People with POTS/DYSAUTONOMIA symptoms

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Does anyone's feet get really red as well as their hands throughout the day. My heart rate will get extremely high especially if I don't take my heart med they gave me. I also have been having constant back pain that is deep in my upper/mid back and it makes me short of breath constantly. I went to the ER again and they didn't find anything so idek. I got an appointment with a neuro doc and a GI next, now do I need to add a pulmonologist lol... I already have seen my cardiologist about a lot and she has helped me so much but like I get in severe pain and out of breath, which is scary especially cause nobody can find anything, but my 02 sats aren't dropping. I can tell it's not anxiety but it does consistently happen at the same time as the back pain.

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This started happening to me after I got covid in March of 2020. That virus can have some bad long-lasting symptoms. I ended up with POTS/Dysautonomia, MCAS/histamine intolerance, bulging veins in my hands and feet, blood pooling in my hands and feet (red and/or blue), HR spikes, shortness of breath, fatigue, unable to eat most foods (lost 65 pounds), unable to walk or stand. It caused kidney/back pain and lung pain for the first 6 months after, too. It got worse before it got better. I'm somewhat more stable today but not yet out of the woods yet. It's how I ended up on a high dose of Xanax XR. I think that initially helped but then eventually made it worse. Trying to finish a valium taper now. I've written more about what I've done to manage it in some other posts. I hope you start feeling better soon.