The Long Hold Support Group

[[In...]]

Gads Trish, I’m not one to say myself.

 

Several years back, I went to the doctor for maybe a general checkup. He ran some tests, and I was low on vitamin D. Super low. He prescribed some gel caps that I had to get at the pharmacy. I mean a prescription and not an OTC bottle. I was on generic xanax at the time, and didn’t think a thing about it. I took them and had no problems.

 

But sure don’t know what would happen now. Things have changed for me big time. I’d try the sun thing myself as SS mentions. I get out there here and there cause I have no choice. Have to run around quite a bit. Get into the back yard also. Always looking for hubby around the neighborhood while he’s out there doing a bunch of things. I must be getting some sun. Oh well, I just can’t do it all.

 

The B12 situation is a bit different. It’s one of those vitamins that’s needs some replenishing as it’s not available without protein and animal based protein. Well, not an expert on this, but I do know that much. I think some foods are fortified with it which is on the label. I’m doing a milk titration but haven’t checked that label. Usually I eat vegetarian, but have an omelet here and there. Also my hubby really goes for the meat when I let him. It’s better for his diabetes, but rougher on his cholesterol. Sure hard to balance this all out. I’m not sure if B12 is one of those revving up type B vitamins or not.

 

I just don’t take anything myself either. I just try to eat right.

[[Tr...]]

Stut,  I think you're right I may not have a choice but to take them. The B12 injections I have to do bc my body doesn't absorb it through food.

 

Intend, I like you was just fine taking my supplements while on my "normal" dose of Xanax for years without a problem but like you said things have changed.

 

SS, I guess I could try a little sun while it's summer but I don't know if that'll be enough and then when the winter comes that'll be a bit harder. You go soak up that sun SS.. ENJOY!!

 

This is a tricky situation for sure!

 

Thank you all so much for answering, I hope you're all feeling well and having a wonderful day!

Hugs to all of you!

Trish

 

 

[[To...]]

...

 

TMB - I think of you and your jumping sxs every day.... wishing you the best and hoping that you get relief soon.  You were such a big support for so many on this thread for so very long!  Please know we're all here with you!

 

...

Thanks, SS. Your support has always been there and I thank you.

 

I hope that someday I can get back to giving support rather than consuming it.

[[To...]]

TMB l wish l had great words of wisdom for you but l don't just know we are all here for you and always will be.Hang in there my friend one day at a time.

    Love Stut X

I know there are no magic words but knowing that the LHSG is here is everything. Thanks, Stut.

[[NJ...]]

Anyone know about taking supplements and making sxs  worse? I have to take vitamin D daily and a B12 injection twice a month. I'm extremely low in both. I've been avoiding the vitamin D and I hate doing that bc I know I need it.

 

Thanks,

Trish

 

I am also low on vitamin d and trying to figure out if it is helping or hurting me. I supplement low dose about 1,000 to 2,000 mg several times a week. I thought it improved my sleep when my levels started coming up but then I stopped taking it regularly with all my nausea and erratic eating so now I am not sure. I would not take the 5,000 IU my dr. wants me to take or the 50,000/once a week dose some of my friends take. I would say if you start the D, start low and it is supposed to hinder melatonin production so it is better to take in the morning I think.

 

I have no experience with B12.

[[Tr...]]

Thanks NJ,

I was taking 1,000 IU every morning before my taper without any problems and barely coming out in the normal range when I would have blood work done. I think I'm going to have to take it even if it causes me hell. If I think I'm hurting too much from it, I'll probably only take it a few times a week.. Some is better than none I guess.

Be well,

Trish

 

[[Su...]]

...

 

TMB - I think of you and your jumping sxs every day.... wishing you the best and hoping that you get relief soon.  You were such a big support for so many on this thread for so very long!  Please know we're all here with you!

 

...

Thanks, SS. Your support has always been there and I thank you.

 

I hope that someday I can get back to giving support rather than consuming it.

TMB

Receiving is very different from consuming..... and I think being on the receiving end of support is humbling.. but please know it all evens out in the end..

