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The Long Hold Support Group


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I ran out of meds once and never again and so I have a good hoard as well. What if the world as we know it ends and I don't rob a pharmacy in time 😂. I'm not going CT in an apocalypse. Jeeze only someone with extreme anxiety would think this. I didn't tell my Dr. I was tapering until I had at least an extra 6 week supply. Than out of being proud of myself I told her and she threw me down to my current dose. Should have lied longer.

Me neither!!!  :D  Time to make friend with the local junkies I avoided all these year's !! :laugh: They get scripted up for them then sell em' to use the money to buy whatever drug of choice their on,  that being said I would be up shittz creek come the apocalypse.  My ears are way to sensitive to get out and the rare occasions I do its around 4-5am before the traffic builds up as my hearing is seriously sensitive :o

 

I've got a stash at home but I also got a jar full of bits where the pills crumbled when I tried to cut them or the half's weren't even enough, and I got paranoid about the dose. That is until I realised that although I take 3 doses I take the same 2 halves of the same pill so it works out I'm still getting the same dose in a 24 hour window.  :thumbsup: But I still get paranoid I would run out if I got cut off for any reason  ::) Oh the joys of freaking withdrwal and a  chemically warped anxious  brain ::) Talking of Brains don't worry about brain damage check out this that I posted earlier  ;D

 

Man was able to live with but a sliver of cortical neurons for years

http://www.benzobuddies.org/forum/index.php?topic=180471.msg2386217#msg2386217

 

Love Nova xxx  :smitten: :smitten: :smitten:

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Someone here asked if anyone had to submit to a urine test.

 

I went to a wonderful addiction specialist on two occasions about 8 months ago. I went seeking some kind of group that I could join for people who were on benzos. Ireally wanted a face to face , human, alive group.

This doc urine tested me on both occasions. It was required to be her patient. I didn't care because I had nothing to hide.

 

The thing that upset me was that, I had gone to her to seek information about joining a group for support.

She explained that the only groups they had were for people who were OFF their drugs. I think they were 12 step programs.  They urine test people at every meeting. So I could NOT join any group because I was still on my drug, Valium.

 

Well duh, if I was off the drug, I wouldn't need a support group to get off the drug. :idiot::crazy:

 

So that was a waste of time alright, however, she was a very kind, knowledgeable doctor, only she COULDNT GIVE ME THE HELP I WAS SEEKING!

Seems there is just NO LIVE GROUPS FOR PEOPLE WHO NEED SUPPORT TO GET OFF BENZOS. :tickedoff: AT LEAST I COULDNT FIND ONE!

I'm just so lucky to have found this forum! bravo!

 

Heath

 

Yes, the problem with these "addiction specialists" is their work is geared toward addicts, which we are not. We are physically dependent on a drug. It's not a psychological issue of craving or a pattern of drug seeking or any of those things they address with addicts. And, you are right, I have searched, too. There is no one and nothing for people like us except this sort of online support. NA and AA would let me in but I found they were not helpful. They were upsetting. Told me to go get detoxed and I would be so much better. Over and over. They are addicts, I am not. Online support is all there is for us. And I am so grateful we have it.

 

Gard

 

SADLY,  YOU ARE RIGHT ON!

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  bG,  great job on the taper.  So proud of you.  The Pain Dr. makes all patients take a urine test every 3 months.  This is because of the govt.  They are limiting drugs now and telling Drs what they can and can't supply and how much.  Really scary and frightening.  All because of the opiod crisis, where junkies on heroin will od.  They will always get what they need but patients like us have to worry, so sad to have the added stress of knowing they can cut you off whenever it just gets too diffiult to keep prescribing.  I'm so sick of it all.
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  bG,  great job on the taper.  So proud of you.  The Pain Dr. makes all patients take a urine test every 3 months.  This is because of the govt.  They are limiting drugs now and telling Drs what they can and can't supply and how much.  Really scary and frightening.  All because of the opiod crisis, where junkies on heroin will od.  They will always get what they need but patients like us have to worry, so sad to have the added stress of knowing they can cut you off whenever it just gets too diffiult to keep prescribing.  I'm so sick of it all.

Thanks Free, I knew you had spoke of this before, it just surprised me but I guess benzo's are a type of class of drugs that may fall under this new Govt thing, not sure. :)
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I'd like to live in a place so remote that it requires helicopter drops...

 

Alaska!

 

Guard,

 

I watch a number of those shows and will say that I daydream at times and think...if I was 30 or 40 yrs younger and unattached...  I think Port Protection looks quite appealing.  As they say...the grass is always greener.  But such beauty!

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Ok...so here I am again.this time it's a new wdsx!

I havevTEETH PAIN, crazy?

It really does not feel like a tooth ache, or should I say teeth ache.

