SYMPTOMS GOTTEN WORST AT 14 1/2 MTHS OUT , HAVING A DIFFICULT TIME

[[Be...]]

Well this is very good news then (imo). Better than something more sinister and threatening. I think that is wonderful you have such a great rapport with your doctor That's what more of us need lol.

[[Su...]]

Thanks Sunny I appreciate your comments, yes I do research alot,he symptoms for menopause , but these symptoms are OVER the top , its not menopause symptoms at all!!!!!!!!!!! , you dont start to sting by just a scratch , or by a touch , or massaging your arm etc... theres no way!!!!!!!, my neck is so tensed , muscle spasms, throat muscles constrict every time especially if I even massage my neck, my tongue pulsates , seriously do menaopause do that, theres no way, the weakness is a nerve weakness, my family Dr and my Endoncronoligist also said these symptoms are far to extreme to be caused by menopause, its unheard off, as far as my 1 adrenal gland , again the specialist said theres no way it will cause this, because my other adrenal gland functions perfectly to make up the difference, its so perfectly functioning that I dont require any hormone supplements and she said I didnt need to any more follow up appointments, and that if I had amazing windows b4 then theres NOWAY my adrenal is effecting me at all!!!! Theres no other test required to determine what is wrong with me or what is causing this, other then Benzos , and taht maybe just maybe I have could be one of the few if any have severe parethesia taht no longer will get better. Sunny I am post menopause still, and did I read or misunderstand that you have 1 adrenal gland ? if so what one is removed the mudella, or cortex?

 

It is my right adrenal gland that is completely calcified.  I am so glad to hear that the specialist says the remaining adrenal will take up the slack.  My surgeon basically said the same thing, so I won't worry about it, now.  It is very hard for me to trust what my doctors tell me.  I am so glad to hear this Laura.  One of my doctors did say that menopause could be a little rougher, so I wondered about that.  He was not a specialist, though.

 

I have that tensed neck, shoulder....that burns, and runs up into my head.  I have spasms in different places....the digestive tract being one that is very aggravating.  

Laura.....I am so glad that you told me what your doctors said....because I have been so troubled by not knowing whether this was all benzo symptoms.  You have helped me so much.

 

I truly hope that you are going to heal completely.  I will be praying for you.

 

Love, 

Sunny girl

 

 

[[...]]

Hey Laura,

 

Have you read benzo wise?  The book by Baylissa Frederick (she has since changed her name).  I see you were on klonopin and so was she.  I've noticed a pattern with klonopin users.  They seem to get hit with more physical nerve pain type issues and it seems to last longer for them.

 

It took her 28 months to fully recover and, no, she was not severely ill the entire time by any means.  Her book is not scary and it may help you to realize you are still in the healing process.

 

Another survey I read showed only 67% of people considered themselves fully healed after 1 year yet 91% were healed by 2 years. 

 

The majority of people are recovered by the 18 month mark and you are very close to getting there.  I'm so sorry you are suffering so but I believe your symptoms are benzo withdrawal.

 

You will heal.

[[he...]]

Thank you Ben , and Sunny

 

Thank you too Sunny for validating what your Dr told you too, its the same thing my Endroncoligist said to me and she is a specialist on Adrenals , my Family Dr said maybe just maybe Menopause might be a little different then some, but he said he doesnt know for sure. But I do know he also told me that my tongue throbbing , the nerve weakness , the touch sensativity where I go weaker and stinging more intense , and pressure around my neck just by touch , is NOT 100% Menopause symptoms at all!!!!! he said thats for sure!!!!!!!!!! He said if anything could be Anxiety , hot flashes I no longer have , but NOT Stinging and Carpet burning is not menopause , he said it also does not wax and wane come and go . So its is benzo !!!!!!!!!!!!!!!!

[[he...]]

Thank you L123 xoxoxox

[[...]]

 

you can do this, laura. 

[[he...]]

Thank you sweetie :smitten:

 

GOT MY HAIR DONE , WENT TO MY DR AGAIN TONITE , AND ASKED HIM IS IS ANY OFF THESE SYMPTOMS ALL RELATED TO MENOPAUSE , HE ASSURED ME THAT THE TOUCH SENSATIVITY IS NOT MENOPAUSE, THE WEAKNESS IS NOT MENOPAUSE, HE AGAIN TOLD ME ITS STILL W/D , AS I SAID HE TRULY BELIEVES ITS ALL BENZO RELATED , HIS PREVIOUS PATIENT TOOK TWO YEARS TO RECOVER FROM KLONIPIN

[[Be...]]

