Looking for a success story for akathisia

[[he...]]

I’ve been suffering and just now learned the name of my torturer, akathisia. I can’t stop moving, I’ve always had “ants in my pants” or so I was told as a kid. This is awful, I just do not understand how it’s getting either more uncomfortable or uncomfortable in different ways. Anyone find that Benadryl helps? 
I take synthroid, levels are not hyper and Creon. Neither cause any of these side effects and I’ve been on them for years. I haven’t consumed caffeine in years. I’m being told I have adhd which I don’t doubt but I refuse to take the Adderall given as being on another hard drug is not something I want. Thank you for your support. 

[[Ba...]]

24 minutes ago, [[h...] said:

I’ve been suffering and just now learned the name of my torturer, akathisia. I can’t stop moving, I’ve always had “ants in my pants” or so I was told as a kid. This is awful, I just do not understand how it’s getting either more uncomfortable or uncomfortable in different ways. Anyone find that Benadryl helps? 
I take synthroid, levels are not hyper and Creon. Neither cause any of these side effects and I’ve been on them for years. I haven’t consumed caffeine in years. I’m being told I have adhd which I don’t doubt but I refuse to take the Adderall given as being on another hard drug is not something I want. Thank you for your support. 

Have you taken any psych meds before? Have you been tested for any other neurological disorders? Sorry to hear this.

[[he...]]

I haven’t taken any meds aside from a trial one day dose of Adderall about a month or 2 ago. It actually calmed me down but made my heart race. I do not think I’ve ever been on an antipsychotic. I got off all antidepressants about a year ago. I don’t even know where I’d start to be tested for a neuro disorder. I’m not sure it’s matter if it’s from withdrawal. 

[Guest [...]]

Hi @[he...]

You are only 9 months out from a relatively fast taper, so the akathisia type symptoms are most likely the result of still being in your recovery window.

If you had the same issues as a child, or even leading up before the benzo’s came on the scene, then it’s quite possibly due to sensitivity to a food, certain food chemical, or food additives. It’s very common. 

[[be...]]

Have you noticed the symptoms getting worse after taking your daily dose of synthroid?

I also take synthroid as I am hypothyroid. I became sensitive to my med and had to cut down on it because it was to hard on my symptoms. Even though it's a hormone to stimulate thyroid..I think it also stimulates nervous system.

I hope you are able to figure this our. It's hard.

[[he...]]

@[be...] I had a total thyroidectomy. I just got results back and I am slightly hyper so my meds are being lowered and I’m asking they switch to name brand. So frustrating. Like what is what anymore, all seems to be such a delicate balance. 

[[be...]]

So since you are a little hyper thyroid it could explain the hyperness feeling. 

Glad you got the blood work done. A lower dose should calm things down for you. I'm sure you will feel a difference and rest easier. Whew..we sure don't need any extra stimulation to our nervous system.

Hoping things calm down for you. Hugs

[[he...]]

@[be...] funny, my Dr changed her mind and said bc my levels have been so all over she wants to wait a week and retest before switching the dose. I am crawlingggg

[[be...]]

Ugh..these docs aren't realizing how desperate we are for relief of an overestimated nervous system. What makes her think one week will make a difference?