The Long Hold Support Group

[[St...]]

Begood, Miyu, Mary,SS,Heath, Valley,Gard,NJ, Greencup and everyone l am sending healing thoughts to you all this weekend.

      Love Stut X

[[Ma...]]

Morning all you guys, hoping for all of us to have a good day :smitten:

[[be...]]

Begood, Miyu, Mary,SS,Heath, Valley,Gard,NJ, Greencup and everyone l am sending healing thoughts to you all this weekend.

      Love Stut X

Morning Stut, hope all is well in your abode, and that you have a nice day planned. Stay Strong and Stand Tall. Hi Mary, hope your day is good too. 💖 Peace and Healing Hugs.

[[no...]]

Hi Nova thank God for Creencup l think you should send her a bouquet of flowers.l am glad you have enough to slow your taper down a bit.That doctor is an overbearing prick who needs taken down a peg or two.l don't think he would last long as my doctor.

    I had my share of noisy neighbours when l lived in the City thankfully not now.lf it continues call your council and get health and safety on it.

      Love Stut X

Hi Stut  I was in the country but had out move to continue my taper as I had the upstairs neighbour from hell for 2 year's, previously for 25 year's I had good ones up there but when they moved out trouble moved in    I had the council noise department involved and the housing association only to be told if they take it to court it could still take year's before they could evict him???

 

So I had to transfer here and that was hard work getting them to allow the transfer as the transfer list is year's long but I had to persistently plead my case to the point I was pissing them off which was the plan so they'd move me to shut me the hell up. Argue with them and told a little white lie in order to get the hell out to survive I was at jump off the cliff point by then.  Hope your doing ok 

 

Love Nova xxx  :smitten:

[[no...]]

Begood, Miyu, Mary,SS,Heath, Valley,Gard,NJ, Greencup and everyone l am sending healing thoughts to you all this weekend.

      Love Stut X

Morning Stut, hope all is well in your abode, and that you have a nice day planned. Stay Strong and Stand Tall. Hi Mary, hope your day is good too. 💖 Peace and Healing Hugs.

Hi Sista'  💖 Peace and Healing Hugs right back at cha' 

 

Love Nova xxx  :smitten:

[[be...]]

Begood, Miyu, Mary,SS,Heath, Valley,Gard,NJ, Greencup and everyone l am sending healing thoughts to you all this weekend.

      Love Stut X

Morning Stut, hope all is well in your abode, and that you have a nice day planned. Stay Strong and Stand Tall. Hi Mary, hope your day is good too. 💖 Peace and Healing Hugs.

Hi Sista'  💖 Peace and Healing Hugs right back at cha' 

 

Love Nova xxx  :smitten:

:smitten:

[[Ca...]]

Morning all you guys, hoping for all of us to have a good day :smitten:

Hi Cant how is the knee?Has today been any easier for you or just blah.

    Love Stut X

Begood, Miyu, Mary,SS,Heath, Valley,Gard,NJ, Greencup and everyone l am sending healing thoughts to you all this weekend.

      Love Stut X

Oh look...!!

Aint i just the cleaver one..!!

So much better today thanks Stut... Gut cramps still, but they are easing and even not noticable for an hour or 2 here n there..

The knee isnt much better, but I can walk around the house type thing if im real careful. Otherwise its crutches... Atleast its not broken... Though it did kinda hurt more than a break, as they can do...

Emotionally Its like a new day, So much stress and tension has gone... Though im sure some of this is because im feeling medically better... But as with all things benzo, that presents a question as this seems to be a pattern of windows that relates to my opiate patch changes, as do the waves...

But im working on it... -probably not well at all though as I did a small lyrica cut today too..!!

They all entwine anyway, so probs best not to stress too much and just take it slow...

 

How have you Guys been??

Mary and Stut, maybe it was just your well wishes that gave me the good day..??

 

Hi BG -Nova... (392) ps, I do remember reading 14+ years for V and still good...??

 

[[Sc...]]

Hi Stut, Heath, MiYu, Mary, can’t , everyone that my brain can’t retain. Just checking in. Tried to read through the thread & it’s just way too much & I can’t retain it, sorry.

MiYu I tried solco/qualitest going from teva & I cant give an unbiased opinion as I was and still am stabilizing from too big of a cut then reinstatement, while I was trying to crossover to it. I can say I think I slept ok on it given the circumstances I was in & I think it was more sedating than teva. I think it’s a generic that’s worth a shot. I started a teva clonazapam discontinued group, you may want to check out. Good luck.

