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Overstimulation


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Still at almost 16 months off I can’t go places. Driving taking my kids to get a root beer float o er stimulates my brain. I have to lay down and rest in the dark room. If I’m out longer than say 30mins the awful brain/seizure feelings come on like I’m going to die. Be thankful people if you can leave your house and semi function cuz I can’t. I’m stuck in my house all the time, anxious, weird brain sensations, ruminating 24/7, can’t concnetrate, irritability, can’t even pay attention to my kids, head feels like a heavy brick is in it, can’t even talk to neighbors without this weird brain fuzz coming over me then I feel detached and foggy headed. My life is a living HELL!! So if your able to go to stores, out to eat count your blessings. I’m preeety much just staying alive at the moment, not really living. I have about 50+ sympoms that are still present. I’m thinking of admitting myself to a hospital to either have more invasive testing done as it’s abnormal that simply driving to get a root beeer flora and back home makes me feeling detached, heavy headed, feels like stuff is going off in my brain and I’m going to legit seize. While driving to get root beer float, I couldn’t have my kids talk to me as I was so overwhelmed. I can’t live this way anymore, it’s getting worse. I did not know a human could suffer this way, oh ya come evening time I have to close all the shades when the sun is going down else my head pressure is awful, I feel like 10 bricks are in my head pulling me down, very very odd. Then come morning time when i wake up I feel I’ve been drugged, can’t even think, brain is mush and i feel delirious for a few hours after awakening. I ruminate 24/7 on what’s wrong with me. I feel like shit 24/7. I’m very concerned I’m slowly dying and or something else is wrong with me, at 16 months off I should be getting better.
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Hi

I’m so sorry you are in this condition.  From what I’ve read, unfortunately for some people it can take longer than 16 months to heal, especially if you are in protracted WD.  If you have severe symptoms that worry you, don’t be afraid to get checked out.  Otherwise it’s not uncommon to take a long time to heal.  I have a feeling you will start to see gradual improvement to more bearable symptoms soon.  You’ve done so well coming this far, hang in there and you will heal and it will be worth it!

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Still at almost 16 months off I can’t go places. Driving taking my kids to get a root beer float o er stimulates my brain. I have to lay down and rest in the dark room. If I’m out longer than say 30mins the awful brain/seizure feelings come on like I’m going to die. Be thankful people if you can leave your house and semi function cuz I can’t. I’m stuck in my house all the time, anxious, weird brain sensations, ruminating 24/7, can’t concnetrate, irritability, can’t even pay attention to my kids, head feels like a heavy brick is in it, can’t even talk to neighbors without this weird brain fuzz coming over me then I feel detached and foggy headed. My life is a living HELL!! So if your able to go to stores, out to eat count your blessings. I’m preeety much just staying alive at the moment, not really living. I have about 50+ sympoms that are still present. I’m thinking of admitting myself to a hospital to either have more invasive testing done as it’s abnormal that simply driving to get a root beeer flora and back home makes me feeling detached, heavy headed, feels like stuff is going off in my brain and I’m going to legit seize. While driving to get root beer float, I couldn’t have my kids talk to me as I was so overwhelmed. I can’t live this way anymore, it’s getting worse. I did not know a human could suffer this way, oh ya come evening time I have to close all the shades when the sun is going down else my head pressure is awful, I feel like 10 bricks are in my head pulling me down, very very odd. Then come morning time when i wake up I feel I’ve been drugged, can’t even think, brain is mush and i feel delirious for a few hours after awakening. I ruminate 24/7 on what’s wrong with me. I feel like shit 24/7. I’m very concerned I’m slowly dying and or something else is wrong with me, at 16 months off I should be getting better.

 

At 16 months I was still bed ridden. So, it can always be worse. I was bed ridden or house bound for 3 full years. After that I had to be very careful for two more years. At 5 years the skies finally cleared.

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H - Have you ever tried ear plugs?  I bought some very discrete clear ones that are hard to notice.  It doesn't block the sound it just turns down the volume so to speak...  I have a VERY hard time even now without them.  I use them at stores, weddings, work meetings, movies restaurants etc... Makes an enormous difference.
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[2e...]
You'll improve very slowly.... I was in the same boat back at 16 months. Can't even believe i survived it. Complete insanity. Very sorry you're in the middle of it!! Keep your attention ahead, you'll get there
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