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Considering kolonopin updose, help please


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In treatment he was stabilized at 8mg  and was also put on 900mg gabapentin to take with each dose. The doses started out at 2.5mg of kolonopin in the morning along with 300mg gabapentin 

2.5mg of kolonopin at midday along with 300mg of gabapentin

And then 3mg of kolonopin at night with another 300mg of gabapentin along with 2mg of doxazosin 

At one point he was taking propranolol with each dose now it's only as needed for heart rate. 

He has been tapering at .125 per month for the last 9 months. At first with the cuts he would experience air hunger for a week or two with other withdrawal symptoms that were tolerable but annoying, he always takes his medicine at the exact same time each day

7:40am kolonopin 8:00am gabapentin

1:40pm kolonopin 2:00pm gabapentin

7:40pm kolonopin 8:00pm gabapentin 

At the beginning in the treatment center he did 2 cuts at .25 in a 4 week period, he did 1 cut at .25 for a month and the rest of the months have been cut at .125 every 4 weeks on a Monday. After a few months he noticed that the withdrawals were lessening and were so minimal they were almost non-existent. All cuts have been made using his morning and midday doses. In order to have complete peace at night. The last two months Dec/Jan he did his cuts as usual but he got sick with bronchitis which lasted about 6 weeks. He use to spend most of his time driving however when he got sick he spent lots of time on the computer, phone, and binge watching tv for almost three weeks. He noticed that he started to develop screen sensitivity so he stopped watching tv all together stopped using his computer completely and only looked at the phone to make calls or finding something to listen to. Now even just listening to things bothers him, simply being a passenger in a car makes him need to rest for the rest of the day. A neurologist told him that the excessive screentime caused this and then his addiction specialist said that you should not binge watch screens while tapering. (Thanks for the heads up lol) Now he feels his symptoms everyday from the excessive screentime are slowly getting worse. Things like muscle twitching and spasms including a growing restlessness in his legs. His last cut was on the 22nd and he was experiencing excessive screen symptoms over a week before that cut. He has maintained his last cut for 9 days and he is currently taking a total of 6.25mg kolonopin per day and 900mg gabapentin per day. He is considering updosing by either a minimum of .125 or .25 max increase and then holding it for a month and then tapering by .125 on the next cut. He is the kind of person where his body craves the cut a week before it's due and he feels better after making the cut once the withdrawal symptoms subside. He feels his taper is going well but the neurological symptoms are getting worse. At this point he feels out of options and his heavily leaning towards the updose do to the symptoms he's been experiencing not getting any better. He still is unable to look at screens of any sort and is also unable to be a passenger in a car without having to recoup for the rest of the day, he was told by his benzo specialist that it was not ideal to make a cut after experiencing the excessive screen stimulation. 

he is wondering because his dose is so high, would a minor updose help to alleviate the neurological symptoms he's been experiencing as they are preventing him from being able to take care of his family. 

before he got sick and before the excessive screen time he had none of these symptoms, he was rolling along with his taper very successfully... 

Options: 

1. Updose by .25 and stay there for thirty days then taper down by .125

2. Updose by .125 and then stay there for thirty days then taper down .125  OR hold for two months before tapering 

3. Attempt to hold where he is now and possibly wait a month or two before making another cut.

 

 

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Hi @[He...]

Welcome to BenzoBuddies!

Thanks for looking out for your friend. He is lucky to have you. Just a couple of questions, and I understand if you don't know the answers. Do you know why his dose was raised from 2.5mg to 8mg? Was this done in the treatment center? Why is he in a treatment center and are they in charge of overseeing his taper? Are they allowing him to follow his own taper rate? Has he ever used benzo's prior to this attempt of tapering off?

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Hello Helping.a friend. Please get your friend some earplugs,  he has tinnitus and its excruciatingly painful to hear sound. He can eventually desensitize by taking them out when he's alone and can adjust sound for comfort.

I hope so much for his recovery 

Thanks for being a good friend to him

Ns

Edited by [ns...]
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@[je...] he didn't go from 2.5-8...

