[Ve...] Posted February 22, 2012 Share Posted February 22, 2012 A question.... If you reach tolerance withdrawl to a a benzo (Librium) will all the withdrawl symptoms level out after some time if you do not increase the dose ? I don't want to go up on my dosage....but, I'm not ready to taper yet. Link to comment Share on other sites More sharing options...
[pa...] Posted February 22, 2012 Share Posted February 22, 2012 Hi VS.. eventually it will. You just need to keep going forward in tapering, then go through the healing process. You can do this and you will get there. I know you are scared, everyone is, though - remember, everyone does heal in time. Hugs to you, Pattylu Link to comment Share on other sites More sharing options...
[Ju...] Posted February 22, 2012 Share Posted February 22, 2012 No, that's not what VS is asking. Once you've hit tolerance, does it ever stop without tapering? I think no and it gets worse right? I've been thinging about this question VS. Link to comment Share on other sites More sharing options...
[Ve...] Posted February 22, 2012 Author Share Posted February 22, 2012 Hi Patty Lu....thanks for responding. Please can someone else help. I'm at the maximum dosage of librium ....I went up 5mg last week. I'm still in tolerance withdrawl. This is a very important question,,,,,will tolerance withdrawl level out till I can find just the right doc to help manage a very slow taper ? I hope more people can help me with this answer. Link to comment Share on other sites More sharing options...
[Sc...] Posted February 22, 2012 Share Posted February 22, 2012 Hi VeryScared, I hit tolerance withdrawal, but didn't have a clue till many months later what was going on. I suddenly had increased anxiety, nausea, shakes, sweats, etc...and just assumed my anxiety disorder was getting worse. Then I eventually learned about the negative effects of Benzos, and my taper then began. I hope others can chime in to offer some words of encouragement, but I believe that once you are in tolerance withdrawal, all you can do is try to work through it. What I mean, is when I was in tolerance withdrawal, but didn't know it, I was going through Cognitive Behavioural Therapy (a GREAT form of therapy). Even though I couldn't get rid of my anxiety fully (b/c of the benzos i was still on), I do believe it helped me get through it a bit easier. I was able to rationalize more because of it. Try to do as many things to help yourself right now. Yoga, clean eating, water, meditation, staying away from caffeine, talking (on the forum), keeping a journal to logged how you feel (this helps sometimes find patterns to when you feel bad), etc. All these things can be used as "tools" to get you through this until you begin a safe taper. When do you think your doctor will be able to help you with a taper? How long have you been on Librium? What do you feel right now while in tolerance? Just please know, that whatever you are feeling right now cannot hurt you. It is extremely unpleasant, but no harm can be done. It's just your body making you uncomfortable while in tolerance. Mine never worsened. Once I got to the point I was in tolerance w/d, it just steadily stayed there. And some days were better than others. This won't be permanent, so keep reminding yourself that. All the best, Schatje Link to comment Share on other sites More sharing options...
[Ve...] Posted February 22, 2012 Author Share Posted February 22, 2012 Ive been on Librium for 18 yrs....up and down. I cannot take valium. I have extreme anxiety and heart palpitations and shakiness. I just wanted to know if once you reach tolerance...will it eventually level out and get more comfortable. So far cannot find a doctor who can help and/or take my insurance. I just went up 5mg last week and its not helping. I can't go up and can't go down. I'm completely disabled from an auto accident and my husband types all my posts for me. I just want to tolerance withdrawls to level out . I am very med sensitive and cannot tolerate any other meds. Link to comment Share on other sites More sharing options...
[Fl...] Posted February 22, 2012 Share Posted February 22, 2012 I didn't know what was causing it at the time but I started to feel "off" 6-12 months after starting clonazepam. Things slowly got worse (although it was never extremely bad while on the drug) over the next couple of years until I decided to taper. Didn't realize what was making me sick until I got slammed with acute wd and found benzo buddies. To answer your question, I never stabilized during tolerance wd. Life was livable the entire time I was on the drug but it did cause a very slow decline for me. Link to comment Share on other sites More sharing options...
