The Long Hold Support Group

[[ga...]]

I dont post often..and most days cant read here cause it ramps me up reading about all the pain and suffering but I go to my doc on Monday and need some input..some may know my story but if not i have been stuck at 2.75mg of klonopin for a yr this month..down from a micro taper of 4mgs 34yrs use..I am 58 now. After losing my son and mom within 9 days of each other 2 yrs this july..i only held a month before against my docs advice started my taper again..that jan. i started to get to where food felt like it was getting stuck then more and more things started to happen..then i lost down to 97lbs, my anxiety is off the charts still..i have to use a wheelchair when in big stores i have no strength..to many things going on to write here..but i am thinking about reinstating back to 4mgs to try and be able to grieve the loss of my son and mom, stabalize at some point and get back the wonderful life i had on 4mgs..i need some input on this as my doc will let me do me..before i started this taper i ran around 60 hrs a week..now i cant carry in a bag of groceries..have just started to drive again but cant go anywhere alone , and i am never left alone. I read on one of the groups yesterday i believe that they went back up to get some relief and it worked and they are not going to go down again..and i totally get that..i had a life on k..now i have no life..i can only swallow limited things..am tired of not being able to eat healthy cause i cant swallow fruits or anything that has a peel like a grape..so would love some input from all of you it would be much appreciated..and if any of you got relief from going back up please let me know..i cant do this anymore i need to get the life back for my family and myself that i had..i now have been diagnosed with SVT last june..and i get episodes from stress.

Please help me here..thanks <3

Hi deep!  I think about you often and wonder how you're doing. The only advice I can give is to do what you feel is necessary to allow you a life. You've been fighting the swallowing issue for a long time. I only had it for about a month but I couldn't have made it longer than that. It clears up in my hold but it sounds like holding may not be working for you. If you post in the updosing support group, you'll probably get more insight. Glad to see you here! --V

 

I think of you, too, deep, and I agree with V. You need to do whatever you need to do to have a life.

Wishing you healing.

Gard

[[He...]]

Begood,

 

Is that nutbutter and orange juice before bed time a remedy for the cortisol rush in the morning? I am feeling much better as far as side effects go and I'm actually going to NJ for sure. But as I start to stabllise again, I find the my mornings are the worst. As the day goes on, I get better and better, but every morning I wake  feeling awful, just sickish and so tired, even when I have moderately good amount of sleep. I'm thinking it is the morning cortisol rush I read about in some posts, but I don't know what to do about it.

I'm not sure what tha limonene is for. I saw it in your post and went to Amazon but it doesn't explain what it is for.

It seems like you know a lot about natural remedies.

 

Thanks for any suggestions.

 

Heath

 

MiYu, glad you are beginning to feel even a little bit better as you sloth around.  I too am a sloth.

MiYu, George, Cantfly, Freeme, TNT, Deep, and anyone else who is suffering, i hope you all will get some Windows real soon. Glad you are holding. I'm sure it will show signs of relief for you.

  Hang on!

 

Heath

 

 

[[Ca...]]

You guys all type way fast... am sooo behind, so pls forgive anything i missed...

 

MiYu... Im liking the carrots, and as usual, organic is so much nicer, they are sweet, -no bitter taste, and my GI tract feels lighter, and motility better... sadly i also changed a medicine at the same time, which may have a role in it all... I will find out in due corse i guess... But as you say, The carrots are a good thing to do anyway... much better than chocolate...

 

Yes, NUTS is my inner child default setting... -put me in the naughty corner if need be...

 

As for amerzon, thanks so much for the offer... You are a Darling..!!

I still have several other options, and am waiting for a reply to my email too... Be great to get amerzon sorted out, it will be so handy...

 

My Best to all...

Onwards and upwards

[[st...]]

gardener99

 

Hi there

 

I saw you post not long ago about using PeaPure and was just wondering what your experience is with this. I intend on using the capsules of palimitoylethanolamide to help reduce inflammation. Do you tolerate it ok? And are you still tapering?