But they recovered, right?  That is very good news, Laura.  Where there is life there is hope.  Keep looking up. 

[[he...]]

Thanks Beeper ,

 

I dont understand why others dont validate that it can take 2 years for recovery, I feel that once someone is not recovered shortly after a year all of a sudden others think theres is something else wrong , an underlying medical condition , I find just because others may or do recover b4 the 2 years they feel that everyone else should also recover by then. Its a scarey thought when your on a support group Forum and your still on times are not validated that its still w/d when you go beyond that 1st year. I am not referring to anyone , just in general, I was on other Forums in the past it seems it was the same pattern of ones thinking.Just my thoughts.

[[am...]]

Noone is claiming that some people take longer to heal than others.

 

Some people manage to go to Work during acute withdrawal whilst others do nothing to help themselves and whine about every twinge.

 

 

We all know there is no set pattern, some people accept it more readily than others and do what they can.

 

 

What frightens me is the amount of new age alternative therapies that are in integral part of these kind of forums.  Everyone is ready to blame withdrawal for anything, but these crazy therapies are revered.

 

That's scary for me.

 

No logic or reason.

 

 

[[Be...]]

Some people manage to go to Work during acute withdrawal whilst others do nothing to help themselves and whine about every twinge.

 

This is quite insolent for someone who has over 900 posts on this forum. No disrespect amano, but wtf? I am in agreement about the alternative therapies. I especially think the supple-mentality that many are falling into is very tragic, as the supplement industry has many parallels with big pharma. I'm not trying to be rude, but I think that it is more productive to support and encourage people (like you awesomely did on my "physically pushing yourself" thread), rather than adopt a callous and unfeeling disregard for other peoples w/d.

 

[[am...]]

Some people manage to go to Work during acute withdrawal whilst others do nothing to help themselves and whine about every twinge.

 

This is quite insolent for someone who has over 900 posts on this forum. No disrespect amano, but wtf? I am in agreement about the alternative therapies. I especially think the supple-mentality that many are falling into is very tragic, as the supplement industry has many parallels with big pharma. I'm not trying to be rude, but I think that it is more productive to support and encourage people (like you awesomely did on my "physically pushing yourself" thread), rather than adopt a callous and unfeeling disregard for other peoples w/d.

 

 

No disrespect but for someone who has a touch over 100 posts, I find that a bit petulant  ,  I'll refrain from the coded expletives 

 

There are many people who HAD TO work through the thick of acute withdrawal, our very own Pamster worked through a CT!  That is a fact, many people take the initiative and try to help themselves as best they can.  Similarly some people do nothing to help themselves, in fact they become so accustomed to the "victim" role that they come to expect support and encouragement over every little problem that comes up, they forget that they have to help themselves, they blame everything on withdrawal.  Now this is not directed at any one person, but there are people like this through these kind of forums.

 

 

Now you suggest that I have adopted a callous and unfeeling disregard for other people's w/d.  That is not the case.  Whether it is withdrawal or any other facet of life, if a person is not willing to attempt to help themselves how long should support be doled out to no end?  I certainly believe there has to be limits.  Just like I believe the only person that can make the change is the person in question.  Again this is not directed at anyone in particular.

 

 

 

 

 

[[Ho...]]

Whether it is withdrawal or any other facet of life, if a person is not willing to attempt to help themselves how long should support be doled out to no end?  I certainly believe there has to be limits.

 

So at some point everyone should stop giving that person support and call them a whiner? Where is the standard on that subject written?

[Guest [pu...]]

Amano,

Do you believe that everyone is capable of working through withdrawal, ct included, if they only would push themselves or try harder?....or just most people?

[Guest [Si...]]

Laura,

 

Most of the stories I have read are at 18 months - 2 years.

 

Yes, it can take 2 years, but you will heal.

 

 

[[...]]

Thank you sweetie :smitten:

 

GOT MY HAIR DONE , WENT TO MY DR AGAIN TONITE , AND ASKED HIM IS IS ANY OFF THESE SYMPTOMS ALL RELATED TO MENOPAUSE , HE ASSURED ME THAT THE TOUCH SENSATIVITY IS NOT MENOPAUSE, THE WEAKNESS IS NOT MENOPAUSE, HE AGAIN TOLD ME ITS STILL W/D , AS I SAID HE TRULY BELIEVES ITS ALL BENZO RELATED , HIS PREVIOUS PATIENT TOOK TWO YEARS TO RECOVER FROM KLONIPIN

 

 

Yep.  It is not unheard of for someone to take 2 years to heal.  I've seen many people on the forum have it pretty rough between 14-18 months.  I know you are really struggling right now.  I do believe you will heal, Laura.  

