The Long Hold Support Group

[[Ma...]]

DD, are you okay girlfriend, I don't think I saw a post from you . LY , Mary  :smitten:

[[Tr...]]

Hey mmmmm's, I got the kitties today!! Two days before Christmas 😳 My granddaughter named them Oliver and Lulu.. We're going to can the boy Ollie. They're adorable! Lulu suits her name she's fiesty and playful, she's a kook! Lol!! Ollie is a little more skiddish and shy but so sweet 🤗

Just wanted you to know and everyone here who knew they were coming that they've arrived! Rich and I are proud cat parents ♥️

Too many T'S ♥️

[[Tr...]]

Good morning LHSG hoping everyone has a better day.

Morning folks haven't much time just wanted to pop in to see how everyone is doing.

Twiny we all have that fear who wouldn't.We have all been bitten on the ass or we wouldn't be here.No one knows what's ahead when we cut however experience tells us if it hits hard hold until it settles.Now l think you are going to have to battle yourself the whole taper because your need to get off is going to be an issue.Now you are definitely doing better on a slow taper so stick with it honey.Yes it is going to take longer however if you can function that is more important.Keep doing what you are doing honey and stop worrying about how long this is going to take.Enjoy Xmas twiny.love you my lST X

Morning lady Mary l know your pain honey that is where l get the pain.Some days better than others.Remember this is normal the ebbing and flowing of symptoms.Today you may feel a little better.Hang in there honey.love you my lady Mary HenX

Morning Olive you sound as though you are having a good time.You deserve it honey.No cooking until Xmas Eve then l won't be out of the kitchen all day 😠. Can't say l am a fan of Xmas however l will paint a smile on and get on with it.Love you.X

Morning Troch Intend Gilly Valley Meems Esperanza Bill Free Suzy GP NJ Miyu Final and everyone here hoping everyone has a withdrawal free Sunday.X

Thank you twinny as always for the great advice and support! I hope you have a wonderful Christmas! 🎄🎅

Lovr you lady,

LST ♥️

[[Ma...]]

Hey mmmmm's, I got the kitties today!! Two days before Christmas 😳 My granddaughter named them Oliver and Lulu.. We're going to can the boy Ollie. They're adorable! Lulu suits her name she's fiesty and playful, she's a kook! Lol!! Ollie is a little more skiddish and shy but so sweet 🤗

Just wanted you to know and everyone here who knew they were coming that they've arrived! Rich and I are proud cat parents ♥️

Too many T'S ♥️

 

Oh that is so great Trishy, there is nothing cuter than kittens playing, sleeping, or just hanging.

Just adorable, congratulations to the new cat 🐱 parents!!  💜💜💜💜💜

[[Tr...]]

Hey mmmmm's, I got the kitties today!! Two days before Christmas 😳 My granddaughter named them Oliver and Lulu.. We're going to can the boy Ollie. They're adorable! Lulu suits her name she's fiesty and playful, she's a kook! Lol!! Ollie is a little more skiddish and shy but so sweet 🤗

Just wanted you to know and everyone here who knew they were coming that they've arrived! Rich and I are proud cat parents ♥️

Too many T'S ♥️

 

Oh that is so great Trishy, there is nothing cuter than kittens playing, sleeping, or just hanging.

Just adorable, congratulations to the new cat 🐱 parents!!  💜💜💜💜💜

Thank you Mary, they are just too cute! 🐈🐈♥️

[[De...]]

Ahhh I just lost my post!! I am good. My left eye was killing . I thought maybe I should let it rest. I am so glad you snd Tim went out today. It can be fun to go out at xmas time. Puts you 8n the spirit!! I know what you mean about the pain. When I get home strsight to the heating pad. It is my best friend too!! Love you!! Glad you got to drive the new car!!!! 🎄🎋🎁🎁💚❤💛

[[De...]]

Ohhhh Tt,

You got them! I am so excited for you. I love their names.  I just asore kittens. They are so cute and funny. Dont stay up all night. Ly dd 🎅❤💚💛

[[Ol...]]

Yaaaay Trishy!!!! I’m so excited for you!!!! I can’t wait to see their sweet little faces. Great names too!

 

I was looking at the Witchery show, it looks great! I think it takes place in 3 different timelines. Just my kind of show.

