12-18 month support

[[Co...]]

HH.. your posts are absolute manna from heaven. I am so happy to hear how you have your wonderful life back. I think there are some of us here who are living on your success and posts.

  Sleeping in a trailer for a few nights would give anyone a little sleeplessness and a little anxiety is a normal part of every day life. ...I think driving an hour with kids in the car to an off grid wilderness without freaking panics is the litmus for  the rock solid 'here to stay' status of your healing. I think you have this dear friend...

....You have no idea how wonderful it is for me to know that " flaming health fear" heals....I didn't have this kind of crazed health fear until about month 16...previous to that I had some health worries and a couple of health panics, but when they resolved I let them go ...This has completely high jacked my progress...but knowing your story gives me so much hope.

.....It is so great to read your posts....thank you for taking the time to write to us....coop

[[Ko...]]

Hi Buddies,

 

Sorry I've been neglectful of you all. I got hit with another huge wave of body and muscle pain, so just trying to keep my head above water. It's sounds like everyone is living with a little good and a little bad. So sorry you are all suffering. We just have to keep hanging on a few more months and we'll be home free.

 

Have any of you been suffering severe leg pain and muscle weakness in your legs?  It's very difficult to walk at times. It's like I have no strength or coordination.  Last Saturday I felt pretty good, so I went swimming. I struggled to get in the pool because of my weakness and Boatiness going down the stairs was difficult. Thank goodness I still have arm strength and coordination to support me.  Then once in the water I tried to swim. I've always been an excellent swimmer. I used to teach swimming. Well, my legs were so weak and uncoordinated I could hardly kick them in the water.  I was shocked. The day after my swimming experience is when the new wave hit and I've been in pain ever since.

And it's been difficult to walk without cramping up. I know this is W/D but it's really scary.

 

Coop, your acid reflux is causing your cough. It's very common.  You should do what Drew did and take 2 weeks of Prilosec to get it under control.  Also, raise the head of your bed up about 3 inches or send a foam piece that keeps your head up at night. The acid coming up is causing the pain and coughing. Don't be afraid of the Prilosec it will help, just take it for a short time. It's probably caused by W/d. Also, don't eat past 7pm if you can help it and avoid carbohydrates at night.

 

Green : did you ever find an over the counter sleep med that worked for you?

[[BJ...]]

I'm experiencing pretty bad neck, face, and shoulder tension at this point?  Is this something that is common this late into withdrawal?

[[je...]]

Hi guys,

 

Well today my 7 year old is having his surgery to have his tonsils/adenoids removed, I feel a little nervous and anxious but I think that is normal given the circumstances. Please say a prayer for us today... Love u all, jenny

[[Co...]]

Good morning Korbe....nice to see you ...So sorry about the leg weakness. Beulah suffered from leg pain /weakness for a long time I think. She is doing much better now. It's so darn frustrating to be so far out and hit with a debilitating sx. W/D just seems to take our lives and crumplease them up like a kleenex, but our lives are coming back. HH's story is so piwerful. Your legs will come back Korbe...it's all w/d.

Like all of us on this thread you have been through hell...and we are going to walk right out . ...

..

Thank you for the reassurance about the reflux.  That one took me completely off gaurd...it's been a very tough 5/6 weeks.. this too will pass....

.....I hope your legs are better today and I am wishing you big bright sunbreaks.....coop

[[Co...]]

Hi guys,

 

Well today my 7 year old is having his surgery to have his tonsils/adenoids removed, I feel a little nervous and anxious but I think that is normal given the circumstances. Please say a prayer for us today... Love u all, jenny

 

.....Jenny....it is very normal to be nervous and worried when your child has surgery....You have my support, thoughts and prayers....keep us posted....sending love.....coop

[[Co...]]

I'm experiencing pretty bad neck, face, and shoulder tension at this point?  Is this something that is common this late into withdrawal?

.....BJ.. .I think all of us have complained about tissue and muscle pain in every part of our bodies all throughout w/d with periods of relief coming and going. Hot Epsome salts bath soaks help mine. I have also used Arnica gel . Others say massage, yoga , accupuncture/ acupressure , pt and physical activity help....I think Nova knows a lot about this.  I hope it lets up .  .Yep, this far out in year 2 old and new sx . I sometimes feel that year 2 is almost a completely different w/d. .......coop

[[be...]]

Hi guys,

 

Well today my 7 year old is having his surgery to have his tonsils/adenoids removed, I feel a little nervous and anxious but I think that is normal given the circumstances. Please say a prayer for us today... Love u all, jenny

 

Yes Jenny, even out of withdrawal I would be nervous if my little one was having surgery.

I'm sure you will be fine because you have the experience of being kicked around with anxiety, and recognize it for what it is...but it's still hard.

 

Keeping you in my prayers.

 

[[be...]]

Just a whine....Yesterday was pretty decent for most of the day once I got through the morning anxiety...Sleep was also pretty decent..