It hurts in this tooth, then it hurts in that tooth, then it hurts in a third tooth? What the heck?

It really doesn't feel like a tooth ache just ..my teeth hurt.

How can it be a cavity if it moves from one side of my mouth to the other?

I'm going to the dentist tomorrow, better to be safe and take care of what might be going on with my teeth, but I don't think he will find anything. ( I hope not! I hate going to the dentist)

 

Hmm, I wonder which would be worse, going to the dentist to have a crown or a root canal....or living with this wdsx for a couple of weeks?

 

So has anyone ever had teeth pain as a wdsx?

 

Heath ;D (that's me and my teeth ;D)

 

 

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Ok...so here I am again.this time it's a new wdsx!

I havevTEETH PAIN, crazy?

It really does not feel like a tooth ache, or should I say teeth ache.

It hurts in this tooth, then it hurts in that tooth, then it hurts in a third tooth? What the heck?

It really doesn't feel like a tooth ache just ..my teeth hurt.

How can it be a cavity if it moves from one side of my mouth to the other?

I'm going to the dentist tomorrow, better to be safe and take care of what might be going on with my teeth, but I don't think he will find anything.

 

Hmm, I wonder which would be worse, going to the dentist to have a crown or a root canal....or living with this wdsx for a couple of weeks?

 

So has anyone ever had teeth pain as a wdsx?

 

Heath ;D (that's me and my teeth ;D)

I get teeth pain Heath. I know it's withdrawal.  :)--V

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Ok...so here I am again.this time it's a new wdsx!

I havevTEETH PAIN, crazy?

It really does not feel like a tooth ache, or should I say teeth ache.

It hurts in this tooth, then it hurts in that tooth, then it hurts in a third tooth? What the heck?

It really doesn't feel like a tooth ache just ..my teeth hurt.

How can it be a cavity if it moves from one side of my mouth to the other?

I'm going to the dentist tomorrow, better to be safe and take care of what might be going on with my teeth, but I don't think he will find anything.

 

Hmm, I wonder which would be worse, going to the dentist to have a crown or a root canal....or living with this wdsx for a couple of weeks?

 

So has anyone ever had teeth pain as a wdsx?

 

Heath ;D (that's me and my teeth ;D)

I get teeth pain Heath. I know it's withdrawal.  :)--V

Im sorry heath.. Pain anywhere in the head is just too close to home...

I hope all these SX equate to some good healing and you get a nice break real soon..

-I have read of the sore teeth on the boards a few times over the months... -as you describe...

My Best...

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Ok...so here I am again.this time it's a new wdsx!

I havevTEETH PAIN, crazy?

It really does not feel like a tooth ache, or should I say teeth ache.

It hurts in this tooth, then it hurts in that tooth, then it hurts in a third tooth? What the heck?

It really doesn't feel like a tooth ache just ..my teeth hurt.

How can it be a cavity if it moves from one side of my mouth to the other?

I'm going to the dentist tomorrow, better to be safe and take care of what might be going on with my teeth, but I don't think he will find anything. ( I hope not! I hate going to the dentist)

 

Hmm, I wonder which would be worse, going to the dentist to have a crown or a root canal....or living with this wdsx for a couple of weeks?

 

So has anyone ever had teeth pain as a wdsx?

 

Heath ;D (that's me and my teeth ;D)

Heath sounds like to me that the Brain is doing a lot of healing, and you are going to be feeling a bunch of weird things, but just remember in the scheme of things, healing is happening. The Brain is so complex and so many areas beyond our knowledge needs to repair. Stay Strong. :smitten::thumbsup::smitten:
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Thanks buddies!

I hope you are right!

I'll let you know after my dental appt tomorrow.

But if you have heard about this on the boards before, it sounds like you are right and it is indeed withdrawal.

Imagine, I actually will welcome this teeth pain as withdrawal. Better than needing root canal or even just a cavity. Oh how I hate the dentist visits. ( not the dentist, he's as good as it gets)

 

Heath ::):o???

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hey there Begood...youre down another .5 in your taper! Congratulations!!  You really found the way to do this taper thing! I'm so happy for you! May it continue like this, nice and smooth, all the way off!

 

Heath  :smitten: :smitten: :clap: :clap: :yippee: :yippee:

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Thanks buddies!

I hope you are right!

I'll let you know after my dental appt tomorrow.

But if you have heard about this on the boards before, it sounds like you are right and it is indeed withdrawal.

Imagine, I actually will welcome this teeth pain as withdrawal. Better than needing root canal or even just a cavity. Oh how I hate the dentist visits. ( not the dentist, he's as good as it gets)

 

Heath ::):o???

well, atleast make him earn his money...

Hope all goes well..

:)

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I get dental pain too. Has everyone here who has done long holds severe symptoms cleared up? I love this group by the way.
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I get dental pain too. Has everyone here who has done long holds severe symptoms cleared up? I love this group by the way.