[Sc...] Posted February 22, 2012 Share Posted February 22, 2012 I feel the same way as Florida Guy. Life was livable during tolerance withdrawal...I even manged a couple of long weekend trips with my family that summer...but I was never really what I'd call "Comfortable". There was always some sort of unsettled feeling. I managed for the most part, but some days were really tough...then I'd get a few days to a week where things subsided quite a bit and I actually felt pretty good. A bit of a mini roller coaster I guess. I don't think you'll get any worse off. I can't say that for certain, but I'm just basing it on my own experience. Hugs, Schatje Link to comment Share on other sites More sharing options...
[Ve...] Posted February 22, 2012 Author Share Posted February 22, 2012 Now i"m getting more depressed from your answers....I can't go up or down.....I thought tolerance withdrawl would level out after a while. I'm in tears and cannot write anymore. Link to comment Share on other sites More sharing options...
[Sc...] Posted February 22, 2012 Share Posted February 22, 2012 Hang in there VeryScared. This is just our experience and our own honest answers...and everyone is different. Some don't even experience tolerance withdrawal at all. So it doesn't mean it will stay this bad for you. And remember, for me, I DID get some breaks from it, but I still knew in the back of my mind that something was wrong. But I was functioning through it all. Just remember that once you can begin your taper, you will heal over time. This won't be a permanent part of your life and it is 100% possible to not only come off of these meds, but to get better. I am now 7 months off and seeing improvements all the time. All the best, Schatje Link to comment Share on other sites More sharing options...
[Bi...] Posted February 22, 2012 Share Posted February 22, 2012 Hi there, I hit tolerance about 4 years after taking Klonopin. This is with Klonopin, but a benzo is a benzo. I didn't know it was tolerance until researching. I was not told there was a tolerance by my doctor. I would start tapering at the point of tolerance, IMO. Billy. Link to comment Share on other sites More sharing options...
[Ve...] Posted February 22, 2012 Author Share Posted February 22, 2012 I"m feeling so depressed because i cant take valium .....and valium and librium are the longest half life benzos on the market. If I start a taper my withdrawls will get worse. Right now i'm trying to find a doctor to manage my medication . I'm in tolerance withdraawl now and if I go down it will get worse. I feel completely hopeless and in tears the more posts I read. I thought the tolerance withdrawls would level out. We can't even find a doctor to follow me who knows anything about these stupid drugs. I wish someone in the sacramento , ca area knew of some doctor that was knowledgeable. I feel like Im going to die. The ER doc said Im not an addict just dependent on the drug. I'm very very med sensitive and can't take substitute meds. I'm just not brave to tolerate the withdrawl symptoms like you folks on this board. I feel more depressed after hearing your stories as I CANNOT take any other meds to taper down and we can't find a doctor . I guess I'm just not as good as all of you on here. Link to comment Share on other sites More sharing options...
[Pa...] Posted February 22, 2012 Share Posted February 22, 2012 I'm sorry you're having to go through this VS. It's a hellish process I won't lie. I referred to Xanax as my miracle drug before I hit tolerance. For me the tolerance wd never leveled out, if anything it got worse. Im not sure how long I was in tolerance but there was a period of six months where I knew something was wrong and finally came to the conclusion that I needed to come off this crap if I was to ever feel good again. I wish I would've bit the bullet early on but I too was terrified at the idea of withdrawaling from these drugs. Partially that was due to that fact I was only six months free of paxil and still heavily symptomatic from paxil hell. I honestly didn't think it was possible to go through what I've gone through this past year and the suffering has been indescribable. However don't short sheet yourself by saying you're not as brave as the rest of us. You absolutely are, you just don't know it yet. You are absolutely capable. You'll be amazed at how you rise to the ocasion when the occasion calls for it. Take a deep breath, your life is not over, don't make it worse than it needs to be. Just because you're in tolerance wd doesn't mean your taper or subsiquent withdrawal will be nightmarish. Don't read any of the stories here and take them as your own. We're all different with different medical histories. There's no telling how your own individual withdrawal will play out. Whenever you decide on undergoing this endevour I have no doubt that you'll rise to the ocasion the same as everyone on this board has. Link to comment Share on other sites More sharing options...
