Can someone explain this? In year 2 & 3 symptoms are horrific waves too? Why?

[[Le...]]

Anyone healed ? Can you explain it this? Second year for me was something that I never expected, even my acute was walking in the park in the beginning! Now at the year 3 symptoms are horrific! Don't ask me do you drink alcohol or take another meds cuz I don't. Thanks

[[I ...]]

Sorry for how you're feeling. I hope you get some relief from all of this someday. May I ask a question?? I'm only 6 months off and since being on here and reading stories of people that have been off for so long and they've been hit with a wave , what are the symptoms that you feel??Most people dont mention symptoms they just say they've been hit with a wave. Just curious. Thanks

[[Le...]]

I can say that my last wave was 9 horrific months. From month 16 to month 25. My symptoms was total desperation, amazing depression, bedridden, muscles was stiff to craziness pulling and crushing my body, I had electric shocks and electricity lasting hours and after effects was brutall cramps so I was screaming from unhumane pain and daily torture. I was hypochondriac also crying a lot for no reason or from pain, super maniac, anxiety, body shakiness, weakness, fatigue, insomnia, electricity in the legs and scalp, swollen fingers and feets from too much cramps, peeing 15 times daily, white candida tongue, dryness, my whole body cracks like paralyzed cant move, chest pain, neck pain, burning skin, red rashes, tinittus, hair loss, diahrea, teeth tingling, dry eyes, hips and ribs pain, sweating, all my veins pop up, muscle loss, benzo belly, stomach reflux probably and others. And all this comes at month 16 off, all this hell torture 24/7 for 9 months.

[[TA...]]

The wave's can last month's week's day's. There is no rhyme or reason to them they just come and go as quickly. There is a wave that is known as the sixteenth month wave and can last some time. I am in one for a year now with the hard stiff belly pushing  pulling clenching.I did have this in the beginning but it went away .came back twice the third time now is a year..my left is worse  than the right.  It will pass for you . At ssixteen month's it sounds like the typical wave though it has lasted a long time.

[[I ...]]

I can say that my last wave was 9 horrific months. From month 16 to month 25. My symptoms was total desperation, amazing depression, bedridden, muscles was stiff to craziness pulling and crushing my body, I had electric shocks and electricity lasting hours and after effects was brutall cramps so I was screaming from unhumane pain and daily torture. I was hypochondriac also crying a lot for no reason or from pain, super maniac, anxiety, body shakiness, weakness, fatigue, insomnia, electricity in the legs and scalp, swollen fingers and feets from too much cramps, peeing 15 times daily, white candida tongue, dryness, my whole body cracks like paralyzed cant move, chest pain, neck pain, burning skin, red rashes, tinittus, hair loss, diahrea, teeth tingling, dry eyes, hips and ribs pain, sweating, all my veins pop up, muscle loss, benzo belly, stomach reflux probably and others. And all this comes at month 16 off, all this hell torture 24/7 for 9 months.

Thank you for your description and I'm so very sorry for your suffering. I really hope you turn a corner soon.

[[Ro...]]

I'm sorry this is such a confusing process and so hard. I can't tell you why. No one really can. We don't really even scientifically understand how these drugs work or how we have messed with our bodies by taking them. The whole neurotransmitter hypothesis is weak and being disproven, or at the most, is a greatly oversimplified picture.

 

The thing that has helped me be healed no matter what I am going through is focusing on what I can control. The thing that makes us really spin out is being stuck in the helplessness and hopelessness we feel when the waves come. Knowing how it all works isn't actually going to help that much, because you will still be suffering, either way. If you can get a hold of your thinking about the suffering, the root cause of it being that 'I shouldn't still be having symptoms," you can start to reduce your suffering about this reality.

 

This is what I do, day after day, hour after hour, minute after minute. Just know your body is healing from damage from medication. You can compare the physiology of it to a brain injury to your whole central nervous system. But, that won't give you any more control. We can just end up spinning out in feeling hopeless about that, next.

 

I've found that the real root of my suffering is always my inability to accept that it's just my experience right now. Can you turn towards the symptoms and understand you are healing? Can you turn to your frustration with not being healed yet and be kind to yourself for how much it sucks? Can you focus on the things in your life you can control? Like what you eat, how you exercise and care for you, during this very very hard process?

 

Sending you love. This stuff is hard. 

[[Aj...]]

Some of us can’t control anything.

[[Ro...]]

Some of us can’t control anything.

 

I used to believe this lie I told myself, and when I did, the trouble is that it always came true. What if you suspend that thought that 'some of us have no control' for just a moment?  Can you open to the idea that your fear system is messed up and lying to you, as a result, and challenge it? I came back from withdrawal-induced psychosis this way. One step at a time, I challenge everything my mind says 'I can't do.' It's almost always wrong.

[[Me...]]

25 months - my symptoms are all mental now. But they’re awful.

Also pregnant not sure if that makes it worse

Severe debilitating and unrealistic anxiety, agoraphobia, depression....

Almost would rather have physical symptoms (not really, those were hell too)

[[wi...]]

