Scared to Death of Excruciating Pain - Nerve Enervation to Stomach?

[[Kl...]]

I originally described these excruciating symptoms as "akathisia", but I found this thread I think this describes the excruciating symptom that I get which in another thread I attributed as being akathisia.

 

http://www.benzobuddies.org/forum/index.php?topic=47394.0

 

It cannot be akathisia because I am not classically "restless". The prodrome is that I am usually woken up and my tinnitus is very loud and my body is humming then I get the upper stomach sensations which are very, very difficult to describe -but it causes a horrendous sense of dread and I can only call it a visceral pain.  It is agonizing and can last for 7 or more hours. It is not a cramp or classic pain.  It feels like nerves firing repeatedly. 

 

I also feel a sense of dread and a darkness seems to come over me. I am sure that this is because of the intensity of the sensation of excruciating pain. The sensation of pain makes me feel extremely physically ill and a pervasive feeling that I will actually die. 

 

I use a heating pad, I drink hot liquids, I try to distract, I lie down, I walk endlessly, I take a hot bath.  Nothing I do seems to relieve the pain.  I honestly did not believe that I was going to live through the agony.  This is my second severe episode and both episodes I have become incoherent with the pain. It is definitely caused by some type of nerve enervation.  It is simply inhumane. 

 

I have had 2 or 3 excruciating attacks which can last for several hours.  The "pain" or nerve sensations are located in the upper abdomen and it is way beyond my capability to manage on my own. 

 

There is nothing wrong with my stomach, I had a previous upper endoscopy that was clear.  It is caused by a hyperexcited nervous system.  I did not expect wd to be painfree, but this is inhumane and intolerable.  I don't think I can handle another episode and am now developing a PTSD over this.  I don't know what to do.  I don't know what will help mitigate the sensations.  I just cannot take it for hour after hour.  It literally makes me want to die. 

 

I want so badly to remain benzo free, but I know that I cannot live in this type of pain. 

[[pi...]]

Klonkers,

 

I am so sorry for your pain.  I will tell you that I have never had such pain in my life as I have experienced with benzo withdrawal.  Because of surgeries and degenerative disc disease I have had my share of pain.  You are right that the nerves are involved and are really misfiring while trying to right themselves after the damage of benzos.  You are doing everything right. I do use tylenol, it is not much but does take the edge off.

 

All I did was try to get through every minute, hour then day.  Every morning I woke hoping it would be gone and just start the process all over again.

 

Try to tell yourself that these feelings won't hurt you and you won't die from them.  Keep reassuring yourself over and over. I can't take medications so I don't know if there is anything out there for you.  I know that this pain will stop for you but I can't tell you when.

 

Stay strong and hold on, cry or vent or whatever will help.  You can do this.

 

pianogirl

 

 

 

[[pa...]]

Klonkers - do you have a doctor you can go to who understands this and can prescribe pain meds if necessary to get you through?

If it were me, I would go to the doctor. Tell them about the benzo withdrawal - show them that you went slow and conservative - and tell them you wish to stay off benzos but that you have got to have a way to deal with the pain.  Perhaps there is nothing going on - and likely he will want to check it out -but perhaps he can prescribe pain meds that are not going to act on GABA.

 

I have had several times during this experience where my bladder has hurt to the point of my needing to use hydrocogone 5mg/325mg.  It has relieved pain and has not, to my knowledge, messed up my healing.

 

I agree. You cannot live in pain.

Are you SURE this is not Remeron w/d for you?  Have you tried updosing that at all to check? Don't want to mess you up as I know your desires to taper it, but maybe it's too much too fast for you?

 

I am praying for you.

:)Parker

[[br...]]

Try this....

 

1 oz of Lemon, 1 oz of Ginger and about a teaspoon of honey. (organic if possible)

 

Also, try Holy Basil and / or Lemon Balm.

 

Another thing, where do you live? You need to see a Naturopath. I'm telling you guys, I'm reading so many posts and I think a lot of people here can be helped with some extensive blood work.

 

I'm not talking about just standard doctor crap. Im talking about checking full thryroid lypid panel, testaterone (free standing, and bio available), seratonin, GABA, DHEA, dopamine, do a hunters heart test, FULL vitamin deficiency panel, FULL food allergy test panel, estrogen, and MOST important of all.................a 24 HOUR Cortisol spit test!

 

Your gut is your second brain and its very sensitive, most of the seratonin you product actually is done in the stomach. I think many people here are suffereing from low cortisol levels or some sort of adrenal fatigue.

 

Also, is there anything that makes you feel good? A particular song? A show? Something that will trigger excitement and feel good? If so, put that one....listen to songs that will act on your subconcious, think of things you've done and accomplished that you want to do again that made you feel great! DO IT! You are in control of your life! Your mind is powerful but yet so simple. We ALL need to teach ourselves to create new neurotransimitors and stop our mind from racing 100000 miles a minute. Breath! Breath though your nose.....slowly....exhale slower and hold....do this over and over again....activate your PNS.

 

Also, when you feel the anxiety.....at times...accept it....tell your body to bring it on....tell it that it gives you strength...that it feeds you...that makes you stronger...we need to train ourselves to associate negative thoughts with good feeling. It's hard but can be done....just takes so much freaking work.

 

BTW- I'm suffering from everything you described.

[[Ho...]]

Hi Klonkers,

 

I'm so sorry to hear about this pain. You got through your taper. You're benzo free. That's such an accomplishment. This may be of no comfort now but soon (very soon, I hope) you will start to fee more like you and you will know you can endure anything.

 

Hang in there. I know you can do this. You're strong and so wise. You're going to make it. I know you know this but it doesn't hurt to hear it. 