Hope you are all having an ok night. I went on a bike ride in San Diego today, first bike ride in years, it felt great. The place we are staying has cruisers to borrow, and there is a nice beach front path to ride on.

[[lu...]]

Hello BB, I was on 4.5 mg of Ativan in February 2017 now I am on 3.5 mg. My Psychiatrist just tapered down the dose from 3.6 mg to 3.5 mg of Ativan. That was about 2 weeks ago and today I felt a lot of withdrawals like tremors and heart palpitations and I started to cry oh it's just awful. I will probably stay on 3.5 for 3 to 4 months. It will take me about 6 years to get off of 4.5 mg of Ativan but that's ok. My body is so sensitive to the tapering process that I have to go extremely slow. I have been to 3 detox facilities and they all tried to get me off of Ativan way too fast and I got so sick.So I am taking my time to get off of this horrible drug. Any comments would be appreciated. Thanks

[[Cr...]]

Hi LHSG people,

Generally, how long should you hold before making cuts on your taper? I was told 2-4 months is nothing unusual for Valium. I just want to know how long is too long to hold on your taper.

Dave. 

 

[[Tr...]]

Just had the most awful night. I couldn't fall asleep ( never happened before while on Diazepam).  Getting more and more anxious with increasing belly pain, because I had an appointment for a CT-scan of my colon on Tuesday and had to start drinking a contrasting fluid today to clean my colon. I read about the possible side effects of that fluid and got absolutely terrified.  I cancelled the appointment first thing this morning. Can't handle any extra anxiety right now. Made a new appointment to talk to the specialist early January. Hope things settle down a bit today. So extremely tired at the moment.  :'(

 

 

[[St...]]

Hello BB, I was on 4.5 mg of Ativan in February 2017 now I am on 3.5 mg. My Psychiatrist just tapered down the dose from 3.6 mg to 3.5 mg of Ativan. That was about 2 weeks ago and today I felt a lot of withdrawals like tremors and heart palpitations and I started to cry oh it's just awful. I will probably stay on 3.5 for 3 to 4 months. It will take me about 6 years to get off of 4.5 mg of Ativan but that's ok. My body is so sensitive to the tapering process that I have to go extremely slow. I have been to 3 detox facilities and they all tried to get me off of Ativan way too fast and I got so sick.So I am taking my time to get off of this horrible drug. Any comments would be appreciated. Thanks

. Welcome lucky l am glad you found us here.Could you please go to the top of the page click on profile and write down all the details of your taper etc it will allow us to see what you have been through and we will then perhaps be able to advise you better.Now if you are sensitive which you obviously are go as slow as you need to.The goal is to keep your withdrawal symptoms as manageable as possible.My advice would be to start learning coping strategies and practice acceptance.Withdrawal is never easy however you will get through this.love to you.X

[[St...]]

Hi LHSG people,

Generally, how long should you hold before making cuts on your taper? I was told 2-4 months is nothing unusual for Valium. I just want to know how long is too long to hold on your taper.

Dave. 

Morning Crow if l had the answer to that l could make a fortune on this site.Now if your withdrawal symptoms are manageable then you can make a cut.Stalbility doesn't mean withdrawal free it for me means it sucks less and l am somewhat functional.You are the only person that will know when you can make a cut.love to you.X

[[St...]]

Just had the most awful night. I couldn't fall asleep ( never happened before while on Diazepam).  Getting more and more anxious with increasing belly pain, because I had an appointment for a CT-scan of my colon on Tuesday and had to start drinking a contrasting fluid today to clean my colon. I read about the possible side effects of that fluid and got absolutely terrified.  I cancelled the appointment first thing this morning. Can't handle any extra anxiety right now. Made a new appointment to talk to the specialist early January. Hope things settle down a bit today. So extremely tired at the moment.  :'(

Morning Troch l am sorry you are not good today l would imagine last night was due to the fact you had your self worked up over the ct scan etc.l know any kind of stress is overwhelming in withdrawal.Now today is going to be a tough one so try to relax some.Go out for your walk and really try to distract yourself.Stay strong honey.love to you.X

[[St...]]

Good morning LHSG hoping everyone has a better day.