Before he went to treatment he was taking 6-8 2mg bars of Xanax per day in 3/4 weeks he dropped that to 5mg of Xanax per day which was complete hell for him for a good two months before he was able to stabilize. Then a few months after he increased his dose to 7mg of Xanax for 14 days and then tried to go back to 5mg which he was unable to do so he landed at 6mg. At that point he started watching tv and was really trying to wait it out to get better this is when he got too much visual stimulation the first time and started having seizure like symptoms (jerking and such) after a few weeks he tried to commit suicide and had to have surgery which left him in ICU for eleven days where they switched him instantly from Xanax to Ativan, they messed with the dose multiple times while he was still in the ICU.. during the eleven day stay in ICU he did not watch TV or have a cell phone, or radio or anything like that .. after getting out of the ICU he was transferred to the psych unit for nine days where he was instantly put on an inadequate dose of kolonopin where he was experiencing interdose withdrawals for nine days after the nine days he was sent to a treatment center where they moved him up from 6.75mg of kolonopin that was being taken at the psych hospital and was increased to 8mg at the treatment center... He is currently at 6.25mg of kolonopin and feels like he needs to updose either .25 or .125 to help reset the current visual over stimulation symptoms....

Hope this makes more sense and is helpful

We are just trying to get an idea on the updose... Has it helped anyone here alleviate symptoms, or will this just be a set back

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9 minutes ago, [[H...] said:

@[je...] he didn't go from 2.5-8...

Before he went to treatment he was taking 6-8 2mg bars of Xanax per day in 3/4 weeks he dropped that to 5mg of Xanax per day which was complete hell for him for a good two months before he was able to stabilize. Then a few months after he increased his dose to 7mg of Xanax for 14 days and then tried to go back to 5mg which he was unable to do so he landed at 6mg. At that point he started watching tv and was really trying to wait it out to get better this is when he got too much visual stimulation the first time and started having seizure like symptoms (jerking and such) after a few weeks he tried to commit suicide and had to have surgery which left him in ICU for eleven days where they switched him instantly from Xanax to Ativan, they messed with the dose multiple times while he was still in the ICU.. during the eleven day stay in ICU he did not watch TV or have a cell phone, or radio or anything like that .. after getting out of the ICU he was transferred to the psych unit for nine days where he was instantly put on an inadequate dose of kolonopin where he was experiencing interdose withdrawals for nine days after the nine days he was sent to a treatment center where they moved him up from 6.75mg of kolonopin that was being taken at the psych hospital and was increased to 8mg at the treatment center... He is currently at 6.25mg of kolonopin and feels like he needs to updose either .25 or .125 to help reset the current visual over stimulation symptoms....

Hope this makes more sense and is helpful

We are just trying to get an idea on the updose... Has it helped anyone here alleviate symptoms, or will this just be a set back

It could be he's been off and I to.many times. Up and down can lead to kindling as I just learned and I'm in it. If so, he's miserable and going uo isn't the answer 

I hope someone can talk to him and ask him how each dose makes him feel when he takes it, is he calm when he takes it, is he agitated? These are important questions for him. If he's agitated with the dose, more irritated more anxiety he should be tapering down. 

I sure hope someone can find our.

I'm so sorry your friend is suffering and I do hope he recovers soon

Ns

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He's been tolerating the tapering quite well up to this point... 

A neurologist told him the over stimulation was due to excessive screen time.. the doctor told him excessive screentime while tapering can cause seizures... So basically he was considering an updose to try to avoid risk of seizure....

Hope this is all coming out right, I'm literally just writing what he says while we talk since he's unable to tolerate screens right now. 

Side note y'all are the absolute best, the past few days we've been going thru threads trying to find answers to questions and just want you to all know y'all are the real MVPs keep fighting the good fight

 

 

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7 minutes ago, [[H...] said:

He's been tolerating the tapering quite well up to this point... 

A neurologist told him the over stimulation was due to excessive screen time.. the doctor told him excessive screentime while tapering can cause seizures... So basically he was considering an updose to try to avoid risk of seizure....

Hope this is all coming out right, I'm literally just writing what he says while we talk since he's unable to tolerate screens right now. 

Side note y'all are the absolute best, the past few days we've been going thru threads trying to find answers to questions and just want you to all know y'all are the real MVPs keep fighting the good fight

Yes they are great here. I think if u can just ask him how he feels after taking his dose, you'll have your answer. I have screen time  I guess it' could be making me more anxious but not like that as far as I know but it could be for him. He's in a different setting, he's not home and probably irritable and restless. But please ask him, hey when you tske your pills, do u get more anxious or relaxed. If he says he gets more then you'll know. I have this issue now. I'm inna kindling situation and a paradoxical reaction to lorazapam. Had to go off so I'm tapering.  But he may try to convince that he's better with more.  Think about thar, why? If he needs more it means the one he's taking now isn't working. So it's important to find out if it's the actual pills he's taking are causing him more harm than good. I  hope you can get the answer. If he does say yes to this, let whomever you talk to here know this ok. 