[[...]]

Amano,

Do you believe that everyone is capable of working through withdrawal, ct included, if they only would push themselves or try harder?....or just most people?

 

Uh...no amount of will power/positive affirmation crap could have enabled me to work the first 5 months after detox...and, believe me, I tried. 

 

I would never judge someone with serious symptoms still past the 1 year mark.  We all heal at different rates.  While it is invalidating enough to have our very own doctors deny withdrawal, how much worse people who have actually been through withdrawal themselves telling others they are whining?  WOW.  That is truly unbelievable to me. 

 

I am basically healed at this point and just sticking around here for a bit longer to offer encouragement and let people know healing happens.  I healed at 15 months, others at 9 months, some at 18 months...regardless, this is supposed to be a place for support.  If you feel the poster is "whining" then keep it to yourself.  I would be devastated if my only source of support throughout withdrawal then turned on me telling me what the doctors say, basically, it's all in your head.  Give me a break.

[[Ho...]]

Amano,

Do you believe that everyone is capable of working through withdrawal, ct included, if they only would push themselves or try harder?....or just most people?

 

Uh...no amount of will power/positive affirmation crap could have enabled me to work the first 5 months after detox...and, believe me, I tried. 

 

I would never judge someone with serious symptoms still past the 1 year mark.  We all heal at different rates.  While it is invalidating enough to have our very own doctors deny withdrawal, how much worse people who have actually been through withdrawal themselves telling others they are whining?  WOW.  That is truly unbelievable to me. 

 

I am basically healed at this point and just sticking around here for a bit longer to offer encouragement and let people know healing happens.  I healed at 15 months, others at 9 months, some at 18 months...regardless, this is supposed to be a place for support.  If you feel the poster is "whining" then keep it to yourself.  I would be devastated if my only source of support throughout withdrawal then turned on me telling me what the doctors say, basically, it's all in your head.  Give me a break.

 

 

Same here. I could barely WALK for the first 6 months. It gets me how people with a minimal withdrawal can judge others who have suffered greatly for a long time. You'd think they would have a little more compassion and if they don't, then they don't need to be on a support forum. JMHO

[[Ma...]]

Hi

We are all different. Similar but different symptoms, different time for recovery, we all differently accept or not accept w/d. So basically every story is unique and it is not good comparing with others totally and get upset if someone similar to you heal faster. That knows to be very frustrating and bring you more and more worry what you don't need. As I read in The Ashton Manual and posted here some symptoms may last longer for someone.

Don't worry cause you will be fine. Every your medical test was good and that is great. You are healthy just need more time for benzo's recovery.

Take care

 

Marija

[[am...]]

Whether it is withdrawal or any other facet of life, if a person is not willing to attempt to help themselves how long should support be doled out to no end?  I certainly believe there has to be limits.

 

So at some point everyone should stop giving that person support and call them a whiner? Where is the standard on that subject written?

 

That is an individual choice and I am not one to tell others what they should and shouldn't do.  I know where I draw the line,  where others draw that line is none of my business.

[[am...]]

Amano,

Do you believe that everyone is capable of working through withdrawal, ct included, if they only would push themselves or try harder?....or just most people?

 

This question is moot.  There is no way to ascertain an answer.  I could only work the first week of my CT, after that I took time of, there are however people who have no choice but to work through.  I would imagine most people can work through a taper, depending on how resilient they are to their symptoms.

[[am...]]

 

 

I would never judge someone with serious symptoms still past the 1 year mark.  We all heal at different rates.  While it is invalidating enough to have our very own doctors deny withdrawal, how much worse people who have actually been through withdrawal themselves telling others they are whining?  WOW.  That is truly unbelievable to me. 

 

I am basically healed at this point and just sticking around here for a bit longer to offer encouragement and let people know healing happens.  I healed at 15 months, others at 9 months, some at 18 months...regardless, this is supposed to be a place for support.  If you feel the poster is "whining" then keep it to yourself.  I would be devastated if my only source of support throughout withdrawal then turned on me telling me what the doctors say, basically, it's all in your head.  Give me a break.