[Ju...] Posted February 22, 2012 Share Posted February 22, 2012 Definitely don't read stories and compare. I've done this so much it's ridiculous. As I've read though, there are people that haven't used benzos for very long and have a hard withdrawal. On the other hand, there are people that have used long term with a hard withdrawal. Still, there are others in the same situations that have relatively easy tapers. We can't predict by looking at other's experiences. I understand not being able to find a doc. They want to keep me on this crap but I have one more to see and do hope he'll help, if not, I will figure out titration. I've cried so much just from worrying and it makes me sad to see some else doing the same thing. Yes, you are strong. The car wreck is proof. Your husband supports you and that is wonderful. I'm stuck on 300 mgs of Neurontin only because I can't get any lower now. Tolerance really took hold and I can't waste more time with it. I'm using no other meds to taper either. I'm not handling Valium that great because it makes me depressed and insomnia is already creeping in, but like you, I can't take anything any other meds. We're on the equivelent dose and if you decide to taper, we can be taper buddies. Don't read other things on the boards to scare you though. post when you have a question about your situation and concentrate only on yourself. That's what these wonderful people are here for, to help and support. Can you find the ER doc again? maybe he/she can help or let you know of someone that can in your area. The ER doc sounds benzo wise to me. Please don't forget that you are strong and that you won't get every symptom you see on this board. I hope Jaso comes by and see's this post. She's a very reassuring person and can put things into words a lot better than I can. There are so many good people here and will be here night and day to listen and help. Link to comment Share on other sites More sharing options...
[jo...] Posted February 22, 2012 Share Posted February 22, 2012 I would ask you what your s/x are? How severe are they? Do they ease when you take the med? Do you continue to have to increase the dose to get any relief? My experience with tolerance w/d is that it does not get better or level off, only gets worse. Your body has developed a tolerance to the med and is no longer able to sustain on the current dose, needing more and more to stave off the s/x. I recomend doing a taper. See if you can find a doctor who can help you with this Link to comment Share on other sites More sharing options...
[Fr...] Posted February 22, 2012 Share Posted February 22, 2012 I very scared, I hope you start to feel better soon. My journey started the same, I hit tolerance w/d. Was an extremely frightening time for me, but, it does get better with time. Though, I did not hold my dose. I had to taper and once I did, Ill admit, it took some time to settle down. But as I got lower and held, I became much better than I was. I am still tapering slowly and feel good, though the waves and windows come and I know what to expect since it seems to follow a pattern. I did some digging and found some doctors for you who are experienced with a slow taper. Here are some I found for near the Sacramento area. Hope this helps. Dr. Kenneth Lehrman 719 Southpoint Blvd., Petaluma, CA 94954 - (707) 778-1702 Dr. Peter Madill 1020 Gravenstein Ave, #120, Sebastopol, CA 95472 – (707) 823-3312 Those are the only 2 that I could find near you. Source: http://www.benzodocs.com/ Link to comment Share on other sites More sharing options...
[Ve...] Posted February 22, 2012 Author Share Posted February 22, 2012 Hello....thank you so much for your responses. The bottom line is first of all ...I 100% believe a person needs doctor to help manage this. Can't find a doc yet that will manage a slow taper. We even have our insurance company looking with no luck. Problem #2...this tolerance withdrawl is extremely uncomfortable....i'm getting so frustrated that i cant find a doctor. I dont like talking about symptoms anymore....as Jen said everyones story is different. I guess i was hoping to hear that the withdrawls would level off at some point even if you didn't go up on the meds. Problem #3....I'm completely disabled from a very servere car accident so i'm not ambulatory or mobile. No one will put me in the hospital because we cant find a doc connected with a hospital to stabilize me for a few days. I'm not able to be bop around to multi doc appts like normal people. Problem #4.....thank you for the suggestion to the docs in Petaluma and Sebastopol....there are two big issues with that. They are both 3 hrs from where we live....one way and then the insurance also would be a whole other issue. But even if the insurance took them the trip would not be possible because i would have to go by medical transport. Those two places are out in the wine country....3 hrs from where I am. Sorry if I'm being short....I don't mean to be. I'm so frustrated and angry at the whole system....docs, insurance companies....for ever inventing these drugs and the limits your insurance company puts on you . You can't find one doc in the sacrmento area that takes my insurance and is familiar with this type of medication and what it can do. I'm just completely at my wits end as no one can help my husband and I . I just can't believe im the only disabled person thats ever had this problem that can't find a doctor. Its so incredibly frustrating...you can't even begin to imagine. Link to comment Share on other sites More sharing options...