...Today.....GAW...(as Sky says).  cascading anxiety/ mini panics all day....screaming health fears, d/r and cog fog. Determined to pretend like none of its going on...but wearing out...This is starting to resemble Sky's pattern of every other day trade off....How do you take it Sky?.. 

....I can't concentrate on a thing....going outside for a walk is the only thing that helps. 

....I know it's all part of the deal.  Just crying and whining...

..Hope everyone is getting some breaks...send some my way.....coop

 

Coop, that's how I manage to get through most of my days, pretending nothing is going on.

I sure am doing a lot of faking and pretending lately, but if this is what it takes to get me through..then so be it.

We gotta do what we gotta do. Hugs.

[[Co...]]

Just a whine....Yesterday was pretty decent for most of the day once I got through the morning anxiety...Sleep was also pretty decent..

...Today.....GAW...(as Sky says).  cascading anxiety/ mini panics all day....screaming health fears, d/r and cog fog. Determined to pretend like none of its going on...but wearing out...This is starting to resemble Sky's pattern of every other day trade off....How do you take it Sky?.. 

....I can't concentrate on a thing....going outside for a walk is the only thing that helps. 

....I know it's all part of the deal.  Just crying and whining...

..Hope everyone is getting some breaks...send some my way.....coop

 

Coop, that's how I manage to get through most of my days, pretending nothing is going on.

I sure am doing a lot of faking and pretending lately, but if this is what it takes to get me through..then so be it.

We gotta do what we gotta do. Hugs.

....Thanks Beulah.  Things let up later in the day...the usual morning anxiety and yuk this morning, but hoping it passes.

.....You are such a warrior Beulah, I try to follow tour strong example...I treasure the days, for both of us , that we don't have to pretend... sending you love and wishes for a truly very good day with no pretending necessary.  coop

[[be...]]

Hi Buddies,

 

Sorry I've been neglectful of you all. I got hit with another huge wave of body and muscle pain, so just trying to keep my head above water. It's sounds like everyone is living with a little good and a little bad. So sorry you are all suffering. We just have to keep hanging on a few more months and we'll be home free.

 

Have any of you been suffering severe leg pain and muscle weakness in your legs?  It's very difficult to walk at times. It's like I have no strength or coordination.  Last Saturday I felt pretty good, so I went swimming. I struggled to get in the pool because of my weakness and Boatiness going down the stairs was difficult. Thank goodness I still have arm strength and coordination to support me.  Then once in the water I tried to swim. I've always been an excellent swimmer. I used to teach swimming. Well, my legs were so weak and uncoordinated I could hardly kick them in the water.  I was shocked. The day after my swimming experience is when the new wave hit and I've been in pain ever since.

And it's been difficult to walk without cramping up. I know this is W/D but it's really scary.

 

 

Coop, your acid reflux is causing your cough. It's very common.  You should do what Drew did and take 2 weeks of Prilosec to get it under control.  Also, raise the head of your bed up about 3 inches or send a foam piece that keeps your head up at night. The acid coming up is causing the pain and coughing. Don't be afraid of the Prilosec it will help, just take it for a short time. It's probably caused by W/d. Also, don't eat past 7pm if you can help it and avoid carbohydrates at night.

 

Green : did you ever find an over the counter sleep med that worked for you?

Korbe, the leg pain and weakness has been one of my worst symptoms all along.

I also love to swim but the leg muscles just won't let me right now.

Hopefully this won't be long lasting for you. Swimming is good exercise to build the leg muscles and keep them strong. This to shall pass.

[[No...]]

Korbe ... just a thought ... where you swim is there a whirlpool or hot tub type thing ... that may be helpful ...

[[No...]]

BJ ... does not seem to be anything usual about this type of tension and pain ... I have had it for several months ... just showed up one day and hasn't permanently departed yet ... I have found nothing "permanent" that helps ... lots of possibilities for some temporary relief ... heat ... arnica cream ... massage ... and when things get really bothersome I sometimes use an ibuprofen ...

 

I believe this is related to muscle - tendon - fascia spasm/contraction ... and it will go away, eventually ...

[[No...]]

Good Morning ... had a lousy sleep night ... ugly dreams stuff ... mostly about going "backwards" ... won't even think about that ...

 

Head pressure and the "flu" ... and some other bothersome stuff ... legs out of whack ... pinging off the walls a bit ...

 

Must have something to do with being finished with 20 months and turning 21 ... 

 

Another day in the salt mines ... and going "forward" ... 

[[No...]]

Coop ... I had the reflux/pain thing back around month 5 ... lasted for a while and went away ... and ... drove me nuts ... thought something was permanently "wrong" ... and nothing was ... the medical morons "diagnosed" me with a bowel blockage ... I don't think they had cleaned their glasses when they looked at the scan or else they were reading a dirty take out menu ...

 

Hand both scopes ... top and bottom ... absolutely nothing there that was meaningful ... the morons who diagnosed me refused to talk with me after the scopes and told me to talk to my family doctor ... go figure ...

 

I know how distressing this type of symptom can be ... and it will pass ... any kind of pain is distressing ...

[[...]]

