The Long Hold Support Group

[[Va...]]

Is everyone struggling with insomnia?  just curious.

 

Just spotted this from way back in the thread.

I have had insomnia since I was aged 7 and like Gard I have had sleep studies done and psych/sleep specialist help.

I was told by one of them that med students spend around one half day only, learning about sleep, which explains why there seems to be so little knowledge of insomnia.

 

There is a strong hereditary/genetic element  in mine, which they said explains why not much will help it  "you're just one of the unlucky ones"  lol

 

We can trace it back through at least 3 generations that we know of ....my great grandfather, two great great uncles, two great uncles, grandfather, father, aunt,  my brother, and two of my daughters [identical twins]

I don't list it amongst my symptoms because it is just a part of my life which i just try to live with.

 

It was the reason I took Nitrazepam [beginning of my sig] because of a particular trauma, and it does work, but I didn't like the groggy foggy after effects and after adding diazepam I came to the conclusion that I was no better with benzos and definitely better in other ways without them.

I'm used to not sleeping but can't stand feeling groggy and fuzzy brained and feeling as if I'm walking though treacle.

I  just do all the recommended "sleep hygiene" things and so do my aunt and my daughters.

 

The past generations of the family, and my brother, have become what the doctors call "high functioning" alcoholics because of insomnia...nobody would guess, or ever did guess, that they drank because they were never drunk and they did very demanding jobs.

 

Wine makes me sleep too but I avoid it because I know what would happen  ...big time!!

 

That's why I was a bit doubtful about vodka titrating lol but I think I'll cope with the tiny amounts involved.

 

I always take at least 2 hours to go to sleep - I don't clock watch but I know from where I got to in my book before it dropped to the floor and often I know I'm going to fall asleep because I've "read" 3 or 4 pages without taking it in, so I put the book down in an orderly way 

It's a nasty thing to live with but others have worse so what the hell

 

A good night it 4  hours unbroken, which I can easily cope with.

A bad night is just no sleep.

I was once in hospital and the nurse said  "yes you slept, I checked in on you 3 times"

"You came in 4 times"  I replied ....she was amazed.

 

SO ...yes it's one of my symptoms but not because of benzos except probably a bit of  rebound insomnia after I stopped taking the Nitrazepam.

Thought I'd put this on because you asked way back and because I'm happy to share any experiences with it or give any help to anyone on here  cos you are all so good  :hug:

Thanks slowly! I asked the question as it hasn't really been a big issue as I taper but I have struggled with it at times during my life.  --V

[[Va...]]

PS The 1/4 cuts I refer to in the post above this one was 1/4mg MG a time NOT the whole dose Just in-case anyone reads the above and decides to try it.

 

 

 

Love Nova xxx  :smitten:

Thanks nova! Cutting small and going slow are the best ways to avoid intolerable sxs IMO.  --V

[[sl...]]

Third day feeling OK except for vertigo.

Think its a bit less but my floor is still moving alot - hate it.

 

Going to London next weekend because my daughter has been given 2 pairs of  Wimbledon Centre Court tickets - exc seats -for  mens' quarter finals and mens' semi finals and has invited me 

Can't miss that  - a perk from one of her clients.

Hope my favourite players  are  still in by then but too superstitious to mention them or they will crash out 1st round

 

Will hold until I get back on 17th July.

Bit nervous of the travel cos of vertigo and don't want to go falling over, crashing onto Centre Court - might put the players off 

 

Thanks everyone for the support.

 

Valley I'm glad insomnia hasn't been a problem during your taper.

I don't think tapering has affected mine either but I gather it's a big issue for lots of people from reading various stories on BB.

 

[[ga...]]

The trip sounds wonderful, Slowly. I agree with your plan to hold until afterwards. And I agree with your plan not to crash onto Center Court!

 

Gard

[[sl...]]

:laugh: thanks Gard.

It would be nice to crash onto it and lift the trophy but that ain't gonna happen even if I get off these benzos 

 

slowly 

[[Me...]]