[Pa...] Posted February 22, 2012 Share Posted February 22, 2012 I agree VS, it's very frustrating trying to find a doctor that's knowledgable about taking people off benzo's especially when they're only meant to be prescribed 2-4weeks. You'd think doctors would be experts at pulling people off these things. I hope you find a doctor that's willing to work with you soon. Link to comment Share on other sites More sharing options...
[ja...] Posted February 22, 2012 Share Posted February 22, 2012 Hi very scared, I am so sorry i know how you feel. I have been in T/W since January my xanax last me 1 1/2 to 2 hours if im lucky. so then i suffer withdraw for 2 more hours untill my next dose. I am in the process of meating doctors for help. None yet. I canot taper because of w/d sx and xanax is a short life benzo and i dont feel i can do it. Im trying to get c/o to valium i know you said you cant take that. I tried updoseing too it did nothing so i went back to my 2 mg dose. But i only updosed for 3 days and realized it didnt work. i dont think i would go down on your dose if you have done it for awhile. I would say you HAVE to find a doctor or psyciatrist to c/o to a different long acting benzo. That is what i would do I understand you said your husband is typing for you. what a great guy. I think he will help you find a doctor. I know the doctor shopping is hard i have cried many nights over this. It sounds like your anxiety is hard to these pills are horible what they do to us. But remember the anxiety can make us freakout. So maybe your hubby can help you handle this a little better while finding a doctor who cares. Please hang tight i will keep you in my prayers. BIG HUG for you love Jackie Link to comment Share on other sites More sharing options...
[jo...] Posted February 22, 2012 Share Posted February 22, 2012 I very scared, I hope you start to feel better soon. My journey started the same, I hit tolerance w/d. Was an extremely frightening time for me, but, it does get better with time. Though, I did not hold my dose. I had to taper and once I did, Ill admit, it took some time to settle down. But as I got lower and held, I became much better than I was. I am still tapering slowly and feel good, though the waves and windows come and I know what to expect since it seems to follow a pattern. I did some digging and found some doctors for you who are experienced with a slow taper. Here are some I found for near the Sacramento area. Hope this helps. Dr. Kenneth Lehrman 719 Southpoint Blvd., Petaluma, CA 94954 - (707) 778-1702 Dr. Peter Madill 1020 Gravenstein Ave, #120, Sebastopol, CA 95472 – (707) 823-3312 Those are the only 2 that I could find near you. Source: http://www.benzodocs.com/ OMG! Thanks for this link Jo Link to comment Share on other sites More sharing options...
[bl...] Posted February 25, 2012 Share Posted February 25, 2012 I don't know if it never doesn't stop, but I know that I just hit it sort of out of the blue recently -- and so I'm trying to taper off. I figure, if the meds aren't working anymore, and I'm already withdrawing between doses (like after two hours for the next few hours, ugh), I might as well finish the withdrawal here. At least that's my logic. Link to comment Share on other sites More sharing options...
[Me...] Posted February 25, 2012 Share Posted February 25, 2012 I feel your pain I had to reinstate after a year of being off... have been at 6 mg valium now for over a year and never have stabilized.. I know my body wants more. I dose at night...midnight... and at say 1 pm next day I go downhill fast !! I get hit hard :'( I know the stress makes mine worse. I have seen some people get stable at higher doses and get comfy and taper... and I have seen others never get to that comfy point. Its an individual occurrence it seems Link to comment Share on other sites More sharing options...
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