Gosh I really hope you can get him the right kind if help he needs. It may be a long journey buy will be worth it in the end 

Take care now 

Ns 

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40 minutes ago, [[H...] said:

We are just trying to get an idea on the updose... Has it helped anyone here alleviate symptoms, or will this just be a set back

Thanks for clarifying your original post. I understand you want answers about the updose, but we need some background information so we can give you the best advice. Updosing doesn't happen in isolation and there are many factors to consider going forward. 

Can you briefly provide me answers to the following please, as that will influence what type of advice I recommend.  

Is the treatment center in charge of his taper? Are they allowing him to follow his own taper rate i.e. can he make changes to his dose as he sees fit for the duration that he remains there? 

Has he ever used and ceased benzo's prior this attempt of tapering off?

Can you also tell me, approximately what date did he start reducing from 8mg K?

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@[je...]

He's back home now, he's out of the treatment center...

He has some control over his taper while his addiction specialist has the final say. 

Not sure the exact date however it's been almost a year now since he began tapering

Side question... Do you think increasing gabapentin would help to ease the current symptoms

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3 hours ago, [[H...] said:

@[je...]

He's back home now, he's out of the treatment center...

He has some control over his taper while his addiction specialist has the final say. 

Not sure the exact date however it's been almost a year now since he began tapering

Side question... Do you think increasing gabapentin would help to ease the current symptoms

Helping.A.Friend,  oh so great to hear this. 

I'm sure he's si happy to be home!

Does the gabapentin help him? What are his symptoms?

He takes quite a bit already.  I had to go off of gabapentin, it made me worse. Before benzos I was on it for over 10 yrs for trigeminal neuralgia but that thankfully went away. I tried it again while in withdrawal 3 yrs ago and it only made me feel worse after about a month. Gabapentin is a pretty strong and most on benzos csnt tolerate it, but if it helps someone that has to be they're decision as to weigh the side effects vs the benefits to him. I think a doctor should answer this question. It's important for each person to do what works for them. Gabapentin is a drug he will eventually have to taper off as well so keep that in mind.

How is he doing? Is he stable, feeling better? Did u ask him if when he takes his dose does it help him or does he get more anxiety, tension, irritable etc. This is important to know.

I'm so happy to hear he's home. This should help him in his recovery. 

Ns

 

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4 hours ago, [[H...] said:

@[je...]

He's back home now, he's out of the treatment center...

He has some control over his taper while his addiction specialist has the final say. 

Not sure the exact date however it's been almost a year now since he began tapering

Side question... Do you think increasing gabapentin would help to ease the current symptoms

Thanks for this. My observation from this site is there are no guarantees when it comes to updosing but generally updosing seems to be more successful when people have tapered too fast. In his case I don't think the taper has been too fast. Most of the cuts have been around the 1-2% mark. Many people will cut at a much higher percentages when they're at these high doses. 

You also say he seems to crave the cut and feels better when he's going down. I'm not entirely sure whether an updose will work, but if he feels he's out of options he can try. It's not going to be a huge set back to his taper in terms of the numbers. 

I'm not sure where these screen sensitivities are coming from all of a sudden. I do know some people in withdrawal have them. I never had it and during my difficult times I binged a lot of TV to distract, so it's not a problem for everyone. I'm wondering if it might be related to tolerance withdrawal? Especially since he's feeling better going lower. I would suggest if he starts tapering again to maybe make his cuts every two weeks instead of monthly. Especially if it's going to be such small cuts.

Adjunct medicine is a hit and miss for people. I really don't know if increasing gabapentin will work. 

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@[je...]@[ns...] thanks for the responses and input.. I'm reading these back to him now. And he's weighing out his decision.. he also met with his doctor today, we shall see what happens. 

 

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15 minutes ago, [[H...] said:

@[je...]@[ns...] thanks for the responses and input.. I'm reading these back to him now. And he's weighing out his decision.. he also met with his doctor today, we shall see what happens. 

No problem jelly baby, I hope I'm not interfering. Just hard to see someone going thru so much. Si glad your here! 

Ns

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3 minutes ago, [[n...] said:

No problem jelly baby, I hope I'm not interfering. Just hard to see someone going thru so much. Si glad your here! 

Ns

No you're not interfering. This a peer support forum, so everyone is welcome to comment and nobody here is an expert. :)

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Ok so I guess he's still struggling to make a decision...