 

Any info would be much appreciated

 

Thanks

[[be...]]

Begood,

 

Is that nutbutter and orange juice before bed time a remedy for the cortisol rush in the morning? I am feeling much better as far as side effects go and I'm actually going to NJ for sure. But as I start to stabllise again, I find the my mornings are the worst. As the day goes on, I get better and better, but every morning I wake  feeling awful, just sickish and so tired, even when I have moderately good amount of sleep. I'm thinking it is the morning cortisol rush I read about in some posts, but I don't know what to do about it.

I'm not sure what tha limonene is for. I saw it in your post and went to Amazon but it doesn't explain what it is for.

It seems like you know a lot about natural remedies.

 

Thanks for any suggestions.

 

Heath

 

MiYu, glad you are beginning to feel even a little bit better as you sloth around.  I too am a sloth.

MiYu, George, Cantfly, Freeme, TNT, Deep, and anyone else who is suffering, i hope you all will get some Windows real soon. Glad you are holding. I'm sure it will show signs of relief for you.

  Hang on!

 

Heath

Yes Heath it is supposed to good for cortisol rush, that sure what that all entails, but someone here might chime in, I do know many that have had good results with the OJ and Nut butter sandwich, after all it is helping the liver and keeping our glucose steady as it goes almost depleted at 3am. I have read that Bone Broth is excellent for our Brains also, so far my taper has been fine so do not need the Broth, but I do eat a certain amt of carbs as our Brain needs glucose and sometimes when it is down I am really sick and I am thinking many are starving their Brains without knowing it. I am not saying to eat bags of candy though. Being a diabetic many of the Brain thingies are like the wd sx. I would try the little snack because you never know unless you try.

 

d-limodene is a natural supp that has taken away the little man that was sitting on my chest and causing my Gerd to be horrendous, I can not take Prilosec, says right on pkg not to take with Valium, so I take the d-limodene daily and I feel good now. Like I said it is good for a lot of things. Go to Amazon and look up d-limodene by Jarrow and read the stories from people that swear by it.

[[be...]]

[glow=red,2,300]"COOKIE, COOKIE,"[/glow] I am looking for you, want you to come visit me and my Stew Pot....... Of course "Daddy Love" must approve of a sleep over, you being his best Girl and all.....

 

BG.

[[ga...]]

gardener99

 

Hi there

 

I saw you post not long ago about using PeaPure and was just wondering what your experience is with this. I intend on using the capsules of palimitoylethanolamide to help reduce inflammation. Do you tolerate it ok? And are you still tapering?

 

Any info would be much appreciated

 

Thanks

 

I've been taking it for years due to autoimmune neuropathy, so my system is used to it. I do sometimes stop it to save money (not good for me, but need to cut corners somewhere) and then start up again when the pain flares get bad. I take a capsule with breakfast and with supper and have no trouble at all. The stuff I get says PEAOpt certified.

 

I am doing a taper with incorporated holds at about 3%/month. But I have used it when tapering faster. I have taken double and triple doses at times in the past year. It doesn't seem to give any adverse effects at all. My understanding is it is similar to a fatty acid that the body produces itself but can be depleted of.

 

It does take awhile to build up and have an effect. I would give it 6-8 weeks to see if it helps. When I started it, I was in terrible pain and took high doses. I was reducing gabapentin at the time (all I was taking back then). I was in contact with a doctor in the Netherlands who said a patient of his took 8-10 capsules/day with no ill effects. I think I was taking 8 capsules/day back then. And then slowly reduced as my symptoms improved. That's years ago. It might have been only 6 capsules/day. At any rate, I had zero adverse effects, except to my pocketbook!

 

Good luck!

 

Gard

[[Va...]]

[glow=red,2,300]"COOKIE, COOKIE,"[/glow] I am looking for you, want you to come visit me and my Stew Pot....... Of course "Daddy Love" must approve of a sleep over, you being his best Girl and all.....

