The Long Hold Support Group

[[De...]]

Thanks ok,

I might have too. 

[[Tr...]]

Really quiet here. Not one post all morning!

 

Warming: do not read this when feeling desperate!

 

After a good night,  this morning was terrible. So much muscle pain, not only in my legs and feet,  but spreading to my arms, shoulders, neck, jaws, back. Why? Did something change last night? It's hardly bearable at times. Driving me nuts. I want to scream! Paracetamols do next to nothing,  Ibuprofen gives me bowel issues.  Ahhhg,  what a life! Possible causes: Fibromyalgia, Diazepam,  muscle disease, cancer, mental issues?  Maybe it's all of those combined to get me...  Feel like a lost case.  :'(

 

Hope your day is better than mine.

[[va...]]

Hi Troschetter. I'm sorry you're in so much pain  Remember not every day is the same so I'm sure you'll soon have better days again and you'll be able to go out with your bike.

 

Do you remember having so much pain before starting your valium taper? Was your pain ever as severe before you started to cut the valium? Just to try to discern what's withdrawal and what's fybromialgia. I know your brain goes constantly to cancer the same as mine goes constantly to someone cutting me off the valium CT. This is not our reality now. We have to bring ourselves back to our present reality. I know it's incredibly hard to beat that tendency but he have to keep at it. 

[[ju...]]

i want to ask a question about wd :(what can we ask for here already. as you know i left 8 months behind me and i am holding a steady dose on remeron. i have had anxiety whole the process but this last month's anxiety differ from previous 7 month because i can clearly feel it stems from my face nerves and brain movements. it is such terrible that sometimes i want to scream. to you am i experiencing an anxiety wave, i hope this is a sign of healing such that these movements on my brain will stop at a point where i feel myself courageous to start tapering again. is this normal?

one more thing.i oredered a kind of cbd oil.just thinking to try to soothe this anx.

[[Ma...]]

Really quiet here. Not one post all morning!

 

Warming: do not read this when feeling desperate!

 

After a good night,  this morning was terrible. So much muscle pain, not only in my legs and feet,  but spreading to my arms, shoulders, neck, jaws, back. Why? Did something change last night? It's hardly bearable at times. Driving me nuts. I want to scream! Paracetamols do next to nothing,  Ibuprofen gives me bowel issues.  Ahhhg,  what a life! Possible causes: Fibromyalgia, Diazepam,  muscle disease, cancer, mental issues?  Maybe it's all of those combined to get me...  Feel like a lost case.  :'(

 

Hope your day is better than mine.

 

Trouch, my guess it's all Withdrawal.  But if anything scares you, definitely Dr time.  We have all spent a lot of money taking tests, all to come back fine.  I watched a news cast several months ago with a pain specialist, she said nsaids and acetaminophen at the same time can help as much as some opioids.  They help me, I only take them when in agony.  There is a otc med called Goodys, that has aspirin anand acetaminophen in them.  Can find at some drug stores.  Does aspirin hurt your stomach like ibuprofen?  If not ! I might give at least try if I were you, just a suggestion.  Pain has been my primary symptom since beginning.  Hope it eases soon.  LY, Mary 💜💜💜

[[Ma...]]

i want to ask a question about wd :(what can we ask for here already. as you know i left 8 months behind me and i am holding a steady dose on remeron. i have had anxiety whole the process but this last month's anxiety differ from previous 7 month because i can clearly feel it stems from my face nerves and brain movements. it is such terrible that sometimes i want to scream. to you am i experiencing an anxiety wave, i hope this is a sign of healing such that these movements on my brain will stop at a point where i feel myself courageous to start tapering again. is this normal?

one more thing.i oredered a kind of cbd oil.just thinking to try to soothe this anx.

 

June, I honestly don't know a lot about remeron, but just looking at your signature, you have only been holding a month, or am I missing something?  Your symptoms sound awful, I am so sorry.  If they scare you, seeing a Dr is never a bad thing.  Peace of mind means a lot.  I hope the cbd oil helps.

Most things are withdrawal, and yes they can be made worse with health anxiety.  Hope you see some improvement soon.  Mary 💜💜💜

[[ju...]]

no Marry i have been holding 4+ months. actually, the question that i asked wasnt that. my question isnt related to rem directly also. it seems my rem holding dont give me any further sxs. because there is no nausea or other probs. the question that i wanna ask is whether when the effects of ct would lift. i have left 8 behinds me after ct. The anxiety that i had in the acute didnt like that. the current remeron medication can't be a reason of that awful anx. i mean after being interrupted a drug whether it is benzo or not, the form of anxiety may change like that?

