The Long Hold Support Group

[[Ca...]]

Hi everyone..!!

So great to be back...!! And sorry i had to go for a while...

I am just catching up on where everyone is at, so pls forgive me for being slower than slow...

We are all doing well, and I feel similar to when i had to go, but some things have done a complete flip... like i have no interest in food, instead of eating for a small country..!!

I am up and about most days, which beats years of bed, and has helped so much...

 

I continued to drop every few months, as i was ready, and started to forget doses after a while on 0.5v... -so i just slowly extended the gap...NOT the most orthodox method, i know... -But U know me..!! Lol

WD SX still hit as hard as ever if I get behind, and I will hold on current dose while i decide on the final plan...

My Dr is as good as ever, but that last medicine specialist is written off as a bad joke...

I started lyrica full time at xmas, after much deliberation, so im not as far ahead as it might seem... But it gave me a life back and seems to fit well with my accident injuries... -Nerve damage etc..

My main issue by far is still stomach cramping, going on 9 years now, but it is much more isolated yet intense... Digestive motility is much better, So no more stupid gastro drs..!!

I am about to book in to my ortho drs to check all the pelvic and spinal injuries, -last check was 3yrs ago... If all is well I will get my bike licence back, which i hope will tie in with stepping off, and i can reward myself with a new toy..!! -We must have goals..!! Lol

SO thats Me... bla bla...

 

-How are all U guys..??

And welcome to any new people from over the last 6 months or so...

 

Again, sorry I dropped out like that, and was a real turtle about coming back on... -You were all in my thoughts... -more than you could know...

My 4 boys are all fine, and i am ever proud of C15 for his supurb effort and support...

 

Thanks Everyone...

And a special thanks to BG and gang, for being so supportive...

Oo

Ps.. I still text from my fone..!! Lol

 

[[NJ...]]

I am having such a hard time today.  Can't eat, can't stop shaking.  I took 4 mgs zofran and 10 mg hydroxyzine and am still shaking.  I was able to eat a yogurt, but that's it.  I'm so exhausted.  Everyone is telling me that it sounds like my metal state is making me this way, it's not withdrawal.  I just want to be fixed!!

 

It's withdrawal. It is just an up and down pattern. Try not to beat yourself up. Try to rest and if you can, meditate. I am in love with Jason Stephenson's youtube meditations. And know you will feel better soon.

 

I am trying a new strategy starting today--self-talk. I said positive affirmations to myself for my whole drive into work, and I actually feel much more calm (still a bit queasy, but can eat). I need to do this more often. It works. I am calm, I am in control, I have a good life, stuff like that.

 

I thank everyone for their support the last few days. The nausea has been so persistent during this taper (and has been really bad the last five weeks or so even before I accepted this new job) that I often feel overwhelmed when it flares up. Hopefully the dr. will have some suggestions or at least reassurance. He is the only dr. I have who understands withdrawal.

[[Va...]]

Hi everyone..!!

So great to be back...!! And sorry i had to go for a while...

I am just catching up on where everyone is at, so pls forgive me for being slower than slow...

We are all doing well, and I feel similar to when i had to go, but some things have done a complete flip... like i have no interest in food, instead of eating for a small country..!!

I am up and about most days, which beats years of bed, and has helped so much...

 

I continued to drop every few months, as i was ready, and started to forget doses after a while on 0.5v... -so i just slowly extended the gap...NOT the most orthodox method, i know... -But U know me..!! Lol

WD SX still hit as hard as ever if I get behind, and I will hold on current dose while i decide on the final plan...

My Dr is as good as ever, but that last medicine specialist is written off as a bad joke...

I started lyrica full time at xmas, after much deliberation, so im not as far ahead as it might seem... But it gave me a life back and seems to fit well with my accident injuries... -Nerve damage etc..

My main issue by far is still stomach cramping, going on 9 years now, but it is much more isolated yet intense... Digestive motility is much better, So no more stupid gastro drs..!!

I am about to book in to my ortho drs to check all the pelvic and spinal injuries, -last check was 3yrs ago... If all is well I will get my bike licence back, which i hope will tie in with stepping off, and i can reward myself with a new toy..!! -We must have goals..!! Lol

SO thats Me... bla bla...

 

-How are all U guys..??

And welcome to any new people from over the last 6 months or so...