 

BG.

LOL. Cookie has to stay. She's the only one that lets my granddaughter pet her. I don't think I could trust you if I let her sleep over. 

[[ga...]]

I want a pet chicken, too! Landlord says nothing but a hamster.  :'(

[[Va...]]

I want a pet chicken, too! Landlord says nothing but a hamster.  :'(

Hamsters are great! You should get one.

 

[[st...]]

gardener99

 

Hi there

 

I saw you post not long ago about using PeaPure and was just wondering what your experience is with this. I intend on using the capsules of palimitoylethanolamide to help reduce inflammation. Do you tolerate it ok? And are you still tapering?

 

Any info would be much appreciated

 

Thanks

 

I've been taking it for years due to autoimmune neuropathy, so my system is used to it. I do sometimes stop it to save money (not good for me, but need to cut corners somewhere) and then start up again when the pain flares get bad. I take a capsule with breakfast and with supper and have no trouble at all. The stuff I get says PEAOpt certified.

 

I am doing a taper with incorporated holds at about 3%/month. But I have used it when tapering faster. I have taken double and triple doses at times in the past year. It doesn't seem to give any adverse effects at all. My understanding is it is similar to a fatty acid that the body produces itself but can be depleted of.

 

It does take awhile to build up and have an effect. I would give it 6-8 weeks to see if it helps. When I started it, I was in terrible pain and took high doses. I was reducing gabapentin at the time (all I was taking back then). I was in contact with a doctor in the Netherlands who said a patient of his took 8-10 capsules/day with no ill effects. I think I was taking 8 capsules/day back then. And then slowly reduced as my symptoms improved. That's years ago. It might have been only 6 capsules/day. At any rate, I had zero adverse effects, except to my pocketbook!

 

Good luck!

 

Gard

 

Thanks for your response, I am glad that us has worked for you. I am very sensitive to supplements and medications in withdrawal so I'm trying to be extra cautious but in this case it may be worth commuting to full time giving its benefits. Did you notice any ill effects when coming off it at all?

I had a concussion in July and am looking to reduce inflammation.

 

I know what you mean it is very expensive. I might try it for a couple months and see how I go.

 

Kind regards

 

 

[[be...]]

I want a pet chicken, too! Landlord says nothing but a hamster.  :'(

Hamsters are great! You should get one.

 

No Way looks like a a glorified Rat.........I want [glow=red,2,300]"COOKIE"[/glow] I wonder how many name their chickens...

[[Al...]]

If I had a Chicken I think I would name her " Killer" something like that. 

 

ATU 🙏

[[be...]]

If I had a Chicken I think I would name her " Killer" something like that. 

 

ATU 🙏

:2funny: :2funny: :2funny:

[[Va...]]

I want a pet chicken, too! Landlord says nothing but a hamster.  :'(

Hamsters are great! You should get one.

 

No Way looks like a a glorified Rat.........I want [glow=red,2,300]"COOKIE"[/glow] I wonder how many name their chickens...

Who doesn't name their chickens? Lol.  --V

[[Ca...]]

[glow=red,2,300]"COOKIE, COOKIE,"[/glow] I am looking for you, want you to come visit me and my Stew Pot....... Of course "Daddy Love" must approve of a sleep over, you being his best Girl and all.....

 

BG.

LOL. Cookie has to stay. She's the only one that lets my granddaughter pet her. I don't think I could trust you if I let her sleep over. 

Can COOKIE stay at mine then??? -BG is only coming for dinner...

[[be...]]

Hey Valley could you post something about Cortisol surges I am kinda mixed up about that syndrome and Heath wants to know too. We have questions....

[[be...]]

[glow=red,2,300]"COOKIE, COOKIE,"[/glow] I am looking for you, want you to come visit me and my Stew Pot....... Of course "Daddy Love" must approve of a sleep over, you being his best Girl and all.....

 

BG.