He has a timeframe or window period to make the decision to do the updose... It's been ten days since the last cut and he's considering doing the updose soon.. he is just curious if anyone had any other thoughts or feedback on it. 

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2 hours ago, [[H...] said:

Ok so I guess he's still struggling to make a decision...

He has a timeframe or window period to make the decision to do the updose... It's been ten days since the last cut and he's considering doing the updose soon.. he is just curious if anyone had any other thoughts or feedback on it. 

Helping.A.Friend,  how are you today?

Sounds like u might be a little overwhelmed. 

This decision to updose has to be one made by Your friend himself. We here try to offer our experiences and ideas as to what has worked and for ourselves and others. Only he knows how he feels when taking his dose, if he needs to updose or cut. My only concern is that updosing could cause tolerance if he's been cutting for awhile. I updosed for 2 weeks and had to go back down because tolerance had already began which made taking my medicine difficult. 

He should know if he feels relief with his current dose or he is feeling agitation with it. If he's needing to updose, the question for him is why. If he is trying to get off of the benzo he really should continue to taper down. There are instances where you updose to stabilize if you haven't stabilized for a lengthy period of time. This is done usually to help the person stabilize and begin reducing again. 

I emphasize this because of my experience with tolerance and reaction to my pills. They do the reverse of their intended purpose and tapering is difficult with every dose. 

So I truly hope he listens to what his body is telling him, to ask himself if he is truly trying to taper, or does he want to keep taking it? Does his current dose agitate him or relieve symptoms for a period of time, no matter how short it may last? If he is dedicated to tapering off, his response should be, I want to get off of these! How do I accomplish this  with the least amount of symptoms in withdrawal.  Withdrawal can be difficult and uncomfortable, unpredictable and at times frustrating. It takes time. 

. It sounds Iike he's been tapering successfully for quite some time so hopefully he can continue tapering until finished.

When we go thru withdrawal, the symptoms are for the most part difficult.  We reach for the one thing that gave us relief when we first started taking the drug if we can still tolerate it. Please keep.this in mind as he may be wanting to updose for that reason. You said he had tinnitus. His ears were sensitive to hearing now, this was the first symptom I had and I thought taking another pill would stop the pain, but it only helped for a couple days. My brain wanted more but it wasn't good for me anymore it was actually hurting me.

I don't want to discourage him, I'm just concerned because of his history and want the very best for him.

Feel free to ask questions as to my comments as I am here most of the day and am happy to help if I can. 

Take care

Ns

 

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Yes I am sooo overwhelmed thank you.

Ok so his response to your message....

As you can see by his history he def want to get off this medication, also rather than just updosing he came here for help and guidance. Since he hasn't changed his taper yet he's still tolerating it very well but after getting sick along with the excessive screen time..... He spoke with a neurologist and his addiction specialist the neurologist said excessive screen time by itself can cause seizures, he was informed to stop watching screens and if he feels weird looking at his phone to look away or turn it off immediately... The neurologist also said tapering too fast can cause seizures... The neurologist said that if he follows these things he's not worried about seizures... he's never had a seizure in his life... His addiction specialist told him that he can't binge watch TV while tapering because before he went to the treatment center (over a year ago) he had similar symptoms and in the hospital they updosed him for a short period and he didn't watch any screens and the screen sensitivity went away... When these symptoms started it made him feel like he was going to have a seizure and watching screens and even looking at a screen for a few moments now makes him feel those symptoms. He had noticed that before taking his doses that those symptoms come back a bit and after he takes the doses they go away for a while but happen again before the next dose. Which these symptoms he's describing "seizure like feelings" only started after he was sick and binge watched tv for a month... Before that he had normal minor withdrawal symptoms.. he's wondering since he's on such a high dose, updosing by a max of .25 or a min of .125 could help too stabilize him even a little bit .. the highest he's allowed to updose is .25 and only for one month.. he's feels at the current rate he won't be able to do the next required cut.

Also what do you mean by tolerance withdrawal??

(so basically I think he's wanting to see if anyone had experience with screen sensitivity and using an updose as relief of those symptoms)

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4 minutes ago, [[H...] said:

He had noticed that before taking his doses that those symptoms come back a bit and after he takes the doses they go away for a while but happen again before the next dose.

This sounds like interdose withdrawal. It's not very common to have interdose withdrawal on K, especially if you're already dosing three times a day but it can happen. Basically what happens is the dose wears off before the next dose is taken and the body goes into withdrawal. When you take your next dose you feel better again, but a couple of hours later withdrawal starts and so the cycle continues. What doses is he taking at

 

7:40am kolonopin 

1:40pm kolonopin 

7:40pm kolonopin 

 

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11 minutes ago, [[H...] said:

Yes I am sooo overwhelmed thank you.

Ok so his response to your message....

As you can see by his history he def want to get off this medication, also rather than just updosing he came here for help and guidance. Since he hasn't changed his taper yet he's still tolerating it very well but after getting sick along with the excessive screen time..... He spoke with a neurologist and his addiction specialist the neurologist said excessive screen time by itself can cause seizures, he was informed to stop watching screens and if he feels weird looking at his phone to look away or turn it off immediately... The neurologist also said tapering too fast can cause seizures... The neurologist said that if he follows these things he's not worried about seizures... he's never had a seizure in his life... His addiction specialist told him that he can't binge watch TV while tapering because before he went to the treatment center (over a year ago) he had similar symptoms and in the hospital they updosed him for a short period and he didn't watch any screens and the screen sensitivity went away... When these symptoms started it made him feel like he was going to have a seizure and watching screens and even looking at a screen for a few moments now makes him feel those symptoms. He had noticed that before taking his doses that those symptoms come back a bit and after he takes the doses they go away for a while but happen again before the next dose. Which these symptoms he's describing "seizure like feelings" only started after he was sick and binge watched tv for a month... Before that he had normal minor withdrawal symptoms.. he's wondering since he's on such a high dose, updosing by a max of .25 or a min of .125 could help too stabilize him even a little bit .. the highest he's allowed to updose is .25 and only for one month.. he's feels at the current rate he won't be able to do the next required cut.

Also what do you mean by tolerance withdrawal??

(so basically I think he's wanting to see if anyone had experience with screen sensitivity and using an updose as relief of those symptoms)

Hi there Helping.A.Friend. 

Well it sounds like everyone else whose tapering actually at least to me. When it's getting close to dose time we have cravings for the next dose. As jelly baby mentioned interdose withdrawal coupd be what's happening but also could be just cravings from the cut. So he's lost some of his dose when it's cut which of course he would miss that little but over time As it accumulates and adds up he would crave it. 

As for seizures, i think he's fine, can't be sure bit we all go thru those awful symptoms that feel like we're having a seizure. If we focus on it or if we're afraid of any symptoms they dig in and get stronger. As I'm writing you I'm having symptoms,  before I started they were pretty bad, once I took my mind off of them they've calmed down. Someone may have scared him into thinking every head feeling is a seizure, every numbness etc but honestly we all have those symptoms.  Since I don't know for sure it's best to err on the side of caution but he's been cutting for awhile now, anf his dose is pretty low isnt it? Idk, The seizure like symptoms you described are jerking etc, i have that when I get over stimulation like from anxiety or a panic attack. Myoclonic jerks, I've had them off and on for awhile.  If I get upset, scared,  or focus on a symptom too much it comes again. So if a brain scan didn't show a seizure that's not appropriate to scare him like that. The electricity like jolts in my head are disturbing but I talk it out. I tell myself,  your safe, your ok, it's uncomfortable but you are safe! I do breathing techniques and turn my focus to something else. I do this with all my symptoms.  It's hard yes but that's how we get thru it.

It sounds Iike he just needs to stay the course and continue tapering but with an understanding that the withdrawal symptoms will be difficult and there isn't anything but sheer getting tough with yourself and using compassion with yourself when necessary to get thru the symptoms.  I can give him some great tools to use if he'd like them.

Screen time! If I'm in symptoms and I watch TV, depends on what I'm watching my symptoms revv up, just like when my ears are so sensitive that any noise hurts me so bad I get severe symptoms. So it's all in the way we precieve.the symptoms. Precieved danger is powerful our brains can make us feel or believe anything, especially if we're being told we should fear something.

He should by himself,  watch a useful program without sound, use the cc option to read the message he's watching and see how he feels 

The dosing I'm guessing I should let someone else talk to u about but I don't think he should updose myself. I just would hate to see him end up having a more difficult long dragged out taper. But that's just me.

I hope I've hped u, I know your overwhelmed and I probably added to it I hope not.

I'm here if you have anymore questions no problem ok

Take care

Ns

 

 

 

 

 

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9 minutes ago, [[n...] said:

Well it sounds like everyone else whose tapering actually at least to me. When it's getting close to dose time we have cravings for the next dose.  