 

Again, sorry I dropped out like that, and was a real turtle about coming back on... -You were all in my thoughts... -more than you could know...

My 4 boys are all fine, and i am ever proud of C15 for his supurb effort and support...

 

Thanks Everyone...

And a special thanks to BG and gang, for being so supportive...

Oo

Ps.. I still text from my fone..!! Lol

Hi can’t! So good to see you here and to hear that you are well! You definitely need to reward yourself. I found one for you lol....

 

width=500 height=299https://i.ebayimg.com/00/s/OTU3WDE2MDA=/z/wtwAAOSwB-1YtVst/$_58.JPG[/img]

[[Va...]]

I am having such a hard time today.  Can't eat, can't stop shaking.  I took 4 mgs zofran and 10 mg hydroxyzine and am still shaking.  I was able to eat a yogurt, but that's it.  I'm so exhausted.  Everyone is telling me that it sounds like my metal state is making me this way, it's not withdrawal.  I just want to be fixed!!

I agree with NJ. This is definitely withdrawal and you should just rest and distract as best you can. It will definitely pass in time.  —V

[[be...]]

Hi everyone..!!

So great to be back...!! And sorry i had to go for a while...

I am just catching up on where everyone is at, so pls forgive me for being slower than slow...

We are all doing well, and I feel similar to when i had to go, but some things have done a complete flip... like i have no interest in food, instead of eating for a small country..!!

I am up and about most days, which beats years of bed, and has helped so much...

 

I continued to drop every few months, as i was ready, and started to forget doses after a while on 0.5v... -so i just slowly extended the gap...NOT the most orthodox method, i know... -But U know me..!! Lol

WD SX still hit as hard as ever if I get behind, and I will hold on current dose while i decide on the final plan...

My Dr is as good as ever, but that last medicine specialist is written off as a bad joke...

I started lyrica full time at xmas, after much deliberation, so im not as far ahead as it might seem... But it gave me a life back and seems to fit well with my accident injuries... -Nerve damage etc..

My main issue by far is still stomach cramping, going on 9 years now, but it is much more isolated yet intense... Digestive motility is much better, So no more stupid gastro drs..!!

I am about to book in to my ortho drs to check all the pelvic and spinal injuries, -last check was 3yrs ago... If all is well I will get my bike licence back, which i hope will tie in with stepping off, and i can reward myself with a new toy..!! -We must have goals..!! Lol

SO thats Me... bla bla...

 

-How are all U guys..??

And welcome to any new people from over the last 6 months or so...

 

Again, sorry I dropped out like that, and was a real turtle about coming back on... -You were all in my thoughts... -more than you could know...

My 4 boys are all fine, and i am ever proud of C15 for his supurb effort and support...

 

Thanks Everyone...

And a special thanks to BG and gang, for being so supportive...

Oo

Ps.. I still text from my fone..!! Lol

Hi can’t! So good to see you here and to hear that you are well! You definitely need to reward yourself. I found one for you lol....

 

width=500 height=299https://i.ebayimg.com/00/s/OTU3WDE2MDA=/z/wtwAAOSwB-1YtVst/$_58.JPG[/img]

Hi Cant. Valley maybe this is more like the bike Mr. Turtle will be riding.

[[Ch...]]

I am having such a hard time today.  Can't eat, can't stop shaking.  I took 4 mgs zofran and 10 mg hydroxyzine and am still shaking.  I was able to eat a yogurt, but that's it.  I'm so exhausted.  Everyone is telling me that it sounds like my metal state is making me this way, it's not withdrawal.  I just want to be fixed!!

 

It's withdrawal. It is just an up and down pattern. Try not to beat yourself up. Try to rest and if you can, meditate. I am in love with Jason Stephenson's youtube meditations. And know you will feel better soon.

 

I am trying a new strategy starting today--self-talk. I said positive affirmations to myself for my whole drive into work, and I actually feel much more calm (still a bit queasy, but can eat). I need to do this more often. It works. I am calm, I am in control, I have a good life, stuff like that.

 

I thank everyone for their support the last few days. The nausea has been so persistent during this taper (and has been really bad the last five weeks or so even before I accepted this new job) that I often feel overwhelmed when it flares up. Hopefully the dr. will have some suggestions or at least reassurance. He is the only dr. I have who understands withdrawal.

