to go and really I can never expect it fully gone as I had some to begin with  but nothing like this , I really didn't notice it  after having it so long,  where this is like a form of torture as  I cannot mask it ,

 

I don't know if the extra hearing loss will ever return  I  am struggling so much with the damage done and stops me from distracting  in ways that others can ,

 

Jen

[[ch...]]

Hi Jen,

 

It will definitely go down to your old base level. It just takes a long time and no one can say how long it will take. I also have tinnitus and it has dropped in intensity. Before mine dropped it went higher first. Yours will also reduce as your central nervous system heals itself. Please don’t lose heart. Do things to calm yourself down like taking warm baths, drinking non-caffeine tea and practice breathing to reduce the anxiety, breath in for 5 seconds, hold for 7 seconds and breathe out for 8 seconds. That helps calm your CNS. Stay off sugar, caffeine and alcohol for a long time. Hang in there. I’m sorry you are having a hard time.

 

 

Thank you for your message

 

I had suspected all this is due to a damaged CNS  and it takes a long time to repair,  ,

 

I took a long time tapering but really I reacted very badly to valium and probably with hindsight  should have tapered faster than I did, 

 

In my position I was never going to be stable as it really did not work for me  and within a very short time I became more and more ill

 

I thought it the right think to taper slowly and for most I am sure it is the best thing to be able to taper at the speed your body can adjust to,  but not to be for me

 

However I am free now and the damage is done,  so I have to wait until there are some improvements,

 

I really do hope that it wont take so long before I find the noise dropping a little and this is so hard to live with , Not being able to block it out with other sounds, 

 

I will try to stay positive about it, but it is hard to think it might stay this bad or even worse , before it does

 

The good news is ,that people are saying it does lessen ,  I don't mind that,  Just so I can hear again and  get some sleep as well

 

I do try to avoid the things you say , but there is always an occasional time when I really want a square of dark chocolate,  It's a cruel life if I  cannot comfort myself once in while

 

I am wondering if the hot milk and buttered granary toast I eat at bedtime as part of my nighttime routine  might be giving me increased symptoms,  I am loath to give it up if it's not a problem as I am still struggling badly, with weight loss, 

 

Thank you for your kind advice

 

Jen

 

[[Tr...]]

Hi Jen,

 

I don’t take dairy and gluten (wheat). I struggled with digestion issues so taking these out of my diet helped, but if the milk and toast aren’t affecting your digestive system, then I’d say keep having them. Just try staying off the sugar, people here have said their tinnitus goes up with sugar. I hope your tinnitus goes down soon as well so you can find some relief. Hang in there Jen and don’t lose heart during this hard time.

[[ch...]]

Hi Jen,

 

I don’t take dairy and gluten (wheat). I struggled with digestion issues so taking these out of my diet helped, but if the milk and toast aren’t affecting your digestive system, then I’d say keep having them. Just try staying off the sugar, people here have said their tinnitus goes up with sugar. I hope your tinnitus goes down soon as well so you can find some relief. Hang in there Jen and don’t lose heart during this hard time.

 

 

Thank you for the advice,  I didn't realise sugar can make tinnitus worse, 

 

Apart from fruit sugar, I have little, except the occasional square of dark chocolate,

 

I really ought to write down what I eat and see if there is a correlation.

 

I really do need some relief from this level of intensity, as getting a least a couple of hour sleep is so important ,

 

It might well all be as Matt says and ties in the with fight or flight state that I live in so much of the time ,

 

When that begins to calm , maybe  my CNS will begin to heal enough for my ears to return to something like they were before

 

I used to have digestive problems but that was when I was on the full 4mgs dose ,I  was dry heaving and lived on ensure, drinks, 

 

The drug was not good for me right from the start, Sadly I did not work out the reason I was so ill till I had been on it for 3-4 months and a lot of damage was done, 

 

I am hoping that as I recover from the assault of my brain and body  I will start to find this horrendous noise, fading , along with my other symptoms 

 

Thank you

 

Jen

[[Ki...]]

I saw improvement around 9 or 10 month . Now it is 10-20 % of what it's used to be.

Initially I used to think it will be permanent but I was wrong . Yours will heal too

 

 

[[So...]]

Hello again

I am suffering a great deal from my Tinnitus which seems to be getting worse as time goes on ,

 

As I am deaf it seems even more pronounced and last night I got little to no sleep, in part because of it

 

I have a large turbo fan on continuously but I can barely hear it.

