New here. Need help. In a blender.

[[Su...]]

Hello.  I'm 56 y.o. male, been taking 1 mg twice daily klonopin for 14 years. In January,  my provider told me that the government wants people off of klonopin.  They started me on a taper in February.  Only 1 week ago,  my head cleared enough to even know what was happening. 

Since February i have gone from tinnitus to headache to major neurological symptoms throughout my body.  My taper ended the first week of June and my symptoms exploded. I have been bedridden for months.

I was taken to different Drs and specialists numerous times over these months and they found nothing!  Little did I know these were withdrawal symptoms.  NO ONE TOLD ME WHAT TO LOOK FOR OR EXPECT!

Just this week, I contacted my provider. She told me she needed to talk to the pdocs. She is a nurse practitioner. 

I have not heard back. 

I am very afraid,  now that I can actually realize a little bit of what is happening,  that I am stuck like this for life: numbness almost to paralysis,  swelling until fluid comes out my eyes and ears,  burning skin,  extreme dehydration,  and massive bloating. 

I am  looking for a starting point and hoping my mind stays working.

Thank you for any assistance. 

 

[[Ma...]]

I can’t assist you, per se, but I can t  Ed ll you you are not alone. I too have been bed ridden for months.

Since you jumped in June I believe you are in acute. Maybe inform yourself via YouTube, here about what that means, shat till expect. And keep coming here as this forum is filled with the kindest, loving people who not only understand but will support you.

Just keep going-minute by minute. Breathe. Znd know everyone heals: You Will Too!!!

[[gr...]]

Stay strong!! My withdrawal from K has improved after 13 month CT. Wish I had tapered, but I didn't. Did not realize the wd hell I would go through. But, today I can sleep, my appetite has returned and I have hope for tomorrow. You can do this!!!

[[Gl...]]

Welcome, @[Su...]Yikes, they tapered you quickly!  No wonder you are struggling so much.  A slow taper is a struggle too, but nothing like a quick taper or cold turkey (that's my experience anyway).  I'm genuinely sorry for what you are going through.  We understand that it's horrific.  Many here have tapered quickly or have gone cold turkey, so you're not alone in what you're experiencing.  I'm so sorry you have to go through this.  Just know your symptoms aren't permanent, so there is much hope. 

Welcome, and thanks for joining us.  We're here for you! 😊

 

[[be...]]

Welcome @[Su...] so sorry that you are going through a really hard time, tapering is hard, most have a hard time, whether one goes slow or fast. It is not permanent, but it will take time for your Brain to adjust to the cuts. Just do the best you can, and know that others have walked in your shoes and now off and healed. Stay Strong. 💖 Peace and Healing.

[[Su...]]

Thank you all so much..  I appreciate any help.  I've fought this all alone until now. 

What are everyone's thoughts?  Should I try and slog through this?  Should I push back on the prescriber for help or just forget it? Should I try to get another doc etc? 

[[Ho...]]

Yes, slog though this because if you don't do it now, you'll have to do it later and all your suffering will be wasted. Because if you stop, you will have to do it again.

I also stopped Clonazepam at the rate my doctor told me to. I woke in the middle of the night and my eyes were twitching back and forth. I, too, had no idea why my every thought was black, why everything inside my body was vibrating and made me weak as a kitten. No idea why I couldn't eat, listen to music, watch TV, walk without feeling like the floor was rising. 

I went to six doctors. Blood tests, MRI's, more blood tests, balance tests—there was nothing wrong with me according to them. Turns out doctors don't know about benzo withdrawal. A handful do but it's next to impossible to organize a hunt for a good one when you feel this way. 

Please don't go back to square one. There's nothing there for you. I stopped Clonazepan August 30th last year, so I've been off for almost a year now. 

I'm so much better than I was, and you will be too. You've suffered tremendously. You're still in the early stages yet almost past the worst of the worst! Comb this site and others like it for anecdotal information. It's your best resource. There will be lots of great ideas and practical help. Everyone is different; some things will work better for you than others. 

You've got almost three months under your belt. For me, once I stopped altogether, the first three months were unbelievably bad. But then, very very slowly, things got better.

I just want to pour out things because I know you need help, but I don't want to overwhelm you with information. Here's one good help: There's a way to keep a progress log on this site. Once you have a progress log started and the days begin to accumulate, you can look back and see the improvements and it's very helpful! You'll be needing encouragement—tons of it—and this is one way to get some.

My heart goes out to you because I know how bad this is. It's beyond imagining. But I also know that you have better things ahead of you. There is absolutely no doubt. You will improve and get better. It will be hard, but you have a running start. Don't give that up, whatever you do! 

[[op...]]

You’re going to get better but I’m so angry with your doctors for pulling you off so fast. They had no right to do that. It takes time, but you will be ok. 

[[Su...]]

I'm literally sobbing as I read this.  I had no idea other people were going through this too. I'm so happy I found this site.  

I will start keeping a log today. Thank you all so much

[[or...]]

 

hadn't met you yet but want you to know I will be "following" you starting today, and that means I'll know each time you post anything on your recovery.  I am just 5 months in myself, I'm doing a slow taper I was taught here, and I am 70, been on C for 35 years at 1 mg.  Probably many of those years I was in Tolerance wd sxs which I also learned about here.

Just want to help support you as much as possible, being a newbie at this with just a little taste from past times I tried to get off the drug myself.  It was pretty bad, but being here now has been such a blessing for me even with the few wd sxs, I get sort of explosive anxiety, and pretty serious times of depression so those things I do understand and relate to.  Just wanted to let you know I am so glad we both found BB, and I'm not always sure about God and prayers really being answered, but I will pray for you, Denise ❤️🙏

 

[[ma...]]

On 07/08/2023 at 00:05, [[S...] said:

Thank you all so much..  I appreciate any help.  I've fought this all alone until now. 

What are everyone's thoughts?  Should I try and slog through this?  Should I push back on the prescriber for help or just forget it? Should I try to get another doc etc? 

I am right with you slogging away. 11 days off Diazepam and have a list of symptoms as long as my arm! CT for me but no going back now. Just wanted you to know I am also in pain, feeling horrible and no energy...its horrible but I am trying to imagine a future that is very different to today even if that future is months away...