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Dysautonomia doesn’t heal


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Went out to the grocery store just now. It was so busy. I felt so overstimulated. I went into the grocery store by myself and felt adrenaline the whole time. Dizzy and overstimulated. Pots was kicking up pretty bad too. 
 

I’ve been reading posts on a dysautonomia forum that people with pots also have sensory overload and constant adrenaline. I’m beginning to wonder if I will ever heal and enjoy life like how I used to. I didn’t have pots before this. I also didn’t have the overstimulating feeling either, I just had  fast standing heart rate. Now im Non functional.

Beginning to think that once you acquire dysautonomia you have it permanently.

I feel so lost, I don’t know what’s causing my issues, all I know is im not improving. 
 

has anyone else felt like this and improved? I’m 13 months post taper and feel terrible 

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I have a raging case of it as well at 8 months off. Never ANY of it before 5/6 weeks use of benzo. Came off and BOOM. These types of POST symptoms exploded. 

 

What symptoms do you have? I wonder if benzo injury is essential dysautonomia when you see the overall of symptoms....

 

I'm so sorry. It's horrendous. 

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Well actually I was experiencing pots when I was taking benzodiazepines regularly, but I didn’t have pots before taking benzos at all. I have a high heart rate standing, and recently I’ve been dealing with a sense of overstimulation whenever I am out of the house. I feel drunk/high and have constant adrenaline. It feels like my brain is going to explode. 
 

it’s important to note that I didn’t have this sort of overstimulation when I first developed pots. All I had was a high heart rate.

im beginning to wonder if my dysautonomia is the cause of my symptoms and not benzo withdrawal anymore 

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19 minutes ago, [[n...] said:

I have a raging case of it as well at 8 months off. Never ANY of it before 5/6 weeks use of benzo. Came off and BOOM. These types of POST symptoms exploded. 

What symptoms do you have? I wonder if benzo injury is essential dysautonomia when you see the overall of symptoms....

I'm so sorry. It's horrendous. 

Well actually I was experiencing pots when I was taking benzodiazepines regularly, but I didn’t have pots before taking benzos at all. I have a high heart rate standing, and recently I’ve been dealing with a sense of overstimulation whenever I am out of the house. I feel drunk/high and have constant adrenaline. It feels like my brain is going to explode. 
 

it’s important to note that I didn’t have this sort of overstimulation when I first developed pots. All I had was a high heart rate.

im beginning to wonder if my dysautonomia is the cause of my symptoms and not benzo withdrawal anymore

 

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My hunch is it's all from the benzos for both of us. It seems to set this off and why? I don't know. I wish I had some stellar advice but know you are not alone. It's awful and I feel for you as I'm navigating the same. 

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