Morning lady Mary woohoo well done my lovely.Yes you went out and did what you needed to do and l believe you should do it more often.Yes you may get some blow back however sitting waiting for a change isn't in opinion a good idea.l really hope you have a decent Xmas hen.You deserve one.Miss you my lovely.love you my lady Mary HenX

Morning Twiny you have your babies for Xmas 🎉.l am so happy for you honey.Now you enjoy your Xmas honey forget about the damn taper.love you my lST X

Morning Final yes blah is the norm.You are doing well honey l do read here a lot of people having success with liquid however l think l remember you couldn't tolerate the liquid? Whatever suits you honey when it comes to tapering we have to find our own path.Thinking of you and love to hubby.Try to at least enjoy some of Xmas.X

Morning Suzy your eye still giving you trouble?l hope you are generally still suffering less?Try to enjoy your Xmas honey and forget tapering etc.You can do this.love you.X

Morning Intend Gilly Valley Free Janice Olive Bill GP Nova Miyu Esperanza NJ and everyone here wishing you all a bearable Xmas.love to you all.X

[[De...]]

Hi Stut,

Hope you are feeling ok. Hope all the cooking isnt stressing you out to much. It is good you are busy though takes your mind of things. I could be wrong but it seems to make sense. Feeling a little off, but I am ok. My left eye hurts so bad sometimes. I think it might be sinuses. My eyes are just so dried up red and sore andvwatery. . I do overall feel alot better pain wise. Still there but not as disabling. Love you Suzy

[[De...]]

Oh Troch,

I am so sorry you are struggling. I have to get a colonoscopy and I have been putting it off. I am just afraid of how drinking that flyid, not eating and being in wd us going to effect me. I know ppl say they feel really sick, but they havent had any problems.  I am sure you will be fine. Try not to read about the side effects you will just freak yourself out. You are going to be ok. Ly Suzy

[[St...]]

Hi Stut,

Hope you are feeling ok. Hope all the cooking isnt stressing you out to much. It is good you are busy though takes your mind of things. I could be wrong but it seems to make sense. Feeling a little off, but I am ok. My left eye hurts so bad sometimes. I think it might be sinuses. My eyes are just so dried up red and sore andvwatery. . I do overall feel alot better pain wise. Still there but not as disabling. Love you Suzy

Yes busy is good often sitting about waiting to heal is the problem.Have you tried drops honey?l do see a lot of people with dry eyes on this forum.l would sometimes have it however thank God it doesn't last long.ly X

[[De...]]

I agree. I dont wsnt to put my life on hold. It is hard but but dable and gives a srnse of accomplishment. I.have the sytane drops.  They are not working. I think.maybe an oinment might be better. I think the cold weather and heat in the house maked it worse. I am going to go to the store and get some different drops. The m9ney have have spent in wd omg. It is rediculous. 

 

[[St...]]

I agree. I dont wsnt to put my life on hold. It is hard but but dable and gives a srnse of accomplishment. I.have the sytane drops.  They are not working. I think.maybe an oinment might be better. I think the cold weather and heat in the house maked it worse. I am going to go to the store and get some different drops. The m9ney have have spent in wd omg. It is rediculous. 

Lol Suzy l haven't spent a penny lol.l thought when l came on this forum there would be great advice on things that would help during your taper l soon found out there was nothing worth wasting money on.Ask the pharmacist what would be the best thing and see how that goes.l would imagine it probably is one of those annoying things that you will just have to put up with.l hope you enjoy your day honey.love you X

[[De...]]

Ugh..I know now. Most of the stuff did nothing. I learnef my lesson.  A few things I bought helped a little.  But the best cure is time 

[[Tr...]]

Hi Stut and Suzy, things have calmed down a bit,  but the morning exhaustion was in a league of its own. Unbelievable.  After I had lunch, It went away. My abdominal pain is much better.  Now my back and legs are an utter mess. Aghh,  no rest for the wicked.

Hope we may all see better days soon. XX

[[Cr...]]

Hi LHSG people,

Generally, how long should you hold before making cuts on your taper? I was told 2-4 months is nothing unusual for Valium. I just want to know how long is too long to hold on your taper.

Dave. 

Morning Crow if l had the answer to that l could make a fortune on this site.Now if your withdrawal symptoms are manageable then you can make a cut.Stalbility doesn't mean withdrawal free it for me means it sucks less and l am somewhat functional.You are the only person that will know when you can make a cut.love to you.X

Hi Stut,

Thanks for the quick reply!