 

 

Hope

[[Pa...]]

I'm sorry to hear you're suffering so bad klonkers. Pain is a difficult sx to deal with. Very hard to distract yourself. I pray you get a window soon that might alleviate some of your pain. Hang in there, you're doing great.

[[ja...]]

Brasileirao...

 

This is all great advise.Given it was for a person who had full capacity of there Brain function.I'm huge on Mind Over Matter. What if you dont have your MIND?  In this situation is can be a bit different. As for getting all the blood work you stated . Of course Its a great idea. But when results come back Superb then what? I'm saying this cause For many of us we have done that. We have been told were Healthy.Its stress ..Your all good..Go LIVE.IDK.I believe what Klonkers is experiencing no MIND OVER MATTER is going to elevate her suffering.

Klonkers I'm so sorry for how much pain your in.. I know how bad this can get. Ive spent many a nights in severe pain. Maybe not as bad as what you are. Hang in there Honey!!!

 

~Jenny

[[pa...]]

Klonkers - is it any better? Did it pass?

 

Thinking of you!!!

 

:)Parker

[[Kl...]]

Hi to my dear friends,

 

I am right as rain yesterday and today.  The event occurred from 1AM to 7AM on Tuesday morning and I really cannot say anything more about it because I don't want to relive it.  I did speak with my doctor and he wanted me to c/t the Remeron which I will not do, but will do a slow taper because I don't want to get really sick.

He also recommended reinstating to Valium, which I would naturally like to avoid. 

 

In the meantime, I have great family support and this issue was discussed and we all agreed that by me toughing this out on my own in severe distress actually greatly added to my suffering.  I probably would have fared better had I reached out for reassurance and comfort. This would have at least brought the anxiety level down which would in turn helped to calm the CNS down.  I think that things are always much, much worse in the middle of the night.  If this were to occur again, I will ask for reassurance and comfort, try taking some Vistaril (hydroxizine) (antihistamine with sedating properties) to see if it calmed things down, take a hydrocodone if this failed, or worse case scenario go to the ER. Of course, I know that there is nothing physiologically wrong with me that could harm me - it's just a really angry CNS.

 

As Jenny (Jaso19) says, When you don't know what to do, you need to do something, such as "take action".  I really needed help and for some reason I just don't do that very well.  This is definitely a process of learning.  Thank you everyone for your concern and compassion.  Lots of hugs, Klonkers

[[br...]]

Brasileirao...

 

This is all great advise.Given it was for a person who had full capacity of there Brain function.I'm huge on Mind Over Matter. What if you dont have your MIND?  In this situation is can be a bit different. As for getting all the blood work you stated . Of course Its a great idea. But when results come back Superb then what? I'm saying this cause For many of us we have done that. We have been told were Healthy.Its stress ..Your all good..Go LIVE.IDK.I believe what Klonkers is experiencing no MIND OVER MATTER is going to elevate her suffering.

Klonkers I'm so sorry for how much pain your in.. I know how bad this can get. Ive spent many a nights in severe pain. Maybe not as bad as what you are. Hang in there Honey!!!

 

~Jenny

 

I know, I was just trying to be supportive. I'm in the same boat and trying to get by everyday and heal my CNS. I'm waiting for my blood work to come back, its so hard cause I feel sick....and my doctor just thinks its anxiety....not the medication he blindly prescribed me.

 

Klonkers, hope you continue to heal! Sorry you are going through this... Wish I could help...

[[we...]]

I don't know what your situation was, but I woke up in the middle of the night with excruciating pain in my stomach and gut, while trying to taper off from Remeron.  It only happened once.

[[JJ...]]

Try this....

 

1 oz of Lemon, 1 oz of Ginger and about a teaspoon of honey. (organic if possible)

 

Also, try Holy Basil and / or Lemon Balm.

 

Another thing, where do you live? You need to see a Naturopath. I'm telling you guys, I'm reading so many posts and I think a lot of people here can be helped with some extensive blood work.

 

I'm not talking about just standard doctor crap. Im talking about checking full thryroid lypid panel, testaterone (free standing, and bio available), seratonin, GABA, DHEA, dopamine, do a hunters heart test, FULL vitamin deficiency panel, FULL food allergy test panel, estrogen, and MOST important of all.................a 24 HOUR Cortisol spit test!

 

Your gut is your second brain and its very sensitive, most of the seratonin you product actually is done in the stomach. I think many people here are suffereing from low cortisol levels or some sort of adrenal fatigue.

 

Also, is there anything that makes you feel good? A particular song? A show? Something that will trigger excitement and feel good? If so, put that one....listen to songs that will act on your subconcious, think of things you've done and accomplished that you want to do again that made you feel great! DO IT! You are in control of your life! Your mind is powerful but yet so simple. We ALL need to teach ourselves to create new neurotransimitors and stop our mind from racing 100000 miles a minute. Breath! Breath though your nose.....slowly....exhale slower and hold....do this over and over again....activate your PNS.

 

Also, when you feel the anxiety.....at times...accept it....tell your body to bring it on....tell it that it gives you strength...that it feeds you...that makes you stronger...we need to train ourselves to associate negative thoughts with good feeling. It's hard but can be done....just takes so much freaking work.

 

BTW- I'm suffering from everything you described.

 

hi brasileirao,

i am curious how much your naturopath charges and how much all of these lab tests are costing you?  my insurance does not cover naturopathic care, and just for an initial visit it is $415.  And I am sure the labs will cost me hundreds, if not thousands of dollars. I live in NJ where naturopaths are not even classified as doctors. I am sure that I could be helped by one, but unfortunately I do not have the money for it.  please post what you find out in your lab results, if you don't mind .thanks!

J.