MiYu

I didn't see in your signature where you came completely off the X. Are you still on it or off? The reason I ask is, I was CT off X and hoped for 3 weeks when a new doc put me on K. I had been on 0.5 X two or three times a day. My K dose was started at 2 mg so, it see!Ed a proper exchange for the AMT of Valium. Problem now is that I can't budge with the K because at 10 mos.out from CT of X, I'm still having protracted WD sxs.....even though I was eventually place and remain on a good dose of K. I'm wornderimg if this similar type issue could be causing you your extra struggle. Just a thought. I am now on a taper lock down, which I don't want to be but until my protracted WD from the X ends, I feel my K taper will never pan out successfully. Although I seem to be much weaker than you.......can't hold out when waves last over 2 weeks without a window.

You're in my thoughts

Mellowplease

[[Ca...]]

PS The 1/4 cuts I refer to in the post above this one was 1/4mg MG a time NOT the whole dose Just in-case anyone reads the above and decides to try it.

 

 

 

Love Nova xxx  :smitten:

Thanks nova! Cutting small and going slow are the best ways to avoid intolerable sxs IMO.  --V

yeah...!!! -who would do something like that..!!!

If anyone wants to know what NOT to do... Im happy to share..!!

 

Just to Add to a piece of what Nova said... -if I may...?

 

I went from a rough (clunky) long hold straight into a 50% (1V) cut... (not recommended, other factors)

 

I felt it a bit day 3, again 11-13, then had 3 fantastic days, then rough again... these were my normal SX. (Ever increasing till about 3 days ago)

BUT at week 4, everyday I have also got a new classic benzo SX that I havnt had, or only had, the tiniest of touches of when i was bad at xmas..

tinitus, raw teeth nerves, jerks, tight chest, etc. -and some horrid anxiety/depression/doom n gloom crap...

(No poor me's pretty please..  thats not needed, Im fine..)

 

Point being, it gave a fairly clear picture of my "pattern" (at this point)..

So many people would have already made a cut (from the 3 good days), and many even a second cut by then (4 wks)...  (its now 5 weeks)

They would be saying all sorts of things about the cuts, -but in reality it was still from the initial cut (assuming a much smaller cut and less magnified SX down the track)

 

I found from holding from New Year on... -that it took about 3 MONTHS for all my SX to show their face (though mild).. I tried a few test cuts along the way, but knew I wasnt ready...

 

So I would agree, that after all the effort of a long hold, -give the stabalizing the time that its due too... -And look at larger changes in terms of months not so much weeks..

 

At nearly 6 months I started to feel ready, but also had some major medicine changes that allowed me to attempt to slip in the big cut, so it cant be used as a guide or a basis for advice... (though I reversed the majority of those changes after 2 weeks anyway, and the rest to follow).

 

And I would guess (perhaps i will get worse yet??), That the hold did wonders for me, or I would be a pile on the floor right now... -had I stuck to the "guide lines" I would feel even better, im sure... probably good to great..!!

 

Sorry this is messy... am texting on fone at 3am... -love that insomnia...

 

My best to All...

 

***And I promise to behave from here on in...

 

[[...]]

Hi guys,

 

Wow, so many stories. My heart goes out to everyone who is still struggling despite their long holds, MiYu and Nova come to mind.

 

Thank you so much Nova and Heath for sharing your stories. It always helps to hear what has happened to other people. I agree with you Nova that a symptoms based taper should really be pushed as the best way to taper. I think it would prevent a lot of pain.

 

I've been holding for four months now and have felt pretty good, not perfect thoug I've had almost 100% days, for about a month. I'm planning on starting to micro taper in July. I'm planning on cutting .0019mg for two days and then holding for a couple of weeks to see how things go. If things stay pretty much the same I'm planning on cutting .0019mg for two days and holding for two weeks again. What do you guys think? I am very open to others thoughts on this. The last time I tried to taper I started out doing pretty well but then went down hill and it got worse with every cut. I am trying to stay functional now that I've become functional again.

 

Hi Mellow,

 

I don't know if this has any bearing on what you are going through but Xanax never worked for me. It makes me wonder if the K is working in the same way for you that the Xanax did or if your body is processing it differently and therefore not helping much with your Xanax CT. Just a thought. Maybe someone else knows about this stuff.

