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Severe pain dystonia


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My dystonia is present now since 4 weeks on the drugs . Which means 21 months now. 
i can only cry from the pain. 
i am 9 months off

i cannot reinstate cause my akathasia was extrme while taking the drug

My akathasia left slowly when  I quit the drug

my dystonia is curving my back in an s shape and it’s so severe I am only crying  all is hard as concrete .

 

Is there anyone here who understands this pain . I am also very weak 

all feels like lead 

bedridden since November 2021

 

 

 

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