 

I take it you are referring to me leslie.

 

Sorry but some people do whine, others get on with things, it's a fact, you don't have to like it but it is the truth.

 

 

[[am...]]

 

Same here. I could barely WALK for the first 6 months. It gets me how people with a minimal withdrawal can judge others who have suffered greatly for a long time. You'd think they would have a little more compassion and if they don't, then they don't need to be on a support forum. JMHO

 

Minimal withdrawal, sorry hun, I could throw that right back at you and say people who have come off small amounts of benzos have no idea of real withdrawal.

 

I assure you my CT was as bad as it gets and  I still have a ton of symptoms.  I just don't whine about them all the time.  There is nothing that anyone can do for them so I just get on with things, like I have done since I realised this is going to take a very long time.

 

I'd rather not burden others with my misery, instead I'll keep my proactive attitude that has allowed me to function.

 

Like you I could barely walk, constant vertigo, hallucinations, head pressure, muscle weakness, major fatigue with a 5.5 month visual/full migraine.  I forced myself to cycle and go to the gym, even if it meant I would not sleep for 2 days.  I did it.  I forced myself to cycle 100s kms every week because I didn't want to be a bedridden burden to my wife.  I had agoraphobia for months but forced myself to go to malls and busy places to overcome it, rode out further and further into the mountains,  I was determined to do everything that I could.  I made myself a better person for it.

 

Now with all the horrible symptoms that I still have I work a full time job and two part time ones, I MAKE myself do it, I take no pleasure, it's something I have to do to get to the end.

 

 

This is how I deal with my withdrawal so please, where do you get off telling me that I AM WRONG for doing this?  Would you prefer it if I sat back and whined about it?

 

Here, a list of what is wrong now.

 

Head pressure.

Headache,

Severe pain in lower spine, running down right buttock and leg to my heel.

A sensation of hot water being poured randomly over my body.

My tongue feels like I am licking a battery

I feel like I am falling backwards in my chair.

Each time my heart beats it feels like my whole body is expanding.

I see darting flashes of neon colors.

I see shadows moving in my peripheral vision.

My lips and around my mouth feel like I have sunburn.

I have huge floaters

Blood pressure is very low.

I can't focus properly on small objects

my right eye is constantly watering and feels like there is sand in it

when i go from a light to dark room I see flashing zig zigs all over the place for 30 mins

after I eat I get incredibly weak to the point of feeling like I'm going to pass out.

I don't sleep properly.

I go to the washroom every hour.

 

the list goes on and on.  everything's been tested, there's nothing wrong to worry about.  there's nothing I can do so I get on with things lest I fall into a pit of despair and self doubt.

 

Sorry if this rubs you the wrong way but get off your high horse and don't ever tell me I don't know about withdrawal.  You can't even begin to imagine what it was like coming off everything I did.

 

Edit: now I turned the fan off, I can hear the screaming tinnitus again.  Cool.

 

 

[[he...]]

All I wanted to know when I started this topic if anyone else experienced any set backs , got worst , etc.... I too push forward , I dont sit around and feel sorry for myself , I dont sit around and ask for pity, I too work, I run our company, I go walking when I can ,I cook, clean, shop, do errands, I have a family I take care off but at times I have a very difficult time because of this parethesia is triggered by any stimulation, I live my day as best as possible. If I come off feeling needy I am sorry for that , not every one can deal with w/d's the same way as obviously I cant deal with it to good myself , the fear over takes me , and the physical pain, is overwhelming , I am not saying that my pain is any worst then anybody elses , I am just saying this is how I feel and how I cope or not cope with it. And I do know that there are many others on this Forum are suffering 100x's more then I can possibly imagine , it breaks my heart . Too me if someone do not like what I post , then they do not need to reply or even read my post. I do appreciate the support of the ones that do , God Bless them .

 

Thank you everyone for your support and comments, Love you all.

 

God Bless

xoxoxo

Laura

[[Li...]]

Happy Friday Laura, I pray you are feeling much better today! 

 

Amano means well...what he is trying to tell us is that the only thing we can control in this benzo nightmare is our attitude towards it. The physical symptoms will be here until they are gone...when they leave depends on the individual and their brain chemistry. Remember, there are people who have c/t nad tapered these drugs with no side effects (my very dear friend is an example). We are making progress, we are healing, and we are all in this together! 

 

Take care,

 

Lida