Not that it’s a scaled thing — it just all works out.

It’s just that sometimes we give sometimes we receive..

Your presence here is important, quietly being here at the moment

It’s all good

😘😘

SS

 

[[Ba...]]

Hello, all.

Have not been around, I'm sorry.  Not felt good... of course.

 

I am going to sit in the sun for a little bit.  It has been SO hot and depressing.  I hate hot anyhow and it is a miserable Summer.

 

Heath mentioned a dr. in the valley (too far), anyone know of one more toward, say, Marina del Rey?  No, am not in a marina... but not far.

 

I sort of giving up on drs. as most of you have.

 

Tried gabapentin for a bit, but then felt hung over and blah.

Tried tiny bit lyrica instead and does seem to allow me to sleep some which is my crucial thing.  But afraid of getting hooked on that.

 

So I worry and can't win.

 

At about 3+ valium, I did cut as it seems to do nothing for me anyhow.  But I did have huge aches and pains.  This goes away if I sleep (lyrica).

 

Is this from valium withdrawal or possibly gaba withdrawl, tho was only one 125 mg for a few weeks?  300 let me sleep, once or twice.  Then it was not good.

 

Just hate all this guessing.

 

 

[[He...]]

Anyone know about taking supplements and making sxs  worse? I have to take vitamin D daily and a B12 injection twice a month. I'm extremely low in both. I've been avoiding the vitamin D and I hate doing that bc I know I need it.

 

Thanks,

Trish

 

 

Hi Trish,

I have been taking 2000 units vitamin D3 daily for many years, even before tapering. It has never given me any side effects whatsoever!im not out in the sun very much, that’s why my vitamin D is low.

 

If you have a vit. D deficiency, IMO I would urge you to take the vit.D  it is an essential supplement for bone health and other things. It’s the same vit. That we get from the sun. It is important. Don’t be afraid to take it.

 

I know nothing about B 12 Shots.

But Trishy, these are not the same as the supplements that are talked about on these forums, like 5ATP, OR  L- Theanine or valerian root, etc.  Those are over the counter supplements that are questionable, that people take to try to make wdsx more tolerable....and do very often have strange and various side effects.

 

What you are talking about are VitD and B12.....These are real vitamins, and if your doctor says to take them....Then  I say take them! They have nothing to do with your taper. They are for your general well being and health! Listen to your doctor. He is the one who has read your blood test results! I’m sure you believe that he knows what he is doing and telling you, or you wouldn’t be going to him.

 

Good luck! Hope you are feeling better and better.

 

Heath

[[St...]]

Good morning Begood Cant Heath Mary SS TMB Green NJ Trish Barbara Bluepill Gard Miyu Olive Laura Intend and all buddies here sending healing thoughts your way and hoping you all have a better day today.

    Love Stut X

[[St...]]

Hi Barbara l am so sorry you are suffering so much l wish there was a specialist that could help you through this.l am thinking of you Barbara.

    Love Stut X

[[be...]]

Good morning Begood Cant Heath Mary SS TMB Green NJ Trish Barbara Bluepill Gard Miyu Olive Laura Intend and all buddies here sending healing thoughts your way and hoping you all have a better day today.

    Love Stut X

Morning Stut, doing well here, had some itching, but I am used to it, comes and goes, one day, like all of us we will be "FREE" and will not have to ever worry again about what is going on. Have a nice day, the Universe is smiling because of you. 💖 Peace and Healing Hugs.  

[[Tr...]]

Good morning Begood Cant Heath Mary SS TMB Green NJ Trish Barbara Bluepill Gard Miyu Olive Laura Intend and all buddies here sending healing thoughts your way and hoping you all have a better day today.

    Love Stut X

 

Good morning stut,

Here's to a happy Monday! Hope it's a good one for you and ALL!

Love to all,

Trish

[[St...]]

Lovely to see you both doing well.l hope we all steadily move forward.Begood, Trish,is a shining example of patience, kindness, wisdom and perseverance and if we can all follow that example we will all get off successfully.

    Love and hugs Stut X

[[St...]]