LOL. Cookie has to stay. She's the only one that lets my granddaughter pet her. I don't think I could trust you if I let her sleep over. 

Can COOKIE stay at mine then??? -BG is only coming for dinner...

Oh Goodie Cant that is a good idea, but fear that sweet [glow=red,2,300]"COOKIE"[/glow]  and I are becoming fast friends.   :-*

[[Ca...]]

If I had a Chicken I think I would name her " Killer" something like that. 

 

ATU 🙏

Why not... we had a nice Pitt called Flower yrs ago...

[[He...]]

Begood,

 

Is that nutbutter and orange juice before bed time a remedy for the cortisol rush in the morning? I am feeling much better as far as side effects go and I'm actually going to NJ for sure. But as I start to stabllise again, I find the my mornings are the worst. As the day goes on, I get better and better, but every morning I wake  feeling awful, just sickish and so tired, even when I have moderately good amount of sleep. I'm thinking it is the morning cortisol rush I read about in some posts, but I don't know what to do about it.

I'm not sure what tha limonene is for. I saw it in your post and went to Amazon but it doesn't explain what it is for.

It seems like you know a lot about natural remedies.

 

Thanks for any suggestions.

 

Heath

 

MiYu, glad you are beginning to feel even a little bit better as you sloth around.  I too am a sloth.

MiYu, George, Cantfly, Freeme, TNT, Deep, and anyone else who is suffering, i hope you all will get some Windows real soon. Glad you are holding. I'm sure it will show signs of relief for you.

  Hang on!

 

Heath

Yes Heath it is supposed to good for cortisol rush, that sure what that all entails, but someone here might chime in, I do know many that have had good results with the OJ and Nut butter sandwich, after all it is helping the liver and keeping our glucose steady as it goes almost depleted at 3am. I have read that Bone Broth is excellent for our Brains also, so far my taper has been fine so do not need the Broth, but I do eat a certain amt of carbs as our Brain needs glucose and sometimes when it is down I am really sick and I am thinking many are starving their Brains without knowing it. I am not saying to eat bags of candy though. Being a diabetic many of the Brain thingies are like the wd sx. I would try the little snack because you never know unless you try.

 

d-limodene is a natural supp that has taken away the little man that was sitting on my chest and causing my Gerd to be horrendous, I can not take Prilosec, says right on pkg not to take with Valium, so I take the d-limodene daily and I feel good now. Like I said it is good for a lot of things. Go to Amazon and look up d-limodene by Jarrow and read the stories from people that swear by it.

 

 

Thanks BEGOOD, hope all is smooth sailing for you  

I will read about the d-limodene. And thanks for the info on the oj and nutbutter.

Question,

Is that nutbutter and orange juice thing to be eaten at night or morning upon awakening. Sorry I can't find the original post that tells you when to eat it. And when you say nutbutter, that can mean peanut butter, right?

Thanks, Heath

[[He...]]

If I had a Chicken I think I would name her " Killer" something like that. 

:2funny:

ATU

 

 

 

 

 

 

 

IF I HAD Some CHICKENs, I'd name one  "DINNER" and the other one "LUNCH". And if the first one was fat , l,d name her, DINNER FOR TWO"

:

:2funny: :2funny: :2funny:

[/quote

 

 

Heath

[[be...]]

Begood,

 

Is that nutbutter and orange juice before bed time a remedy for the cortisol rush in the morning? I am feeling much better as far as side effects go and I'm actually going to NJ for sure. But as I start to stabllise again, I find the my mornings are the worst. As the day goes on, I get better and better, but every morning I wake  feeling awful, just sickish and so tired, even when I have moderately good amount of sleep. I'm thinking it is the morning cortisol rush I read about in some posts, but I don't know what to do about it.

I'm not sure what tha limonene is for. I saw it in your post and went to Amazon but it doesn't explain what it is for.

It seems like you know a lot about natural remedies.

 

Thanks for any suggestions.