 

Hugs and healing everyone. Wishing windows for everyone.

T

[[Va...]]

Hi guys,

 

Wow, so many stories. My heart goes out to everyone who is still struggling despite their long holds, MiYu and Nova come to mind.

 

Thank you so much Nova and Heath for sharing your stories. It always helps to hear what has happened to other people. I agree with you Nova that a symptoms based taper should really be pushed as the best way to taper. I think it would prevent a lot of pain.

 

I've been holding for four months now and have felt pretty good, not perfect thoug I've had almost 100% days, for about a month. I'm planning on starting to micro taper in July. I'm planning on cutting .0019mg for two days and then holding for a couple of weeks to see how things go. If things stay pretty much the same I'm planning on cutting .0019mg for two days and holding for two weeks again. What do you guys think? I am very open to others thoughts on this. The last time I tried to taper I started out doing pretty well but then went down hill and it got worse with every cut. I am trying to stay functional now that I've become functional again.

 

Hi Mellow,

 

I don't know if this has any bearing on what you are going through but Xanax never worked for me. It makes me wonder if the K is working in the same way for you that the Xanax did or if your body is processing it differently and therefore not helping much with your Xanax CT. Just a thought. Maybe someone else knows about this stuff.

 

Hugs and healing everyone. Wishing windows for everyone.

T

So glad to hear things have improved! It seems like your plan is sound. Start out slow and see what happens. I believe that as long as you are going slowly, you can catch bad sxs before they get out of hand.  --V

[[...]]

MiYu

I didn't see in your signature where you came completely off the X. Are you still on it or off? The reason I ask is, I was CT off X and hoped for 3 weeks when a new doc put me on K. I had been on 0.5 X two or three times a day. My K dose was started at 2 mg so, it see!Ed a proper exchange for the AMT of Valium. Problem now is that I can't budge with the K because at 10 mos.out from CT of X, I'm still having protracted WD sxs.....even though I was eventually place and remain on a good dose of K. I'm wornderimg if this similar type issue could be causing you your extra struggle. Just a thought. I am now on a taper lock down, which I don't want to be but until my protracted WD from the X ends, I feel my K taper will never pan out successfully. Although I seem to be much weaker than you.......can't hold out when waves last over 2 weeks without a window.

You're in my thoughts

Mellowplease

 

Hi Mellow, thank you ......

Well, I don't know what's what really. In my sig you see I had a steroid CT , which was awful.

I think effected me a lot.

When I cut the .125 X , after a week , I replaced it with .125 K as the Wds were too awful. I didn't know then much about benzo WD!

So , some of what I'm gong though could be related to all the changes , stopping ambien , starting K , dropping X , switching to V .... Etc....every change was hard , the only time I started to feel better was when I started taking K in December of 2015 .

I switched to V form March- may of 2016 , took me three months and it was hell coming off the K .... I was ok once I was completely crossed to 10 mgs V , but I didn't know to wait a while to stabilize . That came later when I got I trouble tapering and found this group!

 

At this point I'm just going to take it as it comes and do my best .... Whatever feels doable for me , which right now is very little .

I of course am hoping it will get easier , but who knows? Acceptance ..... Sometimes I can and some times not ! One thing I know is there's only so much suffering I can take , and that's the only way I can make decisions now , just can't tolerate the suffering.

 

Hang in there Mellow,

Love, MiYu 

[[...]]

"So now its back to listening to myself remembering what worked when nothing else did, and I know no one wants to hear it  but the truth is it took a LONG  time  HOLDING to get myself from a bad place, to waves and windows, then to the window staying open, and getting wider all the time, yes the AMAZING, does get SUPER AMAZING!!! There is no drug on this planet that can give you this over powering love of life and humanity, even the worse of it you love  ALL humanity without judgement and realise your are EVERYONE and EVERYTHING that you can see. 

