Medication Induced Setback Support, continued ...

[[at...]]

Hi all and especially to those who posted in the old thread "Medication Induced Setback Support", I wanted to continue the content here.

It's getting to be close to 2 years since I last posted (I had just gotten the 2nd Covid vaccine).  Well, sad to say, I have not healed in the least bit.  After that vaccine I continue to get setbacks - missed trazodone dose, lasted 6 months; lidocaine shot  - brutal, 9 months; and two months ago, I had Covid!!  Still in the thick of that.  I deliberately stayed away because I did not want to be Negative Nellie, but man, I don't know how I'm still standing (barely).

Weird thing is that after each of my setbacks, I feel really good, as if I did a reinstatement.  Covid was no different; I healed from the infection in two weeks, then had about a month of feeling pretty decent - much better than pre-Covid - then deterioration.  It seems this is the way forward for me.

I still have to do that colonoscopy and now learned that I have several cavities (fortunately none too deep yet so perhaps I have some time to wait to do those).

Just wanted to continue this thread as I really looked to it for support especially in the early days when I thought I was dying (tbh, sometimes I still think I'm dying but now I have become blasé about it).

Hope you all are doing as best as you can.

[[Wi...]]

Sorry! I also react to everything. I had a reaction to a hormonal drug exactly a year ago. It made me way worse than before. Then in November to an antibiotic. Again, worse than before. Felt terrible until rhe end of March. Had a window between mid April and the end of June (some days almost symptom free, most day doing ok and living my life) and in July I started feeling off and for the last two weeks I have been in a horrible wave. In May I had a c-section and many meds were used so maybe it’s a reaction to that. Or my hormones regulating, no idea. So scary!

[[Ga...]]

Hello Willhealsoon.  I am curious as to what hormonal drug you took that you had a bad reaction to?   I have recently applied two doses, one last week then one this week, of estradiol cream inside the vagina for help in preventing any more UTI’s!   I feel pretty awful after the second dose this past Thursday and am wondering if I am having a bad reaction to the small amount of steroid in it.  I am very post-menopausal but seem to be very sensitive to many different different meds and foods.  I know you are much younger and just had your baby recently, so probably talking apples and oranges here.

I hope you start to feel better soon!!!!

GG

 

[[Wi...]]

13 hours ago, [[G...] said:

Hello Willhealsoon.  I am curious as to what hormonal drug you took that you had a bad reaction to?   I have recently applied two doses, one last week then one this week, of estradiol cream inside the vagina for help in preventing any more UTI’s!   I feel pretty awful after the second dose this past Thursday and am wondering if I am having a bad reaction to the small amount of steroid in it.  I am very post-menopausal but seem to be very sensitive to many different different meds and foods.  I know you are much younger and just had your baby recently, so probably talking apples and oranges here.

I hope you start to feel better soon!!!!

GG

Hi! Sorry about your experience. For me it was clomiphene citrate to induce ovulation. It reawakened mild aka. I also had some immediate visual disturbances due to which I didn’t even finish the whole course but it was enough to make me worse than ever. I am still struggling a year later. But I did get pregnant the exact same cycle.

[[Wi...]]

 

I am one year into a setback that put me on a downward spiral. Prior to the setback I was on the mend but then the hormonal drug (clomiphene) f’d me up in Aug 22. My original issues were from Cipro toxicity 3 years ago and then polydrugging (ADs, anticonvulsants and possibly benzos but either way Cipro does the same to GABA receptors as benzos and this is why I am here). I had a tiny wave every 2 weeks with some internal vibrations before the clomiphene. After taking it all hell broke loose. I got pregnant the same month, then in Nov I had to take an antibiotic and it made me so bad. I am still getting worse. November to March were very bad with Feb and March being the worst. But then it started lifting. I feel like the period between April and June was a sick joke. I felt I was healing. I was fully functional and started making plans and enjoyed being a new mom. I had been given many meds during labour and an emergency c-section in May and I didn’t react back then at all, but I started getting very bad again in July and the last 3 weeks have been a nightmare. I feel like with every bad wave I am just being pushed to the edge of a cliff and barely hanging on. Then a small window will let me walk away from the cliff. But then it feels that the next wave will push me off the edge. I have days with terrible symptoms and days with acceptable ones. Some days I can function, some days I feel almost normal but some days I just freeze because my body gets electric like a wire and jolts begin. I am not going to list my symptoms here as they are listed in my other posts. I am terrified I will never heal since I have seen zero improvement and I am only getting worse as the time goes by. What on Earth these drugs did to me… I feel I might not see my baby grow up. 

 

[[bw...]]

Was 5 yrs 8 months off. I was doing Ok around 80% healed. I still had fatigue. Some air hunger.

 

I took pepcid for 30 days. It has absolutley destroyed me. Much worse than my initial withdrawal. I devoloped akathesia which I never had before.

Extreme anxiety. Panic. Agoraphobia. All of a sudden i cannot leave my house anymore??? Im not a socially anxious person. I cannot go beyond my mailbox without severe panic attacks. (This happened overnight from taking pepcid).  i am swaying side to side. My dizziness is extreme. I have extreme ear pressure and now REACTING to all MEDICATION!. Even paracetamol.

Im destroyed. I have my wedding 12 months from now and I dont even think I can face it. I am too sick.

Ive just nearly pulled up to 6 years off benzos!!! I cannot believe this.

[[Wi...]]

Sorry! Sounds rough, so many years out.  I am also not doing well. I am getting worse and worse. I got so many drugs during labour and it all caught up with me it seems because I was doing a lot better from April until the end of June from my original setback. I thought I was actually healing. I have no idea what’s in these drugs that they cause these issues… I hope one day someone actually finds out. 
 

You got worse after a while of taking pepcid? Or was it after you finished?

Edited October 7, 2023 by [Wi...]

[[bw...]]

On 07/10/2023 at 18:49, [[W...] said:

Sorry! Sounds rough, so many years out.  I am also not doing well. I am getting worse and worse. I got so many drugs during labour and it all caught up with me it seems because I was doing a lot better from April until the end of June from my original setback. I thought I was actually healing. I have no idea what’s in these drugs that they cause these issues… I hope one day someone actually finds out. 
 

You got worse after a while of taking pepcid? Or was it after you finished?

Sorry i didnt see your message. My apologies. Intially I was fine few days taking it. On day 5 i had a increase of intense anxiety for some reason.

I brushed it off. I kept taking it for a further 28 days but during this time I had this extreme headaches. Like actually extreme. Pressure headache type. Then i had this immense ear pressure start... was really weird

Then i went to the doctor and she gave me antibiotic ear drops. 2 days after that I was cooking dinner and BOOOM like a lightswitch I was sick.

I nearly called an ambulance. I was struck down with an intense panic attack out of the blue. It seemed to just destroy me. Ever since then I have been in HELL on earth. Its been 7 months now. And november 23 is when my 6year anniversary is.

 

Very discouraged. Dissapointed. Afraid and upset. Terrified.