Almost 5 months

[[ns...]]

Just now, [[D...] said:

TY.....you have such a positive attitude.  I love it and just know you are going to do great!  For me, I am not sure how much fight I have left.  It's not just the K, I am polydrugged and just doing my own thing with them.  I have oodles of meds I am not taking.  I have had relief from the twitching and cramping for 2 days tho so that is a bonus.  It seems I feel better the less I eat!

Oh no u don't, your going to eat! Glad you've  been having a window. Oh I have a bag if pills that none worked on me.i can't tske anything. I tapered off celexa when I tapered off lorazapam 3 yrs ago so it was both, although I taped celexa for a yr so I think it's just the benzo. What is polydrugged

[[Da...]]

3 minutes ago, [[n...] said:

How come? It's a low sodium issue, electrolyte problem that no one can explain to me why I have it

I was researching low blood pressure, high heart rate and some of my symptoms and that is something that came up.

[[Da...]]

Just now, [[n...] said:

What is polydrugged

Too many meds...one to treat one symptoms and another to treat another symptoms and the cycle goes!

[[ns...]]

3 minutes ago, [[D...] said:

I was researching low blood pressure, high heart rate and some of my symptoms and that is something that came up.

Get your sodium checked!

[[ns...]]

2 minutes ago, [[D...] said:

Too many meds...one to treat one symptoms and another to treat another symptoms and the cycle goes!

Yes me too.  Gabapentin, norco, baclofen, percocet, I weaned myself off of all. Then he gave me lorazepam after gallbladder surgery,  so much anxiety!

Yep I known what that feels like. I didnt want to have any more drugs in me. I had radiation for the brain tumor after gallbladder surgery, so much stress but I needed to feel again I felt like I could feel compassion anymore.but boy, then I could feel too much! 

Gotta take these things slow

[[Da...]]

Just now, [[n...] said:

Get your sodium checked!

Yes....during Christmas when I thought I wasn't going to be able to fake it a little....My sodium was really low and my BP was like low 80s/high40s-low50s....after a very salty dinner, I even managed to visit 2 friends for short visits.  Prior to eating, I was unable to stand up without everything going black.  I have no idea why docs think low BP is ok when there are other symptoms!  I know depersonalization/derealization is crazy when my bp is so low....and so is my anticipatory anxiety.

[[Da...]]

3 hours ago, [[s...] said:

I have severely low vitamin D and iron levels but every time i try a small dose of either one, it sends me into a hellish wave.

Do you think your doctor would refer you to an endocrinologist?

[[ns...]]

Just now, [[D...] said:

Yes....during Christmas when I thought I wasn't going to be able to fake it a little....My sodium was really low and my BP was like low 80s/high40s-low50s....after a very salty dinner, I even managed to visit 2 friends for short visits.  Prior to eating, I was unable to stand up without everything going black.  I have no idea why docs think low BP is ok when there are other symptoms!  I know depersonalization/derealization is crazy when my bp is so low....and so is my anticipatory anxiety.

Get it checked, I had low BP too,  then I had to start eating so much salt  sodium rich foods. U can have a seizure, that's why I freak out when I think my sodium is low. It was one time, they kept me for 3 days, did a brain scan and o was OK but it could have been bad. Get it checked 

[[ns...]]

2 minutes ago, [[D...] said:

Do you think your doctor would refer you to an endocrinologist?

Yes, Went to one, waste really. They checked my adrenaline, cortisol etc but it was after I started benzos. They did one goid thing, set me up to have a test to see if I have an adrenal tumor but I canceled. Had to drink potassium iodine and was having issues with potassium at the time. The doc turned me over to a European Woman who was rude. She ordered that test but I couldn't do it. Wish I could have because it's like getting a testto ck everything inside you. I can ask for it again, but I'll need to wait til off benzo and calmed down 

[[ns...]]

1 minute ago, [[n...] said:

Yes, Went to one, waste really. They checked my adrenaline, cortisol etc but it was after I started benzos. They did one goid thing, set me up to have a test to see if I have an adrenal tumor but I canceled. Had to drink potassium iodine and was having issues with potassium at the time. The doc turned me over to a European Woman who was rude. She ordered that test but I couldn't do it. Wish I could have because it's like getting a testto ck everything inside you. I can ask for it again, but I'll need to wait til off benzo and calmed down 

I had to go off the baclofen after 4 days. Went into tolerance real fast. It.kind of helped me but then gave me symptoms.  They said it might do that. Just another pill I can't take

[[Da...]]

2 minutes ago, [[n...] said:

Just another pill I can't take

That is why I am skeptical about going for any tests TBH......more meds!  I am now waiting for my genetic testing....I have an appointment with a nutritionist prior to appointment with my GP

[[ns...]]

1 minute ago, [[D...] said:

That is why I am skeptical about going for any tests TBH......more meds!  I am now waiting for my genetic testing....I have an appointment with a nutritionist prior to appointment with my GP

Oh good, me too. Going to New doc Tues, have a list of tests i.need. I know He'll want me to see a nutritionist. I kind of don't want that, she will tell me to eat what I can't eat, supplements I can't take. I already know what I can eat, and what I can't take but maybe she can shed some light non why I can't eat those other foods and supplements.  O guess it's a step. But I need a gi, a Immunologist, Allergist, neurologist, and a physical therapy facility that treats brain injury. So we'll see how much I get done, plus blood work, a metals test for Titanium clips. Lol, he's going to think I'm crazy.  Oh and a brain mri to ck my tumor 

[[ns...]]

1 minute ago, [[n...] said:

Oh good, me too. Going to New doc Tues, have a list of tests i.need. I know He'll want me to see a nutritionist. I kind of don't want that, she will tell me to eat what I can't eat, supplements I can't take. I already know what I can eat, and what I can't take but maybe she can shed some light non why I can't eat those other foods and supplements.  O guess it's a step. But I need a gi, a Immunologist, Allergist, neurologist, and a physical therapy facility that treats brain injury. So we'll see how much I get done, plus blood work, a metals test for Titanium clips. Lol, he's going to think I'm crazy.  Oh and a brain mri to ck my tumor 

I already Said no more meds. My decision period!

[[ns...]]

5 minutes ago, [[n...] said:

I already Said no more meds. My decision period!

Goodnight for now, talk tomorrow or Monday k