The Long Hold Support Group

[[Tr...]]

Intend so funny you mention Code Black. I always end up sobbing badly when I watch that. I keep a box of tissues next to my coach as I frequently end up sobbing watching tv.

 

Miyu I hope you feel better soon. You really need a break.

 

I am on day 3 of the ppi and am totally fatigued and dizzy. I am not going to be able to continue if this doesn’t let up. Had hopes this might help but I feel like I  am feeling more and more out of it. It is a little scary.

NJ ,

I don't know if you saw my post but I have gastric dyspepsia and my mother had gastroparesis. I took nexium and my severe nausea went away. It took about a week to get used to the medium .. Gave me headaches but they went away along with my severe nausea. I was glad I didn't give up on it bc I almost did.

Good luck,

Trish

[[NJ...]]

Trashy thanks for the encouragement to stick with the medication. Maybe it is just a side effect that will go away. I really need some relief from the nausea. This has been going on since mid January combined with other gi symptoms. I have had nausea throughout the taper but nothing like this.

[[In...]]

Trish,

 

I really have to apologize for writing a novel about hubbys head injury.

 

It was quite awhile ago, and the final Dx was a Traumatic Brain Injury or what is also called a Closed

Head Injury. The majority of any head injuries do totally resolve completely. I seen so many people since that time who have had one, and everything resolved for them. You are so right when you say that concussions are no joke.

 

I hear a lot about the football players. They get a lot of concussions. It’s no wonder cause theyre always running into each other and piling on top of each other, and it’s on purpose! Not a football fan here, but I sure hear a lot about it.

[[In...]]

NJ,

 

I don’t cry when I watch Code Black, but we sure do like that show. Hubby just now mentioned it was on tonight.

 

Hope you read my suggestions on the KK #2 about the PPI. I think it does have side effects, and I’ve heard of people who just can’t take it because it does make them feel sick.

 

I hope it does help you though.

[[In...]]

Just thought of a movie I really like-Napoleon Dynamite.

 

Reminds me of my high school days, and I was the nerd.

 

 

[[ca...]]

Morning, buddies!

 

Caltn: I agree with Stut, as usual. S/x can be so weird. Last two days I had chills--IN MY SCALP! Like patches of tingly, passing chills. Very odd--I'd have already booked an MRI in the past now as well---but, honestly--after all the doctors I've been to last 3 years--either I don't want to know, or I don't want to go! Hoping just w/d. Hang in there.

 

Thanks

[[Tr...]]

Trashy thanks for the encouragement to stick with the medication. Maybe it is just a side effect that will go away. I really need some relief from the nausea. This has been going on since mid January combined with other gi symptoms. I have had nausea throughout the taper but nothing like this.

 

I feel for you, I had it 24/7 and I couldn't figure out why.. Had an endoscopy and colonoscopy. My GI doc knew though and he must have been right bc I got better on the med. So try hard to stick it out at least a week if you can.

Feel better!

Trish

[[ca...]]

For the ones who have experienced long holds and felt better, how long does it take to feel better?

 

Currently under 1.7 mg V and starting to feel things I've never felt before.

 

As much as I want to continue to micro taper, cause from experience I feel better after a week or so.

 

A lot of anxiety has left but feeling a lot of sensations in my neck, head, just things I can't explain.

 

Sometimes I feel like , heck no this can't be withdrawals.

 

If I wasn't taking this  poison and tapering I would be in the doctors office demanding a MRI or something.

 

So a long hold  may help me.... can anyone tell me it will.

caltn,

I take Xanax and started to taper on May 23rd of this year. I've been holding since june12th and I don't plan on tapering until January of next year for various reasons. I came to BB looking for help. I was sick and scared and traumatized. I received a lot of help and support with this group. I am convinced that long holds are the way to go. Stut and the rest of this group are very giving ,knowledgeable and wise with advice, listen to them as I can attest they have helped me immensely!! I can also tell you in my short experience thus far with withdrawal I have many sensations! I get tingly/needles and pins sensations all along my scalp, I also get them running up my legs from time to time mostly in one calf but can be anywhere on my legs. I chalk it all up to withdrawal sx as I didn't have these sensations prior to my taper.

I wish you the best of luck.. It's not an easy road to walk I know, but you don't have to do it alone.

Stay strong,

Trish

 

Thanks for the words and encouragement I feel blessed for eveyone's opinion.  Yes I value all your opinions and I'm glad I'm not alone.

I value and listen to Stut also that's why I posted to get his opinion.

Sometimes I feel alone, at home my kids don't understand why I'm not the same anymore... man that hurts to the heart.

I know I'm healing but it's slow, one day at a time...

[[Su...]]

Miyu,

so sorry that you continue to feel awful.  Thanks the Gods for distractions!  There's a Netflix series that a friend of mine suggested.  (I haven't seen it but trust her taste) It's S. African and called "catching Feelings."  She said it is slow paced and mostly about dynamics between the characters.  I like that kind of thing.