[[Ma...]]

no Marry i have been holding 4+ months. actually, the question that i asked wasnt that. my question isnt related to rem directly also. it seems my rem holding dont give me any further sxs. because there is no nausea or other probs. the question that i wanna ask is whether when the effects of ct would lift. i have left 8 behinds me after ct. The anxiety that i had in the acute didnt like that. the current remeron medication can't be a reason of that awful anx. i mean after being interrupted a drug whether it is benzo or not, the form of anxiety may change like that?

 

Oh, I get your signature now, it's written differently than I would write it, but that's cool, that's why I asked if I understood.  Not being an expert but having been on bb and doing lots of reading, IMO, I would say it's entirely possible.  No one call tell you when the ct symptoms will leave. It is very different for everyone.  All our situations were so variable , the drugs, time, doses, etc?  Each person is different.  I know that's not a lot of help but the only thing about benzo's that can be said , all our symptoms are different.  Good luck!!  Mary

[[Tr...]]

Hi Valiumnomore,

 

You're right as usual. Shouldn't think of the worst case,  but that's what I do when things are bad. No, before I got hooked on Diazepam, I didn't have these severe pains. So it could well be withdrawal. But I can't get my head around the huge difference a day can make. It's like going from winter to summer overnight. But, have to keep hoping for better days, like you said. Hope you're feeling OK.

 

Hi Mary,

 

You're probably right too, again. Thank you for the suggested painkillers. I' m going to look into that. Just need to get off this pain. Going back to my neurologist ; want to have more tests done. Sorry to hear you suffer from pain too. Is it muscle pain, or joint pain too? Hope it gets better soon.

 

PS. Went for my daily ( 10 min) walk. Not even that painful. Glad I did it.

 

Take care.

[[Ma...]]

Mine is mostly muscle pain and right now, I have been holding at 8.8 mgs, but that included a slow change over from Teva pills to Roxann Liquid, so really only held for less than 2 months, but am doing quite a bit better than normal.  Have some nerve pain but really very little.  Use a lot of heat, and a shatki mat and pillow, which really helped and helped me cut way down on the otc meds.  Can look it up on Amazon.  Looks like torture but once you've been on it 5 minutes, it goes away and the next thing you know,it's been 30 minutes.  A friend on here recommended it.  It really helped.  Is yours nerve or muscle?

[[Tr...]]

Mostly muscles,  but my feet is nerve pain, I guess.

Glad you found some relief.

You can get those mats overhere as well. Lots of online shops sell them. Still not sure wether it's my thing, though. Read some reviews: some swear by it, others say it made them feel worse.

[[Ma...]]

Mostly muscles,  but my feet is nerve pain, I guess.

Glad you found some relief.

You can get those mats overhere as well. Lots of online shops sell them. Still not sure wether it's my thing, though. Read some reviews: some swear by it, others say it made them feel worse.

 

Make sure they have a good return policy, that's what I do.   

[[Fi...]]

I am popping in to wish all my besties a Happy New Year and touch base. First of all, Trishy, I am always in awe of your kind heart and amazing courage. That was a hard thing to do, but you did the right thing for the kittens and for yourself. I had to give us so many things that I truly wanted to do for others, just to survive this nightmare myself. Stut, I have been thinking about you. Almost there! Well done, my friend! I am six+ months off my k and feeling a bit better. Far from a success story, but I have seen slow progress. For those of you who don’t know me, I did just about everything wrong in my taper, I used the drug long term, I am old, I don’t follow a restrictive diet, and probably should have had the roof fall in on me after jumping. But nothin dramatic happened. I just stayed the same for over five months. Which was not very good, but survivable. I have had a few periods of being about 75% normal recently, though. Some sxs have dropped off entirely since month three. So, if anyone is worried about something they think they did that will lead to never healing, maybe knowing I did it too will help. Love to all, Espy

 

So good to hear this news Espy.  75% better is a good number and I do appreciate knowing that you are healing. Very comforting. 

 

FH

[[De...]]

Good to here from you fh. I hope you are feeling better.  Ly dd

[[Tr...]]