 

 

I was there its incredible until fkn Ashton  cutting rates slammed it shut on my head!!! AAARRGGHH!!!  !@#$%^&*":   !@#$%**) AAAAAAAGGGGGGGGHHHH !@#$%^&*"!@#$%**)  :tickedoff:  Ah!! that's better  I have so much more I want to say as I want to help not just me but others going through this hell to find some hope no matter what, it will take time don't push it it will come. An occasional good day is not stabilisation, but its a sign your on your way there. I can't type no more its hard going on the brain too much stimulation, and this has taken me well over an hour to type now. "

 

 

Sorry I couldn't get that in bold or italic , but that's from your post Nova. Thank you SO much , I know that took a lot for you to write .

I wish I had never read the Ashton Manual too! Set me up , and many for getting in a bad place...I'm so grateful I found this group, otherwise I'd probably be going crazy right now.

 

I spoke to my doctor this am and he was fine , I thought he would push me but he didn't . He wants me off the med , and I just told him I'm doing my best . So I feel I can relax and not feel like I've got to cut , thank god.

 

Hey , I made it through 1/16 th , better than a poke in the eye with a sharp stick , as you know the saying goes . And now I can hold as long as I need to.

 

Hang in there girl , and thank you again for all your support and wisdom with this process.

Love , MiYu  :smitten:

 

And thank you everyone else in this group , you're all amazing ! 

[[be...]]

"So now its back to listening to myself remembering what worked when nothing else did, and I know no one wants to hear it  but the truth is it took a LONG  time  HOLDING to get myself from a bad place, to waves and windows, then to the window staying open, and getting wider all the time, yes the AMAZING, does get SUPER AMAZING!!! There is no drug on this planet that can give you this over powering love of life and humanity, even the worse of it you love  ALL humanity without judgement and realise your are EVERYONE and EVERYTHING that you can see. 

 

 

I was there its incredible until fkn Ashton  cutting rates slammed it shut on my head!!! AAARRGGHH!!!  !@#$%^&*":   !@#$%**) AAAAAAAGGGGGGGGHHHH !@#$%^&*"!@#$%**)  :tickedoff:  Ah!! that's better  I have so much more I want to say as I want to help not just me but others going through this hell to find some hope no matter what, it will take time don't push it it will come. An occasional good day is not stabilisation, but its a sign your on your way there. I can't type no more its hard going on the brain too much stimulation, and this has taken me well over an hour to type now. "

 

 

Sorry I couldn't get that in bold or italic , but that's from your post Nova. Thank you SO much , I know that took a lot for you to write .

I wish I had never read the Ashton Manual too! Set me up , and many for getting in a bad place...I'm so grateful I found this group, otherwise I'd probably be going crazy right now.

 

I spoke to my doctor this am and he was fine , I thought he would push me but he didn't . He wants me off the med , and I just told him I'm doing my best . So I feel I can relax and not feel like I've got to cut , thank god.

 

Hey , I made it through 1/16 th , better than a poke in the eye with a sharp stick , as you know the saying goes . And now I can hold as long as I need to.

 

Hang in there girl , and thank you again for all your support and wisdom with this process.

Love , MiYu  :smitten:

 

And thank you everyone else in this group , you're all amazing ! 

[glow=red,2,300]"You Go Girl" [/glow] Never give up or give in, The Process takes as long as it takes, be kind to you and Breathe, use my little breath gif below in my sig.You will prevail.

[[...]]

"So now its back to listening to myself remembering what worked when nothing else did, and I know no one wants to hear it  but the truth is it took a LONG  time  HOLDING to get myself from a bad place, to waves and windows, then to the window staying open, and getting wider all the time, yes the AMAZING, does get SUPER AMAZING!!! There is no drug on this planet that can give you this over powering love of life and humanity, even the worse of it you love  ALL humanity without judgement and realise your are EVERYONE and EVERYTHING that you can see. 

 

 

I was there its incredible until fkn Ashton  cutting rates slammed it shut on my head!!! AAARRGGHH!!!  !@#$%^&*":   !@#$%**) AAAAAAAGGGGGGGGHHHH !@#$%^&*"!@#$%**)  :tickedoff:  Ah!! that's better  I have so much more I want to say as I want to help not just me but others going through this hell to find some hope no matter what, it will take time don't push it it will come. An occasional good day is not stabilisation, but its a sign your on your way there. I can't type no more its hard going on the brain too much stimulation, and this has taken me well over an hour to type now. "

 

 

Sorry I couldn't get that in bold or italic , but that's from your post Nova. Thank you SO much , I know that took a lot for you to write .

