Why punished for a few hours of "decent."

[[re...]]

My windows are never 100% sx free, but any reduction in mental or physical pain is always welcomed.

 

I had a good few hours last night, and felt more like the old me. But of course I woke up to intense body sx. Felt like month 3 intensity. My burning skin on the back of my arms is really really bad today.

 

EVERY time I get a decent few hours I get slammed. And it is not that I go back to my normal levels and it just "feels" worse from having felt better. I really do dip back into the thick of it.

 

I dread getting a bit of a break and I know I will have to pay for it. Sigh.

 

Anyone else have this happen to them? Any idea why?

[[Tu...]]

That happens me too, its like everytime i get a few hours where I feel good I then have to pay for it with an onslaught of symptoms afterwards.

Like today i was feeling great up until an hour ago, then slowly I started to feel like sh** again (excuse my language) But I wonder are the symptoms more intense after these windows or is it they just seem that way because i was feeling good again for awile beforehand?

Hang in there because even though things seem to be getting worse and unbearable at times, at least there are times when things seem to be getting better and managable also!!

[[jo...]]

My body does this. Though my windows can last 15 mins...so are they really windows?  The s/x can flucuate rapidly. Does seem to be worse after a good spell.

Is it worth it? heck yes!