I Loved "30 degrees in February" but that seems to be off Netflix.  Maybe if enough people want it back..... About Swedes in Thailand.

Star trek is fun.....

Wishing you the best

:smitten:

SS

 

[[Su...]]

intend to be off--

Thanks for writing about the extent that you and your family have been through with your husbands head injury!

It's amazing what we all have been through when you add up the stories, the head injuries, trauma, life events that no one would ever want to expect.

There are some good books on head injuries that I'd recommend.  Written by a Canadian psychiatrist, Norman Doidge, they offer some other methods of treatment as adjust to what he has right now.  Not flakey stuff, well researched and reliable.

"The Brain's way of healing" and "The Brain that changes itself."

 

I've been using Feldenkrais classes for the brain insult that we have from these benzos and find it to be pretty remarkable, no magic bullet but useful.

 

I'm mainly on holiday this past while so am not on BB much these days.... but I read posts to keep up with things.

SS

 

[[Su...]]

Stut and all,

Am being really low key these days as I'm still on the island, hanging out with the trees, wiling away the sunny days, doing some swimming and very little else.

But I do keep reading and wish everyone the best!

:smitten:

SS

[[To...]]

....

 

TMB , thinking of you , you are on your way and you will heal , hang in there

....

 

Me- same -- been in a bad wave since last saturday , burning and tingling all over , yuck.

I keep praying that one of these days things might get easier, sure feels impossible at the moment , one day I know it will be over ... but so much suffering ......

 

MiYu - thank you for your supportive thoughts.

 

I'm sorry that you are in a bad wave. It is amazing how much suffering we have to go through and without any idea of when it will be over. Hang in there - hoping you feel better soon.

[[In...]]

SS,

 

Thanks for the suggestion of reading Norman Doidge. I think I’ve heard of him, but never read his books.

 

This head injury treatment for my husband went on for about 3 years and I sure got a big education about all that it entails. I was also there for all his treatment. We literally spent 4 days a week at the hospital from 8 am till 5 pm. As I recall, we didn’t go on Thursday but can’t remember why. Certain therapies were on Monday, Wednesday, and Friday. Most likely, it was the psychotherapy that happened on Friday.

 

And there were referrals to outside therapists also. In all, we had 17 specialists involved. We weren’t looking for anymore involvement; the Quinney Rehab referred here and there. I kept all the medical records of this, and I have 17 large Manila envelopes full of records.

 

Always good to get more info though. I’ll google Norman Doidge as I know many things have changed for the better since this happened to my hubby. But having said that, he does so many things now that he couldn’t do after this happened, it often feels like he’s the same person as before except for the lack of being reasonable from time to time, kind of going from A to Z fast when you try to reason with him. That and the bit of paranoia that pops up. He also was somewhat artistic before, but now his ability to paint the most beautiful artwork is incredible. He’s been invited to display his work all over the state. I’m not very creative at all, so I’m constantly surprised seeing what he does.

 

But he could never use a computer, an iPad, or a cellphone. I often tell people to spend a full day with him and you will see the deficits and the strengths. Deficits that he never had before and strengths that he never had before.

[[Ca...]]

Hey, everybody, since klonopin works when you start taking it, I am guessing my 10% updose should have worked by now.  Is that correct?  If so, I am no better now than I was. Anxiety is flooding back. I told my husband, who wanted me to try it, that I felt I would have to go way up to get functional. He said since it is so individual, it was worth a try(he is a doctor, but for kids so...). I will be taking care of four kids next week. My daughter may be leaving her husband. She has to work and I have to help. She has two kids and my other two will be coming home from a month in Japan with their other grandparents.  This is usually a happy time at Nanny’s house and they look forward to it. My daughter’s children really need their cousins and a happy place to be.  And I am frozen with anxiety(not related to situation, but withdrawal) and am barely able to motivate myself to shower. My daughter took the kids to the beach for a vacation that had been promised, just to give them a break from focusing on their daddy. She is coming back tomorrow and I am not prepared to do what I need to do. She does not need to see me struggling. She has enough to shoulder. Any ideas? Should I just go back up since 10% wasn’t worth the set back? Is there a good chance I couldn’t get relief no matter how much I go up? I was barely hanging on before the taper. I know there is nothing else that is wrong. Like so many, I have had numerous medical tests. I am on prozac. I think it is useless(just trapped on it). I know this is repetitive, but some of you are new so I wanted to say where I was coming from. Feeling no way out right now, Esperanza

Hi Esp,

I used updoses and rescue doses (much larger % though) a bit due to my cut n hold -pill splitting..

For me, in a rather different situation, they worked well and fairly fast.. But never as fast as the valium "should" work, which I know to be about 15min in an ER setting... Instead it took a couple of days.. -slowly, progressivly..

It seems?? -and this is sketchy, That the longer I left it to updose, the less effect... This fits with what some others have reported too...