 

All, I’ve found out teva didn’t discontinue their 1mg clonazapam, so got those to split in half as I hold until ready to start taper again. Just really wanting to be stable as possible for ms specialist out of town appointment. Now found out they are discontinueing that too. Will end up having to do another crossover & have to choose a generic clonazapam to stick with for that, when teva or this script runs out.

 

Sorry I’m super side tracked right now with trying to get ready for ms specialist. Have spent so much time trying to figure this taper stuff out & gotten no where. My brain can’t comprehend all different methods. But now am unprepared for ms guru. Ugh... I havnt bought clothes in years & lost weight & am petite already, so have been out trying to get some basic clothes to where for travel & summer in general, just stressful & was depressed & tired & so indecisive the entire time. Have some basics now. Will be seeing inlaws havnt seen in years due to depression & anxiety too. I’ll be so out of my routine.

 

Now must gather all ms info, questions for specialist & whatever last minute paperwork they sent & figure all of that out. I’m feeling so overwhelmed, depression & tired, but am thankful for everyday & will push through & pray the lord carriers me through this.

 

It’s so confusing because ms & taking & or withdrawaling from benzos have many symptoms that overlap. Researching & understanding ms...way too much info in the time I have before appt. on Friday.

 

I may end up on ms Meds soon. Hopefully will come home with answers to what’s going on with my brain & body(I have much upper back pain that I don’t know what’s from nor what kind of doctor to see for it)& how this long distance doctor is going to work.

 

Thanks for all of the love & support in this group. I hope your all doing well & I’ll try to pop in when I can as I get through this ms, generic crossover, hold stuff.

 

I know cant recommended reading over builders stuff to learn how to liquid taper, I just don’t think I can grasp it on my own. I’m going to need help, but see what he’s saying about needing to understand it so I don’t have to rely on someone constantly. Just looking for reassurance that anyone who has a grasp on liquid tapering will be willing to help me get a grasp when my time comes.

 

Be well have a great weekend kind souls love SC

[[Gr...]]

 

 

I am now going marry Green Cup!!  :laugh: :laugh:...... And kill My neighbor whose now banging and DIY-ing on the walls again!!! |!"$£^&(?@! like i said FLM! 

 

 

Love Nova xxx  :smitten:

 

Awwww.  Thanks Nova.  :smitten:

 

I once had a knack for mathematics and I truly enjoy it, but I've learned, after being on benzos this long, that showing my work is the best way to proceed doing math problems, with a damaged brain. 

 

I've entered a wave, with migraines and nausea.  It started Wednesday, and UGH, I am so frustrated.  I have a full week ahead of me, starting Tuesday.  I am trying to rest up to prepare myself. 

[[St...]]

Hang in there Cant l suspect we made your evening lol.Read your blog and l hope you start to see an improvement now stress wise.l had to do the same after 10 years before my taper just couldn't cope with both.Have to say l felt incredible guilt for a long time however l knew it was for the best.

      Greencup sorry you are in a wave but you will get back to a window with enough time.

    Sc don't worry about your appointment he will tell you what you need to know.Be brave and take one day at a time.

    Love Stut X

[[Sc...]]

Thanks for the ever ongoing support Stut, means so much. Hope your well

[[bl...]]

Hang in there buddies....

 

Scaredie: I couldn’t figure out DLMT either. A friend I met here actually did it for me, sent me the supplies, wrote out a daily draw sheet. It’s not hard but not sure I could have done it myself to be honest. Do you know anyone who can help you with it? I would, but I can’t really figure it out, I just follow the instructions. You need a spreadsheet.

[[Sc...]]

Hang in there buddies....

 

Scaredie: I couldn’t figure out DLMT either. A friend I met here actually did it for me, sent me the supplies, wrote out a daily draw sheet. It’s not hard but not sure I could have done it myself to be honest. Do you know anyone who can help you with it? I would, but I can’t really figure it out, I just follow the instructions. You need a spreadsheet.

Thanks for the response blue. So kind of you to reach out. I don’t know anyone who will send me supplies & a spreadsheet etc, but their are a couple of people, if they are well enough, that may be able to help me, depending on if I go with milk or liquid. Thank you

[[no...]]

Hang in there buddies....

 

Scaredie: I couldn’t figure out DLMT either. A friend I met here actually did it for me, sent me the supplies, wrote out a daily draw sheet. It’s not hard but not sure I could have done it myself to be honest. Do you know anyone who can help you with it? I would, but I can’t really figure it out, I just follow the instructions. You need a spreadsheet.