 

Thank you NJ, that's what I needed to hear.  Feeling a little better this morning, but I have a headache from crying so hard last night.  Man this withdrawal sucks!

When I'm good, I feel ljke I can conquer the world.  When I'm in a wave, I literally feel like I'd be better off not on this earth, and that scares me.  Will this pattern continue even if I'm holding?  If so, why hold?  My husband told me last night that he's not going to let me cut again for a long time.  He doesn't care if it's months, he just can't stand to see me hurting like that.   

It's hard to hear that this may not be withdrawal, because then I get it in my head that I'm broken.

 

I don't know what I'd do without the support of all you wonderful people on BB.  I can't be much support today, but I hipe.all are doing well.

 

Much love...KK

 

[[Va...]]

Hi everyone..!!

So great to be back...!! And sorry i had to go for a while...

I am just catching up on where everyone is at, so pls forgive me for being slower than slow...

We are all doing well, and I feel similar to when i had to go, but some things have done a complete flip... like i have no interest in food, instead of eating for a small country..!!

I am up and about most days, which beats years of bed, and has helped so much...

 

I continued to drop every few months, as i was ready, and started to forget doses after a while on 0.5v... -so i just slowly extended the gap...NOT the most orthodox method, i know... -But U know me..!! Lol

WD SX still hit as hard as ever if I get behind, and I will hold on current dose while i decide on the final plan...

My Dr is as good as ever, but that last medicine specialist is written off as a bad joke...

I started lyrica full time at xmas, after much deliberation, so im not as far ahead as it might seem... But it gave me a life back and seems to fit well with my accident injuries... -Nerve damage etc..

My main issue by far is still stomach cramping, going on 9 years now, but it is much more isolated yet intense... Digestive motility is much better, So no more stupid gastro drs..!!

I am about to book in to my ortho drs to check all the pelvic and spinal injuries, -last check was 3yrs ago... If all is well I will get my bike licence back, which i hope will tie in with stepping off, and i can reward myself with a new toy..!! -We must have goals..!! Lol

SO thats Me... bla bla...

 

-How are all U guys..??

And welcome to any new people from over the last 6 months or so...

 

Again, sorry I dropped out like that, and was a real turtle about coming back on... -You were all in my thoughts... -more than you could know...

My 4 boys are all fine, and i am ever proud of C15 for his supurb effort and support...

 

Thanks Everyone...

And a special thanks to BG and gang, for being so supportive...

Oo

Ps.. I still text from my fone..!! Lol

Hi can’t! So good to see you here and to hear that you are well! You definitely need to reward yourself. I found one for you lol....

 

width=500 height=299https://i.ebayimg.com/00/s/OTU3WDE2MDA=/z/wtwAAOSwB-1YtVst/$_58.JPG[/img]

Hi Cant. Valley maybe this is more like the bike Mr. Turtle will be riding.

Perhaps your bike is a little better suited for cant than mine lol.  —V

[[NJ...]]

I am having such a hard time today.  Can't eat, can't stop shaking.  I took 4 mgs zofran and 10 mg hydroxyzine and am still shaking.  I was able to eat a yogurt, but that's it.  I'm so exhausted.  Everyone is telling me that it sounds like my metal state is making me this way, it's not withdrawal.  I just want to be fixed!!

 

It's withdrawal. It is just an up and down pattern. Try not to beat yourself up. Try to rest and if you can, meditate. I am in love with Jason Stephenson's youtube meditations. And know you will feel better soon.

 

I am trying a new strategy starting today--self-talk. I said positive affirmations to myself for my whole drive into work, and I actually feel much more calm (still a bit queasy, but can eat). I need to do this more often. It works. I am calm, I am in control, I have a good life, stuff like that.

 

I thank everyone for their support the last few days. The nausea has been so persistent during this taper (and has been really bad the last five weeks or so even before I accepted this new job) that I often feel overwhelmed when it flares up. Hopefully the dr. will have some suggestions or at least reassurance. He is the only dr. I have who understands withdrawal.

 

Thank you NJ, that's what I needed to hear.  Feeling a little better this morning, but I have a headache from crying so hard last night.  Man this withdrawal sucks!