I wish I had never read the Ashton Manual too! Set me up , and many for getting in a bad place...I'm so grateful I found this group, otherwise I'd probably be going crazy right now.

 

I spoke to my doctor this am and he was fine , I thought he would push me but he didn't . He wants me off the med , and I just told him I'm doing my best . So I feel I can relax and not feel like I've got to cut , thank god.

 

Hey , I made it through 1/16 th , better than a poke in the eye with a sharp stick , as you know the saying goes . And now I can hold as long as I need to.

 

Hang in there girl , and thank you again for all your support and wisdom with this process.

Love , MiYu  :smitten:

 

And thank you everyone else in this group , you're all amazing ! 

[glow=red,2,300]"You Go Girl" [/glow] Never give up or give in, The Process takes as long as it takes, be kind to you and Breathe, use my little breath gif below in my sig.You will prevail.

 

Thank you Begood , you're a sweetheart  :smitten:

[[He...]]

MIYU.......

 

I can not really properly express how happy I am for you!  And how I admire you.

 

You are a hero! And a warrior! AND AN INSPIRATION TO EVERYONE ON THIS SUPPORT GROUP!

 

I kept reading your posts in the past and saw how you have constantly fought on, even through the longest and worst difficult wdsx. You never gave up!

 

And now to read your last post....well it's just amazing..  :clap:

Better than amazing, as you said.

And I am Glad you have the support of your doc and he is not rushing you. That means a lot.

 

So the very best to you on your continued journey! I can't wait to hear about your many new milestones, windows, progress.

 

Blessings, peace, patience and courage on your continued journey!

 

And congratulations!

 

Heath :smitten:

 

[[...]]

MiYu,

 

I'm so glad your doctor is letting you go at your own pace. It makes a world of difference when you don't feel like you are on someone else's timetable.  I hope you can figure out the pace that works well for you.

 

Hugs,

T

[[He...]]

Hello all,

Ok ,I'm really sorry for constantly nagging you all about my taper but I am really scared and your reassurance makes me feel so much better.

I started my DMT tonight with a reduction of -.005

I'm at 1 mg so that will bring me down to .995 mg, yes?

So if I do that and  reduce every second day that will bring me to .975mg in ten days,yes?

Then I plan on holding for five days to see how I feel.

I hope to proceed and do the same thing for another ten days and hold again for five days just like before.

That will bring me down to .95mg in one month.and that is 5% .

I think I have it right. Is it right?

 

My other option I am thinking about is a straight reduction of -.005 every 2 days for  20 days and then hold for ten days to see how I feel. Or of course hold longer if necessary. But I am thinking that side effects may pile up too much that way.

 

That's why I am thinking of doing it the first way I wrote about.

I know everything will depend on what my CNS and body will tell me,

But does that sound like a good plan to start with?

 

Thanks for supporting me...AGAIN!

 

Heath

[[sl...]]

Hello Heath 

 

I don't think anyone on here will think you are nagging.

At least I'm hoping they won't because I will be just the same if I ever get to start my microtaper.

 

I'm also here for reassurance I suppose.

I'm still on 5mgs Diaz and it is almost a month since I cut from 6.5mgs.

 

I still have bad vertigo and it doesn't seem to be going.

It is not too bad at this time of day but gets worse until I can barely stand without falling over in the late afternoon and evenings.

My ears also still hurt but that seems to march in hand with the vertigo.

I'm really worried that because it isn't going less I will never be able to start taper - feel as if I'm going to be stuck here on 5mg forever.

WILL it go?

 

Have other people had this symptom for longer than this and did you just keep cutting?

I feel that there is no point waiting for it to go before cutting again - and then even if it does won't it just start again after the next reduction?

I did have about 3 reasonable days and then it came back with force.

Is this normal?

Why does it happen that you can think it's going and then it just comes back stronger?