I can say that my last wave was 9 horrific months. From month 16 to month 25. My symptoms was total desperation, amazing depression, bedridden, muscles was stiff to craziness pulling and crushing my body, I had electric shocks and electricity lasting hours and after effects was brutall cramps so I was screaming from unhumane pain and daily torture. I was hypochondriac also crying a lot for no reason or from pain, super maniac, anxiety, body shakiness, weakness, fatigue, insomnia, electricity in the legs and scalp, swollen fingers and feets from too much cramps, peeing 15 times daily, white candida tongue, dryness, my whole body cracks like paralyzed cant move, chest pain, neck pain, burning skin, red rashes, tinittus, hair loss, diahrea, teeth tingling, dry eyes, hips and ribs pain, sweating, all my veins pop up, muscle loss, benzo belly, stomach reflux probably and others. And all this comes at month 16 off, all this hell torture 24/7 for 9 months.

 

I’m in an acute wave for 19 months now.. still going..I feel like I’m gonna die in 5 seconds..

[[br...]]

Some of us can’t control anything.

 

I used to believe this lie I told myself, and when I did, the trouble is that it always came true. What if you suspend that thought that 'some of us have no control' for just a moment?  Can you open to the idea that your fear system is messed up and lying to you, as a result, and challenge it? I came back from withdrawal-induced psychosis this way. One step at a time, I challenge everything my mind says 'I can't do.' It's almost always wrong.

 

I like your thinking. I challenge my mind and emotions every day and I see the benefits.  my  mind tells me to crawl up in a ball and not leave the house but I force myself to do the opposite bit by bit

[[Aj...]]

Some of us can’t control anything.

 

I used to believe this lie I told myself, and when I did, the trouble is that it always came true. What if you suspend that thought that 'some of us have no control' for just a moment?  Can you open to the idea that your fear system is messed up and lying to you, as a result, and challenge it? I came back from withdrawal-induced psychosis this way. One step at a time, I challenge everything my mind says 'I can't do.' It's almost always wrong.

 

Mine is inability to control eating like severe OCD with akathesia linked to stuffing biscuits in my mouth and my body literally crushing itself - literally. Can’t exercise because all muscles rigid like hard fibrotic rubber forcing joints out. Nothing helps it and I have tried and am trying everything for it, was on Benzos for muscle stuff. I have psychotic stuff too and phobia of whole world and sense of touch and sight are muddled up. If I was not being forced in to horrofic unbearable postures from whole body muscle contracture/dystonia I am sure I could help the other stuff with meditation etc. But I can’t.

[[br...]]

25 months - my symptoms are all mental now. But they’re awful.

Also pregnant not sure if that makes it worse

Severe debilitating and unrealistic anxiety, agoraphobia, depression....

Almost would rather have physical symptoms (not really, those were hell too)

 

I would have to imagine being pregnant has got it's own issues.  your body is going through a massive change . can't see it making it easier for you

[[pu...]]

this is a common complaint, you are not alone. you’ll

see people have said something similar on here many times.

 

i would say my second year was the absolute worst.

 

our bodies are completely warn out.

 

3 yeah was on and off bad.

 

once i reached 3 years out - things started getting better.

 

i am 3 1/2 out and doing pretty great considering.

 

i have more healing to do but the worst is far behind me.

 

hang in there it will get better unexpectly.

 

jeep distracted and maybe make some changes in your routine or

the way you’ve arraigned your furniture at home - all about switching it

up so something in life seems new.

 

i cold turkey ed in the worst way possible.

 

 

hang in there !!!

[Guest [...]]

this is a common complaint, you are not alone. you’ll

see people have said something similar on here many times.

 

i would say my second year was the absolute worst.

 

our bodies are completely warn out.

 

3 yeah was on and off bad.

 

once i reached 3 years out - things started getting better.

 

i am 3 1/2 out and doing pretty great considering.

 

i have more healing to do but the worst is far behind me.

 

hang in there it will get better unexpectly.

 

jeep distracted and maybe make some changes in your routine or

the way you’ve arraigned your furniture at home - all about switching it

up so something in life seems new.

 

i cold turkey ed in the worst way possible.

 

 

hang in there !!!

 

Thank you for sharing!

[[Ac...]]

this is a common complaint, you are not alone. you’ll

see people have said something similar on here many times.

 

i would say my second year was the absolute worst.

 

our bodies are completely warn out.

 

3 yeah was on and off bad.

 

once i reached 3 years out - things started getting better.

 

i am 3 1/2 out and doing pretty great considering.

 

i have more healing to do but the worst is far behind me.

 

hang in there it will get better unexpectly.

 

jeep distracted and maybe make some changes in your routine or

the way you’ve arraigned your furniture at home - all about switching it

up so something in life seems new.

 

i cold turkey ed in the worst way possible.

 

 

hang in there !!!

 

Agreed. 2 and 1/2 years and absolutely better than first year. Less repeating or intrusive thoughts (knock on wood) the last month or two. But now physical symptoms seemed to have popped up. Rib pain, throat tightness, etc.

 

Hoping 3 years out is even better than 2.