When I'm good, I feel ljke I can conquer the world.  When I'm in a wave, I literally feel like I'd be better off not on this earth, and that scares me.  Will this pattern continue even if I'm holding?  If so, why hold?  My husband told me last night that he's not going to let me cut again for a long time.  He doesn't care if it's months, he just can't stand to see me hurting like that.   

It's hard to hear that this may not be withdrawal, because then I get it in my head that I'm broken.

 

I don't know what I'd do without the support of all you wonderful people on BB.  I can't be much support today, but I hipe.all are doing well.

 

Much love...KK

 

The holds are important because (at least I have found) if you keep cutting when you are very symptomatic, it can get even worse.

 

I held for six months last year, and when I re-started my taper, could cut more easily without as many symptoms.

 

I think your brain can heal as you are tapering. It just takes a long time.

[[Ch...]]

I am having such a hard time today.  Can't eat, can't stop shaking.  I took 4 mgs zofran and 10 mg hydroxyzine and am still shaking.  I was able to eat a yogurt, but that's it.  I'm so exhausted.  Everyone is telling me that it sounds like my metal state is making me this way, it's not withdrawal.  I just want to be fixed!!

I agree with NJ. This is definitely withdrawal and you should just rest and distract as best you can. It will definitely pass in time.  —V

 

Thank you Valley Um.  No rest for me...back at work today.  Feeling a bit better though, groggy from the extra hydroxyzine I took last night.  Probably a good thing, it may keep me calm today. 

 

Btw, did I mention I HATE BENZOS??!!

[[Su...]]

I am having such a hard time today.  Can't eat, can't stop shaking.  I took 4 mgs zofran and 10 mg hydroxyzine and am still shaking.  I was able to eat a yogurt, but that's it.  I'm so exhausted.  Everyone is telling me that it sounds like my metal state is making me this way, it's not withdrawal.  I just want to be fixed!!

 

Hi KK,

I know you have had other replies but I wanted to chime in.  This sure sounds like w/d, and it sounds like the state I put myself into when I was tapering too quickly at the beginning of my taper....  I kind of had this idea that I could push through, like I've pushed my body and myself through various things in my life -- with a great finish after doing that.  Hoorah! 

 

Tapering seems to be a different animal. 

If I push I pay! 

If I listen very closely to my body then things can be tolerable and even very good some days. 

And it is still -- after close to a year-- so tempting to push (Some character traits are harder to drop than others....) 

I know that you're feeling a bit better today than when you wrote this post and am glad for that.  Your husband sounds like good support!

I have faith that we will all get there, in a fashion that can make the time of tapering unpleasant but not hell..

Or that's my plan....

SS

[[St...]]

Hi KK well done for going to work.l think you should stay on the dose you are at until everything settles down again.l am wondering if your doctor has checked your hormone levels etc.l am unsure if you are perhaps menopausal which can cause all sorts of problems.It's only a thought.l think we are all saying the same thing.

[[Ch...]]

Thank you bot, SS and Stut.  I agree with holding for a while.  I justvreally want off this.poison and to regain my life.  I had absolutely no idea it would be this hard.  Both my psychiatrist and psychologist think I'm barely cutting anything.  Pffft. 

 

Anyway, I asked my gyn about menopause and he said it wouldn't cause this.  Um, what??  DO I went to my gp for anreferral.to a menopause specialist,  insurance company denied it.  My psych said I should call and schedule a cash pay appt (he thinks it may be hormones too).  They charge $150-$600 for consultation only and couldn't tell me how much mine would cost.  Anyone know how to fight a turned down referral they insurance??  I have Anthem/Blue Cross.

[[St...]]

Hi KK l can't help you with your referral as l am from the UK however I would have to disagree with the idea that menopause can't cause this.l would have to say it could cause this and a lot more.Even if your hormone levels are normal you could be perimenopausal.l hope you get answers soon.

[[Ch...]]

Hi KK l can't help you with your referral as l am from the UK however I would have to disagree with the idea that menopause can't cause this.l would have to say it could cause this and a lot more.Even if your hormone levels are normal you could be perimenopausal.l hope you get answers soon.

 

My panic attacks started during my period, so even my psych thinks it's hormones.  In fact, I'm just getting off my period, so I'm guessing that's what caused.yestrrday's episode.  I've never had anxiety or depression before in my.life, then WHAMO, 1 month before my 48th birthday exactly.  I don't think it's a coincidence.  And now my poor brain has been screwed up by these psych drugs.  Im a mess.