Answers, if there are any, as if you are explaining to a 3 yr old please 

I'm getting so depressed by it and scared I won't be able to move forward.

 

 

HELLO also to MiYu - we haven't "met" but I've been reading your posts.

I don't know how you have coped - you are a hero

I also kind of wish I had never found the Ashton manual.

Making me feel worse, wussy and stupid and more scared.

 

Edit Sorry, I know everyone is going to get fed up of keep telling me to hold 

[[ga...]]

Hi Heath. Sorry, my brain cannot get around the math part of your question. I will tell you where to find a math guru, on the Daily Micro-taper board. Builder and a some others show up there and sorts out math for people. Perhaps the boards may be a bit slow, though, because of the holiday weekend.

 

Daily Micro-Tapering Support

 

As far as your two plans, they both sound workable. I kind of like the first plan. Take that with a grain of salt. I'm kind of loopy lately!

 

Gard

[[ga...]]

Slowly, I'm sorry about your vertigo. It's not something I've experienced. Have you asked about it on the Withdrawal Support board? You may find better answers to your questions there.

 

I think you are saying you dropped from 6.5 mg to 5mg in one cut about a month ago. That sounds like a very big cut. A month wait between cuts would be a classic cut-and-hold pattern. If you made and extra large cut, it wouldn't be unusual for it to take longer than month to resolve.

 

This group is not the Cut-and-Hold group. This is the Long Hold group. We mean holding many months. I held for nearly a year as have many other members of this board. And when many of us have resumed tapering after our holds, we've incorporated shorter holds into our tapers to avoid crashing and needing a long hold again.

 

You may recover fine from your cut and be able to continue after a month or two. In that case you won't need a long hold. But, if your cut was too big, you have the choice to up-dose and hold or just hold for as long as it takes to stabilize. If you look under support boards, I think there's an up-dosing support group now. I don't know much about it. Maybe someone else will chime in.

 

Hope things turn around for you soon.

 

Gard

[[Ca...]]

Hi Guys..!!

 

Heath, The first method sounds great to me... but splitting hairs between the two...

 

Ur math sounds fine...

 

Only thing I thought of was that for ME, my SX hit at day 11, so I "might" consider covering that in my first hold to see... But your cuts are such a different size to mine (1/40th), that it would probably be overkill in caution..?

-Depends just how safe you want to play it..?? -This comment was a tiny little point, NOT a concern... 

 

-Mainly just Good luck, and my best wishes...

[[an...]]

Hello all,

Ok ,I'm really sorry for constantly nagging you all about my taper but I am really scared and your reassurance makes me feel so much better.

I started my DMT tonight with a reduction of -.005

I'm at 1 mg so that will bring me down to .995 mg, yes?

So if I do that and  reduce every second day that will bring me to .975mg in ten days,yes?

Then I plan on holding for five days to see how I feel.

I hope to proceed and do the same thing for another ten days and hold again for five days just like before.

That will bring me down to .95mg in one month.and that is 5% .

I think I have it right. Is it right?

 

My other option I am thinking about is a straight reduction of -.005 every 2 days for  20 days and then hold for ten days to see how I feel. Or of course hold longer if necessary. But I am thinking that side effects may pile up too much that way.

 

That's why I am thinking of doing it the first way I wrote about.

I know everything will depend on what my CNS and body will tell me,

But does that sound like a good plan to start with?

 

Thanks for supporting me...AGAIN!

 

Heath

 

Hi Heath,

 

Yes, you are correct.  Your plan would result in a 5% reduction over one month.

 

I hope you are doing well.

 

Anne 

[[Va...]]

Hello Heath 

 

I don't think anyone on here will think you are nagging.

At least I'm hoping they won't because I will be just the same if I ever get to start my microtaper.

 

I'm also here for reassurance I suppose.

I'm still on 5mgs Diaz and it is almost a month since I cut from 6.5mgs.

 

I still have bad vertigo and it doesn't seem to be going.

It is not too bad at this time of day but gets worse until I can barely stand without falling over in the late afternoon and evenings.

My ears also still hurt but that seems to march in hand with the vertigo.

