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Lisa Ling is on Instagram asking for people's stories!


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Posted

Hi all,

 

I was scrolling through Instagram and saw Lisa Ling's Instagram feed where she is publicizing her show on CNN this Sunday. She is asking for people to tell their stories so she can show them to healthcare providers so they can become more informed.

 

I saw some of the people posting and I am telling you WE NEED to tell the other side.

 

She may be on other social media feeds requesting the same stories, I don't know, I am only on Instagram.

I posted a little about my story and encourage others to do the same, if you are on social media (don't blame you if you aren't) and if you feel up to it.

 

 

:smitten: :smitten: :smitten:

 

 

Posted
There is some powerful stuff there. But she needs an avalanche. I think when she said she intends on getting this stuff in front of doctors is something she really means. The fact that her dad was injured has clearly gotten her incredibly invested in this. People want a potent advocate, why not a recognized journalist whose family was hurt and who has a platform and is asking for our help?
Posted

Exactly.

I believe that she is truly sincere because of witnessing her father's forced withdrawal in the hospital and because of Vicky Cornell (widow of Chris Cornell) sharing the story about Chris Cornell's suicide (which she believes is due to benzos).

 

I really hope the people who are up to writing a few words on social media would do so to spread the word. You're right. We need an avalanche of stories to make an impact.

 

I understand that it requires a lot of emotional effort to post on social media. People shouldn't do it if they will be affected negatively, but I hope people who can do it, will.

 

We need to really overwhelm the feed with stories of benzos devastation. She has great reach and many healthcare providers will be looking at this.

Posted
It might be helpful to provide a link and perhaps a short explanation of how to post to her instagram account?
Posted

Good thinking. I actually saw it on twitter.

 

 

The title of her post is, "Few stories have incited as much fury in me as the upcoming episode of #ThisIsLife airing Sun.  Do you have a story about Benzos? If so, please share. I’d like to direct healthcare professionals to read your responses.TY"

 

On Instagram its

 

https://www.instagram.com/lisalingstagram/

 

There you just click on the first photo.

Posted
She's getting a boat load of responses on that twitter feed!
Posted
My lazy analysis is that the people on twitter are hating on some Benzos, but a lot of people on instagram are scared theirs will be taken away.
Posted

My lazy analysis is that the people on twitter are hating on some Benzos, but a lot of people on instagram are scared theirs will be taken away.

 

Heh... that made me laugh.

Posted

Thank you TatorTot for pointing this out. I managed my first ever social media post ;D...it wasn't that difficult to navigate the process. This benzo/Z-drug problem has to made known...I'll do what I can in support of educating the public on how dangerous these drugs can be/are.

 

It's bizarre it's been happening as long as it has.

 

The Internet tells no lies, IF one looks hard enough for the truth, it can be found.

Posted
The ignorance in the comments section of her Instagram post is astounding. Where does this mindset stem from?
Posted

Quietquiet, thank you for posting the links! I think that is an excellent observation about twitter vs. instagram. I will have to check out her twitter.

I agree, it sounds to me that people are terrified of being forced off the benzos and people will think and say unreasonable things when scared.

 

I just don't want more people to suffer, you know? I don't want people to be in pain and benzos usually end badly on all accounts. I just want education and informed consent.

 

 

BlueRose, congratulations on going on social media and writing your first post! Its a big deal and must have sent flutters of nerves throughout your body. I only just signed back on to Instagram two weeks ago. I am going slowly and just "liking" things and occasionally writing a message, but for something like this, like you, I will stick my neck out. I wouldn't have been able to do this six months ago!

 

I cant believe this has been going on for fifty years, either. There MUST be some serious files and dirty secrets that are locked away in some FDA/pharma dungeon somewhere.

 

Posted
All praise to the whistleblower who releases that trove.
Posted

All praise to the whistleblower who releases that trove.

:thumbsup: :thumbsup: :thumbsup:

 

Lets' give that individual the Nobel Peace Prize, the Pulitzer Prize, the Presidential Medal of Freedom, the Academy Award, the Grammy, the key to all of our hearts, lol.

Posted

Thanks for providing links.  Admit I'm a little confused.  Isn't this "after-the-fact"?  Program is scheduled to air this Sunday, October 6, 2019 on CNN, in U.S.  How is anything anyone posts now going to be taken into account?  If our voices were to be heard, shouldn't this have been on her account back in, at least, August?  Not in television field, but I imagine it takes research/time to read through posts & decide what you want to include on-air.  Or, is  anything posted now merely as social media commentary, which, from online entertainment-based communities (not the actual social media sites), have witnessed that posts can easily just degenerate into arguments, (until an Admistrator finds out & closes the Thread)?  Does anyone believe posts, now, may lead to a separate series or follow-up on this particular topic?  (I believe it could definitely support at least a 2-part & more helpful, 5-part documentary.)

 

Oh...would have been nice to know about her appearance regarding this topic on Tuesday's (10/1) Dr. Oz; now (Thursday 10/3) after-the-fact.  Found on Lisa Ling's Twitter.  I was the one who'd requested Thread Topic of the special be highlighted @ top-right hand corner BB home page (alert), after discovering myself through another thread, which was only a week beforehand & grateful that you'd taken under advisement & did so.  Hopefully, now, all interested members are aware. -  Administrators...why isn't BB on top of these type actions & alerting members?  ???:o - Again, only found this, too, via link provided on this Thread... 2 days after the Dr. Oz appearance.  Had this been an alert I probably would have caught it; as I'm sure others' would, who may not be on instagram or twitter, either.  :):thumbsup: 

Posted
It’s not the administrators’ or this website’s job to alert us of anything. This is a open forum. Their job is to maintain a comfortable environment where member’s feel they can speak freely. It is our job to alert each other of any events going on in the news. This website has given us a platform to do just that and owes us no more than that. Heck, they don’t even owe us that, technically.
Posted

It’s not the administrators’ or this website’s job to alert us of anything. This is a open forum. Their job is to maintain a comfortable environment where member’s feel they can speak freely. It is our job to alert each other of any events going on in the news. This website has given us a platform to do just that and owes us no more than that. Heck, they don’t even owe us that, technically.