[[St...]]

Don't worry KK you will get off the drugs.You have not damaged yourself in any way.Try to get your investigations sorted out and hopefully it will help you get to the bottom of the problem.

[[Ch...]]

Thanks Stut.  My husband says there is nothing wrong with Me!  I had a few days of panic and my doc threw meds at me thatvscrewed me up good.  I am so lucky to have that man!

[[St...]]

He seems very wise.Your in good hands.Just stick with the dose of benzo and let everything settle.

[[Ch...]]

He seems very wise.Your in good hands.Just stick with the dose of benzo and let everything settle.

 

That is the plan.  We both need some.peace right now.  Man these waves are killer. 

[[He...]]

Hi everyone..!!

So great to be back...!! And sorry i had to go for a while...

I am just catching up on where everyone is at, so pls forgive me for being slower than slow...

We are all doing well, and I feel similar to when i had to go, but some things have done a complete flip... like i have no interest in food, instead of eating for a small country..!!

I am up and about most days, which beats years of bed, and has helped so much...

 

I continued to drop every few months, as i was ready, and started to forget doses after a while on 0.5v... -so i just slowly extended the gap...NOT the most orthodox method, i know... -But U know me..!! Lol

WD SX still hit as hard as ever if I get behind, and I will hold on current dose while i decide on the final plan...

My Dr is as good as ever, but that last medicine specialist is written off as a bad joke...

I started lyrica full time at xmas, after much deliberation, so im not as far ahead as it might seem... But it gave me a life back and seems to fit well with my accident injuries... -Nerve damage etc..

My main issue by far is still stomach cramping, going on 9 years now, but it is much more isolated yet intense... Digestive motility is much better, So no more stupid gastro drs..!!

I am about to book in to my ortho drs to check all the pelvic and spinal injuries, -last check was 3yrs ago... If all is well I will get my bike licence back, which i hope will tie in with stepping off, and i can reward myself with a new toy..!! -We must have goals..!! Lol

SO thats Me... bla bla...

 

-How are all U guys..??

And welcome to any new people from over the last 6 months or so...

 

Again, sorry I dropped out like that, and was a real turtle about coming back on... -You were all in my thoughts... -more than you could know...

My 4 boys are all fine, and i am ever proud of C15 for his supurb effort and support...

 

Thanks Everyone...

And a special thanks to BG and gang, for being so supportive...

Oo

Ps.. I still text from my fone..!! Lol

Hi can’t! So good to see you here and to hear that you are well! You definitely need to reward yourself. I found one for you lol....

 

width=500 height=299https://i.ebayimg.com/00/s/OTU3WDE2MDA=/z/wtwAAOSwB-1YtVst/$_58.JPG[/img]

Hi Cant. Valley maybe this is more like the bike Mr. Turtle will be riding.

 

Hey, how about bikes for everyone?  Let’s meet in the park someplace and have a go at it!

Maybe a picnic lunch too!

Uhhhhhhh...... whose buying the bikes?

[[...]]

Hi everyone..!!

So great to be back...!! And sorry i had to go for a while...

I am just catching up on where everyone is at, so pls forgive me for being slower than slow...

We are all doing well, and I feel similar to when i had to go, but some things have done a complete flip... like i have no interest in food, instead of eating for a small country..!!

I am up and about most days, which beats years of bed, and has helped so much...

 

I continued to drop every few months, as i was ready, and started to forget doses after a while on 0.5v... -so i just slowly extended the gap...NOT the most orthodox method, i know... -But U know me..!! Lol

WD SX still hit as hard as ever if I get behind, and I will hold on current dose while i decide on the final plan...

My Dr is as good as ever, but that last medicine specialist is written off as a bad joke...

I started lyrica full time at xmas, after much deliberation, so im not as far ahead as it might seem... But it gave me a life back and seems to fit well with my accident injuries... -Nerve damage etc..

My main issue by far is still stomach cramping, going on 9 years now, but it is much more isolated yet intense... Digestive motility is much better, So no more stupid gastro drs..!!

I am about to book in to my ortho drs to check all the pelvic and spinal injuries, -last check was 3yrs ago... If all is well I will get my bike licence back, which i hope will tie in with stepping off, and i can reward myself with a new toy..!! -We must have goals..!! Lol

SO thats Me... bla bla...