Thanks for the response blue. So kind of you to reach out. I don’t know anyone who will send me supplies & a spreadsheet etc, but their are a couple of people, if they are well enough, that may be able to help me, depending on if I go with milk or liquid. Thank you

 

Hi Scaredie  I just saw that you have MS?? Did you have that diagnosed before  taking Benzos'  or ANY other drugs? Or was it prior to being pit on drugs? As the side effects  withdrawal from Benzos and the side effects of LOTS of Drugs get misdiagnosed as M.S, Lupus, M.E all sorts of autoimmune illnesses it happened to me.

 

I was told I had M.S, then it was  Fybromyalgia, and M.E together , neuropathic nerve problems all sorts of stuff including serious heart problems I do NOT have ANY of them at all. Its ALL to do with ALL the drugs I was put on after  either side effects of the drugs withdrawal symptoms or chemical sensitivities caused by the other drugs.

 

 

If it was BEFORE, then look up Dr Terry Wahls on YouTube she had it and was seriously ill with M.S but cured her self with diet, here is a Ted-talk she gave on it https://youtu.be/KLjgBLwH3Wc,

 

And here is her Youtube channel https://www.youtube.com/user/FoodAsMedicine/videos.

 

Have you had your vitamin D levels checked? as low Vit D can also be a problem and a cause of M.S https://www.youtube.com/results?search_query=dr+horlicks+vitamin+d+and+M.S

 

Other people have also healed their self from M'S so there is hope and other things that can be done besides drugging a problem up not finding the actual cause and treating it instead

 

 

Love Nova xxx  :smitten:

[[Ma...]]

Morning all you guys, hoping for all of us to have a good day :smitten:

Hi Cant how is the knee?Has today been any easier for you or just blah.

    Love Stut X

Begood, Miyu, Mary,SS,Heath, Valley,Gard,NJ, Greencup and everyone l am sending healing thoughts to you all this weekend.

      Love Stut X

Oh look...!!

Aint i just the cleaver one..!!

So much better today thanks Stut... Gut cramps still, but they are easing and even not noticable for an hour or 2 here n there..

The knee isnt much better, but I can walk around the house type thing if im real careful. Otherwise its crutches... Atleast its not broken... Though it did kinda hurt more than a break, as they can do...

Emotionally Its like a new day, So much stress and tension has gone... Though im sure some of this is because im feeling medically better... But as with all things benzo, that presents a question as this seems to be a pattern of windows that relates to my opiate patch changes, as do the waves...

But im working on it... -probably not well at all though as I did a small lyrica cut today too..!!

They all entwine anyway, so probs best not to stress too much and just take it slow...

 

How have you Guys been??

Mary and Stut, maybe it was just your well wishes that gave me the good day..??

 

Hi BG -Nova... (392) ps, I do remember reading 14+ years for V and still good...??

 

Well just in case, let me send the whole forum well wishes  :laugh:

[[...]]

HI everyone , my buddies

 

I hope everyone is managing .  oh the ups and downs of wd ( for those of us who have not found stability anyway )

 

Today is yucky .Ugh so sick today. Hard for me to comprehend how this goes on , I can;t even say anymore if it has to do with some minute decrease  or not, it's all so random it seems

 

I feel toxic !! 

 

I managed my doctors appointment wednesday though, and it went really well!! yay.

 

On a friends advice , she told me " just remember he's human and doing his best , try and make him feel good "  ( I'm lucky that altho this guy is not benzo wise to say the least , he's not an a**hole)

 

on my first appointment I was a bit confronting with him as he was clearly benzo ignorant,  I was scared and came away feeling unsettled and worried. He wanted me to see a psychiatrist and give me anti depressants, thought .5mg K= 2.5mg Valium ! Argh

 

so this time, I decided to fake it . I smiled, was congenial, asked him how he was doing etc. It worked!! He didn't even bring up the AD's or the psychiatrist biz. I told him I would like to be off all meds eventually but didn't feel up to tapering at the moment , and he was FINE ! Lucky me . I wish everyone was so fortunate with this. I feel very relieved.

I'll get my scripts, and he'll leave me alone, that's what I had prayed for, and so I can relax at least on this score.

 

Now all I need is to be ABLE to taper ! 

 

 

sending love and healing hugs to everyone , especially those who are having a rough go of it at the moment

MiYu  :smitten:

 

 

 

[[To...]]