BJ, I suffer fron this too. I think it is very common. What nova said makes perfect sense to me. The drugs affect every part of our body and nervous system so when they are removed everything has to normalize again. it is so very difficult not to think that there is something else going on. I just tell myself I didn't have this before, plus it comes and goes in intensity at sometimes it's not there at all.

[[...]]

Hi guys,

 

Well today my 7 year old is having his surgery to have his tonsils/adenoids removed, I feel a little nervous and anxious but I think that is normal given the circumstances. Please say a prayer for us today... Love u all, jenny

 

Hope everything goes ok. To feel a little nervous and anxious is very normal, in fact it would be abnormal not to. He will be fine

[[BJ...]]

Thanks for the replies, everyone.  At this point I have the symptoms chalked up to myofascial trigger points and tight spasms of my muscles, shoulders on up.  This has been going on for quite a while, and despite telling myself ad nauseum that everything is related to withdrawal, I still have seeds of doubt that tell me otherwise.  I mean, how could this process take so long?  I go through days sometimes thinking that I will be like this forever, despite evidence to the contrary.

 

My plan is to get some PT for it and possibly a massage depending on my mood.  I may try an Epsom bath and a few dietary changes.  All we can do is endure, I guess.

[[Co...]]

Coop ... I had the reflux/pain thing back around month 5 ... lasted for a while and went away ... and ... drove me nuts ... thought something was permanently "wrong" ... and nothing was ... the medical morons "diagnosed" me with a bowel blockage ... I don't think they had cleaned their glasses when they looked at the scan or else they were reading a dirty take out menu ...

 

Hand both scopes ... top and bottom ... absolutely nothing there that was meaningful ... the morons who diagnosed me refused to talk with me after the scopes and told me to talk to my family doctor ... go figure ...

 

I know how distressing this type of symptom can be ... and it will pass ... any kind of pain is distressing ...

 

.  .Nova..  .so sorry you had a crappy nght of bad benzo dreams and are starting out with sx....I am so wishing you some relief in the following of some good days. Days of rambling and hooking a rug and cooking....Month 21 just has to be better....21 months of coping, hoping, enduring, surviving and putting one foot in front of the other every day. Nova I don't think I have ever heard you say that you have not gotten out of bed.. Every day you do the best that you can with the day that is in front of you. Such a great lesson for all of thinking that we just can'tale it through

....Thank you for the very encouraging and affirming sharing of your experience with reflux or whatever they are going to call this next. I feel like they are just taking shots in the dark. prescribing all kinds of medications on thier ' best guess' and ordering tests if one thing after another doesn't work. I have spent this entire month running around from one doctor, ARNP, specialist and lab draws..  ..I think I am going to start with stripping my diet down to totally bland food and try the Mylanta ( an old fashioned ulcer/ reflux otc remedy...it is even given to babies and children)  If in 2 weeks things are not better I might agree to a scan....but based on what everyone is telling me.. ( "everyone" being everyone here) it will be better in 2 weeks... This is what I know.....underneath these wild physical sx and health fear ...my healing has improved a lot....I know how counter intuitive that sounds as I have been on here for a month sounding like the crazed woman I have been on bad days.. 

........Nova.  sending you thoughts for sunbreaks....and a ramble......coop

[[No...]]

Jenny ... thinking of you and your little one ... 

[[Co...]]

NOVA..  here's to you !!!...  21 months of surviving and carrying on....we are following .. with love in our hearts for you.. ....coop

[[dr...]]

BJ-I would definitely recommend a cranial massage from a masseuse familiar with that type of massage.  It has worked wonders in relieving the tension in my neck, head, and face.  It took about 4 seesions to really get the muscles all to release and now I go once a week as preventative.  Best thing ever.  she also helped my TMJ immensely

 

Jenny-you're both in my thoughts

[[...]]

Hello everyone,

 

Everyone apprears to be holding their own. How we put up with this I do not know, but what strength to get through day in day out.

 

My day began after a toxic nights sleep to horrible pain in my upper body. It was extra, extra hard getting up. As well as the pain, my body just feels full of inflammation. I did some EFT tapping (I use this a lot). Anyway the pain did ease off a little, I just feel really sore everywhere, internally too in the throat, ears ugh. I don't know if I overdid it a bit with the baking (the carrot cake went down well at work, sadly I only dare have a small bit). I was trying to cook dinner at the same time and came over a bit strange ie dizzy weak.

 

Does everyone else suffer so badly in the mornings? it's so hard to drag yourself arround, climbing the stairs is like tackling mt Everest. When I get to work I always think I'm going to face plant. Felt a bit better this afternoon until someone mentioned someone who I have never even heard of who has taken their life and this has had an awful affect on me and made me feel a quite panicky and my heart is just pounding. Things like this are so upsetting but I'd never heard of the guy before, I don't know why it's made me feel like this.

Beyond exhausted and wanting my life back

 

[[be...]]

Nova,  21..cheers Rounds of banana bread for everyone.

[[...]]

Yes Nova, well done on enduring this. Here's to the rainbows end, not long now