 

-How are all U guys..??

And welcome to any new people from over the last 6 months or so...

 

Again, sorry I dropped out like that, and was a real turtle about coming back on... -You were all in my thoughts... -more than you could know...

My 4 boys are all fine, and i am ever proud of C15 for his supurb effort and support...

 

Thanks Everyone...

And a special thanks to BG and gang, for being so supportive...

Oo

Ps.. I still text from my fone..!! Lol

Hi can’t! So good to see you here and to hear that you are well! You definitely need to reward yourself. I found one for you lol....

 

width=500 height=299https://i.ebayimg.com/00/s/OTU3WDE2MDA=/z/wtwAAOSwB-1YtVst/$_58.JPG[/img]

Hi Cant. Valley maybe this is more like the bike Mr. Turtle will be riding.

Perhaps your bike is a little better suited for cant than mine lol.  —V

 

 

It's SO good to hear from you Cant. YOu have certainly been missed  but , we figured you'd be back when you were ready.

I'm glad you've made it this far, great news! THanks for the update too

 

I wanted to tell you about  a book I read recently called "You Are The PLacebo" by Joe Dispenza.  He was hit on his bicycle by an SUV and suffered severe spinal injury. He was a chiropractor, so he knew the details of the spine. His doctors told him he'd likely never walk again , be on pain meds and have steel rods in his back. Well, he didn't go for that prognosis. He started imagining his spine healing , vertebrae by vertebrae. In 10 months he was walking again . Today he is completely healed and now works with people with various illnesses and challenges to guide them in healing. His book outlines his methods as well as providing lots of examples of miraculous healings and also the history if the placebo effect which is very interesting. He has a few youtube videos too actually , so you can watch those to get an idea of what he's about.

 

Anyway ,  thought it might be of interest to you.

 

It's a good read , and anyone who thinks they can't heal from these  meds, it's not true! As Heath and others i think have said, our bodies are amazing and can heal themselves from pretty much anything , and definitely benzos!!

 

Keep going everyone.

 

love , MiYu 

 

PS , I'm starting to feel more stable , yay, I've had a few days that haven't been so bad. Still have symptoms and can't go out really, but better. So , anyone worrying about holding too long and tolerance, I've been crawling along for over a year now, not even 5% reduction ,  and I feel like I'm finally getting a little more stable , and no tolerance. Fingers crossed, I still may be the slowest turtle ever, but I'm so glad for the support and encouragement for looooong holds ! 

[[Ca...]]

Hi everyone..!!

So great to be back...!! And sorry i had to go for a while...

I am just catching up on where everyone is at, so pls forgive me for being slower than slow...

We are all doing well, and I feel similar to when i had to go, but some things have done a complete flip... like i have no interest in food, instead of eating for a small country..!!

I am up and about most days, which beats years of bed, and has helped so much...

 

I continued to drop every few months, as i was ready, and started to forget doses after a while on 0.5v... -so i just slowly extended the gap...NOT the most orthodox method, i know... -But U know me..!! Lol

WD SX still hit as hard as ever if I get behind, and I will hold on current dose while i decide on the final plan...

My Dr is as good as ever, but that last medicine specialist is written off as a bad joke...

I started lyrica full time at xmas, after much deliberation, so im not as far ahead as it might seem... But it gave me a life back and seems to fit well with my accident injuries... -Nerve damage etc..

My main issue by far is still stomach cramping, going on 9 years now, but it is much more isolated yet intense... Digestive motility is much better, So no more stupid gastro drs..!!

I am about to book in to my ortho drs to check all the pelvic and spinal injuries, -last check was 3yrs ago... If all is well I will get my bike licence back, which i hope will tie in with stepping off, and i can reward myself with a new toy..!! -We must have goals..!! Lol

SO thats Me... bla bla...

 

-How are all U guys..??

And welcome to any new people from over the last 6 months or so...

 

Again, sorry I dropped out like that, and was a real turtle about coming back on... -You were all in my thoughts... -more than you could know...

My 4 boys are all fine, and i am ever proud of C15 for his supurb effort and support...

 

Thanks Everyone...

And a special thanks to BG and gang, for being so supportive...

Oo

Ps.. I still text from my fone..!! Lol

Hi can’t! So good to see you here and to hear that you are well! You definitely need to reward yourself. I found one for you lol....