You got me,Trishy. Couldn’t resist the shine any longer. Now my gaba receptors are on life support. I haven’t won the war yet, just a couple of battles. But, that is something to thrill me, especially when I look back to 2019. We met in the summer of 2018. It was bad for me then and went steadily downhill. 2020 may not be perfect, but surely it will beat that. I plan to distract and focus on our campaign, with hopes of feeling like partying all night after the inauguration. Start shopping for your dress. Love, Espy

Yay! Espy 2020! 😁.. I do have one concern though and that's about my victory dress 🙄.. uh the Trishy trunk has grown some and I'm not talking luggage here.. I'll need to whittle it down a bit to have " trunk envy" so I'll work on that very important " asset" of mine.. But if I fail we may need the secret service to lift it as I walk out on stage with you to address the crowds 😂😂

 

Love you! #ESPY/TRISHY2020!❤️😁

[[Ma...]]

Trishy , we will pick a really strong looking security guard, and each take an arm  :laugh:

[[Tr...]]

Trishy , we will pick a really strong looking security guard, and each take an arm  :laugh:

:2funny:.. make sure he's good looking too! If he's going to be carrying my "trunk" I want something cute to look at 😂😂

[[es...]]

No worries, Trishy. A few extra pounds is nothing compared to the person occupying the position now. Mary will be taking applications and reviewing photos for those security guards. 😋Espy

[[Tr...]]

Omg what a boring day mmmmm's. I didn't get off the couch much... Just kinda lazed around. I went from 100 miles an hour to 0 . Last year at this time I was working. Now that the holidays are over I'm not sure what to do with myself. I have some closets I want to clean out but if it's not sunny outside I have no ambition to clean anything. It's been gray skies the past two days uhg! I'm trying to stay away from the stores  :laugh:

TT with her tail on the couch :laugh:

[[Tr...]]

No worries, Trishy. A few extra pounds is nothing compared to the person occupying the position now. Mary will be taking applications and reviewing photos for those security guards. 😋Espy

Good point president to be!  :2funny:

[[Ma...]]

No worries, Trishy. A few extra pounds is nothing compared to the person occupying the position now. Mary will be taking applications and reviewing photos for those security guards. 😋Espy

 

Ooh, thanks Espy, I couldn't have chosen a better position for me  :laugh:

[[Fi...]]

Good to here from you fh. I hope you are feeling better.  Ly dd

 

Hi DD,  I had been feeling better but I now am feeling my latest cut.  I knew it would happen but I wish there was an easier way.  I'm okay, I just really am missing my former life.

 

I had to take a little break from BB so that I could establish some other routines in my life.  I still come on but just needed a little space. 

 

I hope you are doing okay. 

 

I am wishing everyone some decent days and nights. 

[[Ma...]]

JayTay, yes they have and I hope they read this tonight but it may be tomorrow.  You need to make sure the updose is enough though.  Then a good Hold has helped a lot of people.  I haven't done it but several people on here have.  I am sure as soon as they see your post, they will respond  . Also, there is an updosing support group you may like to read and ask questions about the amount.  Hold tight, someone will be on to help you.  Mary 💜💜💜

[[Ol...]]

Hi everyone. I haven't posted in here before but I have a question for you all. I'm in a precarious position at the moment. I'm doing a dry microtaper and was making progress until about a month ago when I hit .25 mg's Klonopin. I'm currently at about midway between .25 and .125 mg's and my symptoms have gotten truly unbearable to the point that if things don't calm down I'm going to have to go to a detox center as my parents cannot handle me being out of my mind all the time.

 

I know updosing is frowned upon but has anyone had success with a slight updose followed by a long hold? I've been holding my dose for the past 8 days which I realize is not very long but I literally was researching detox facilities all day with my parents. I'm so sensitized that I'm terrified to make that step but I can't tolerate these symptoms at home so I'm hoping to do a small updose to where I was 2 weeks ago so I can hold in a place that is at least not a constant crisis.

 

Has anyone done a slight updose to get some relief out of a crisis state followed by a long hold and then been able to handle their taper? Feel like all of the daily microcuts have really caught up to my nervous system.

 

Hi JayTay,

Yes, I think if you are really suffering, an updose and hold is a good idea. It will be up to you to what level you updose, for me it was a level where I last felt ok (not well, but at least ok) Your doctor will have to be on board with this, because he/she will need to keep prescribing.

I was in your place and was searching detox facilities with my bf because he just could not handle me anymore. After doing lots of research on here, I found that most people that went to detox centers came out worse than when they went in, and ended up reinstating anyway and doing a slow taper.

Much love to you, we will be here to support you.

[[De...]]

Hi fh,

I completely understand. I am too. Just want to feel normal. Hang in there. I take breaks too. I agree we need to have some sort of normalcy in our life.

Ly dd