10 months post taper. Sour saliva 24/7. Doctor offered me Lyrica.

[[Ja...]]

I have had sour saliva 24/7 for over three years now.  I am 10 months post taper and it is getting worse.  I also have a problem with my left ear.  Stiffness, fullness, numbness.  I had a parotid gland removed from left neck three years ago.  I was complaining of a salty taste and feeling awful.  I had an ultra sound and a tumour was detected.  The gland was removed and the tumour was benign.  My symptoms did not improve.   When I look back now I believe I was in tolerance from taking 15mg Dalmane for 22years.  If I knew that I could have saved myself an operation.

I am now 3 years on from that operation and the sour taste is awful.  I have had every test and at this stage my doctor suggested Lyrica.  I am 10 months post taper from Dalmane.  My doctor knows I am very reluctant to take medication after my experience with the tolerance and withdrawal from Dalmane.  She asked me to go away and think about it.  I have been constantly visiting my doctor since last April and have been in ER four times.  I know I am becoming a nuisance.  But Lyrica may add to my problems.
 

I would appreciate any advice. 

 

 

[[Le...]]

I wouldnt. Lyrica have some similar long term concerns as everything else they will offer you. 

 

I have all the issues you do and hyperacusis too. much worse in left ear. It has improved greatly but lingers more than anything else. I am over a couple years off and it is almost gone. 

Do you feel/hear a pop/crackle when swallowing?  the oral problems can often cause eustacian tube problems that complicate these things. Ever try coconut oil pulling?  A single dose of nasal spray?  If you improve hours after the nasal spray it may suggest the tube isnt closing and is inflammed. How are your sinuses?

Edited August 6 by [Le...]

[[Ja...]]

Thanks Lee1978a for your reply.  I will try the nasal spray.  I have had no problems with my sinuses so far.  I am wary of everything the doctor offers me now and she knows it.  I have become a very difficult patient but I have to say that is the doctors fault not mine.

 

[[PE...]]

Sour saiva?? I don’t understand..

Lyrica gives HARD withdrawals. If you choose to take it don't do it everyday. 

 

[[PE...]]

Wow i have exactly the same tumour!

It produce a hormon giving me high bp.

I will remove it.. not cancer 😊

[[Ja...]]

@[PE...]

thats amazing, you have a parotid tumour too.  It makes me wonder had the benzos got something to do with its growth. I would not have had the operation if I knew the tumour was benign.  I have had several operations before but this one I found the most gruelling.  Also the facial muscles are involved and there is a risk of facial paralysis. I would have it monitored if I were you and make sure it is not growing too fast, if it is you will have to have it removed.

I never knew it effected BP.  My blood pressure has been high ever since I got it removed.  I am on medication for BP now.  

[[Ja...]]

@[PE...]

my mind is made up.  Between hard withdrawals and possible addiction, it is not worth the risk.

[[PE...]]

23 hours ago, [[J...] said:

@[PE...]

thats amazing, you have a parotid tumour too.  It makes me wonder had the benzos got something to do with its growth. I would not have had the operation if I knew the tumour was benign.  I have had several operations before but this one I found the most gruelling.  Also the facial muscles are involved and there is a risk of facial paralysis. I would have it monitored if I were you and make sure it is not growing too fast, if it is you will have to have it removed.

I never knew it effected BP.  My blood pressure has been high ever since I got it removed.  I am on medication for BP now.  

I read that 10% of everyone having high BP have this tumour. I had it for 20 years. It was tiny but growed some. 

[[PE...]]

22 hours ago, [[J...] said:

@[PE...]

my mind is made up.  Between hard withdrawals and possible addiction, it is not worth the risk.

Very wise choice. Going from one withdrawal to another is a stupid choice IMO.

😊

[[PE...]]

23 hours ago, [[J...] said:

@[PE...]

thats amazing, you have a parotid tumour too.  It makes me wonder had the benzos got something to do with its growth. I would not have had the operation if I knew the tumour was benign.  I have had several operations before but this one I found the most gruelling.  Also the facial muscles are involved and there is a risk of facial paralysis. I would have it monitored if I were you and make sure it is not growing too fast, if it is you will have to have it removed.

I never knew it effected BP.  My blood pressure has been high ever since I got it removed.  I am on medication for BP now.  

They can produce all kinds of hormones. As that's what that gland does. It's like the chemical factory of the human body.