I am looking at my post and I don't think it makes sense lol.Trish look to my dear friend Begood for a great example.l think l have finally lost the plot lol.

    Love Stut X

[[Tr...]]

Anyone know about taking supplements and making sxs  worse? I have to take vitamin D daily and a B12 injection twice a month. I'm extremely low in both. I've been avoiding the vitamin D and I hate doing that bc I know I need it.

 

Thanks,

Trish

 

 

 

 

Hi Trish,

I have been taking 2000 units vitamin D3 daily for many years, even before tapering. It has never given me any side effects whatsoever!im not out in the sun very much, that’s why my vitamin D is low.

 

If you have a vit. D deficiency, IMO I would urge you to take the vit.D  it is an essential supplement for bone health and other things. It’s the same vit. That we get from the sun. It is important. Don’t be afraid to take it.

 

I know nothing about B 12 Shots.

But Trishy, these are not the same as the supplements that are talked about on these forums, like 5ATP, OR  L- Theanine or valerian root, etc.  Those are over the counter supplements that are questionable, that people take to try to make wdsx more tolerable....and do very often have strange and various side effects.

 

What you are talking about are VitD and B12.....These are real vitamins, and if your doctor says to take them....Then  I say take them! They have nothing to do with your taper. They are for your general well being and health! Listen to your doctor. He is the one who has read your blood test results! I’m sure you believe that he knows what he is doing and telling you, or you wouldn’t be going to him.

 

Good luck! Hope you are feeling better and better.

 

Heath

 

Hi Heath,

The whole vitamin/supplement thing has been so confusing to me. I even ended up calling the pharmacist where I get my medications and he said it wasn't a problem to go ahead and take them. It's just that some people say vitamin D revs up their sxs and that scared me.. Who wants more sxs??! You're right though my body needs them and our bodies weren't made to function without them. I'm very deficient in both so by not taking them I'm only going to do myself harm. I can't afford to have anymore issues right now... I have enough problems.

 

Feels like that depression I was in is creeping back a little..

I just feel like damnd if I do and damnd if I don't.

 

I loved having coffee in the morning" real coffee" and I drank diet coke and I loved chocolate and sweets once in awhile, even with a heart arrhythmia I was able to enjoy these things! I had to give all that up..I went through caffeine withdrawal the same time I made my first cut of Xanax.. Talk about a train wreck!! I feel like everything I loved has been cruelly ripped away from me. I feel so trapped and restricted. I think the better question is not what we can't have but what's left that we can have?? So frustrating...

 

Sorry Heath I guess I was doing a little venting there.. Thank you so much for the vitamin advice I will be taking them.

 

Hope you're feeling well, have a good Monday!

Trish

 

[[be...]]

I am looking at my post and I don't think it makes sense lol.Trish look to my dear friend Begood for a great example.l think l have finally lost the plot lol.

    Love Stut X

:D  

[[Tr...]]

I am looking at my post and I don't think it makes sense lol.Trish look to my dear friend Begood for a great example.l think l have finally lost the plot lol.

    Love Stut X

 

Thank you Stut too funny!,

I need a shining example right now, feeling a bit low this morning, I just did a little venting to Heath who so kindly gave me advice on my vitamin issue, as did some others in the group, (a big thank you to all who offered advice on that) I hope my spirits lift today.. We'll see..

 

Hugs to you,

Trish

 

[[St...]]

Hi Trish this is an example why benzo withdrawal is so hard.You get a time with lessening symptoms then they come back.lf l can say this and it isn't easy try to accept it for what it is.Hold on tight during the hard times and enjoy the better times.lt is a rollercoaster ride but like any ride it will end.

    Love Stut X

[[be...]]

Hi Trish this is an example why benzo withdrawal is so hard.You get a time with lessening symptoms then they come back.lf l can say this and it isn't easy try to accept it for what it is.Hold on tight during the hard times and enjoy the better times.lt is a rollercoaster ride but like any ride it will end.