HI everyone , my buddies

 

I hope everyone is managing .  oh the ups and downs of wd ( for those of us who have not found stability anyway )

 

Today is yucky .Ugh so sick today. Hard for me to comprehend how this goes on , I can;t even say anymore if it has to do with some minute decrease  or not, it's all so random it seems

 

I feel toxic !! 

 

I managed my doctors appointment wednesday though, and it went really well!! yay.

 

On a friends advice , she told me " just remember he's human and doing his best , try and make him feel good "  ( I'm lucky that altho this guy is not benzo wise to say the least , he's not an a**hole)

 

on my first appointment I was a bit confronting with him as he was clearly benzo ignorant,  I was scared and came away feeling unsettled and worried. He wanted me to see a psychiatrist and give me anti depressants, thought .5mg K= 2.5mg Valium ! Argh

 

so this time, I decided to fake it . I smiled, was congenial, asked him how he was doing etc. It worked!! He didn't even bring up the AD's or the psychiatrist biz. I told him I would like to be off all meds eventually but didn't feel up to tapering at the moment , and he was FINE ! Lucky me . I wish everyone was so fortunate with this. I feel very relieved.

I'll get my scripts, and he'll leave me alone, that's what I had prayed for, and so I can relax at least on this score.

 

Now all I need is to be ABLE to taper ! 

 

 

sending love and healing hugs to everyone , especially those who are having a rough go of it at the moment

MiYu  :smitten:

Hi MiYu! So sorry you had a tough day. But, great approach with your doc and glad you got your scripts. Hope tomorrow is a better day!

[[Ba...]]

Am very fatigued/confused today so maybe did not comprehend some posts.

 

I not stable, did up valium 10% yesterday.  took bits of a unisom to get sleep and i just don't know how much i slept or not.  But inert.  Have not eaten but sat in sun for a bit.  Just feel brain dead.

 

So confused and blah.

 

Do some folks ever message (how?) or talk on phone ?

 

Sorry not following some of wht was said.

 

Think someone suggested valium but that is what I am on now.  Maybe that is the prob?  Feel like need good dr. and don't have one at all I can trust.

 

Quite hopeless.

[[ga...]]

 

so this time, I decided to fake it . I smiled, was congenial, asked him how he was doing etc. It worked!! He didn't even bring up the AD's or the psychiatrist biz. I told him I would like to be off all meds eventually but didn't feel up to tapering at the moment , and he was FINE ! Lucky me . I wish everyone was so fortunate with this. I feel very relieved.

I'll get my scripts, and he'll leave me alone, that's what I had prayed for, and so I can relax at least on this score.

 

I'm really relieved to hear your doctor is cooperating and writing your scripts and not sending you to psych. Losing my script and getting sent to psych were big fears of mine, too, until I learned the same thing you did. Smile and get the script. Don't expect anything else. Sad, but really the best course of action to get off these drugs. And we will! There have been quite a few success stories and updates posted recently. People who thought they would never get off but persevered and did. We will, too.

 

Gard

[[...]]

thank you TMB ..... How are you holding up?

 

I do want to mention everyone by name , cause I know when someone remembers me, it matters

 

So thinking of you -

Nova, Stut,  BG, Mary,  Olive , Heath , Cant, Barbara, NJ, SC, ( that's you Scardie  ) , SS, LAura, BlueP, Greencup, TNTD  GArd, Valley, Esperanza ( welcome),  .

Have I missed anyone ? THinking of you too if so.

 

Where's ATU I wonder ?

 

Hugs ,

MiYu

[[...]]

 

so this time, I decided to fake it . I smiled, was congenial, asked him how he was doing etc. It worked!! He didn't even bring up the AD's or the psychiatrist biz. I told him I would like to be off all meds eventually but didn't feel up to tapering at the moment , and he was FINE ! Lucky me . I wish everyone was so fortunate with this. I feel very relieved.

I'll get my scripts, and he'll leave me alone, that's what I had prayed for, and so I can relax at least on this score.

 

I'm really relieved to hear your doctor is cooperating and writing your scripts and not sending you to psych. Losing my script and getting sent to psych were big fears of mine, too, until I learned the same thing you did. Smile and get the script. Don't expect anything else. Sad, but really the best course of action to get off these drugs. And we will! There have been quite a few success stories and updates posted recently. People who thought they would never get off but persevered and did. We will, too.

 

Gard

 

THanks GArd, We just have to play the game a bit to get what we need sometimes.  I've never liked doing that , but , when its a situation like we are in, it can be in our best interest for sure. And thanks for the encouragement. I'm happy to see you are "getting there" and that things were a bit easier this last cut for you.