 

Im still getting a grip on your tapering history, but at this point I feel that updosing could?? be chasing a rainbow, primarily due to your starting position of tolerance and ongoing lack of stability...

Your SX are very common as best I can tell, and things like lack of motivation to start or do normal things (eg. Showering etc) may be a struggle long term through tapering, no matter what...

But while these things are still present, I found that holding properly made them much more manageable... I got to see my patterns due to my "chunky" pill splitting...

 

Updosing may work a treat for you, Im not saying it wont.. We just dont know..

For ME, About 3months is where I look back to when making these choices, as that is how long a cut affects me, roughly... -This will be different for everyone, and depend on taper style and speed too...

 

If you can manage to hold until feeling better, then there is every chance you could maintain this, or close to it, with the appropriate tapering speed.. -Probs by micro tapering in some form, which I think you are, from memory... -A bit of trial and error, but you will get there..!!

 

You might have to state how it is to family.. I put my taper second to others for a while, -It didnt do anyone any good..!!

Obviously being a full time single parent, I cant hide anything from my kids.. But as sick of it as we all are (I have been tapering something for over 7 yrs), Their support is above and beyond, particularly C15, Who has seen it all...

Dont underestimate the power of reality..!

 

...So after all that...

-Hang in there, as you are...

 

 

[[es...]]

Thanks so much, Can’t. I think you understand my concern. It is very possible that I will be dealing with the depressive symptoms throughout the taper. I have gotten past The scary side effects where I was afraid to drive or sometimes walk upstairs. This could well be as good as it gets. I am down almost 60% of original dose. My new taper is for 5% remaining dose each week, but it is flexible. I have no plans for when to start it. I will just wait and see. If weekly is too much, I will readjust. Starting out in tolerance really confuses everything. So appreciate your kindness, Esperanza

[[St...]]

Good morning Begood Cant Heath Mary SS TMB Green NJ Intend Trish Miyu Bluepill Gard nolongeranxious Esperanza and all buddies here sending you my love and hoping everyone has a healing and steady day.

  Love Stut X

[[St...]]

Hi Caltn l hope you got good and helpful advice here.Sometimes we just need people to ground us and you will always get that here.l thank you for your lovely words however I am just feeling my way like everyone else.l must change my user name l am a she lol.Your not the first to think that.

    Love Stut X

[[St...]]

Hi NJ l hope to God this is just a short term side effect and it will pass.Thinking of you.

    Love Stut X

[[St...]]

I have a little good news my daughter is coming home for a long weekend l looked at my phone this morning and got the message.l think she is missing her mum.l am so happy.

  Love Stut X

[[St...]]

Hi Intend l know how hard it is to deal with a head injury.l think the hardest part is the personality change.Your loved one looks the same but they aren't the person you know.

    Love Stut X

[[Ca...]]

I have a little good news my daughter is coming home for a long weekend l looked at my phone this morning and got the message.l think she is missing her mum.l am so happy.

  Love Stut X

Hi Stut,

That is great news..!  What a good way to wake up..!!

Ofcourse she misses mum.. You will have a great weekend...!!

You made it through...!!

 

I must say, -You put in a fantastic effort here, and I imagine your parenting was/is the same...

Now you get to see the rewards through your daughters emerging adulthood..

 

So happy for you..!!

[[St...]]

Thanks Cant your the same our kids are our world.l hope to God l don't rattle on too much here lol.l just want everyone to know they are supported and are cared about.

  I hope you are keeping better.Good sign your back with us.You are missed.

  Love Stut X

[[Tr...]]

I have a little good news my daughter is coming home for a long weekend l looked at my phone this morning and got the message.l think she is missing her mum.l am so happy.

  Love Stut X

Good morning Stut,

Great news that your daughter is coming home! I hope the two of you have an awesome weekend together.

Trish

[[Ca...]]

Thanks Cant your the same our kids are our world.l hope to God l don't rattle on too much here lol.l just want everyone to know they are supported and are cared about.

  I hope you are keeping better.Good sign your back with us.You are missed.

  Love Stut X

lol, I think its pretty obvious you dont..! -You do save me lots of slow texting on my fone though..!!

Thanks, my mini "windows" are improving...  I think this flu is the dominant factor.. plus over enthusiasm..!!

Cant complain...

 

[[be...]]

Thanks Cant your the same our kids are our world.l hope to God l don't rattle on too much here lol.l just want everyone to know they are supported and are cared about.

  I hope you are keeping better.Good sign your back with us.You are missed.

  Love Stut X

lol, I think its pretty obvious you dont..! -You do save me lots of slow texting on my fone though..!!

Thanks, my mini "windows" are improving...  I think this flu is the dominant factor.. plus over enthusiasm..!!

Cant complain...

Evening Mr. Cant...great you are improving...from what oh the Flu,...it is hard to improve when one is total Perfection...