 

Heath

 

MiYu, glad you are beginning to feel even a little bit better as you sloth around.  I too am a sloth.

MiYu, George, Cantfly, Freeme, TNT, Deep, and anyone else who is suffering, i hope you all will get some Windows real soon. Glad you are holding. I'm sure it will show signs of relief for you.

  Hang on!

 

Heath

Yes Heath it is supposed to good for cortisol rush, that sure what that all entails, but someone here might chime in, I do know many that have had good results with the OJ and Nut butter sandwich, after all it is helping the liver and keeping our glucose steady as it goes almost depleted at 3am. I have read that Bone Broth is excellent for our Brains also, so far my taper has been fine so do not need the Broth, but I do eat a certain amt of carbs as our Brain needs glucose and sometimes when it is down I am really sick and I am thinking many are starving their Brains without knowing it. I am not saying to eat bags of candy though. Being a diabetic many of the Brain thingies are like the wd sx. I would try the little snack because you never know unless you try.

 

d-limodene is a natural supp that has taken away the little man that was sitting on my chest and causing my Gerd to be horrendous, I can not take Prilosec, says right on pkg not to take with Valium, so I take the d-limodene daily and I feel good now. Like I said it is good for a lot of things. Go to Amazon and look up d-limodene by Jarrow and read the stories from people that swear by it.

 

 

Thanks BEGOOD, hope all is smooth sailing for you  

I will read about the d-limodene. And thanks for the info on the oj and nutbutter.

Question,

Is that nutbutter and orange juice thing to be eaten at night or morning upon awakening. Sorry I can't find the original post that tells you when to eat it. And when you say nutbutter, that can mean peanut butter, right?

Thanks, Heath

Yes before bed, any nut butter and sliice of bread and good Oj not the fake juices, I asked Valley to place something about CS. I am  dioing well thanks. :smitten:

[[Va...]]

This was taken from a book I own called the Mood Cure by Julia Ross. It has been a good resource for detoxing.  --V

 

Cortisol is the primary stress-response hormone produced by the adrenal glands. It is highly energizing. In some vulnerable detoxers SSRI withdrawal triggers an abnormal cortisol surge that exacerbates anxiety and insomnia. (This can happen during withdrawal from other drugs as well)

 

 

The primary stress-response hormone produced by your adrenal glands is called cortisol. It is even more potent in some ways than adrenaline, but at normal levels it is not agitating, rather it is strengthening. It's your wake-up-and-tackle-life's-challenges hormone. Cortisol levels are supposed to be highest in the morning and lowest between about midnight and 4:00AM. If levels are too high, you'll feel wired, tense and hyper-vigilant. Our cortisol levels always rise above the normal level to help us cope with severe stress. This can happen, for example, during a divorce or as a reaction to withdrawal from medications, like benzodiazepines or antidepressants, often causing severe agitation and insomnia. Cortisol levels should return to normal after the stress is relieved, but sometimes chronic stress goes on for so long that the adrenals make a permanent adaptation to a new, hyper level of cortisol production. Eventually, our adrenals can become so exhausted by this constant demand for extreme cortisol production that they are no longer able to produce even moderate levels. Their cortisol output can drop too low throughout the day, especially in the late afternoon. This can be experienced as a sudden crash or a gradually increasing fatigue. But, surprisingly often, 1 - 5 AM cortisol surges persist for years, causing chronic insomnia.

Testing:

Whether you are in sudden or chronic over-stress. A simple one-day (4-sample) home saliva test will reveal your bedtime and early morning cortisol levels as well as your mid-morning and late afternoon levels. See the Adrenal Tool Kit, for details on testing the levels of this vital indicator. If you wake up between 1:00 a.m. and 5:00a.m., ask for an extra (fifth) test vial. The reference range should be the same or lower than the bedtime range.