    Love Stut X

Stut I agree about the sx coming back and forth, I think it is because that Area of the Brain has not healed. And yes for sure 1000%, [glow=red,2,300]"Acceptance of the Process of Healing"[/glow] is Key.

[[NJ...]]

Stut, thanks for the morning greeting.

 

Trish, I certainly understand about mourning giving up food and drink that you love. I have in the past six months had to stop eating meat and now no dairy. Going out to restaurants is painful, something I used to enjoy.

 

Barbara, I am sorry you continue to struggle as much as you do. I hope you find a way through somehow. I know how distressing it is not to sleep and to feel yucky all the time.

[[He...]]

I too agree with you both, Begood and stut, about the healing process. Those sx will go away and then come back.

 

Ihad my neck muscle pain come back for a good month after it had been gone for a good three months. Then I got these crazy pins and needles in my arms and legs and balance issues. I was all set to go back to the neurosurgeon bec I thought it was my Spinal stenosis getting worse. But about three days ago everything went awa! Yep...for sure... I too believe that  that part of my CNS just had more healing to do.

It will probably come back again and disappear again a few more times before this journey is over and I am healed. Yes it is annoying, and yes it is sometimes pretty scary because you  think it might be something serious not having to do with withdrawal...but so far, so good, my sx have been just that...dumb old withdrawal sx.

 

Heath

[[To...]]

...

 

TMB - I think of you and your jumping sxs every day.... wishing you the best and hoping that you get relief soon.  You were such a big support for so many on this thread for so very long!  Please know we're all here with you!

 

...

Thanks, SS. Your support has always been there and I thank you.

 

I hope that someday I can get back to giving support rather than consuming it.

TMB

Receiving is very different from consuming..... and I think being on the receiving end of support is humbling.. but please know it all evens out in the end..

Not that it’s a scaled thing — it just all works out.

It’s just that sometimes we give sometimes we receive..

Your presence here is important, quietly being here at the moment

It’s all good

 

SS

Soothing words, SS. It is humbling to be on the receiving end. Not something I am used to. I could always take care of myself, but now I realize that I need support. Thankfully, you and the group are here....

[[Tr...]]

Hi Trish this is an example why benzo withdrawal is so hard.You get a time with lessening symptoms then they come back.lf l can say this and it isn't easy try to accept it for what it is.Hold on tight during the hard times and enjoy the better times.lt is a rollercoaster ride but like any ride it will end.

    Love Stut X

 

Stut,

I know you're right..I don't think I'm all the way there yet with acceptance.. Something I hope my therapist and I can work on. It's hard to feel good for a few days only to get smacked down again.. The support from you and all the others helps,o I draw strength from this group..keeps me in this fight.

 

NJ,

I'm sorry you had to give up some of the things you loved too, it just robs us of so much.. Something we have to get used too I guess..

 

Begood,

You're right acceptance is key to healing I hope I come to terms with that sooner rather than later. I don't want to be in this place of bitterness, anger and resentment.. If I do I'll never see this through.

 

Grateful for all of you,

Trish

 

 

[[be...]]

Hi Trish this is an example why benzo withdrawal is so hard.You get a time with lessening symptoms then they come back.lf l can say this and it isn't easy try to accept it for what it is.Hold on tight during the hard times and enjoy the better times.lt is a rollercoaster ride but like any ride it will end.

    Love Stut X

 

Stut,

I know you're right..I don't think I'm all the way there yet with acceptance.. Something I hope my therapist and I can work on. It's hard to feel good for a few days only to get smacked down again.. The support from you and all the others helps,o I draw strength from this group..keeps me in this fight.

 

NJ,

I'm sorry you had to give up some of the things you loved too, it just robs us of so much.. Something we have to get used too I guess..

 

Begood,

You're right acceptance is key to healing I hope I come to terms with that sooner rather than later. I don't want to be in this place of bitterness, anger and resentment.. If I do I'll never see this through.

 

Grateful for all of you,

Trish

Trishy, it will come when the Student is ready...hang on, you have come a long way, steps one at a time. Stut and Heath are great resources, I just hang out on the perimeter and read. 💖 Peace and Healing Hugs.