 

Oh...well, that's more abysmal news, but thanks for sharing (albeit in a bit heated/lashing out-sounding way).  -  This is also supposed to be a safe environment, where members needn't feel attacked, or a need to defend themselves.  -  I did post on How To Save Ourselves Thread that I think BB should be staffed w/medical professionals & IT people (salaried, not just volunteers; volunteers would serve for peer support).  Whatever.  I'm only 1 voice.  1 debilitated & weary voice.  :sick:

Posted
Yeah you’re right. I reread my post and it did come off that way. My apologies.
Posted

The ignorance in the comments section of her Instagram post is astounding. Where does this mindset stem from?

 

Fear and ignorance.

Posted
Those  are our people. Those are us, right before we found out what had been done to us. Of course their scared. I hope we can reach out to them or at least not fight with them. If it’s working for them, fine, good for them. We can let that be. We don’t want to start telling everyone that they are acrewed and have to quit. It’s not true and it won’t help. The last thing we need is some benzo user/withdrawaler internecine warfare. Pharma would love it if that was the story. This site shows how damaged people can work together. Every single day
Posted

Hi all,

 

I was scrolling through Instagram and saw Lisa Ling's Instagram feed where she is publicizing her show on CNN this Sunday. She is asking for people to tell their stories so she can show them to healthcare providers so they can become more informed.

 

I saw some of the people posting and I am telling you WE NEED to tell the other side.

 

She may be on other social media feeds requesting the same stories, I don't know, I am only on Instagram.

I posted a little about my story and encourage others to do the same, if you are on social media (don't blame you if you aren't) and if you feel up to it.

 

 

:smitten: :smitten: :smitten:

 

Why doesn't she just come here? Plenty of stories to choose from... plenty of pain, plenty of suffering, all things BZ withdrawal. One stop shop.

Posted
This place is mentioned in the doc (I've heard) so no doubt she or her people have. This is why I think having an edited collection of the "success stories" available for download or on Amazon could be really powerful. Have them out there.
Posted

Hi all,

 

I was scrolling through Instagram and saw Lisa Ling's Instagram feed where she is publicizing her show on CNN this Sunday. She is asking for people to tell their stories so she can show them to healthcare providers so they can become more informed.

 

I saw some of the people posting and I am telling you WE NEED to tell the other side.

 

She may be on other social media feeds requesting the same stories, I don't know, I am only on Instagram.

I posted a little about my story and encourage others to do the same, if you are on social media (don't blame you if you aren't) and if you feel up to it.

 

 

:smitten: :smitten: :smitten:

 

Why doesn't she just come here? Plenty of stories to choose from... plenty of pain, plenty of suffering, all things BZ withdrawal. One stop shop.

 

This is just speculation: It would not be as easy for the author(s)/producer(s) to control the script/agenda of the piece. Of course, there is also the profit motive associated with the publication of a copy write protected piece.

Posted
Yes the success stories are very important. The evil part about benzo withdrawal is that it strips you of your credibility. You come off as mentally ill and no one takes mentally ill people seriously. Every doctor I speak to now that I am almost healed believes everything I tell them. Back when I was in acute it was a different story. I looked homeless, was too sick to clean myself. I looked like a drug addict. Now that I am working again and amongst the same social class as the doctors to which I am speaking they take me very seriously. The problem is as we get better we want to put it behind us. But it is the one’s with success stories who have regained their credibility and must fight the good fight for those that they have left behind and for the sake of their children’s futures. It could be them next.
Posted
The dealings of publishing anonymous stories of people's deepest pain would be a legal and ethic nightmare for sure. It would take forever. How would you even get permission? Would you even need it it, legally? Since this is all anonymous? And in terms of television, it's not great material. No one wants to be read too. I really wonder what she's planning on doing with all those twitter/instagram replies. Mass tweet them to doctors? Expect them to look for themselves? I think she's got a burr about this issue, and really may try and do more with it. Her dad, its all about her dad.
Posted

Those  are our people. Those are us, right before we found out what had been done to us. Of course their scared. I hope we can reach out to them or at least not fight with them. If it’s working for them, fine, good for them. We can let that be. We don’t want to start telling everyone that they are acrewed and have to quit. It’s not true and it won’t help. The last thing we need is some benzo user/withdrawaler internecine warfare. Pharma would love it if that was the story. This site shows how damaged people can work together. Every single day

 

Thanks TaterTot. After I posted the comment above, I realized I had posted on Huffington Post (I think it was HP) right around when I became housebound in 2012, because of what these drugs did to me. But to the best of my memory that’s the only social media outlet I’ve participated in.

 

I too was disappointed in the mainly pro-benzo comments being posted on Lisa Ling's Instagram feed. But you are right, TaterTot, many of us were once in their shoes….ME included.

 

It is totally human to react with fear when a medication we feel is working just fine or at least well enough, is being exposed as the most dangerous drug on earth. :P

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