Sleep disturbance:

If cortisol levels are too high at night, instead of very low, as they're supposed to be, you'll be kept up too late with a "second wind." Or your cortisol levels could rise too high early in the morning and wake you up prematurely. Or you could wake up between 2:00 and 4:00AM and not be able to get back to sleep easily. Are you a night owl? Testing may show that your cortisol is above normal levels between 10:00PM and midnight when it should be dropping to allow you to get to sleep.

Remedies for mood or sleep problems caused by elevated cortisol:

If you are a night owl, a supplement containing a cortisol-regulating nutrient called phosphorylated serine (brand name Seriphos, this is not the more readily available phosphotidyl serine), taken before dinner (approximately four-six hours before bedtime), should get you to sleep.

If you wake up between 2:00 and 4:00AM take Seriphos at bedtime (by 10:00PM), 4-6 hours before you would typically wake up in the early morning. If you have trouble getting to sleep and you wake up between 2:00 and 4:00AM, take one capsule before dinner and two by 10:00PM. Seriphos encourages your pituitary gland to stop sending the order to your adrenals for more cortisol production. After a month or so, this normalized message should be permanently re-programmed, and you should not need any more Seriphos. Caution: Do not take Seriphos for more than three months total. Take a break for at least 24 hours after each month's use (as per bottle directions).

A second solution: A quicker-acting supplement called hydrolyzed casein or lactium (e.g., De-Stress by Biotics or "Womens Anti Stress Formula" by Swansons) has calming effects on the brain that were originally researched in France. Take 75-150 mg. whenever your cortisol is elevated, day or night. It seems to work best if you are also taking Seriphos.

Remedies for day-time mood disturbances caused by elevated cortisol: The same two supplements may be usede to lower daytime cortisol levels. Take Seriphos (1-3) hours before your test shows abnormally high cortisol elevation. Take a lactium when your test shows that a cortisol elevation is occurring (you actually feel more agitated then).

[[ga...]]

gardener99

 

Hi there

 

I saw you post not long ago about using PeaPure and was just wondering what your experience is with this. I intend on using the capsules of palimitoylethanolamide to help reduce inflammation. Do you tolerate it ok? And are you still tapering?

 

Any info would be much appreciated

 

Thanks

 

I've been taking it for years due to autoimmune neuropathy, so my system is used to it. I do sometimes stop it to save money (not good for me, but need to cut corners somewhere) and then start up again when the pain flares get bad. I take a capsule with breakfast and with supper and have no trouble at all. The stuff I get says PEAOpt certified.

 

I am doing a taper with incorporated holds at about 3%/month. But I have used it when tapering faster. I have taken double and triple doses at times in the past year. It doesn't seem to give any adverse effects at all. My understanding is it is similar to a fatty acid that the body produces itself but can be depleted of.

 

It does take awhile to build up and have an effect. I would give it 6-8 weeks to see if it helps. When I started it, I was in terrible pain and took high doses. I was reducing gabapentin at the time (all I was taking back then). I was in contact with a doctor in the Netherlands who said a patient of his took 8-10 capsules/day with no ill effects. I think I was taking 8 capsules/day back then. And then slowly reduced as my symptoms improved. That's years ago. It might have been only 6 capsules/day. At any rate, I had zero adverse effects, except to my pocketbook!

 

Good luck!

 

Gard

 

Thanks for your response, I am glad that us has worked for you. I am very sensitive to supplements and medications in withdrawal so I'm trying to be extra cautious but in this case it may be worth commuting to full time giving its benefits. Did you notice any ill effects when coming off it at all?

I had a concussion in July and am looking to reduce inflammation.

 

I know what you mean it is very expensive. I might try it for a couple months and see how I go.

 

Kind regards

 

I really didn't notice any change in w/d going on or going off the PEA. You might start with just one capsule and see how you feel and then increase if you feel OK.

[[ga...]]

I want a pet chicken, too! Landlord says nothing but a hamster.  :'(

Hamsters are great! You should get one.

 

 

I have a hamster. Looks just like that (minus the swing). I still want chickens!  :'(

On the other hand, BG has never had an urge to eat a hamster.