A WINDOW A WINDOW A BRIGHT AND SHINY WINDOW

[Guest [...]]

Wooohooooo after months of hell Ive had a window now i know what they are just to have a day when i was functioning and just in time for my boys 21st birthday party.  I pulled of a successful party and everyone had a great time.  Just knowing the window opened and i had a feel for it is celebration enough.  I know im far from being well but gee im patting my own back just for a second.  Just thought I would share it with the benzo buddie world.  By the way the window better stay up and not close of my butt tomorrow.

 

Love Lizzy

[[Fl...]]

YAY!!! LIZZY!!

 

I'm SO happy for you 

This window is really what you needed right now. I could tell you were getting pretty fed up with constant waves.  Now you know what it feels like, Lizzy and know it's possible.

 

This is SO great. I feel almost like it happened to me. I'm celebrating with you, girlie!!!!

WooHoooooo!

Flip

[Guest [...]]

Thankyou my lovely friend Flip

 

So excited myself hope it stays open Flip just for a little bit longer.  Tomorrow is the actual birthday so im taking him out for a special breakfast first time ive done this in over a year then we are heading out to dinner will be big so just want to get through the day.  Thanks for joining in the celebrations pity we cant have a little drink lol.

 

big hugs to you hope you are having an ok day.

 

Love Lizzy

[[os...]]

Great news Lizzy, really great. 

 

Oscar

[[Be...]]

Oh Lizzy,

 

That is the best news ever.. Horray, horray.

 

I've been watching you and felt so inept at offering any help.. I just haven't known what to say.  I've just been hoping for you, every day... 

 

What bliss, enjoy :yippee:

 

Love,

Betsy xxxx

[Guest [...]]

Thanks Betsy

 

However im still gripped to my laptop and hanging on to bb for dear life just in case.

 

Love Lizzyxx

[[Be...]]

I know, it's tenuous.. Hang on to that lap top.. We all do!  Would you write down that you are feeling a little better?  Just so you can remind yourself how it feels ...

 

xxxxx

[Guest [...]]

very good idea Betsy must write it down because when im next wailing i will be able to remind myself that it does happen.

 

Lizzyxxx

[Guest [...]]

That's great news Lizzy. I've been thinking of you many times today and wondering how you were coping after that awful day yesterday.

 

Hope you stay good for your plans tomorrow!

 

Xana 

[[so...]]

ENJOY!  I hope it lasts forever! 

[[Ho...]]

Great news Lizzy...And many more to come.

[[Mi...]]

Lizzy!  Whoo Hoo!  I am doing the happy dance for you girl.          You have been suffering so much lately.  I hope this window lasts a good l-o-n-g time.  Now you know that windows do exist and they are not an urban myth.

 

XOXO

MiniMinnie

 

 

[[WT...]]

So happy for you!   I hope this is a door for you.

[[...]]

Congrats Lizzy! Enjoy it! Hope it stays open!!!

[[pa...]]

That's great new!!!!  Congrats!  Patty

[Guest [...]]

Sorry guys window shut with a bang woke up this morning and its all back. 

 

very very sad face

 

 

Lizzy

[[Ho...]]

That happens to us all Lizzy...Eventually you get more of them and they last longer. One thing I learned though was to take it easy when you get one and don't try to take on the world, both activity and food wise. That always brought mine to a screeching halt.

 

Hope you get another one real soon.

 

Bill

[Guest [...]]

thanks Bill

 

I will take that on board.  I did have a huge day and even though i was feeling quite ok i still had that low level buzzing anxiety.  I stayed up to late and feel like crap.  but i guess if they can happen once it will happen again.  Just start beating myself up all over again about the why and how did i ever allow myself to take mind altering drugs in the first place and you know how it goes from there just more and more anxiety.  Anyway got to put a smile on for my boys birthday.  Was just in the car and he said something to me and i agreed with him and he goes see mum thats why I love you so much you support me no matter what.  You cant want for me than that can you but all i could think of was how good it would feel to hear something like that without feeling this crap.

 

hope you are doing well saw you c/t as well in not off yet but obviously the taper in hospital of 45mg down to 0 in 18 days followed by a 2.5 reinstatement would be considered c/t no wonder im screwed.  How did you manage with the c/t.  r u feeling better.