 

MiYu

 

[[ga...]]

Am very fatigued/confused today so maybe did not comprehend some posts.

 

I not stable, did up valium 10% yesterday.  took bits of a unisom to get sleep and i just don't know how much i slept or not.  But inert.  Have not eaten but sat in sun for a bit.  Just feel brain dead.

 

So confused and blah.

 

Do some folks ever message (how?) or talk on phone ?

 

Sorry not following some of wht was said.

 

Think someone suggested valium but that is what I am on now.  Maybe that is the prob?  Feel like need good dr. and don't have one at all I can trust.

 

Quite hopeless.

 

Barbara, I don't follow the thread well, either, but post randomly when I'm able. One thing stood out in your post. You said you hadn't eaten. I know there's lots more going on besides that, but I find I simply must eat something or everything gets so much worse. Maybe you could stick a note up somewhere reminding yourself to eat and drink. I used to have one up that said Food + Water = Safety. (That was before I gained 20 pounds sleep-eating on Seroquel. Don't need the note any more!)

 

Gard

[[ga...]]

 

so this time, I decided to fake it . I smiled, was congenial, asked him how he was doing etc. It worked!! He didn't even bring up the AD's or the psychiatrist biz. I told him I would like to be off all meds eventually but didn't feel up to tapering at the moment , and he was FINE ! Lucky me . I wish everyone was so fortunate with this. I feel very relieved.

I'll get my scripts, and he'll leave me alone, that's what I had prayed for, and so I can relax at least on this score.

 

I'm really relieved to hear your doctor is cooperating and writing your scripts and not sending you to psych. Losing my script and getting sent to psych were big fears of mine, too, until I learned the same thing you did. Smile and get the script. Don't expect anything else. Sad, but really the best course of action to get off these drugs. And we will! There have been quite a few success stories and updates posted recently. People who thought they would never get off but persevered and did. We will, too.

 

Gard

 

THanks GArd, We just have to play the game a bit to get what we need sometimes.  I've never liked doing that , but , when its a situation like we are in, it can be in our best interest for sure. And thanks for the encouragement. I'm happy to see you are "getting there" and that things were a bit easier this last cut for you.

 

MiYu

 

Thanks, Miyu. Yes, after so long, I am finally able to make normal cuts. I plan to slow down or hold if it gets rough. Actually, I plan to slow down as I get lower to keep from going off the rails again. I sure do like seeing the number go down, though. Hope I don't let that interfere with being sensible!

 

Gard

[[...]]

Am very fatigued/confused today so maybe did not comprehend some posts.

 

I not stable, did up valium 10% yesterday.  took bits of a unisom to get sleep and i just don't know how much i slept or not.  But inert.  Have not eaten but sat in sun for a bit.  Just feel brain dead.

 

So confused and blah.

 

Do some folks ever message (how?) or talk on phone ?

 

Sorry not following some of wht was said.

 

Think someone suggested valium but that is what I am on now.  Maybe that is the prob?  Feel like need good dr. and don't have one at all I can trust.

 

Quite hopeless.

 

Hi Barb ,

Sorry you are feeling hopeless,  I understand . I've been stuck with my taper for a long time now. Can you focus on perhaps not changing anything for now? I know how hard it is to want to do SOMETHINg when we feel so awful.

I too take extra bits of gabapentin here and there to get through.

 

I"m sorry you don't have a good doctor, as Gard said, sometimes the best we can hope for is just getting our meds.

HAve you considered joining Baylissa Fredericks  Website? I don;t know if I mentioned it before , but she's such a positive support , especially if you are alone.  She now has a small forum too. She offers weekly Q and A's , and a weekly webinar on some aspect of withdrawal , a daily email of encouragement and more.

She has so much experience helping people for 10+ years , and the one thing she ALWAYS says , is , everybody heals, .We can;t hear that enough.  she was friends with Prof Ashton for years too.

 

You can PM/message me on BB if you want to  know more.... do you know how to do that?

Hang in there

 

love, MiYu

 

[[Ba...]]

hi.  don't think i know how t o  pm here.

 

Do you talk to Baylissa?  Some sort of outreach would be nice.

 

I sometimes too tense to eat (knot)  or depressed, I guess.

 

Well my change was to go up 10% but guess have to give it more than one day/night?  Kind of thought that might be etter than adding in gabapentin.  Gather that is going to be schedule V drug soon?  i guess benzos are a 4?