 

I know most can find a sound that helps but I cannot hear most anything now,

 

I have such a lot of head pressure too  pushing in on my ears,

 

I have read that tinnitus can be one of the last symptoms to go but was hoping that at leas it would fade

 

I took my last valium on 14 December so am 4.5 months free and this has not given me a break but is getting worse

 

I guess I just want to know that it does fade, 

 

I know I have asked before but  since then it has become worse still and not sure why

 

Hope would be greatly appreciated

 

Jen

 

If you can, you might want to go to a hearing aid specialist and have him look into your ears for fluid or if he sees anything abnormal.  I had my guy do it for free along with a free hearing test.

 

[[JJ...]]

Hey Jen,

I’m nearly 6 months out and most other issues have subsided,

But the tinnitus continues unabated.... May be less loud but still going strong.

It’s particularly noticeable when I’m trying to meditate/do yoga and when I’m lying in bed.

As with most things, it’s less frustrating when I’m occupied/busy doing something.

When I’m outside of the house it’s less annoying, doing gardening always puts it in to the background.

 

 

[[Tr...]]

http://www.benzobuddies.org/forum/index.php?topic=205360.msg2658464#msg2658464

[[ch...]]

Thank you all for  your messages, 

 

I am hoping that  the really strong deep vibrating tones and  the high hissing will die down as seem to be indicated

 

I am still struggling,  and feeling tired of the journey

 

I think my meal ( I do not do the cooking at present)  contains some msg and soy as it's a stir fry,  with a sauce

 

I am feeling panicky and my ears so bad,  I don't know why life has to be this way

 

Hopefully tomorrow will be better,  and it might all be my imagination thinking I am worse because of the food

 

I really had hoped I could broaden my diet at nearly  months off,

 

Got  to keep going until I am better

 

Thank you

 

Jen

[[Tr...]]

http://www.benzobuddies.org/forum/index.php?topic=51940.msg695968#msg695968

[[Gi...]]

Thank you all for  your messages, 

 

I am hoping that  the really strong deep vibrating tones and  the high hissing will die down as seem to be indicated

 

I am still struggling,  and feeling tired of the journey

 

I think my meal ( I do not do the cooking at present)  contains some msg and soy as it's a stir fry,  with a sauce

 

I am feeling panicky and my ears so bad,  I don't know why life has to be this way

 

Hopefully tomorrow will be better,  and it might all be my imagination thinking I am worse because of the food

 

I really had hoped I could broaden my diet at nearly  months off,

 

Got  to keep going until I am better

 

Thank you

 

Jen

 

Get this from Amazon

 

Tinnitus - From Tyrant To Friend

 

By Julian Cowan Hill

 

This was a massive help to me and I’m sure it contributed to the improvement in my tinnitus.

[[Tr...]]

Chinchuck, here is the link of the author “GiveMeHope” is talking about. You can watch his YouTube videos if you don’t get the book. Here is 2 links, one to his vide mo about Tinnitus Tips. The second link is to his YouTube channel for all his videos. I am also going to watch these. He says Tinnitus is our CNS being on high alert because of the trauma so it’s listening too much for danger, so we need to calm the CNS then the Tinnitus will drop.

 

 

https://m.youtube.com/user/jcowanhill/videos

[[ch...]]

Thank you so much for the information ,

 

How complex we are, and how it makes you realise  just how easily we can be damaged in areas we hadn't even thought about

 

I can imagine that any form of stress , whether from drugs or noise , or can rebound and leave the brain confused and mis interpreting sounds

 

 

Thank you again

 

Jen

[[Ma...]]

Chinchuck, here is the link of the author “GiveMeHope” is talking about. You can watch his YouTube videos if you don’t get the book. Here is 2 links, one to his vide mo about Tinnitus Tips. The second link is to his YouTube channel for all his videos. I am also going to watch these. He says Tinnitus is our CNS being on high alert because of the trauma so it’s listening too much for danger, so we need to calm the CNS then the Tinnitus will drop.

 

 

https://m.youtube.com/user/jcowanhill/videos

 

 

This is great stuff. I had terrible tinnitus before my benzo journey. I went to see Julian and he really helped me. It really is all related to the CNS and being in a state of fight or flight. 

[[Gi...]]

Chinchuck, here is the link of the author “GiveMeHope” is talking about. You can watch his YouTube videos if you don’t get the book. Here is 2 links, one to his vide mo about Tinnitus Tips. The second link is to his YouTube channel for all his videos. I am also going to watch these. He says Tinnitus is our CNS being on high alert because of the trauma so it’s listening too much for danger, so we need to calm the CNS then the Tinnitus will drop.

 

 

https://m.youtube.com/user/jcowanhill/videos

 

 

This is great stuff. I had terrible tinnitus before my benzo journey. I went to see Julian and he really helped me. It really is all related to the CNS and being in a state of fight or flight. 

 

Great post Matt, very encouraging

 

G