 

width=500 height=299https://i.ebayimg.com/00/s/OTU3WDE2MDA=/z/wtwAAOSwB-1YtVst/$_58.JPG[/img]

Lol, that is sooo NOT me... yet!!!

-BUT, I cant believe you have kept it so clean in the chook shed...!!

[[Ca...]]

Hi everyone..!!

So great to be back...!! And sorry i had to go for a while...

I am just catching up on where everyone is at, so pls forgive me for being slower than slow...

We are all doing well, and I feel similar to when i had to go, but some things have done a complete flip... like i have no interest in food, instead of eating for a small country..!!

I am up and about most days, which beats years of bed, and has helped so much...

 

I continued to drop every few months, as i was ready, and started to forget doses after a while on 0.5v... -so i just slowly extended the gap...NOT the most orthodox method, i know... -But U know me..!! Lol

WD SX still hit as hard as ever if I get behind, and I will hold on current dose while i decide on the final plan...

My Dr is as good as ever, but that last medicine specialist is written off as a bad joke...

I started lyrica full time at xmas, after much deliberation, so im not as far ahead as it might seem... But it gave me a life back and seems to fit well with my accident injuries... -Nerve damage etc..

My main issue by far is still stomach cramping, going on 9 years now, but it is much more isolated yet intense... Digestive motility is much better, So no more stupid gastro drs..!!

I am about to book in to my ortho drs to check all the pelvic and spinal injuries, -last check was 3yrs ago... If all is well I will get my bike licence back, which i hope will tie in with stepping off, and i can reward myself with a new toy..!! -We must have goals..!! Lol

SO thats Me... bla bla...

 

-How are all U guys..??

And welcome to any new people from over the last 6 months or so...

 

Again, sorry I dropped out like that, and was a real turtle about coming back on... -You were all in my thoughts... -more than you could know...

My 4 boys are all fine, and i am ever proud of C15 for his supurb effort and support...

 

Thanks Everyone...

And a special thanks to BG and gang, for being so supportive...

Oo

Ps.. I still text from my fone..!! Lol

Hi can’t! So good to see you here and to hear that you are well! You definitely need to reward yourself. I found one for you lol....

 

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Hi Cant. Valley maybe this is more like the bike Mr. Turtle will be riding.

Thanks Miss BG..!!! -much better..!!

Now who is playing santa this year, as this might be the looongest Step Off in history, going by how my guts is behaving...!!

[[Ca...]]

Miyu... Hi...!!

That is SO good to hear..!! U sure have put in the hard yards... How often you must have lost faith, but kept trusting in yourself... I hope it just keeps getting better from here, and you find a taper speed that works for you... Never think you will be stuck forever... (though i think we have all been there..!!)

 

That sounds like a great book... more and more these things come into play as quick fixes fail...

I must keep remembering the wholistic, natural, approach... -a distant past of mine...!!

 

Keep up the good work..!!

Oo

 

 

 

[[Ca...]]

Hi KK..!!

I feel u r on the right track with holding for a while too... I cant recall any harm coming from it, if given the time... Things can get a bit of a shake up for a while though, which can put a lot of people off, -right before it gets better...

I did a fairly "chunky" Cut n Hold, as a micro taper didnt suit me..

I held months between cuts, and got to see how the WDs (for me) peaked, subsided and changed, often with new SX emerging in force months after a cut, Then subsiding... It all got that bit easier when i allowed the time, and a bit more, for the body to catch up...

I found wanting to push forwards kinda a SX of its own... -a never ending internal Pop Quiz..!!

 

Wishing u the best, and look forward getting to know you..

[[He...]]

PS , I'm starting to feel more stable , yay, I've had a few days that haven't been so bad. Still have symptoms and can't go out really, but better. So , anyone worrying about holding too long and tolerance, I've been crawling along for over a year now, not even 5% reduction ,  and I feel like I'm finally getting a little more stable , and no tolerance. Fingers crossed, I still may be the slowest turtle ever, but I'm so glad for the support and encouragement for looooong holds ! 

 

 

 

YAY! MIYU!

I’m soooo glad to hear that you are having some better days!  Now....IMO ....keep holding until you are really stable. This is probably the beginning of something really big and good!

 

You go girl!

 

Heath :smitten: :smitten: