Exercise support group

[[kr...]]

Do any of you find it impossible to exercise in the morning? i feel like a puddle of mud when i wake and cant move it takes so much energy yet i want to get out of bed to get out of my head so the racing bad thoughts go away. I tried walking this morning 3 hrs after waking and felt like i was 90 yrs old. afternoons esp evenings i can handle more but its uncomfortable still with muscles.

any ideas to get moving earlier and why is it like that?...I know that Klonoipin does have something specific to do with muscles vs other benzso.

Its hard to tell how to gage my activity, maybe more massge will help. even that is tiring

Did any of you on klon notice improvement in that area as you got lower ina dose or afete quitting?

Looking back i can remember not being as strong during the latter part of my first run on klon and ever since and going back on it was one of the first things to start happening. didnt even associate it w klon at first. i thought it was the florida heat since i was there at the time or that the gym i went to just wasnt exciting me.duh

[[Ch...]]

Well if theory proves right the hpa axis is deregulated so that would result in dysautonomia most people with dysautonomia have issues with exercise especially in the morning also the adrenal fatigue b a issue with exercise needs time to heal I'm just trying to find the right balance to heal sum say avoid everything except walking and yoga I'm not sure tho I've started to work out harder to produce more bdnf but it leaves me pretty worn out

[[Al...]]

Well if theory proves right the hpa axis is deregulated so that would result in dysautonomia most people with dysautonomia have issues with exercise especially in the morning also the adrenal fatigue b a issue with exercise needs time to heal I'm just trying to find the right balance to heal sum say avoid everything except walking and yoga I'm not sure tho I've started to work out harder to produce more bdnf but it leaves me pretty worn out

 

Chris-Everyone in recovery is different, some people have a longer recovery while other people have a shorter recovery, no two people are alike. I have always exercised in the morning and I continued to exercise in the morning during my entire recovery. Even when I was dealing with the morning blahs I forced myself to exercise and my morning blah's always abated. Listen to your body because it talks to you while you are in recovery.  If you can't exercise in the morning now perhaps in a month or two you will be able to.

[[kr...]]

do I have dysotonia? What's bndf? Today I'm very scared each day harder to move. More pain. Feel like vomiting like dry heave.  Breathing is hard. Feel like I am dying. Do I see a specialist? No one believes I'm so bad on a tiny dose. Pls help advise. Nurse on vacation till mon. Shell think it's in my head from worrying on withdrawal that I create sx.  Doesn't believe those 6 months between klonopin usage that I had any withdrawal

[[dr...]]

.5 K for 1 1/2 years is not a small dose. It's equivalent to 10mg of V. So get that thought out of your head.    It sounds just like a normal ramp in recovery symptoms. Try to accept them and ride it out.  When I get hit bad I can't exercise.  It always leaves.

[[kr...]]

Drew hello was that reply meant for me? you dont think its this dysautonomia? this time w klon  i got the pain and fatigue and weakness. i noticed mild sx of it before going back on it (stupid of me!) to help sleep.

what do you mean a ramp ? come and go sx? You said it always leaves? not sure what you mean. i hope i dont get worse daily i  am alone except a friend comes by to be here. I felt yesterday i was nerve wracked doing errands and then i did a walk and yoga. late,. may have been too much? its so hard to gage.

Everyone says to exercise to ease sx though.

You sound like you have some experience with this  So any advice for am relief?? Its so distressing

I am thinking the sooner it is out of my system my muscles may wake up! i noticed a little improvement on a cut before. I have done 2 ct in past. i quit klon last spring by breaking in qrtrs. i had no advice.

Heres a thought..I had cut half wafer the other night. i have leftover pills and to stretch whats left, i take them too. last night i took on qrtr which is equal to one wafer! so i messed up and went backto where i was..i wonder if thats why it was esp hard today?

I feel like i have to cut back faster cause im having less windows and not enought to hold for long periods (unless pnurse agrees to refill) plus my bf is back the 10th for a week. then gone again a week . then back till oct when we are supposed to go back to FL

I really screwed up taking this crap and not quitting it way earlier when i knew it was a problem. I dont know how jumping will be but if i could atleast go walking and clean my own house etc  take a little swim w my bf.  i have pressure from him and sister to quit

[[dr...]]

Drew hello was that reply meant for me? you dont think its this dysautonomia? this time w klon  i got the pain and fatigue and weakness. i noticed mild sx of it before going back on it (stupid of me!) to help sleep.

what do you mean a ramp ? come and go sx? You said it always leaves? not sure what you mean. i hope i dont get worse daily i  am alone except a friend comes by to be here. I felt yesterday i was nerve wracked doing errands and then i did a walk and yoga. late,. may have been too much? its so hard to gage.

Everyone says to exercise to ease sx though.

You sound like you have some experience with this  So any advice for am relief?? Its so distressing

I am thinking the sooner it is out of my system my muscles may wake up! i noticed a little improvement on a cut before. I have done 2 ct in past. i quit klon last spring by breaking in qrtrs. i had no advice.

Heres a thought..I had cut half wafer the other night. i have leftover pills and to stretch whats left, i take them too. last night i took on qrtr which is equal to one wafer! so i messed up and went backto where i was..i wonder if thats why it was esp hard today?

I feel like i have to cut back faster cause im having less windows and not enought to hold for long periods (unless pnurse agrees to refill) plus my bf is back the 10th for a week. then gone again a week . then back till oct when we are supposed to go back to FL

I really screwed up taking this crap and not quitting it way earlier when i knew it was a problem. I dont know how jumping will be but if i could atleast go walking and clean my own house etc  take a little swim w my bf.  i have pressure from him and sister to quit

 

I don't know what dysauto whatever is and I don't want to google it because I'll have it. 

 

While on my taper I had such bad leg pain, cramps, and other fun stuff it was difficult to walk.  Once off things improved but it was no picnic. Exercise IS helpful unless you over do it.  Also, I don't care what "everyone " says I know my body sometimes just couldn't do it. There is no booklet on how to do this.  It's all trial and error for each one of us.

 

Unfortunately there is nothing that can bring relief except time off the drugs.  Some things can help at times but if there was a way to really lessen this suffering we woukd all know about it.  Sorry to be a truth teller.

[[Ch...]]

Brain-derived neurotrophic factor, also known as BDNF, is a protein[2] that, in humans, is encoded by the BDNF gene.[3][4] BDNF is a member of the neurotrophin family of growth factors, which are related to the canonical Nerve Growth Factor. Neurotrophic factors are found in the brain and the periphery.

[[Ch...]]

More than likely we all have dysautonomia I'm not gonna get into it tho cause people always have ther thought and opinions about this is wd and I would say wd ended in my acute stage deregulation of hpa axis takes on average 2 yrs to recover not everyone is the same dysautonomia is an umbrella term for the atomic nervous system isn't functioning properly or deregulation if ur interested u can google and get specifics I went to the Drs several times never got diagnosed with anything them I came to them and said this is dysautonomia finally they agreed most people with dysautonomia take years searching for a diagnosis cause it's kinda new to the medical industry and often over looked and labeled as something els

[[dr...]]

Then that's what me gots  . Thanks for the description.

[[Ch...]]

It's what we all gots

[[kr...]]

thanks for the info. i dont want to google more than i have to! im assuming all you can do is rest, eat right, etc.. de-stress, therapy...no real "cure" or treatment. bdnf ...still dont get that.  i asked about it cause there have been several things ive seen that indicate getting tests before ever going on ssri etc.  and no one would ever think to do it.  drs only have 10 face time at the office w patient, and insurance wont pay for "unneccessary" tests. genetic tests, mri etc. 

i remember another - hplyori? (spelling?)  and it can do something to keep vit b6 from being utilized to help produce the happy chemicals we need!

another is the mthfr gene

i mean i really read too much its dangerous

[[Sm...]]

thanks for the info. i dont want to google more than i have to! im assuming all you can do is rest, eat right, etc.. de-stress, therapy...no real "cure" or treatment. bdnf ...still dont get that.  i asked about it cause there have been several things ive seen that indicate getting tests before ever going on ssri etc.  and no one would ever think to do it.  drs only have 10 face time at the office w patient, and insurance wont pay for "unneccessary" tests. genetic tests, mri etc. 

i remember another - hplyori? (spelling?)  and it can do something to keep vit b6 from being utilized to help produce the happy chemicals we need!

another is the mthfr gene

i mean i really read too much its dangerous

 

do you mean pyroluria or pyrroles disorder?

with that you produce excess amounts of pyrroles in your production of haemoglobin. those pyrroles then bind to zinc, b6 and biotin meaning you don't have much left for the good stuff zinc and b6 in particular do - like serotonin synthesis

 

hi drew 

[[MT...]]

Kris, I agree with Drew that for most of us there are periods of time (varies from days to weeks to months) when we can't exercise. It's really challenging to determine when it's one of those times and when we just need to push our naturally fatigued selves to get a little exercise. Even walking around your house or up and down stairs or doing light weights can help. It's the most powerful thing I do for anxiety, mood issues, agitation and irritability. But when I get it wrong and I push on what needs to be an exercise free day, I feel much worse. So no guilt for when you can't do it and listen to your body.

[[Lo...]]

Anyone exercise one day and then have jelly legs the next? This is happening to me and my workouts are light.

[[Al...]]

Anyone exercise one day and then have jelly legs the next? This is happening to me and my workouts are light.

 

I think "Jelly Leg's" are a benzo w/d s/d.

[[Ch...]]

I dnt really get jelly legs but I over did it this week now I have crazy fatigue feel kinda sick today think I'm still gonna do sum yoga tho

[[kr...]]

thanks mtfan. i just saw your reply. it is hard to gage exercise. I used to be superfit.

 

drew just responding to  earlier post from you - i was taking half a pill. smallest dose i believe was .5 so i took .25 a day for the most part. I dont think it did a whole lot at least after a while.

[[dr...]]

Hi all...I've been getting hit with anxiety and head symptoms but the anxiety is gone for today.  I decided to start px903 and take it VERY slow. I only made 12 minutes of the first video and I wasn't maxing myself out. How far I've fallen but I figure slow and steady I'll improve.

[[kr...]]

anyone have severe weakness so that it caused panick? mines worse. i walked two days ago in woods a bit. and stretched at night. had to walk a lot yesterday..stress day. today i tried stretching - its hard. i cant hold phone too long. its the wierdest weakest feeling ever, and some pain. even breathing hard. i know you should exercise. dont know what to do.

i dont know what to do. i heard its klon wd. i will be bedridden if this is worse. there are muscle waste diseases that worry me that can include lungs even brain.

anyone else? plus muscle waste? bones show through clothes Im petite in first place.

btw i have been cuttin since signature. down to .031 pm . still .125 am.

first time w klon i was in gym at first. always been active. past year not so much. I just dont remember weakness quitting before (i got insomnai so i didnt get exercise a lot, too tired and anxious) then gradually worse this time around when i began klon again.

[[Ch...]]

Weird every time I work out now I get neck tension makes me dizzy I'm starting to wonder if exercise is messing with my vagus nerve anyone else get this ?

[[dr...]]

chris,

 

I do get sore in my neck a lot.  Pretty common amongst us.  I stopped trying to figure anything out...it drives me more insane than benzos...

[[Ju...]]

Hi, I'm just starting my micro taper off .5 K but because one of the WD symptoms can be insomnia I am trying to work out hard to help me sleep at night. So far so good, but I have been an avid exerciser for several years and had to work up to where I am now. I hope that my taper is slow enough that I can continue and not feel the fatigue that many of you experience. I have a little neck discomfort and don't know if it's from my taper or from my underlying neuro condition of cervical dystonia. In any event I plan to continue my exercise program for as long as I can. It's good for the psyche as well.

Good luck to everyone and thanks to those to offer advice and encouragement!

[[MT...]]

Kris, a lot of us have profound weakness at some point during our taper and w/d. It doesn't mean you'll have it the whole time. Mine was very bad in the beginning then receded but with occasional flares of the symptom. I try to push myself to do something a few times per week but at the same time listen to my body. If I can even exercise for 15 minutes it helps with anxiety and mood. For depression I find the more intense the work out the more it helps but then sometimes I'm flattened afterwards.

 

Chris, I get neck tension, and sometimes back tension and twitching, when I do anything besides walk but it usually goes away by the next day. I'm easing up on some kinds of sit ups to see if it helps.

[[Ch...]]

I eased up this week seems to help I was pushin pretty hard oops but now my neck is having spasms weird looks like a alien in my throat