Hi Hope, I am sure you will get some response soon, I just do not have severe sx this go round. We are glad you are here, things do and will get better. :smitten::thumbsup::smitten:
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I'd like to live in a place so remote that it requires helicopter drops...

 

Alaska!

 

 

Guard,

 

I watch a number of those shows and will say that I daydream at times and think...if I was 30 or 40 yrs younger and unattached...  I think Port Protection looks quite appealing.  As they say...the grass is always greener.  But such beauty!

 

My aunt and uncle lived there for many years, but in Fairbanks, not exactly remote. My uncle liked to go flying off to the middle of nowhere but my aunt stayed put at home, a city girl at heart. I always hoped to go visit them one day but they retired and south before I could. I'd still go if I had the time, money, and health. And yes, if I were 20 years younger!

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Thanks buddies!

I hope you are right!

I'll let you know after my dental appt tomorrow.

But if you have heard about this on the boards before, it sounds like you are right and it is indeed withdrawal.

Imagine, I actually will welcome this teeth pain as withdrawal. Better than needing root canal or even just a cavity. Oh how I hate the dentist visits. ( not the dentist, he's as good as it gets)

 

Heath ::):o???

well, atleast make him earn his money...

Hope all goes well..

:)

 

Make him earn his money. :laugh:

Hope all goes well! :thumbsup:

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I get dental pain too. Has everyone here who has done long holds severe symptoms cleared up? I love this group by the way.

 

Absolutely! It was over 6 months before I was sure I was getting better. My symptoms are now much more manageable. I was a wreck before my hold.

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hey there Begood...youre down another .5 in your taper! Congratulations!!  You really found the way to do this taper thing! I'm so happy for you! May it continue like this, nice and smooth, all the way off!

 

Heath  :smitten: :smitten: :clap: :clap: :yippee: :yippee:

 

Believing that Heath knows her math, YAY BG!!!!:clap: :clap: :clap:

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hey there Begood...youre down another .5 in your taper! Congratulations!!  You really found the way to do this taper thing! I'm so happy for you! May it continue like this, nice and smooth, all the way off!

 

Heath  :smitten: :smitten: :clap: :clap: :yippee: :yippee:

 

Believing that Heath knows her math, YAY BG!!!!:clap: :clap: :clap:

:smitten::thumbsup::smitten:
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Hi Hope,

I can only speak from my own experience. Yes, no matter how bad, or how long they lasted, every one of my wdsx always disappeared after a while. When I reduced my dose too quickly, (when I first started my withdrawal I actually went from 7.5 mg to 2.5 mg in a very short time...you can look at my signature.) that is when I got really bad wdsx. And it was at those times that I even got more than one wdsx at one time. I was quite miserable then,. I was new to this taper thing and didn't know that I was reducing my dose too fast. All the wdsx caught up with me from going to fast and boy did I crash! That's when I found help in this support group and decided to hold.

During  my 4 month hold, to get stable, I started to get Windows where everything disappeared for a few hours and I really felt like my old self again. It was like a miracle! The wdsx came and went, I had Windows and waves for four months.

By the end of my 4 mo hold, I was completely stable. I started to cut my dose again, again I went too fast and made many mistakes in my hurry to get off the Valium. And of course I paid for it with new

Wdsx!

So now I am careful. I still make mistakes, go too fast, and get new wdsx every few weeks. I am very sensitive to cuts and I have to remember to keep my cuts small and hold when my body gets Wdsx.

 

But yes, fir me, when I hold long enough, the wdsx definitely do slowly subside.

I am going slow so my wdsx are mostly minimal. I go sky because this way I can still to some part time work that I love, I can get out ofvthevhousecw it's my friends and go shopping etc, even while I am in withdrawal. I think it's better to be able to live my life during withdrawal, even if it will take longer to get off the Valium. It's better than having acute withdrawal sdfx and being house bound and miserable.

 

I hope this is what you wanted me to tell you. I hope it helps.

Right now I am reducing my dose by .02 or .03 I hold there fir 2or 3 weeks depending how I feel. Then I reduce again,

 

Good luck Hope! Dont ever give up! You will find the taper that works for you.

 

Heath :smitten:

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I get dental pain too. Has everyone here who has done long holds severe symptoms cleared up? I love this group by the way.

Hi Hope, I am sure you will get some response soon, I just do not have severe sx this go round. We are glad you are here, things do and will get better. :smitten::thumbsup::smitten:

 

You've done this before?

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I get dental pain too. Has everyone here who has done long holds severe symptoms cleared up? I love this group by the way.

 

Absolutely! It was over 6 months before I was sure I was getting better. My symptoms are now much more manageable. I was a wreck before my hold.

 

How long was your hold.

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