I'm really worried that because it isn't going less I will never be able to start taper - feel as if I'm going to be stuck here on 5mg forever.

WILL it go?

 

Have other people had this symptom for longer than this and did you just keep cutting?

I feel that there is no point waiting for it to go before cutting again - and then even if it does won't it just start again after the next reduction?

I did have about 3 reasonable days and then it came back with force.

Is this normal?

Why does it happen that you can think it's going and then it just comes back stronger?

Answers, if there are any, as if you are explaining to a 3 yr old please 

I'm getting so depressed by it and scared I won't be able to move forward.

 

 

HELLO also to MiYu - we haven't "met" but I've been reading your posts.

I don't know how you have coped - you are a hero

I also kind of wish I had never found the Ashton manual.

Making me feel worse, wussy and stupid and more scared.

 

Edit Sorry, I know everyone is going to get fed up of keep telling me to hold 

Hi slowly. I waited until the vertigo was gone before starting to taper again.  I get it now to a small degree off and on but it's not the kind that is intolerable  just slightly annoying.  You did make a big cut and I personally would wait it out and let things settle for as long as you need.

 

It is very normal to feel better for a few days and then go back to suffering again. It's the classic windows and waves pattern of stabilization where nothing is linear. Hope it passes soon.  --V

[[Ca...]]

Hey Slowly...

 

I have been doing cut n hold, and while I dont get vertigo type SX, I find things to be all over the place for a long time... After my last cut a lot of SX didnt appear untill after 4weeks, and they were the more serious ones...

I dont find cut n hold to be very user friendly, but I wanted to feel my SX to distinguish from other meds and stuff like that..

I will be slowing it up now...

 

I posted here a few days ago on my cut n hold SX time line, and stability... -if that helps... But its just reflecting what others suggest..

-a big cut while unstable can make for a real bad week!!! Incliding an updose and more holding...

 

Best wishes... -sing out if I can help at all...

(From a 2yo...)

 

 

 

 

[[sl...]]

Thank you Valley.

I was just coming back to Gard to say that it was the "Dizzy,boaty"  thread which scared me before I came to this group. 

Some people seem to have it for months or years and I think that is what bothers me and makes me start to think I might as well just push ahead with reducing if I'm going to have this all the way through, to some extent anyway.

 

I didn't realise that my cut from 6 ish down to 5mg was that big, but maybe it was too much.

It was very unscientific - I cut the 2.5 bit of my 7.5 into half so I guess I was on 6.25 for a month ...then to 5mg.

 

I have to hold this at least until mid July after my London visit so I'll see how I am by then.

Terrified of the London trip now, because of this but think I've got to do it - daren't tell my daughters I'm even on this stuff let alone withdrawing from it.

 

I thought that about 1mg a month was ok?

It seems about the same as yours and alot of people on the other topic threads.

I definitely won't updose.

Trouble is with the other support threads that I come across people saying that symptoms got worse the longer they held?

 

I've only ever done one long hold, for between 6 and 7 months but that was the cross over from 5mg Nitrazepam so I kind of expected that to be bad and was happy to hold.

There is no way that Nitrazepam is equivalent gram for gram with diazepam/Valum whatever Ashton says.

Not for me it wasn't anyway. 

Was expecting this straight taper from Diazepam to be much easier.

 

You sound encouraging though if your vertigo went away and you were able to carry on tapering.

Also encouraging to hear that you can have a good patch and then symptoms return ...it seemed odd to me.

I will try and plough on after mid July and stop pestering people on here.

Thank you 

 

 

 

[[sl...]]

Thank you Cantfly

That sounds just like what I'm experiencing.

I had no real symptoms until around 16 days into this last cut.

Then whoosh ...floor moving violently....cat confused at being trodden on ...etc 

 

I'm starting [i hope] after my London trip, to do the liquid titration which Valley worked out for me so the next 1mg reduction might be easier.

That's if I make it to London and back ...not far to travel only around an hour, then I meet with my daughter so I stop being scared.

Will hold on to her if necessary 

 

Thanks again for your help.

It just helps to know that what I'm having is "normal"