Motor in my brain

[[Lo...]]

I'm 11 months post CT and brain sensations have been my constant worst symptom. They are becoming more and more intense - it's like I have a motor running in my brain - among other sensations ie. pressure/pulsating/fizzing/tingling.  This so scary and feels like it will never end due to the increasing intensity.  Has anyone else here experienced this and have it eventually fade? 🙏

[[...]]

That is weird, my motor was in my upper belly near the ribs. It went away.

Occasionally I do still have some head pressure.  Pulsating belly and head. Pulsating is noticable after eating. 1yroff.

Edited October 8, 2023 by [...]

[[Am...]]

5 hours ago, [[L...] said:

I'm 11 months post CT and brain sensations have been my constant worst symptom. They are becoming more and more intense - it's like I have a motor running in my brain - among other sensations ie. pressure/pulsating/fizzing/tingling.  This so scary and feels like it will never end due to the increasing intensity.  Has anyone else here experienced this and have it eventually fade? 🙏

Is it like a vibration? Because all those sensations happen in my legs and feet. It comes and goes for me. At the beginning it was intense. I’m 9 months out since my last dose and last week it was bad. However, not bad at all the past few days. 

[[Te...]]

I have it everyday. I'm about 7 or 8 months ct.

[[Te...]]

All of that and akathisia too.

[[Am...]]

On 08/10/2023 at 04:43, [[T...] said:

I have it everyday. I'm about 7 or 8 months ct.

It should ease up. It has for me. It’s on and off. Just remind yourself this isn’t  permanent. A lot of us are experiencing these symptoms so you are not alone and your body is fixing itself. I know this process is exhausting, but keep reminding yourself this will pass. 

Edited October 9, 2023 by [Am...]
Punctuation/spelling

[[Lo...]]

On 10/10/2023 at 07:19, [[A...] said:

It should ease up. It has for me. It’s on and off. Just remind yourself this isn’t  permanent. A lot of us are experiencing these symptoms so you are not alone and your body is fixing itself. I know this process is exhausting, but keep reminding yourself this will pass. 

@[Am...]Thanks for your reassuring reply 🙏How long did it last for you before it started easing up?  I have these symptoms all day everyday - it's so difficult to deal with 😪  

[[Am...]]

9 hours ago, [[L...] said:

@[Am...]Thanks for your reassuring reply 🙏How long did it last for you before it started easing up?  I have these symptoms all day everyday - it's so difficult to deal with 😪  

😮‍💨 I would say for me it was pretty much there all the time the first 6-7 months. It just started to ease up. The past month I haven’t had anything. Maybe 3 nights out of the whole month with it pretty bad. The first 3-5 months it was driving me nuts. My last does was 9 months ago. You should not worry too much about it. You will be okay 😊 

[[Wi...]]

I have the same plus the vibration spreads like a current down my spine. And it gives me terrible head nerve pain too. My brain feels like it's pulsating, buzzing, pulling and what not.