I just want to clarify not every person tapering "craves" their next dose. I didn't and I know of many people here who don't. The majority of time when people feel they "crave" their next dose, it seems to be related to interdose withdrawal. :)

 

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24 minutes ago, [[j...] said:

I just want to clarify not every person tapering "craves" their next dose. I didn't and I know of many people here who don't. The majority of time when people feel they "crave" their next dose, it seems to be related to interdose withdrawal. :)

Oh OK,  yeah i don't crave mine either just thought it sounded Ike that's what's going on but I'm grateful your teaching me these things. Trying to figure this guy out, seems like he might just really like his medicine, I used to but I guess it's probably as you think with interdose. 

OK, thanks so much jelly Belly,  your awesome!

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My friend is approximately a year into a 6yr taper and therefore he says "pushing thru" seizure like symptoms is not only dangerous but unacceptable and unnecessary.... (His words not mine... Sorry.... Y'all struck a nerve I think) he says it's also unsustainable to white knuckle it for the next five years... The last time when he started he had extreme interdose withdrawals with derealization between doses and the only thing that fixed it completely was updosing.. it seems to him at this stage he's looking for someone that has actual knowledge or experience in updosing from 6.25mg/day to 6.5mg/day for one month. he's been told by two benzo experts that they are not worried about kindling.. he is willing to try updosing as little as .125 to start however he feels realistically that .25 which is his highest allowable updose would be just enough to rewind the taper so that his brain has time to heal from the effects caused by the excessive screen time. He found that going low and slow allowed him to go without barely feeling the cuts..

the question is does anyone have experience  doing a low updose at or near 6.25-6.5mg or know of anyone that has. And if so what was their experience

 

(This is me speaking for a quick sec... I'm sorry if this sounded shitty, I literally just wrote what he asks....pretty sure he's not getting what he wants for responses... But thank y'all for taking the time to try and help... I'm burnt out) 

Edited by [He...]
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2 minutes ago, [[H...] said:

My friend is approximately a year into a 6yr taper and therefore he says "pushing thru" seizure like symptoms is not only dangerous but unacceptable and unnecessary.... (His words not mine... Sorry.... Y'all struck a nerve I think) he says it's also unsustainable to white knuckle it for the next five years... The last time when he started he had extreme interdose withdrawals with derealization between doses and the only thing that fixed it completely was updosing.. it seems to him at this stage he's looking for someone that has actual knowledge or experience in updosing from 6.25mg/day to 6.5mg/day for one month. he's been told by two benzo experts that they are not worried about kindling.. he is willing to try updosing as little as .125 to start however he feels realistically that .25 which is his highest allowable updose would be just enough to rewind the taper so that his brain has time to heal from the effects caused by the excessive screen time. He found that going low and slow allowed him to go without barely feeling the cuts..

the question is does anyone have experience  doing a low updose at or near 6.25-6.5mg or know of anyone that has. And if so what was their experience

(This is me speaking, I'm sorry if this sounded shitty, pretty sure he's not getting what he wants for responses... But thank y'all for taking the time to try and help... I'm burnt out) 

Helping Helpingafriend,, I'm so sorry if I upset him. Please apologize for me. Yes there are people here who can give him taper advice.  Sounds like he knows what he's doing. Only he knows of he feels and what he can handle.  Sounds like he really understands the process pretty well as he's been at this for awhile now, it aso sounds like he has fear from the seizurelike symptoms so I completely understand. 

I sincerely hope he gets the opportunity to talk to someone like pamster, Colin, Winters sun or Libertas who are very experienced in tapering and can offer him some ideas.

So very sorry to have caused him any stress. We all want the best for him

Thank you for being such a goid friend to him

Bless

Ns

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11 minutes ago, [[n...] said:

Helping Helpingafriend,, I'm so sorry if I upset him. Please apologize for me. Yes there are people here who can give him taper advice.  Sounds like he knows what he's doing. Only he knows of he feels and what he can handle.  Sounds like he really understands the process pretty well as he's been at this for awhile now, it aso sounds like he has fear from the seizurelike symptoms so I completely understand. 

I sincerely hope he gets the opportunity to talk to someone like pamster, Colin, Winters sun or Libertas who are very experienced in tapering and can offer him some ideas.

So very sorry to have caused him any stress. We all want the best for him

Thank you for being such a goid friend to him

Bless

Ns

Hi again, I've forwarded your name post to a moderator, hopefully someone will be with you soon ok.

I sincerely hope thus gets easier and that your friend gets well soon and that he responds well to his taper.

Take care :hug:

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