 

Lizzy

[[Ho...]]

It's been just over 5 months Lizzy, and it's just starting for me. I've had 5 separate windows in the last 12 days with 7 days of waves of which 3 days were the worst I've ever had. The good thing about these waves is that they just don't seem to last more than a day or so now (touch wood). I learned something from a doc that I found through exhaustive searching. She told me to exercise for at least 30 minutes a day because the endorphins that you build can help take the place of the neurotransmitters that I'm not getting, take a good multi vitamin if it didn't cause my symptoms to rev up (and no other supplements), to eat healthy & drink lots of water each and every day and to take it easy and not stress myself.

 

The exercise was a bit of a problem at first because I did some light work with weights and a 30 minute run on my treadmill and the minor muscle pain I got caused my symptoms to flair, but I would took a day off from it when that happened and I persevered by continuing it to the point where I am now back in shape and it makes me feel great when I work out. I just cut it off after 40-45 minutes. The multi revved me up so I cut it in half and take it every other day. I sometimes have to remind myself but I always drink 2 liters of water a day, and I'm learning not to overdo things especially when I have a window, and just take it easy.

 

I still have minor symptoms when I get the windows but they're more in the background now and I just ignore them. I know one day they will just fade away.

 

I hope things really improve for you Lizzy, you sound like you really deserve it.

 

Bill

 

[[Bi...]]

Well, I didn't get to ring in on you in time :(http://www.benzobuddies.org/forum/Smileys/standard/yippee.gif

[Guest [...]]

Hey Bill

 

thanks i should exercise instead of crying hey would be better off i think.  Im feeling so sorry for myself i cant help myself.  you are right though i know.  Im glad you are starting to feel better it gives us all hope for the future.  Just had my mum and dad here its impossible to explain to people isnt it because it truly is horrendous.

 

thanks for your good thoughts.  Im sure one of my main problems is my ocd is very bad in regards to this and im so obsessed i cant think of anything else.

 

hey Billy F

 

thanks for the thought anyway get ready for next time

 

Lizzy

[[Ho...]]

I know it's really tough when you're feeling terrible Lizzy. I just put on my track shoes and force myself to at least go for a 30 minute walk which doesn't necessarily make me feel better at the time. I do it because I now believe it will pay dividends in the near future. I'm having a wave today myself after a great window yesterday but I'll just keep up the routines and I believe the window will be back shortly, even though it doesn't feel like it at this moment.

[Guest [...]]

hey Bill

 

well tomorrow just for you im going to put the shoes on and go for a walk crying and all ok.  I will let you know how I go.  What happens to you when you are in a wave just wondering.  Glad you are having good windows though.

 

Lizzy

[[Ho...]]

I get pins and needles in all my extremities, itchy burning skin in many places all over my body, nausea, brain fog and depression. I know there is nothing I can do about so I make sure I drink water all day, take my multi, do my workout and just try and keep distracted to get me through the day. The exercise can take a while before you start seeing the benefits from it, but I'm sure things wouldn't be going as well if it wasn't for doing them.

 

Hang in there Lizzy. It's a very slow nonlinear process that does get better.

 

Are you taking any other meds or supplements Lizzy?

 

Bill

[Guest [...]]

Bill before the benzos for the anxiety they gave me zyprexa omg bad reactions severe agitation and then remeron for sleep another bad reaction then anafranil for ocd plus 4mg of xanax to TAKE THE EDGE OFF he said well 7 weeks of those drugs and i just sobbed everyday without a break someone should have stepped in and got me off.  I tapered off the ocd med and stopped crying then the stupid shrink said oh well just stop the xanax well you can imagine what happened then 24 hours later i was a mess and there was no amount of reinstating that could settle me.  they actually found out im super sensitive to xanax and all medications.  Is brain fog when you just cant think straight coz i definately have that.

 

Your symptoms sound heaps familiar.  Hey when i dropped .5 for 18 days it was the worst i had to go back to 2.5 and ive never been the same since.

 

So now i take nothing but the 2.5 of valium.

 

Lizzy