 

I'm trying to taper off 5mg, but the lower I go, the worse I get.

 

I have attempted to taper twice, without too much success. I hope I'm not going to be a horror story 

 

I have had: horrendous DP/DR; seizure activity; pins and needles everywhere esp. in the feet; frozen limbs; nosebleeds; fatigue like nothing I've ever experienced; a horrid, dark, chemical depression; a massive spare tyre that won't go away; complete exercise intolerance; air hunger; exhaustion; anhedonia; pacing; excess gas; muscle loss (annoying considering I trained at the gym 4 days a week); and feeling like I'm going to blackout 24/7 amongst many other symptoms. It's horrid!

 

I'm holding for 2-4 months per cut, as per my benzo-wise counsellor's directions. She is pretty good, and the organisation called Reconnexion (in Victoria, South East Australia) is helping me, as well as the people on this site. The organisation follows the Ashton Protocol rigidly, so they are pretty clued-up on benzo withdrawal. I like their idea of tapering. They even know what a DLMT is!!!  Benzo Buddies and Reconnexion have honestly saved my life.

 

If I didn't find BB, I'm sure I would have done a Cold Turkey, without knowing what a Cold Turkey was, and had horrible symptoms which I would think is my "anxiety returning". Of course, we now know it's the benzo.

 

For the admins reading my message, I want to make it clear I'm not doctor bashing here - we do need our doctor's, and most quite simply are uninformed of our benzo withdrawal. It is true that the majority of patients can come off benzos without trouble. We are just the unfortunate few who struggle (the 30%).

 

I want to take this opportunity to wish everyone a Merry Christmas, and a safe and Happy New Year in 2020! Keep fighting the benzo fight, and don't give up!!! 👊

 

[move]HAVE A MERRY CHRISTMAS AND HAPPY NEW YEAR IN 2020🎉🎊🎈🎁[/move]

 

Dave. 

[[ju...]]

Hi LHSG people,

Generally, how long should you hold before making cuts on your taper? I was told 2-4 months is nothing unusual for Valium. I just want to know how long is too long to hold on your taper.

Dave. 

Morning Crow if l had the answer to that l could make a fortune on this site.Now if your withdrawal symptoms are manageable then you can make a cut.Stalbility doesn't mean withdrawal free it for me means it sucks less and l am somewhat functional.You are the only person that will know when you can make a cut.love to you.X

 

hello stut, you said that "Stalbility doesn't mean withdrawal free it for me means it sucks less and l am somewhat functional". I have been functional in all the process, but for a person -it is me- who have hold at a current dose for 3 or months, some sxs are alternating the other. Until before one month my sx blocking me going was palps for 1 month, before then anx. Now it has been turn of deb. anxiety with tight face-throat-upper chest muscles. In other words, being functional is not just enough for me by itself. Am i wrong? I am just waiting for it to soothe a little...

[[Ma...]]

Hi LHSG people,

Generally, how long should you hold before making cuts on your taper? I was told 2-4 months is nothing unusual for Valium. I just want to know how long is too long to hold on your taper.

Dave. 

Morning Crow if l had the answer to that l could make a fortune on this site.Now if your withdrawal symptoms are manageable then you can make a cut.Stalbility doesn't mean withdrawal free it for me means it sucks less and l am somewhat functional.You are the only person that will know when you can make a cut.love to you.X

 

hello stut, you said that "Stalbility doesn't mean withdrawal free it for me means it sucks less and l am somewhat functional". I have been functional in all the process, but for a person -it is me- who have hold at a current dose for 3 or months, some sxs are alternating the other. Until before one month my sx blocking me going was palps for 1 month, before then anx. Now it has been turn of deb. anxiety with tight face-throat-upper chest muscles. In other words, being functional is not just enough for me by itself. Am i wrong? I am just waiting for it to soothe a little...

 

Hey June, maybe a better word is tolerable.  Having symptoms is probably going to be with us the whole taper, but if we can find a way to taper at the right amount, and be tolerable while doing so, well, that's pretty much hitting the jackpot.  Symptoms cycling in and out is pretty normal.  Take your time, slow works , hold if your body is saying hold, cut if you are stable.  Listen to your body.  Mary 💜💜💜